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May 2017 chemo starters

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Re: May 2017 chemo starters

Mai good luck fofor tomorrow will be thinking of you xxx

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Re: May 2017 chemo starters

Thanks Katie. Xx

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Re: May 2017 chemo starters

Thanks ladies. I think most of my anxiety is psychological, I guess it's vanity really but you only have to switch on the TV to see cleavages being pushed at you all of the time creating expectations of how the female form should look!  It's hard to switch of from these ideals at times.  I'm having a radical mx with full lymph node removal to the left side.  No recnstruction allowed but may be reviewed after a year.  Treehouse and Heather, hope you are both feeling better soon.  I don't have any bra expanders! 😱  Shi, glad you have managed to keep out of hospital and hope you continue to do well. I'll update you when I'm awake after surgery. Thanks for all your support. Xxx

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Re: May 2017 chemo starters

Thinking of you for tomorrow Mai! It will all be over quicker than you know xx

Hope heather and tree house feel better soon x

Good luck tomorrow Jay!

Everyone else ok? Trish, wolfee, rosie, Annie? Xx
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Re: May 2017 chemo starters

😘😘😘for tomorrow mai. 😘😘😘hope you feel better soon treehouse. Love to everyone shi xx
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Re: May 2017 chemo starters

Hi Mai.been thinking about you.
Yay to the caravan pyjamas. Made me smile wearing them and all the nurses commented on them. bra extenders are a must. My husband baught all that Poundland has to offer. I have 9 in all sizes!!! Bless him.
I also took portable phone charger.
How long are you in for and what are you having done?
I struggled to eat and was rushing to the loo every 5 mins. That’s my nerves!!!
Hugs πŸ€—
I would do it again. But I understand your anxiety.
I have had a stinking cold all weekend. Managed to go out for lunch with family for my eldest sons 14th birthday. But I have spent most of the time on the sofa under a blanket with a million tissues. Oh and the migraines are back.
Really hope I am through the worst.
Seeing surgeon for second check up on wed. If she is happy I will chase up gynaecologist and get on the list for ovaries.
Any other appointments this week?
Keep going ladies xx 😘
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Re: May 2017 chemo starters

Mai, wishing you lots of luck tomorrow, you got this and we are all there for you! Bet you will be up at 2.30am for a slice of toast and a cuppa as you know you cant eat after that!

 

I am much better today, still got sore throat but no aches this morning. Tramadol made me feel drunk and I couldn't feel my body, very strange experience but slept well.We went to watch fireworks last night , was really lazy and we sat in the car with a view of a big organised display.  No one wanted to be out in the cold and walk through all the mud after the rain.

 

We have got used to me having 12 spoons of energy every day and when its gone its gone. Everyone is asking more if they can help rather than me asking for help. Sharing out simple jobs teaches the boys for the future.

 

Heather

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Re: May 2017 chemo starters

Evening Ladies. Hope you've all had a lovely weekend. β˜€οΈ We just had a long walk locally and now I have very achy legs! I've just finished packing my little suitcase for morning: caravan PJs, 4 different bras (I know!) my poo cushion πŸ’©, flip flops, wet wipes, lip balm, green tea bags, socks and pants, front buttoning top, dressing gown with internal ties. I think that's it apart from toiletries to pack in the morning.  I have to be at the hospital at 7am! 7am goddammit! 😡 no more food after 2.30am (who get up at 2.30am to eat?). I think it's time to come out of my shell, like pretty soon! 🐒 Eek!

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Re: May 2017 chemo starters

Hi Meesh, I had four EC. My original treatment plan was six FEC-T, but once I met with my Onco he decided the F was old fashioned and would be of no benefit, and the T (  Docetaxol ) would be too harsh. I managed 4/6 EC before my treatment was stopped. I'm 70 and found each course more difficult to recover from. The chemo is in a bolus, so a nurse injects it. Takes about 30 mins. The flush takes another 30. I had GSF injections in my tum, to keep my neutrophils up. These got gradually lower each course, so I was prone to infections. I walked each day when I could. I changed my diet to mainly fish and veg, and felt very healthy. I lost 20 lbs. in weight as I lost my appetite as the regime went on. The steroids do play havoc with sleep patterns, but you just need to listen to your body . Keep your fluids up, and keep on top of the pain. Make sure you take all your anti sick pills. The Docetaxol is particularly harsh, and often has side effects like thrush, ulcers and nails coming off. You should have no problems like that, fingers crossed. X

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Re: May 2017 chemo starters

Hello everyone, I thought I’d just update you on my progress as I’ve not been on here a while.

 

Had 3/6 Taxol on Friday.  Feeling absolutely fine on this regime.  Only niggly side effects are nasty taste in my mouth and mild chest pains, slightly heavy thighs and bone ache.  I’ve managed to do 2 lots of shopping in town with my daughters (one 3hr Shop!) It’s been lovely to just be outdoors pottering about the shops and stopping off for cups of tea and naughty cakes.

 

I had a meeting with the plastics team this week.  Everything is still on track for DIEP operation.  

They were pleased to see I still had a sizeable tummy to harvest from for my new boob! My operation will be on 2nd January or 9th January.  Will get confirmation next week. So I get to have a chemo free, post op free Christmas!!! πŸŽ„... I have been told to do exercises between now and operation to strengthen my core, which will help post op. 

 

Next Tuesday I have a CT scan on my abdomen which will help them see what route they’re taking to harvest what they need and where to avoid cutting through muscle. 

 

Next Wednesday I have a makeover session held at the hospital which will help me fix my poor disappearing eyebrows!! It’s run via the Macmillan staff and Clarins.  Apparently the goodie bag they hand out is ridiculously large and filled with freebies.  My 18 year old is very excited for some unknown reason! πŸ€”πŸ˜‚

 

Its good to see so many of you doing so well.  For those with annoying niggles let hope they disappear soon!  And everyone who’s not doing so well, please be kind to yourselves πŸ’œ

 

xx

 

 

 

 

 

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Re: May 2017 chemo starters

Heather - sorry to hear your feeling so rough.  It sounds like bed and rest and good nutritious food may be what’s needed.  Don’t push yourself to do anything until you start to feel better.  Big hugs x

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Re: May 2017 chemo starters

Suffered with really bad aches and pains all afternoon, finally gave in and took a Tramadol tablet which took 3 hours to work. It feels like aches you get with a bad cold, couldn't lift my arms above my head and hurt to walk. Now pain free and off to bed. Throat is still a bit sore but not too bad. I honestly thought I would feel like this on chemo but never suffered this badly, not sure why I have it now but at least I know I can can control the pain if I have it again. Wondering if it is just my body finally starting to recover and rebuild itself after chemo damaged so much of it! 

 

H

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Re: May 2017 chemo starters

Hi Katie - how are you doing?

 

Unfortunately it's not my planning appointment on Monday - it's the first appointment with onc/radio specialist since my operation (7 weeks ago this Tues).  I'm hoping it's regarding rads and not just herceptin follow up!  At the moment I know nothing officially about rads only what the bcn said over the phone.  

 

Enjoy the bonfire and fireworks - the drizzle was supposed to have stopped in our area but I don't think it has - our son is off with his friends to a local bonfire/firework display tonight.  

 

xx

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Re: May 2017 chemo starters

Hope you are feeling better heather!

Jay you should get all your appointments at your planning appointment. I was asked when I went in if I wanted morning or afternoon and when i finished up they were all printed out for me. How many are you having?

I'm going to try lasagne mai sounds lovely!

We are braving the drizzle and cold and going to a bonfire tonight ! Hope everyone else ok xx
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Re: May 2017 chemo starters

Heather

Sorry to hear of your sore throat and aches - I hope a weekend of relaxing will enable things to repair and you feel better very soon.

I do enjoy a brie and canberry panini - the combination is so delicious. Today I had a beetroot and feta cheese spinach wrap for lunch from Asda - the flavours worked so well together - so moreish.

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Re: May 2017 chemo starters

Thanks Mai - I'm definitely going to give this a try - sounds really delicious.

We had a tortoise when I was a child named Humphrey - he only ventured out when no one was looking too...! x
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Re: May 2017 chemo starters

Daffodil 

 

I had my flu and pneumonia jabs this morning.  They said one in each arm - but I explained couldn't have any in my right arm following surgery.  Therefore I was given both in one arm 2cms apart!  So far so good - no effects?!

 

Ouch with the thumb nails - I can only imagine the discomfort.

 

Really am hoping I get some idea of dates on Monday - I really want to put this year behind me and move into 2018 with a fresh mind.  

 

Hope you're having a good weekend too. x

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Re: May 2017 chemo starters

Mai I love the tortoise. I used to have a picture of a tortoise with the caption:
Maybe I'm lucky to be going so slowly, cos I may be going in the wrong direction.
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Re: May 2017 chemo starters

Morning all.

 

Thanks Mai for the recipe, will give it a try. Hope you feel better Treehouse and you do!clears up soon. I have a sore throat and feel like I have aches but had flu jab a few weeks ago so just hoping manuka will keep everything at bay.

 

Had a busy day yesterday with Mum visiting briefly, doing jobs in town and then we went out for lunch to the garden centre. I had brie and cranberry panini and salad, kind of healthy but have missed soft cheese on chemo so had to have some!

 

Have a lovely weekend, may all your SE be over fast! 

 

Heather

 

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Re: May 2017 chemo starters

Morning ladies not very nice out today it's damp and freezing cold ugh! A plus when you are not going out I suppose! No fireworks for me this year on a countdown toll SE leave me I know I'm impatient I'm only day 4 😝
Keeping a got eye on temp etc no injections again for me they stopped on the T bit so will be doing blood dancing πŸ’ƒπŸ’ƒπŸ’ƒπŸ’ƒπŸ’ƒ from today till I'm out of the danger zone!! Apparently it's day 4/5 to 8 on this one!!
Hoping you are all well and feeling good treehouse I hope that horrible cold clears up soon xx
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Re: May 2017 chemo starters

😘mai. 😘treehouse hope your cold clears up and you feel better soon. Wishing everyone a good weekend and hope all se’s ease soon. πŸ’•πŸ’•βœ¨βœ¨shi xx
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Re: May 2017 chemo starters

Love you Mai xπŸ‘πŸ˜ŠπŸ€—
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Re: May 2017 chemo starters

Hi Ladies, just popping out of my shell to share the spinach and mushroom lasagne recipe: put spinach, chopped shiitake mushrooms and chopped garlic in bottom of dish, add a layer of lasagne sheets, 2nd layer of spinach, mushroom and garlic same as base layer, add another layer of lasagne sheets. Pour a white or cheese sauce (one you prepared earlier) over top layer of lasagne sheets (make sure it covers all of the lasagne to seal it. Sprinkle grated cheese (I used Sainsburys grated vegan cheese) over the top. Bake at 200dc for 35mins. 

Hope you are all doing well. Xxx

image.jpeg

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Re: May 2017 chemo starters

Thank you treehouse. Think this experience may teach me patience as I have none and want thus to get over asap πŸ™‚

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Re: May 2017 chemo starters

Tree house, I hope you feel better soon.

Jay, get that flu jab. Had mine. To answer your question, no reconstruction yet. I need radiotherapy to the chest wall and a bit above the clavicle. Had nodes removed, but only 7 identified. Apparently a lot shrink during chemo so are too small to be counted. As long as they were all clear, I am happy. 

I am losing my thumb nails. They are just attached at the top of the nail but I don't want to rip any flesh so will wait for them to come off without help. Uncomfortable though.

Jay, hope you get your dates on Monday and that we will be done with radiotherapy soon.

Have a good weekend, everyone.

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Re: May 2017 chemo starters

Meesh hi welcome to our special group. I’m really sorry I was not on fec I am Her2 + so had
THP-C. X6

I am sure someone will have some words of wisdom for you. Sending you love and hugs as you plod through the Chemo tunnel and wish you all the best. Delays are common and very frustrating. Be patient and remember you are not alone x x x x x x x
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Re: May 2017 chemo starters

Hello May Ladies! I'm from the October thread, Shi has told us how amazing you ladies are. Just wondered if any of you have been through 6 fec treatments and what we can expect from the later treatments? A lot of ladies seem to do fec-t but there are a few of us in oct thread that are just fec. If anyone could help that would be great! πŸŒŸβœ¨β­οΈπŸŒŸπŸ¦„

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Re: May 2017 chemo starters

Treehouse hope that you are feeling a little better soon do you still have to be vigilant about Temps now after chemo and surgery feel bad that you have caught a bad cold there are loads going around atm I feel like I'm having to avoid everywhere where the germs could be lurking!!!
Only another couple of weeks acting like I should be in a bubble 😨😷
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Re: May 2017 chemo starters

Hope you feel better soon Treehouse.  

 

I've got flu jab tomorrow morning - almost can't wait to get it done before some germ hits me!

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Re: May 2017 chemo starters

Treehouse β€οΈβ€οΈβ€οΈβ€οΈπŸ’ƒπŸ»πŸ’ƒπŸ»πŸ’ƒπŸ»πŸ’ƒπŸ»πŸ•ΊπŸ•ΊπŸ•ΊπŸ•ΊπŸ˜˜πŸ˜˜πŸ˜˜πŸ˜˜πŸ’•πŸ’•πŸ’•βœ¨βœ¨βœ¨sending you hugs, lots of love and hope you feel better soon dance too. Love you shi xx
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Re: May 2017 chemo starters

Thanks for reassuring words ladies. I have gone to bed with a back ache and bad cold.
Temp 37.9.
Feeling rough. Wishing I had gone for the flu jab earlier πŸ€’πŸ€§πŸ€’
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Re: May 2017 chemo starters

Treehouse sending big hugs about the lump you have found really hope it's just your body settling down after surgery

 

mishy my nails are more sore from last chemo and one of my nails is really disclosured and feels like it is lifting off the nail bed 😐

 

Mai your food sounds delicious and well done on the working I take my hat off to you all that are back at work 😘

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Re: May 2017 chemo starters

😘😘😘made me 🀣🀣🀣🀣treehouse I know you are a sweetheart. ❀️❀️❀️❀️love you and glad you’ve been out and had a lovely walkπŸ’ƒπŸ»πŸ’ƒπŸ»πŸ’ƒπŸ»πŸ•ΊπŸ•ΊπŸ•ΊπŸ’•πŸ’•βœ¨βœ¨βœ¨shi xx
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Re: May 2017 chemo starters

Hello Daffodil - lovely to hear from you again!  I'm pleased to hear the fluid has stopped building up.  Did you have any reconstruction and did you have all lymph nodes removed?

 

You seem to be in same position as me - given the all clear from cancer but still having rads - do you know what area(s) your receiving rads to?  

 

I've got my rads planning meeting with onc on Monday afternoon and  I'm really hoping I will get some idea of dates - I'm at that stage now of wanting to get back to "normal" but knowing more treatment is waiting round the corner!  Still must be patient and appreciate I'm not urgent priority.

 

I do hope you get to have your trip away to Italy.

 

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Re: May 2017 chemo starters

Eek no shi sorry. Just that it was called sparkle.
I will shut up now 🀐
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Re: May 2017 chemo starters

😁😁😁treehouse never been likened to a barking dog before, but hey if that’s what I remind you ofπŸ˜œπŸ˜œπŸ˜œπŸ˜œπŸ’•πŸ’•βœ¨βœ¨shi xx
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Re: May 2017 chemo starters

Hi Shi. Was just thinking of you. Went for a lovely sunny walk with my mum and a dog πŸ• came running and barking at us. The woman told us its name was sparkle πŸŒŸπŸ‘
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Re: May 2017 chemo starters

Hi ladies, we’ve just had a confused daughter post on Oct thread, your very wise words of wisdom and comfort would be much appreciated, she is trying to help here recently diagnosed Mum. Thank you all so much. πŸ’•πŸ’•βœ¨βœ¨shi xx
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Re: May 2017 chemo starters

Hi all, sounds like we are all doing ok today? Mai your lasagne does sounds delicious. Is there a recipe of just your own?

I decided to do some christmas shopping this morning and make the most of argos 3 for 2 offers! Now back home for lunch and cup of tea! Feet up x
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Re: May 2017 chemo starters

Re lymph drainage: I wouldn't use the word rub. You need very light feathery strokes. Brushing is a better word. The idea is just to stimulate the lymphatic vessels in the skin. Little gentle movements are the thing. And yes always upward towards your core where the bigger drainage channels are.
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Re: May 2017 chemo starters

Makes sense jay.
Well for the first time in 3 weeks I am wearing my own top( been wearing husbands large tshirts as easy to put on)
In a smooth bra, everything looks good. Size is fine ( I used to wear booster bras for my tiny little A cups) and they are quite high although I was told they take 6 months to get to their final resting place.
To the rest of the world I am a normal ( fluffy headedπŸ˜‚) woman.
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Re: May 2017 chemo starters

I was told that direction is from hand to shoulders. I have always body brushed esp my legs as gets things moving and on legs helps cellulite. Imaging a tree from end of branch to trunk for both arms and legs.

 

Also skin movement such as moisturiser, rub in one direction from hands to shoulders and never up and down arm. Have to treat it like a one way street with hands behind dead end!

 

H

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Re: May 2017 chemo starters

Thanks for the rubbing tip jay. Had not thought about direction!
Trish it must be more of a concern with daughters. We have to give them all the information we can without scaring them.
X x x x
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Re: May 2017 chemo starters

Mishy Sorry to hear the SE's have started to kick! Hopefully they won't hang around for too long. Keep up with the fluids, especially water - I'm sure they play a large part in keeping everying working and helping to keep the body temperature down.

I'm 10 weeks from final chemo and I still rely on the epsom salt baths for aches and pains! which are now caused by the herceptin injections! My finger nails have survived well - they are slightly discoloured and have a ridge across them but this is slowly growing out - the ridge is now well over half way up my nail now. I still keep my nails polished - but when I do remove it I give myself a little manicure with lots of nail cream and udder cream before re-polishing. I'd lost my hair, there was no way i wanted to loose my nails too!!
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Re: May 2017 chemo starters

Treehouse. Just looked at my breast and looks ok I can tell it's a bit wonky but the scar on the edge of the areola. Looks bit odd. I have 3 daughters 16, 21 and 23 but Surgeon said they are to young to worry??? I was 30 when my mum got BC and I wasnt told anything. grrr x
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Re: May 2017 chemo starters

Treehouse - ensure your rubbing in the correct direction! I was informed by bcn that you should rub towards the armpit from the elbow.

I must admit - taking off the bra nowadays is even more pleasurable than before bc days....
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Re: May 2017 chemo starters

Morning H

I agree this could be a problem if you sleep on that side all night but generally moving from side to side throughout the night shouldn't cause a significant problem I would have thought. Now it's getting comfortable for me to sleep on my affected side, I find myself moving from side to side without consciously knowing about it - how could you stop this happening?
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Re: May 2017 chemo starters

Hi Trisha - I too had DCIS as well as lump - they discovered mine after mammogram which showed up calcification behind the nipple of the affected breast - they carried out rather invasive biopsy whilst in the mammogram unit and this showed DCIS - following this discovery they decided I needed chemo first and surgery MX - secondly.  Following surgery, my pathology report showed complete clearance - apparently the chemo had done it's job and the mx ensures it can't ever come back!!   

 

I didn't appreciate it was a gene - I understood from surgeon, as Mishy says above, they are pre-cancerous cells which COULD turn cancerous. 

 

What is the next plan of action for you?

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Re: May 2017 chemo starters

Morning all SE have started to kick in 😨 finger nail beds are sore and the aches and neuropathy pains had me up most of night think Epsom salt bath for me later!!
I have managed to dodge the sickness just a little nausea on the evening not too bad though x
I'm hoping my temperature behaves this time too!
I'm being extra cautious this time around as want my last one to go smoothly 😊 without any hiccups!
Trisha I had DCIS too as well as original lump which I was surprised about they told me after surgery but the removed mine as like you say it's classed as pre cancer cell growth it's actually called ductal carcinoma in situ which basically means it hasn't started to grow that's how they explained it to me Trisha my onc says it's nothing to bad but they do like to remove it anyway xx hope that helps a bit all hospitals seem to do things differently regarding surgery but mine did remove mine x
Treehouse hoping your feeling better now x mai that lasagne sounds lovely x
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Re: May 2017 chemo starters

Heather I know what you mean about drainage. I often wonder if my bra is too tight and I take it off for an hour or so each evening and gently rub near my armpit hoping to encourage drainage.
X x x