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May 2017 chemo starters

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Re: May 2017 chemo starters

Hi Shi
Ok the rule for paracetamol is always take your temp first.
If you don’t have a temp and are struggling with pain take paracetamol. If that is not working try Epsom salt baths. Massage and speak to onc as mine gave me super strong co codamol which made me feel spaced out. Day 3-8 are generally the worst. I always improved after last injection. Some people used hay fever tablets than helped ( sorry can’t remember which ones)
If the temp goes up or you just don’t feel right call the Chemo help line. They really don’t mind.i think we all made a call at least once.
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Re: May 2017 chemo starters

Wolfee, I only had 7 nodes taken as well. I was told they were level 1 and 2 nodes and that there is a 3rd level. I had 2/7 with cancer. I think they try and leave you with nodes if they can. I'm picturing it like a tree. The sentinel node(taken with the lumpectomy), then more 2nd level then even more 3rd level. That's what I hope anyway.
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Re: May 2017 chemo starters

Morning ladies. Been up early for hospital appointment. Cold seems to be improving although husband seems to have got it now.
Registrar had a look at boobs and seems happy. I showed him the little pea lump and he was clueless and went to fetch my surgeon. She got the ultrasound out and decided it is either a stitch or a bit of fat forming a cyst. Either was I was told not to worry about it and back in a month.
If they are happy I am happy.
As bilateral mastectomy boobs go I am more than happy.
Thank you Amazing NHS
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Re: May 2017 chemo starters

Hi sorry to ask and drag up past memory for you can someone please jump on Oct forum and give us a day by day guide of when to take paracetamol etc after t chemo, just so we will know a bit better what to do on each day to try and cope with se’s and what to look out for so we know when to ring rapid response etc if somethings not right. Quit a few of us swapping to t at start of Dec as we’ve had a 3x3 rather than the 4x4 That a lot of you bravely got through. Thank you so much as always and sorry to come to you all again for help. πŸ’•πŸ’•βœ¨βœ¨shi xx
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Re: May 2017 chemo starters

Good luck Trisha your a tough cookie you can do it sending hugs Mai hope you are feeling better today and getting home soon yeah Christmas that's a fact I'm not going to ever worry about that again.. Nit having presents blah blah blah... I have survived this and want to continue to be loved healthy and happy with people around me who are important to me stuff the presents my best present this year is my bloody life thank you NHS πŸ’–
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Re: May 2017 chemo starters

Just want to shout out to TRISHA - good luck my lovely for surgery today - hope all goes well and you're back home before you know it.  Keep us informed when you're feeling up to it.  xx

 

Also, I really hope Mai gets the go ahead to return to the comfort of her own home and bamboo duvet very, very soon and that she comes back to us on here with a big smile of relief knowing that section of the journey is behind her and she's moving on towards the finishing line with the rest of us brave ladies.... x

 

To everyone else - sending love and good wishes for a bright and beautiful day - I'm off to work for my two hours today... eekks! 

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Re: May 2017 chemo starters

Mishy - very true, very true..... and if I'm totally honest I'm already becoming frustrated about Christmas this year - a question frequently asked "what do you want for Christmas" - personally, I just want to be fit and healthy and never have this awful disease invade mine or indeed anyone's life in the future please - that's what I want..... x
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Re: May 2017 chemo starters

Rice pudding... Treehouse, I have a large tin of that in my cupboard and it's the one thing I just can't fancy since finishing chemo - I lived on the stuff for the week after chemo!!

It's true after surgery and starting to feel better you have time to reflect - not always a great idea! 9 months is a hell of a time and when you realise what you've been through it suddenly makes you stop! - but be proud - hold head up high and carry on.... you're almost there..! Herceptin injections - a doddle(?!?!).....!
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Re: May 2017 chemo starters

Hi Wolfee - I know 40 - even my bcn still can't believe he got that many!! It could be - although I agree it seems a small number - did you ask if they'd taken all?

In my case, they took all 17 of mine - 1 they knew had cancer (from pre-chemo CT scan and biopsy) there were 4 more on the pathology report which although no longer contained cancer did look suspicious?! But as they're all gone now no need for rads in that area.
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Re: May 2017 chemo starters

Good morning Daffodil - thanks for that reassurance - it's not me going mad!!  I too had the painful tightness in my upper arm and the bcn thought it could be a bit of cording - that was weeks 3/4 post surgery - she gave me advice over the phone to really push with the stretches on the exercise sheet and gently stroke the arm from the elbow towards the armpit (one direction) - with a little moisturising lotion.  I must say after a week of doing this the arm became less painful and tight and now week 7 my arm is absolutely fine and working well.  If tired or been doing lots, I do get the golf ball feeling in the armpit then  I know it's time to rest up!!

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Re: May 2017 chemo starters

Treehouse I think when we are going through treatment you dont have time to digest what you are going through, my thoughts are that once you do have time to reflect on what you have been through it is huge and you need to release all those emotions, I think each of us will go through this if we haven't already
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Re: May 2017 chemo starters

It's a hell of a long time isn't it treehouse I think it's hard to comprehend at times just what a thing we have all been through, even though all our treatments & surgery are slightly different we have one thing in common, bc and how it has crept up behind us when we weren't looking and invaded our bodies, we had no time to think about anything before we all had to be pulled into this cycle of πŸ’© ops & gruelling treatments which left us feeling unwell and emotional without any time to draw a breath before we had to start all over again!! It's still not over for a alot of us (treatment wise) but I do think that when we do get out at the other side of all of this we will be stronger better people than we were before πŸ’–
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Re: May 2017 chemo starters

Actually wanted to eat something tonight.... rice pudding ( another Chemo favourite)
I am now in my caravan pjs.
Really hope tomorrow goes well Trish. Sending lots of love and hugs.
Thinking of you Mai. Hope you are being well looked after and the nasty anaesthetic has worn off.
Much love Amazing ladies. I think the last 9 months has finally caught up with me and is starting to sink in. Wow 😞πŸŒͺβ˜„οΈπŸ₯ŠπŸš¨
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Re: May 2017 chemo starters

Jay, omg imagine 40 lymph nodes.
So do you think it’s possible I only had seven lymph nodes in all of my arm. It just seams a very small number. I know its me being paranoid probably !!
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Re: May 2017 chemo starters

Evening all.

Jay I also have that elastic feeling and feel the need to stretch. But I also have some slightly painful tightness up my arm that may be a bit of cording according to bcn. 

 

 

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Re: May 2017 chemo starters

Andi mai says thanks. Jay I’ve text mai to let her know lasagne gets πŸ‘in your house tonight. Trish good luck with surgery. Treehouse that’ll be lovely to get bathroom done. Our new kitchen got put on hold this year because of this coming out the blue in June. So very happy that you’ll be getting your new bathroom finally done, something nice and new for you to enjoy. Wolfee 😘hope you are ok. Love shi xx
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Re: May 2017 chemo starters

Wow Mai's lasagne recipe was a huge success in this household!  Even the 14 year old boy didn't mention lack of meat!!  I did add mixed peppers and took away the garlic as hubby not too keen on garlic but it was so delicious would definitely recommend.  Thanks Mai. x

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Re: May 2017 chemo starters

Hi Treehouse - when I've been sitting for a bit and then get up I get an urge to stretch as it feels as though an elastic band has set up and needs stretching - bet that sounds weird?!  It's not painful just uncomfortable and goes once I move around and bend!

 

The pains you describe are probably due to internal bruising coming out.

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Re: May 2017 chemo starters

Buddy fan I had 4 fec and 4 tax and my nails went really bad after last chemo and seemed to go worse with the tax, I have a couple of nails that are starting to lift ans they are all painful.

Treehouse sorry to hear you are feeling so poorly.

Trish good luck with your Second surgery xx
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Re: May 2017 chemo starters

Jay what did you mean about elastic band feeling?
I have had pains in my torso sort of between ribs
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Re: May 2017 chemo starters

Mishy - πŸ’– roasted sweet potato!!! Especially when it’s being cooked by someone else! πŸ‘πŸ»

 

.... and your predictive text ..... absolutely sure no-ones offended!!! πŸ™‚

 

 

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Re: May 2017 chemo starters

Ooh how exciting!!! πŸŽ‰πŸ›€πŸΌπŸŽ‰The New Year sounds like a good plan, that way you get a less disruptive Christmas!! 

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Re: May 2017 chemo starters

Andi your husbands meal sound Delish love the sound of the sweet roast potatoes mmm 😊
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Re: May 2017 chemo starters

Pre diagnosis ( this time last year) we planned to do up our bathroom 🚽. ( knock through to an ensuing to make a bigger room) We had bought the πŸ›€ bath, loo sink etc and then I got ill and the idea of disruption through Chemo was a big no no! They have been in our garage for a year!!!!!
Plumber has arrived today to have a look and give us a quote.
Very exciting.
Not expecting it done before Christmas tho.
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Re: May 2017 chemo starters

Thanks for the nail info ladies.
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Re: May 2017 chemo starters

Really sorry read my last post and noticed predictive text said I had an eating disorder 😲 hope no one was offended thinking it was a joke in very bad taste! I must learn to read posts before posting πŸ’–
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Re: May 2017 chemo starters

Treehouse - desperate measures me thinks!!! πŸ˜‚ I did do a double take! Got to love the NHS!! 

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Re: May 2017 chemo starters

Sharps bin !? πŸ˜‚
I hope it was empty.
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Re: May 2017 chemo starters

Treehouse - bless you! Can totally sympathise with you. Yes cannula’s being fitted in air conditioned rooms doesn’t work 😁 I had my arm put in a sharps bin at one point with hot water up to my elbow today and they still hid!!! Anyway, pleased today’s out the way xx

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Re: May 2017 chemo starters

Shi - thanks for the update lovey, glad to hear Mais feeling more β€˜normal’ bless her.  An extra night in hospital is not a bad thing if she’s got low blood pressure.  Send her my love and I hope she manages to get a restful night.  Hope your keeping well too!!! πŸ™‚ xx

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Re: May 2017 chemo starters

Andi I feel for you!!!
I have had 2 CT scans and my first one took 4 people to put a canular in. The main reason is that the scanner needs to be in a cool room and my veins hide in the cold.
I mentioned this to the Chemo nurse the second time around and she booked me an early appointment so I could have the heat pack and expert put the needle in. My veins were not happy after 6 months of Chemo!! A bit late now. I know x x x c
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Re: May 2017 chemo starters

Hi everyone, update from mai - they are keeping her in extra night, bp a bit low. She’s had a softie fitting and is starting to feel normal. Her fingers are a bit swollen. She’s going to hide her πŸ’© in case someone tries to steal it as it’s a Bristol Chart Perfect πŸ’©. Sends her love to everyone and good luck to everyone with ops and appointments. Love mai and shi xx
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Re: May 2017 chemo starters

Jay - dinner sounds lovely, I’m sure Mai would give it the thumbs up!   My better half has the reins in the kitchen tonight, chicken wrapped in Parma ham with roast sweet potatoes/veggies.  Not eaten all day thanks to my hospital appointment.

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Re: May 2017 chemo starters

Mai - sending you lots of get well wishes for your recovery xx

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Re: May 2017 chemo starters

Rosie - how lovely to get away with your friends! Remind me, what date is your s*****y?

 

today I went to have my CT scan ready for my operation (confirmed for 9th January).  

 

It took over 2 hours and 4 members of staff to access a large vein.  They tried literally everywhere up my right arm.  I’m absolutely bruised all up it.  I ended up in tears and nearly fainted as I’m not one for needles at the best of times.  It makes me sound like a lightweight but it wasn’t a nice experience. They (senior consultant radiologist) finally got a vein on the underside of my wrist.  Due to it being in this area, when they injected the dye it was extremely painful for 55 seconds.  Had they not got it I would have had to have rebooked and they would have used an ultrasound to locate my veins and use a machine to access the vein! Doesn’t bare thinking about. Small mercies they got what the needed to do today!

 

xx

 

 

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Re: May 2017 chemo starters

Wolfee I had only 4 lymph nodes removed. All clear ( we think as pathology report had an inconsistency and they had to email him to check!!!!)
No rads.
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Re: May 2017 chemo starters

Thank you Andi x
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Re: May 2017 chemo starters

Wolfee - I'm now waiting my planning appointment which will hopefully be next week.

I think having had your nodes removed during surgery means no rads needed there - apparently we're all very different with regard to lymph nodes - I had 17 removed, my friend 19 and one of my surgeons patients had 40! So I wouldn't worry that only 7 have been taken - maybe that's all you had! The onc explained to me yesterday rads to the chest wall blast above where the lymphs were removed and below - so no lymphs will escape treatment!

I do hope you get a quick referral to lymphadema specialist, is there anything you can do whilst waiting? Remember if you gently stroke your arm towards the armpit it helps with drainage.

Following mx and complete lymph removal surgery did anyone experience elastic band feelings in the torso?
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Re: May 2017 chemo starters

Trisha,   Wishing you all the very best for tomorrow - will be thinking of you xx

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Re: May 2017 chemo starters

sounds delish!x
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Re: May 2017 chemo starters

Well ladies - I'm attempting Mai's lasagne this evening for dinner - looks good already and it's only in the preparation stages at the mo!  Making a focaccia to go with it - wish me luck! 

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Re: May 2017 chemo starters

Treehouse - sorry to hear hear your so unwell.  Glad to see you’ve your mum around to keep you fed and watered πŸ‘πŸ» You’ve been through so much, just rest now, get as much sleep as you can too.  You will get through this πŸ’œ 

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Re: May 2017 chemo starters

Thanks Wolfee xx You ok?
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Re: May 2017 chemo starters

Trisha - thinking of you. Xxxx
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Re: May 2017 chemo starters

So glad Mai is recovering. Poor thing being sick I hope she manages to keep her food down and get Home.
Well done Mai xxxxx
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Re: May 2017 chemo starters

No I don’t think i am having my arm done. My radiotherapy is only 3 weeks (15 sessions) and no boster week at the end I was told mastenctomy doesn’t need booster?! I have had three tattoo dots they are tiny. One dot in middle of what was once described as cleavage area and then one each side of Breast area on the sides.
I know chest wall all neck are being done. They have never mentioned arm. I had 7 lymph nodes removed in total (including the biopsy ones at the beginning) only two had cancer in them. My surgery was supposed 2 have been full clearance so it still worries me that they only took another 5
However. My hand and fingers are so swollen and sore that I’m almost glad no radiation because I think this swelling is already lymphadema. I’m waiting on my referral to specialist
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Re: May 2017 chemo starters

Maybe you should see the GP or ring the hospital could be your body reaction to everything it's been through over last months! It has been through some massive traumas Treehouse I'm sure you all will probably at some point get a cold this year what will hit us like a brick
All over have done today is eat I'm day 7 today and although food tastes of nothing in particular I'm starving so hence the eating disorder anyone else sneeze alot during their chemo I do it all the time but haven't got cold!!
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Re: May 2017 chemo starters

Treehouse, sorry you're still feeling so poorly. You know the drill, check your temperature just in case there's an infection, but in any case, as the cold symptoms have persisted so long, maybe think about seeing your GP? Or phoning the breast nurses? Don't suffer in silence, you deserve some extra care and cosseting after what you've been thru.

Buddyfan, I didn't really notice nail problems until after my final T, which was 3 wks ago. My fingertips are very tender, and the nails look very bruised, or rather, the nail beds. None of them have come off so I'm still hopeful. Keep your hands well moisturized with udderly or Aveeno, especially around the nails. Try tea tree nail oil, you brush it on a couple of times a day, it moisturizes the nail and helps protect from infections. (Get the specific one for nails, as pure tea tree oil is too harsh.). If you let it dry for a few minutes you can then use nail strengthener and/or polish. I'm still using dark polish to protect from UV, and anyway it hides the streaky appearance of the nails. Also avoid any harsh chemicals on your hands, wear gloves for everything!
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Re: May 2017 chemo starters

Big hugs treehouse x
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Re: May 2017 chemo starters

Good job you've got an appt with surgeon tomorrow Treehouse - that should ease your worries and hopefully you'll find the migraines will improve - they can be caused by stress. x