Hi I am starting chemo on 9th May at Nottingham City Hospital. Having 6 x FEC-T. Anyone else about to start and wants to compare side effects?
Tatyana, you are doing really well to come on here in the week before your surgery and talk about things. I hid in my shell and didn't want to talk about it. Like Heather, I also didn't have any dressing on the site when I woke up, just internal stitches and external glue. Was told to avoid getting it too wet for four weeks so no long soaks in the bath. I made sure I had a long soak the night before surgery!
Heather, well done you domestic goddess you! Glad you now have the movement and energy to get things done. I'm ok for making a cuppa and loading and unloading the dishwasher so far. I'm right handed and surgery was on the left side so that helps.
The outward exercises are quite a challenge and I have about 45 degree movement on the one where you lie on your back and put your elbow out. It feels like it's going to take ages. I feel a twanging sensation with certain exercises. Is that the stitches or scar tissue pulling, anyone? Did anyone else have desensitisation exercises for the triceps? I have to stroke 4 different texture fabrics in upward movements over the tricep area which helps to calm the nerve endings as my tricep area feels quite bruised and sensitive.
Tatyana, I had right side Mx, no recon, no drains, 1 night stay in hospital as allergic to blue dye. Triple neg, aggressive little lump! I didn't even have dressing on wound when I woke up, very weird.
Mishy, being TN too it does scare me with reoccurance but you just have to get on with life, the moving forward course has helped me. TN responds the best to chemo compared to other BCs so keep that in mind.
Hope everyone else is well. Decided to start working on my never ending to do list today - defrosted freezer this morning, chilli in slow cooker for tomorrow tea, wardrobes and drawers being sorted...
Hi Ladies, indeed this is all very scary stuff but then life is full of uncertainty. Having a scary disease, at least you learn to appreciate what you do have. I have anther Physio appointment through for next week and Oncology appt next Thurs to discuss starting rads. Took my first Tamoxifen pill this morning! Tatyana, just take it easy after surgery and keep up the exercises but don't put too much effort into them. Your body will naturally tell you how far to go. Treehouse, glad your heart rate has come down and you're getting over the cold. WolfEE, hope rads planning goes better than time. Rosie and MisyAngel, gentle hugs and hope you are recovering well. Mishy, yes talk therapy may help, I have an appt to see my GP next Fruday to discuss moving forward. Jay, terrible news regarding your dads cousin.
Hope you are all doing well in spite of it all. 💗
Tatyana - Can’t believe how quickly everyone’s operation dates come round. I know what you mean about entering the terror zone. I’ve already started quietly flapping about it and I’ve still got 7 weeks to go before that happens. I think each new situation we are put through, each one brings apprehension, but we’ve all proved that we can get through them. So next Thursday is just one of those new situations which you will get through lovey because you are strong 😃👍🏻
Misyangel - it’s good to hear your healing really well and like the results!! Definitely no washing up for you and your nails!!! Glad hubbys about to pick up the chores 👍🏻
I love your positivity and that you are on the other side of your surgery! You certainly get the medal for longest surgery. And your family get one for getting through the wait.
So pleased your out of ICU and have a nice quiet room to yourself. Time to take things nice and easy now as you recover.
I’ve got chemo today, then one more session after that 🍾 My DIEP op is 7 weeks away 😬
Sending you hugs and best wishes xx
Treehouse glad your heart rate has come down
wolfee hope the rads appointment goes better today after yestersay
rosie hope you are recovering well, I was only gone two hours longer and my family were so worried so really feel your family
I am healing really well, my hubby took dressing off yesterday and it looks good, I am also not having much discomfort and have stopped the codine last night. My nails are more sore lol, feel like a few are lifting and they are giving me more grief as it's surprising how you catch them 😆
Good morning Treehouse - so relieved to hear your heart rate has stabilised and fingers crossed the bug is going.... have you got to visit the dentist now to get the teeth looked at?
I feel the same as you -the future will be very different as research is happening all the time and progressing rapidly. As you say being HER2+ would have been a very different story 10 years ago. None of us should think too much about tomorrow - today we're here - unfortunately, life has taught me a harsh lesson, I've seen people close to me, who have died suddenly with no real warnings.
Recent news local to where I live - a lady out driving last Friday afternoon having been out with a friend for lunch - killed instantly by a driver who had committed a burglary at a private residence and stole the car, following the crash he fled the scene - however, police have located him and have him for questioning. Turned out the lady who sadly died was second cousin of my Dads - absolutely tragic.
Thanks for sharing the link Treehouse. Interesting article and I should be eligible for the drugs according to the criteria. Hope your heart rate stays down.
Shi, I didn't know teletext was still available!
Wow, Rosie, that is an unbelievable surgery time. Sorry things didn't go to plan but glad you are Ok and out of icu now. Take it easy and I hope you sleep well. Gentle hugs to you. Xx
Treehouse, I'm clinging on tight to those clear margins. I'll cling to anything I can right now. Yes, we will definitely meet up next year. Maybe we should private message on that one for organising?
WolfEE, I read the Tamoxifen leaflet on here and it suggests that it can be given after surgery or during radiotherapy or after radiotherapy so I wouldn't get too hung up on not starting yet.
I think you want your results to reveal some certainties but they don't and that is the uncertainty that we continue to live with. No one can give us a magic probability because we are all unique individuals.
Well seems like things haven't gone to plan for a few of us this week.
I spent 13 hours in theatre and have come out with one DIEP flap boob and one implant. And spent the night and most of the day in intensive care. I'm on the ward now, but am happy that I've had my mastectomies, got two new boobs and a lovely flat stomach.
My poor family we're going out of their minds with worry while I was blissfully unaware.
It seems that possibly due to procedures to my tummy previously - oopherectomy, c section some of the tissue used didn't take despite the best efforts of the surgeons.Although they will never really know why it failed. They are unhappy and want to rectify the implant but I can't contemplate that at the moment!!!
I have my own room, own toilet and shower and a tele. So really can't complain, should get a good night's sleep at least.
WolfEE, sorry your rads didn't go to plan but hope all goes well for tomorrow. Hugs. I think we have such a lot to cope with and if things don't go exactly to plan we go a bit wobbly and anxious. It's understandable that you should feel gutted. Xx
Hi Ladies, hope you are all doing well. 💗 I got my surgery results this afternoon. I felt vibes of uncertainty rather than positivity. I had clear margins around the tumour which was 5cm of cancerous tissue but 9cm of abnormal tumourous tissue. A total of 12 nodes were removed of which 9 were positive. Apparently some of the nodes shrivel up with the chemo so they just remove those left. I sound similar situation to you WolfEE? Can't remember how many nodes you had positive though. I was also given a prescription for Tamoxifen which I will start taking tomorrow. They consider my risk of recurrence to be high (a partcularly nasty locally advanced cancer) so just have to wait and see. Trying to be optimistic but have to be extremely vigilant about my body now and go to the GP like a paranoid hyperchondriac! Drinking my 3 green teas a day, having some kale for tea!
Thanks ladies - herceptin injection number 4 went well. Wish I could have avoided the one hour and 15 minute wait for it!! At least I had my Dad with me for company and conversation!
Hope Mai got on well and well done to Shi for FEC no 3!
I wonder how Rosie is? - painfree and enjoying a good rest hopefully x