Hi Ruth, I only did 2 cold caps as my hair started falling out at about 4 weeks. I shaved and now after finishing my chemo in September have new growth. Slow but there!
Hang in there and best of luck!
Ruth, I didn't cold cap but had a very sensitive head after 1st FEC. This was when my hair started to come out. The feeling I got was like a sunburnt scalp. It was so bad that I had my hair cut very short to relieve the pain. The weight of my hair just moving as I walked or moved my head was bad.
The cold cap isn't guaranteed to prevent hair loss. My hair started to grow back, after having a buzz cut 2nd chemo then all falling out, at the end of cycle 3 of FEC. Now 3 months since last T and have a short pixie cut which I really like.
Can't remember who tried cold cap on this thread, seems ages ago since we all started!
Thank goodness for that Treehouse, someone finally saw sense. Long stay with fast pulse requires a separate room for quality sleep to help keep you calm. Why are they so easily administering happy pills when it's obvious that the problem is lack of uninterrupted sleep? I'd be balling with sleep deprivation! I just hope you manage to keep that room now. Sweet dreams my lovely. 💗 ☁️ Xx
Mishy fingers crossed you get it, let me know how you get on. I was on another thread and a lady on there got told she couldn't apply for it which I think is wrong anyone who goes through cancer treatment should apply. It is said that the fatigue from the chemo can last two years and also look at poor treehouse who is now poorly with something else I think it is best to get this in place and you don't have to worry about finances. When I was first diagnosed because I had been laid off the month prior I was only able to claim esa and we really struggled financially for the First 3 months and because I had never claimed in my life I didn't have a clue what we were entitled to, it took me a lot of research and filling forms in but it was so worth and my pip took 17 weeks to sort out, I applied in July and finally had confirmation in October and it was all backdated
Shi, the whoopee cushion sounds like a better plan! 💨 😂
Rosie, glad to hear you are doing well and enjoying the business of doing nothing. 👍🏼 How are you getting on wth Physio? I'm really starting to push out of my comfort zone and getting better movement. I can now get about 80degrees on elbow to head exercise so only 10degrees to go. I still find touching the top of my head pulls painfully of my armpit but just have to keep pushing through the pain barriers. The Physio is like a surprise assault course thrown into the triathlon!
Andi - good to hear from you, sorry to hear you have vertigo. Just another thing to contend with! Hope it clears up soon.
I’m busy doing nothing, surprising how much time that takes!
Had lots of visitors yesterday, so with all morning getting ready and an afternoon/evening of visitors that was my day. It gets much easier every day and you can go out for a walk, not far, but it is nice to get out.
Love the salmon and cucumber cake Mai. Very artistic
Oh treehouse I really feel for you. So glad you decided to stay with the forum. Although we have never met I do feel that we all now have such a bond formed since May, more so than some people I’ve known for years.
Hopefully they can give you your own room even if just for a short time to process what’s happened away from the glare of other patients. When my daughter was born and seriously ill I had my own room for a week when things were really bad and then moved to the warded she improved.
Not sure why I had my own room after my latest op, either because of the spell in intensive care or the fact they had no beds on the ward. I slept much better at night though, still noisy and breast checks every half hour with ultrasound to make sure my new boob hadn’t died!! But own toilet and shower was great, you most certainly deserve it, hope it can be arranged.
Thinking of you and sending all the good luck vibes I can to get you home before Christmas.
Heather I would go to citizen advise as they complete the form for you and the lady I saw was an expert at filling them in and was disabled herself. When you fill it in you have to do it for your worse days and not how you feel day to day, I was lucky as I was going through chemo when I completed mine and they don't come and assess you at home when you are having treatment. It is well worth applying for and see what happens, I was also allocated it for 3 years which means I don't have to rush back to work and because I was allocated the pip it also meant the working tax credits it a higher payment because of this.
Misyangel, my PIP form is in the post to me and just wondered what you put on it to claim the payment. I have difficulty with my hands and walking first thing in the morning and if I have been sitting for too long.
Shi, the senokot advice: funny but bad advice! When I had diarhoerra I just ended up having to use a commode as they had no single rooms free, so that strategy may only result in dehydration and pooping behind a curtain! I think its worth pushing for a room if you want one with the longer stay. 💗✨xx
Treehouse so sorry you are back in hospital...so rubbish you are in a ward...sleep is hard at the best of times but when you are disturbed so much worse...speak to your care team ...you are a strong lady am thinking of you and hope you get some rest today🤫
Treehouse how awful for you and I think it makes things 10 times worse when you get no sleep, you could try bose noise reducing headphones, I put audio books on my ipod and fall asleep listening to them which blocks everything out,
Andi71 what a great idea to have a year off, I was lucky in the sense I was laid off the month before diagnosis and I have made the decision to not to look for work until the herceptin finishes which is August next year (I didnt want to be starting a new job and telling them I need time off every 3 weeks for injection) but I then said to my husband that I may not go back until after xmas next year and would like a few months with no treatment or hosptial visits before resuming normal life. Also I managed to apply for PIP in July of this year and was allocated that in October so I have no rush now to get back to work, and also beause my husband works we have also been able to apply for Working Tax Credits which means I am essentially getting paid more than when I was actually working which is crazy. 1st Herceptin Jab is a bit stingy, I have my second one on Tuesday but they supposed to be coming to my house to do it but still not had confirmation yet, so I could be going the hopsital who knows lol
Treehouse, sending hugs. I know what's it's like to be in hospital and prodded and poked in tthe middle of the night with noise and light disturbance and yes, it's tough at times when you just want to sleep. A simple thing, sleeping yet so complicated in hospital. I recommend the earplugs and an eye mask to give yourself some reprieve from the noise and light pollution. When I was last admitted I was woken by the woman in the bed next to me moaning to the nurse about the woman opposite snoring! I thought to myself, I think your moaning to the nurse is worse than the woman snoring, at least she doesn't know she's doing it! It starts to drive you batty with all of these noises and you just want everyone to shut the *bleep* up and go to sleep, including the nurses! Like Tatyana said, this too shall pass. I think you're going to need your guided imagery meditation. Xxx
Treehouse, you have made me cry because I feel so sorry for you having to be stuck in hospital for so long with such annoying room mates. If you are in for so long they need to find you a room on your own or prescribe sleeping tablets. Please mention it to your care team, rest and sleep are also part of the whole package to make you better along side the meds they give you.
Sending hugs and doing a 💃 for feeling better and lots of sleep.
Andi, sorry to hear you have vertigo and hope it gets better soon. Is it something you've had before or is it a post chemo apocalypse thing?
Jay, lovely that you caught up with a good friend. When you're with good company egg and cress is all you need!
Treehouse, you can do this and you will get through this. I know it feels like the rug has been pulled from under you again but you now have a diagnosis and you're in the right place to get better. Just be kind to yourself. Hugs. 💗 ✨ xx
No I didn't go Black Friday shopping! I decided instead to meet a friend for lunch after I'd been to work and she treated me in Marks & Spencer cafe with a egg and watercress sandwich and a delicious mince pie all washed down with a fresh apple juice! It really was a lovely little treat!
Got back to my car at 430 - so a bit of a lengthy lunch!
So pleased to hear your bra fitting went well Katie.
Lovely to hear from you Andi sorry you've got vertigo - i've heard that's really horrid.
I do hope Treehouse is feeing brighter.
How did your 2nd rads go Wolfee - long journey by taxi - how did it go?
Mai - just trust your instincts and try not to worry about it all too much - life has got to be fun and enjoyed now! I'll be interested to hear about the blood test results for menopause - I really do hope those monthlies don't return for me....!