Have any of you ladies requested a copy of your pathology report? Or just discussed it when you met oncologist. Was wondering whether it was worth getting a copy before my surgery follow up with onc.
Was looking at when I need to return to work today as full pay will run out soon. Looks like if I have a phased return the days I’m not in count as sick absence. I didn’t realise that so will have to be careful not to reach the limit but don’t think could cope with full time straight away.
Rads 8/15 done today. Skin is doing well so far but I have quite a bit of pain on the edge of the scar near the armpit. Feels bruised and tender. I think all the coughing I've been doing hasn't helped. I'm trying to stalk my Oncologist via his secretary at the moment to get on a clinical trial whilst I still have a window of opportunity to meet the entry criteria. It's for ER+ HER2- "high risk" (lump over 5cm, more than 4 nodes positive). It's called MonarchE if anyone else is interested and meets the criteria.
Mishy, that must have been very upsetting to hear and I can't imagine how hard those cries must be for the parents. This ugly f@#%^*g disease. Xx
Jay, I thought I was back at work today, realised I didn't feel well enough when I woke up, rang my boss and discovered I should still be on holiday anyway! Good thing I didn't feel well enough to go in or I'd be the only one there! Some people just don't know how to enjoy themselves when given an opportunity to do so! 😂
Treehouse, hope you are still on target for the great escape! Xx
Shi, hope you are doing well now the steroids have worn off. 💗✨
AnnieA, I'm sure deciding on what's right for you for work will be important in keeping your health a priority. I think staying in work can be good for wellbeing as long as it doesn't add stress and if getting the balance right means reducing your hours then so be it because without your health you have nothing. Xx
Hi Mishy. Hope you are ok after your rads today. Must be heart breaking to hear a child go through it, and I feel for their parents.
Dont worry now about going back to work. Just concentrate on getting through rads. I finished chemo 24th Aug and went back to work 6th Dec. Although I wasnt 100% I used holiday for Dec and just worked 3 hrs one morning a week. Is this something you could do to extend your time off? For me it has been ok doing this, a gentle lead in to work then proper phased return starting tomorrow for 4 weeks. It has really given me 8 weeks of phased return which I think I really need.
My hands are sore, joint pain and stiffness and my legs and hips hurt if I sit for too long. My concentration span is about 10mins!
Back to school and work tomorrow, shame the holidays weren't longer, have enjoyed staying up late, getting up late and relaxing!
Hi ladies I just wanted to wiish you all a very happy new year. Thanx you all for the support and encouragement throughout the most testing Time in our lives. I’m starting 5he new year having to male big decisions about my job and what I think the future holds for me but I’m sure whatever conclusion I come to will be the right one. Wishing you all love, health and happiness x
I must admit to feeling the same Heather - when it struck 12 and I heard the chimes - I felt so relieved 2017 was gone - hello 2018 - hello to the new ME!! Happy New Year xx
Wishing everyone a Happy New Year!
I read somewhere recently " the best view comes after the hardest climb". We certainly have done some climbing last year.
Ladies, thank you so much for all your support, understanding and encouragement. I am so pleased that I met you all!
When Big Ben struck 12 last night I cried and cried. My youngest son asked what was wrong, I said I was so relieved 2017 was over. He just hugged me and cried too!
Popped back in to see how you are all doing. Thrilled and inspired by your posts. Almost a year now since I found my Mr. Lumpy, and can't say it's been anything other than bl**dy. But....this years another year, so, here's to life, laughter and the friends who got us through. Fight on, wonder women. 😍🍷🎉😘
Wishing all of you strong, courageous, wiser women a 2018 filled with moments that bring you happiness and laughter and only positive people to share your time with, and a kick ass attitude to anything that challenges you.
As a very dear old friend of mine aged 80 said, ‘It’s our time to be selfish, we’ve had our scare, now it’s time to do what you really want to do with the people who you want to be with’. ...... couldn’t agree more!
So when I say ‘Wishing you a very happy New Year!!!’ I truly mean it 💕 do what makes YOU happy!
Im pleased that the majority had a wonderful Christmas. I thought I’d get a tiny bit of a workout on the Wii with the family playing the sports games 😅 Forgot how knackering that can be! Treehouse you are a real trooper! With all this circuit walking your doing in hospital, the patients and staff will begin to think your an undercover security guard
🏃♀️💪🏼👮🏻♂️😉😂 keep it up!!
Ive finished at work now. I’m going to miss so many of the staff, they are genuinely lovely people. We had a quiet Christmas the 4 of us and the day just flowed so easily and loved every minute of it. Boxing Day we ventured to our closest friends for lunch and a 3 mile walk! It was great to be outdoors but the soles of my feet are shot! Honestly don’t think I can improve them. 7 weeks post chemo the soles of my feet hurt, akin to walking numerous marathons. So yesterday we popped into town and my mission was to buy the comfiest shoes/trainers on the planet. Ended up with 2 pairs of Sketchers trainers (memory foam Soles) and Echo for a pair of shoes. I’m hopeful it’ll make walking easier. Although woken up this morning and the blighters were sore before even getting out of bed 😩 Will be trying out a pair of the new footwear today to venture to Hobbycraft with eldest daughter for bits ready for her going back to Sixth form tomorrow.
It’s a toughie this whole New Year thing, but I think everyone on here doesn’t quite know what the future holds. But then you see joe public who is cancer free for now doesn’t know what the future holds. We just have to try and put our worries into a box, and step forward into our cancer free journey that awaits us. It’s a time to embrace what we love, try out new things and be fearless in everything we do 😃
JAN 9th - my mastectomy operation and recon - bring it on!! 💪🏼
🍾🍾🍾✨✨✨✨✨✨ Wishing you all a VERY HAPPY NEW YEAR!!!! ✨✨✨✨✨✨🍾🍾🍾
I also wish everyone a healthy and happy 2018. Let's put 2017 behind us and look forward to getting back to normal lives again.
Thank you all for your support on this journey. Love to all.
Agreed Jay, we will all be glad to see the back of this year.
Wishing all of you and your families much health, happiness, fun and laughter in 2018. The positives from this year has been getting to know you all. Your support and friendship throughout has been invaluable.
Happy new year to all you beautiful ladies. Feeling tad emotional myself today and I think it's reflecting on what we have all be through this last year. I am going to the local pub with my inlaws as my father in law is terminal we don't know how long he has so we are making an effort to go out and make some memories 🍾🌈❤️ Enjoy all whatever you are up to xx
We're going to be lighting this tonight as an "up yours 2017" extravaganza: 42 shots at the alien that is cancer! May even be accompanied by an epic classical symphony! There will be just me and OH and my Son. Music now selected:
Shi I would be quite happy to help in any way if I can re preventative testing for gene mutations. Also they only offer annual testing until you’re 50 even for high risk. In fact they stopped my annual mammos at 48 and moved me to 3 yearly so I got a letter to go for mammogram at 51, 2 weeks after my bc diagnosis. I’ve mentioned how wrong that is loads of times but BCN and consultants just shrug their shoulders.
The reasons why my sister didn’t want to be tested are complex, some I understand, some I don’t. She was 29 and afterwards never really spoke about it and at the time cancer wasn’t really discussed like it is now. We are really close and she has obviously felt really guilty since my diagnosis. There’s been a lot of tears and soul searching!
Mishy think you’re right it’s a combination of the end of treatment and end of the year that can make you very emotional.
Shi, breast cancer doesn't leave any markers in the blood, hence why there is no blood test like some other cancers. I've read the most promising so far is using saliva as this does have markers for active BC. However, it probably has to be developed into a cost effective and reliable process first before the NHS can consder it. The breastcancernow.org site is brill for the latests thought tanks around BC. xx
Rosie, I'd be pretty annoyed at my sister if I were you but it's healthy to let these thing go as getting bitter doesn't help you. Who know why humans do what they do! Xx
Anniej, lovely to hear from you and glad you are staying positive. What treatment are you on for secondaries? Sending hugs. Xx
As we're all nearing the end of our cancer treatment roads, pathways and journeys we need to focus on our tomorrows and put our past, especially the last year behind us - don't lock it away, it's good to remember the highlights - the lovely nurses and medical staff that we've all encountered, the friends and family who have been amazing - and, of course, the great friends we've become on this forum - I think we've all found great comfort from each other and I know I'm extremely grateful for this. Thanks ladies x
No one - just no one knows what is around the next corner - you just have to embrace each day with positive thoughts, a positive mind and move forward with small, slipper steps and I'm quite sure that we will all get used to our new "normal" very soon!
Wishing you all the best for the final two days of this "crazy" year! xxx
Bed hair is fun isn't it Treehouse! I'm experiencing the same, however, novelty wears off when I try to do something about it - mine really does have a new mind of it's own!! Enjoy your time at home today x
Heather - I was convinced my family had BRCA gene years ago and had genetic counselling in 1998 and again in 2011. They said I needed a family member who had bc to have the blood test and I asked my sister but she refused both times. The more I mentioned it the more she dug her heels in and wouldn’t talk about it.
In 2011 after another close relative died from ovarian cancer I asked if I could have double mx and recon and ovaries removed as preventative measure. They agreed to oopherectomy as screening for ovarian is unreliable but said they wouldn’t remove healthy breasts unless I could prove I had the gene so had annual mammograms instead.
I’ve now had the op I wanted all along but had to get bc first! I’m pleased my other sister and niece who have now tested positive have the chance to have preventative surgery but feel a bit cheated that I wasn’t able to do so
I really need to put it all behind me now so hoping that in 2018 I can start to move forward!