Sending love to everyone for Valentine's Day. 💖
Katie, I was referred for counselling from radiotherapy as it was my last treatment. Definitely recommend it, I think you just need to pour everything out and have someone make sense of it all and help you get out of the psychological cage you have built. X
WolfEE, oh dear, not a good day for you with surgical malfunction and potentially delayed recon. Sending hugs and hope a good nights sleep will help. Xx
Heather, sending hugs for your cancerversary flashbacks and hope work stress eases off. X
Treehouse, try not to panic, I'm sure it isn't what you'd hoped for as a romantic evening and is the last place you want to be right now. Sending hugs and hope they dont keep you long. Xx
Andi, happy birthday and I hope you've had a lovely day. You deserve the best. Xx
Jay, so what happens after a year of Herceptin injections? Do you go onto Herceptin pills or is that it? Hope your ticket is alright. Sending hugs. Xx
So chuffed to hear your mammogram is all good!! Such a relief!! I totally get your feelings of trepidation being sat in that waiting room waiting for the moment to go in again. I felt like that whilst I was waiting to see my surgeon to get my post op results. I felt really bad for the women around me who were potentially at the beginning of their own nightmare. It was pretty obvious to them that I was a cancer patient who hair was regrowing back. Seeing me must have been terrible for them.
i think we could all do with counselling. What we’ve been through is life changing. I have so many emotional triggers that set me off. There’s a course near me that starts in April, so I’m going to try and get on it.
Periods - mine stopped after 2nd chemo. Oncologist said that they can restart up again 3/4 months after last chemo, so I’m waiting to see if anything happens next month.
thank you for birthday wishes 💕 xx
This whole Herceptin thing is bloody scary. I’m glad they’ve sorted you out with meds. Oddly enough my last heart scan was 65 too. I’ve got my next one on 23rd Feb, so we can exchange notes!!
Glad you managed to distract yourself with lunch out and try if you can not to overthink over the next couple of weeks xx
Thank you for my happy birthday message, you just can’t beat cake!!
Lovely to hear that you had a nice time with your granddaughter. How old is she? And yes it’d be lovely to have the sunshine again, I know it lifts my mood for one 😃
You have left me feeling really emotional after reading my birthday card. Such lovely words, thank you 💕
I have to say that all these words are mirrored right back at you lovey, so very thoughtful!
The cinema was good, the girls enjoyed themselves and that’s what counts at the end of the day. Filled ourselves with popcorn and slushy drinks etc, did some shopping and back home now waiting for James to appear.
Have a lovely evening xx
Whytefawn, I had to have the fluid drained twice as it wasn't receding. The first time the surgeon did it and was very careful about keeping the process very sterile covering me in iodine, so no infection. Second time was a little less meticulous as I had to go in via a&e, so got an infection and needed antibiotics afterwards. So infection is a concern, but the seroma needed to be drained. Keep an eye on it as I left it a bit too long and now have some skin puckering I didn't have post surgery.
My attitude to work has changed, I dont want to be there. I feel like I am not giving work 100% and got giving my family 100% I want to be at home and sort out the house and more importantly spend time with the boys. I am stuck at work as husband is self employed and struggling for work. So I feel I owe it to my family to earn the money. But I feel my health is more important so I am stuck at the mo. Husband has applied for 5 jobs, heard nothing from anything, so frustrating.
Whytefawn, my BC nurse told me to hug my heart shaped cushion on Mx side and flaps arms like a chicken. This helps to move the fluid through lymph system and drain it. It did work for me for a while but I did have it drained at 2 week check up post surgery. It didnt come back after that. I didnt have a drain in surgery as my surgeon didnt do them if cup size was A or B. Wish he had just put a drain in anyway as was uncomfortable for 2 weeks. I did also find it helped to not use my arm apart from doing the exercises and flapping!
Hi ladies. Sorry I've been AWOL for a few days. Work got too much for me and I was stressed. Also it was my 1 year cancer-versary last week. Its just been overwhelming. Enjoying half term with the boys, sleeping better as no 6.30 alarm.
So I had onc appointment today! After asking how I was and how I was coping with herceptin - to which I replied I'm feeling well (achey and a bit tired but otherwise good). She then went on to say looking at the result of my heart scan which is now down to 54% (Jan) and the fact it was 65% last time (Oct) - she thinks I need a heart pill! It's a low dose one, I've got to go and have blood pressure taken once a week for next 2 weeks and keep a record of reading. My next herceptin is booked for 1 March but before that date she wants me to have another heart scan! I do, however, wonder whether she was a little confused on dates as when I asked her to confirm when my herceptin is due to finish she answered, "September - you started September so you do a year and will finish September" - I reminded her at that point that I started in June when I was having it IV with chemo - "oh yes she replied, in that case you will finish in June" - I've just been laying in the bath and thinking about it all - I wonder if I'd be on this pill etc if she'd realised I've been on it since June.....??? Anyway, at least I'm on the medication so no further damage should occur and hopefully it will improve and not delay my next herceptin injection! I'm really aiming on June being my completion month!
We came out and hubby said to me, "and everybody thinks - you're all done - treatment over - little do they realise it's really not the case is it?!" Indeed it's not!
Went for a lovely lunch after to take our minds of it all........!
So now I've got 2/3 weeks of thinking about and dealing with my ticker!! I'm almost venturing into your club Treehouse!! x
Katie - I realised as soon as I looked up in the mirror!! - I didn't have time to laugh at myself as I was in a dash to get dressed - so had to whip it out and put in the right one!
I can imagine how you're feeling - hope the mammogram went ok. Thinking of you xx
Rosie, glad you are coping well with the new chemo tablets and managing to work too. 💪🏼 Xx
Mishy, sounds like you had fun with your grand daughter, how lovely. Best wishes for your scan. I won't say don't worry because that's inevitable! Xx
Jay, there you were this morning trying to make a mountain out of a molehill! 😂😂 I almost did that yesterday but didnt get as far as putting the bra on. I haven't had a period since chemo no.2, hoping that's it. I find the whole menopause thing very confusing. Xx
Katie, sending hugs. Just look how far you've come. Is your anxiety related to flashbacks? Are you having counselling? Xx
Had my first complimentary therapy today, aromatherapy neck and shoulder massage. It was lovely. When I arrived home I did a pencil drawing for my daughter ready for her birthday.
WhyteFawn, do you still have your drain bottle on? I think if you just try to do as little as possible it helps. Don't put too much effort into your Physio exercises, just do the movements without pulling on your surgery area. Drink plenty of water and eat healthy. Have you discussed this with your great unit or district nurse. If it's bad they may want to drain it again. Xx
Hope everyone got on ok with the hospital appointments.
Jay - ha ha can just imagine your face when you realised you were a bit one sided. Mine are a bit like that anyway, despite plastic surgeon saying I would go down a cup size, I’ve actually gone up to a 36D, probably why they ran out of material and I ended up with a much smaller implant in the other side😂😂. Will have to wait until after tablets have finished before I can get it sorted, not really a priority though
Katie - I should be finished in July depending on how many cycles I have, either 6 or 8. The trial didn’t really show much difference in outcome between 6 or 8, so will depend on how well I tolerate it, I think.
Funny little story ladies to share - in the hurry of getting dressed the other day - I put my prosthetic boob in my bra pocket and then put bra on - only to discover i'd put it the wrong side..... - how hillarious - one massive boob!!
A quick question, how many of you have had the monthly visitor return since completing chemo? I haven't had one since last June - I think it was after 2nd EC. It's a question on my list for the onc tomorrow - asking if there's a test I can take to see if I'm menopausal (temporary or permenant). I think I was perimenopausal before all this this - I was having long gaps between periods and that's how I discovered my lump - as my breasts were becoming so painful. x
Hi Rosie - that's good news - let's hope it continues being kind to you. Funnily enough when I left the hospital on Thursday I bumped into an old school friend, I don't see her very often but are in communications through facebook - so it was lovely to see her anyhow, she suffers with chrons disease and or colitis and she was saying she takes a chemo drug for that when she gets a flare up.
Oh yes I've just recently returned to my ginger and lemon tea - really liking it and I always have peppermint tea with my evening meal.
I suppose I'll have a mammogram of just one boob from now on!
Jay- so far so good on the Cape tablets, I am feeling tired but not sure if that’s the tablets or being back at work. My sister who is a nurse also said that Cape is prescribed for other medical conditions not just cancer.
Andi - I’m also a big fan of ginger tea, am starting to prefer that and peppermint tea to normal tea.
Mai - a neck and shoulder massage sounds lovely, I could definitely do with that.
WolEE -I know what you mean about scans, you want a check up but it brings back all the memories from last year
Good luck Katie with your first mammogram. I’m like you treehouse , no more mammograms now!
Mishy - good to hear from you, glad to hear your little granddaughter is doing so well.
Yo WolfEE! 🙋🏻 I know how you feel about beng scanned, you want it and don't want it in equal and opposing measures! Whilst you want confirmation that all is well to settle your anxiety, you don't want then to find anything which disturbs your anxiety but you also do so they can nip anything in the bud. So many emotions. I was like that with the recent bone scan. Couldn't sleep all week until after results! This is something we have to live with though I dot think it's something we overcome. Scanxiety. I hope you and Andi are looking forward to your hair appointments. How exciting! 💇🏼 💁🏼X
Andi, i can't remember what was on this list now but I can decide when I get there. I know there was neck and shoulder massage and reflexology. My neck and shoulders are still stiff from the car accident a year ago so that seems llike a good place to start! 💆🏼 X