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May 2017 chemo starters

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Re: May 2017 chemo starters

Katie ๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚
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Re: May 2017 chemo starters

And tree house! ! X

Just had my Asda delivery with new attractive delivery guy! Trust me to still be in pj's, no make up and towel wrapped round my head!!! Lol x
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Re: May 2017 chemo starters

Good luck today mishy xx
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Re: May 2017 chemo starters

Thanks Mishy and Rosie , Katie and buddyfan. Iโ€™m doing fine ๐Ÿคžfor tomorrow and sending hugs for the bone scan. Rememinds me of Friday when I bumped into someone from work in the hospital waiting room I donโ€™t know them very well but most people know about my cancer. But still they asked in a packed waiting room โ€˜ hi how are you?โ€™
I couldnโ€™t help myself. I just looked at them and said โ€˜ well Iโ€™m hereโ€™ !?!? Der!
Didnโ€™t want to share with 20 other patients and I refuse to lie and say Iโ€™m fine as then I feel guilty for being off work ( stupid I know)
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Re: May 2017 chemo starters

Ha ha Mishy, that made me laugh, itโ€™s all so true.

 

Good luck tomorrow with the bone scan, youโ€™all be glad to get it over with. Will be thinking of you xx

 

You too treehouse, hope all goes well with your check up xx

 

 

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Re: May 2017 chemo starters

Aaah im sick of people telling me ๐Ÿ’ฉ like that too its also like they are all of a sudden cancer specialists i constantly feel like i have to bite my tongue or just smile and think in my head f___k off ๐Ÿ˜† smart Alec hehe!!
Also im just grateful to be still here and happy to have hair again but people are already commenting on that too saying stupid things like i used to like your hair when you had it shoulder length and blonde streaks well surprise surprise its nit now and its grey and bo i don't actually care what you liked its me tgats walking around like this and im happy enough!!! They do mean well but it can really get on your nerves
Andi i bet the dress looks fab well done you for the night shift bet she looks beautiful
Treehouse hope your appointment goes well tomorrow
Having my bone scan tomorrow ๐Ÿ˜จ can't wait to get it over with
big boob is definitely a lot bigger than little boob but i have decided to tell my bc surgeon next week i don't want anymore surgery she made a good job the scars i can live with and frankly my body has had enough and needs a break i will be grateful for what i have got and leave it at that ๐Ÿ˜Š
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Re: May 2017 chemo starters

So eldest daughter last night after dinner had mini meltdown that her Aโ€™level ball gown dress that sheโ€™s made wasnโ€™t finished with all the hand sewn beading.  So what do you do?! I canโ€™t sew for toffee!

1 hour later Iโ€™m at it like a pro ๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚ I know I shouldnโ€™t have touched it but she needed her mum.  So there were were till 02:20am sewing and guzzling tea till it got done.

 

Got back up to take them to school, came home, grabbed breakfast and crawled under my duvet ๐Ÿ˜ด๐Ÿ˜ด๐Ÿ˜ด

Cant believe where the day has gone!

 

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Re: May 2017 chemo starters

Buddyfan,

 

I tell everyone how it is when they assume itโ€™s all done. ๐Ÿ˜  I honestly believe people need educating that cancer is more than just chemo and more than having it removed surgically.  Theyโ€™re normally very surprised that thereโ€™s ongoing preventative meds to take daily, that there are heart scans and blood tests and mammograms and oncology and lymphoma appointments. In my opinion, if people know your still going through it, especially those at work, it may help you. xx

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Re: May 2017 chemo starters

Rosie,

 

Completely get your frustration with the whole โ€˜glad to have you backโ€™, โ€˜you must be glad itโ€™s all overโ€™ type comments.  Iโ€™m not a violent person by any stretch but Iโ€™d quite like to punch them all on the nose.

 

How are you getting on with Cape?

 

My Tamoxifen makes night sweats a little more intense and I seem to shiver and get cold for longer periods of time than before taking it.  Mild nausea but in the great scheme of things thatโ€™s ok.

 

Ive finally hit 6 weeks post op!! ๐Ÿ˜ Can move about so much easier and sleep in any position I choose ๐Ÿ˜ 

Iโ€™ve got my โ€˜fitness workoutโ€™ at the hospital in 2 weeks time with other DIEP ladies so itโ€™ll be interesting!

 

Hope your keeping well ๐Ÿ’•

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Re: May 2017 chemo starters

Katie,

 

I might have to steal that line of yours .... โ€œTry 9 months of cancer treatment then come back to me!โ€ for those people who whinge and moan far too readily about bugg** all ๐Ÿ˜‚

 

Whats your news and how are you doing?

 

Ive still got oral thrush ๐Ÿ˜ฉ so will have to go back to Drโ€™s, seems my body is struggling to fight it.

 

wishing everyone a good week ๐Ÿ’•

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Re: May 2017 chemo starters

Thanks Shi. In her defence she is not a bad person itโ€™s just if I have learned anything from all this is donโ€™t plan ahead and donโ€™t expect everything to be perfect. So even thinking about Christmas in February ( when I have spent the last few days having tests again) is just bonkers.
It also brought back all the ๐Ÿ’ฉI have been through and how NOT PERFECT my Christmas was - actually the last year was. hence my emotional outburst on Friday night.
Shi Community Champion
Community Champion

Re: May 2017 chemo starters

Treehouse, easy to see why she is an ex, what a selfish female dog she clearly is. Donโ€™t allow her to claim precious minutes of the wonderful life ahead of you ๐Ÿ’•๐Ÿ’•โœจโœจshi xx
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Re: May 2017 chemo starters

Long standing not land stranding! Oops
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Re: May 2017 chemo starters

My husbandโ€™s ex complained that her Christmas was not very relaxing as she had to drive 25 mins to drop the kids off . And could we change our land stranding arrangement.
I had spent 4 weeks in hospital had only just managed to get transferred back from Coventry and was allowed home from 1:30-7:00 between iv .
Those few hours at home surrounded by my family meant the world to me. I was so happy.
And she complained about not having a relaxing Christmas!!!!!!!!!!!!!!!!
๐Ÿ˜ฌ๐Ÿ˜ฌ๐Ÿ˜ฌ๐Ÿ˜ฌ๐Ÿ™„๐Ÿคฏ๐Ÿคฏ๐Ÿคฏ๐Ÿคฏ๐Ÿคฌ๐Ÿ˜ก๐Ÿ˜ก๐Ÿคฌ
Seriously some people!
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Re: May 2017 chemo starters

Know what you mean. My dad's been moaning about all and nothing . I don't have the patience. Try 9 months of treatment and then come back to me!!!! Same with other half who had tonsillitis for 2 days. You think the world had ended. He didn't do a thing lol .

Hope you are all enjoying your Sunday? Tree house how are you getting on? Hope all OK? ? Wolfee you doing OK now hun? Xx
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Re: May 2017 chemo starters

I agree Buddy fan especially now Iโ€™m back at work, someone said last week โ€œgreat to see you back,youโ€™ve got the all clear then! I just canโ€™t be bothered to reply. Also people complaining about headaches etc or how their hairโ€™s a mess and theyโ€™ve got long flowing locks๐Ÿ˜‚๐Ÿ˜‚ As you say treehouse itโ€™s not their fault but just difficult to deal with atm. Someone even said I shouldโ€™ve carried on wearing my wig until my hair got longer! I felt like saying Iโ€™m not in the business of making you feel more comfortable. So if all my hair falls out on Cape I will go in completely bald just to prove a point!!
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Re: May 2017 chemo starters

The hardest thing is that most people think chemo/treatment has finished, we should be better now. Especially those that don't know the full story. ๐Ÿค—๐Ÿค— to Treehouse in particular, but to all of us really.
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Re: May 2017 chemo starters

Thanks Mishy and Rosie. I find healthy people have no idea and I am struggling with that. There requests and comments can at times seem insensitive and thoughtless. Not their fault I guess. Good to have you guys to understand.
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Re: May 2017 chemo starters

Hi Trish how are you?
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Re: May 2017 chemo starters

Morning everyone hope you are all well, Treehouse hope you feeling a little better since you got it all out, hopefully everything will be ok once Tuesday arrives ๐Ÿ˜š
Seems quite nice outside still probably too cold for gardening but nice to see the ๐ŸŒž hopefully it won't be long till i can refresh my pots with some much needed colour, got a young family of blue tits in my garden noticed them a couple of times think I'll get them a nesting box can't wait for spring ๐ŸŒฑ๐ŸŒป๐ŸŒผ๐Ÿฃ
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Re: May 2017 chemo starters

Treehouse - so sorry youโ€™re having to go through this. Good news that your levels are coming down, hopefully theyโ€™ll get this sorted. Sometimes it does help to write everything down just to get all that โ€œstuffโ€ out of your head, hope you can get some rest now xx

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Big hugs Treehouse xoxo
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Re: May 2017 chemo starters

๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚just spent half an hour writing a long emotional rant getting stuff all off my chest and then lost the lot somehow. Just typing it all helped. Probably best no one read that self pitying twaddle anyway ๐Ÿ˜œ.
I think I cried it all out and might try going back to bed. Thanks for listening ๐Ÿ˜‚
X
X
Shi Community Champion
Community Champion

Re: May 2017 chemo starters

Oh treehouse lovely, thatโ€™s pants, rest up and have some snuggles and everything ๐Ÿคž๐Ÿคž๐Ÿคžfor you that things settle. Mai my lovely glad you ๐Ÿ˜my ๐Ÿคช๐Ÿคชside ๐Ÿ’•๐Ÿ’•โœจโœจshi xx
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Re: May 2017 chemo starters

Just got HOME ๐Ÿ  seven hours waiting to see a s doctor. Had to argue for the blood cultures again! Tears helped ๐Ÿ˜ข
finally got to see the fantastic consultant that diagnosed my endocarditis in the first place. My CRP level is coming down ๐Ÿ‘. Will need to wait for cultures. Going back on the beta blockers lower dose. Going back on Tuesday or sooner if symptoms change.
Hopefully it is nothing serious. The NHS systems are broken but the people trying to hold it together are awesome!
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Re: May 2017 chemo starters

Tuning in from work Ladies, feeling energetic by mentally fatigued and my neck is still quite achy from my whiplash injury from over a year ago.
Shi, good to see you back online again and glad you have had a lovely holiday. I am so glad you joined us here on this forum with your humour and positivity and sparkles. ๐Ÿ˜˜ โœจ Xxxx
Treehouse, sending hugs. You have an amazing husband and you ate a great parent. The tooth fairy get very busy in February because of all the sugary foods kids eat over the Christmas period. Xxx
WolfEE. Sending hugs. Xxx
Katie, glad all is good with your mammogram. Xxx
Mishy, you'll cope fine at work but just make sure you set the pace and don't push yourself to soon (says she!) Xxx
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Re: May 2017 chemo starters

Katie,

 

Hopefully with all these activities during the day with the kids itll make you sleep like a baby ๐Ÿ˜ด

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Re: May 2017 chemo starters

WolfEE,

 

Lovey I know your never far away and keep up together with our posts, just hope your able to let us help you if your struggling with any worries your carrying.  A problem shared and all that .... ๐Ÿ’• keep in touch xx

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Re: May 2017 chemo starters

Mishy,

 

You come across as though your positively beaming bless you when you mention your granddaughter - itโ€™s so lovely ๐Ÿ’• xx

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Re: May 2017 chemo starters

Treehouse,

 

Your husband is a good un ๐Ÿ˜ƒ and itโ€™s the ๐Ÿ’ฉiest of moments in life that make you see how fortunate you are to have someone so wonderful by your side.  Iโ€™d quite like your rollercoaster journey to end now, someone somewhere is taking the mick ๐Ÿ˜ก Just want you well, fit and healthy and have no worries ๐Ÿ’• Your a tough cookie as youโ€™ve proven before, youโ€™ll get through this next bit Iโ€™ve no doubt.  Donโ€™t worry about the tooth fairy bless you, itโ€™s your little guardian angel that needs a kick up the butt๐Ÿ˜‰๐Ÿ˜‰ Big hugs xx

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Re: May 2017 chemo starters

Tatyana & Rosie, blimey ladies seems thereโ€™s a little bit of planning involved with takings your tablets, as if you donโ€™t have enough going on.

 

I only have to take x1 Tamoxifen daily at the same time each day (I go for the morning 10:00) and guess who hadnโ€™t taken theirs by 2pm! ๐Ÿ˜ฌ My only side effect is mild nausea, but itโ€™s there.  Hoping my body gets used to the tiny white blighters and that the nausea subsides otherwise Iโ€™ll be attached to ginger indefinitely in one form or another.

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Re: May 2017 chemo starters

Oh treehouse! So unfair for you. Hopefully nothing serious. Your hubby sounds amazing. A true valentine!

Keep going rosie and tatyana. Glad to hear side effects aren't too harsh.

How you feeling now Wolfee? X

Feel worn out with boys on half term! It's been dentist and swimming today and then trampoline park for my eldest birthday with 5 friends. Why do I do this to myself lol! It isn't till end of Feb but easier to get it out of the way during half term x
Shi Community Champion
Community Champion

Re: May 2017 chemo starters

Treehouse โค๏ธโค๏ธโค๏ธTo you, think itโ€™ll be a long time before any of us are not scared wearing, antibacterial had gel, sudocream spreading maniacs, just got back from a few days away and I was lugging boots pharmacy with me everywhere ๐Ÿ˜ and you are super Mum and a bionic mum from where I am sitting treehouse ๐Ÿ’ช๐Ÿ’ช Tatyana glad you are not having any seโ€™s from the tablets. When we get you ๐Ÿ’ƒ๐Ÿป๐Ÿ’ƒ๐Ÿป๐Ÿ•บ๐Ÿ•บ๐Ÿ’ƒ๐Ÿป๐Ÿ’ƒ๐Ÿป Youโ€™ll be showing us how to shake, rattle and roll now ๐Ÿ˜๐Ÿ˜been thinking of you all having your 1 year check ups ๐Ÿ’•๐Ÿ’• another milestone โœ… on this journey you are all amazing and thank you all again for everything our Oct ๐Ÿš‚would have been lost without you all. ๐Ÿ’•๐Ÿ’•โœจโœจshi xx
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Re: May 2017 chemo starters

Tatyana you make me smile ๐Ÿ˜Š.
Keep it up youโ€™re doing great . You are all inspiring women
๐Ÿ˜˜๐Ÿ˜˜
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Re: May 2017 chemo starters

Treehouse, it's not your fault if the tooth fairy forgot! I hear she's been very busy just lately. If you ask me she needs to sign up some of Santa's helpers, I'm sure they've got nothing to do this time of year.
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Re: May 2017 chemo starters

I'm on 3600 a day, Rosie. It's a pain having to keep thinking about timings, like if you are going out in the evening and want to eat early, etc. But I guess we'll get used to it, and at least the food tastes normal!๐Ÿ˜‹
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Re: May 2017 chemo starters

Oh good Tatyana, same for me so far, I think Iโ€™m just a day behind you. What dose are you on? Iโ€™m taking 4000mg per day, four pills each time. Yes we tend to eat late too but I got used to a long lie in when I wasnโ€™t working. Itโ€™s all been a bit of a shock๐Ÿ˜‚
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Re: May 2017 chemo starters

Officially the ๐Ÿ’ฉ est parent. Only just realised the Tooth fairy ๐Ÿงšโ€โ™€๏ธ forgot. It was a week ago!!!
No sure if I should laugh or cry!?!?

Smallest boy knows but has not mentioned it. I think he knows the ๐Ÿงšโ€โ™€๏ธ is ๐Ÿ’ฉ and has no ๐Ÿง  .
Bless him.
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Re: May 2017 chemo starters

Hi Rosie, how are you doing? I'm ok so far on the magic pills, almost no SEs one week in, so I'm really appreciating that!
I'm not worrying too much about the timings, as I only work part-time from home I definitely don't want to get up early, but as we tend to eat fairly late in the evenings it works out ok. I was told 10-12 hrs between doses is fine but the gap should never be less than 8 hrs.
The main problems are a) swallowing five pills each time, and b) pressing the little so and sos out of the foil packaging, which is seriously difficult given that my nails are still shot to pieces thanks to old friend docetaxel!
Community Champion

Re: May 2017 chemo starters

Oh Treehouse what an absolute nightmare for you my lovely.  But at least you have a fairytale of a prince in your wonderful hubby - what a knight in shining armour you have there.  Wishing you a better day today - take lots of care x

 

Here's a big virtual hug sent  from me for the both of you xx 

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Re: May 2017 chemo starters

Oh treehouse you must be seriously fed up! You will be much better off at home, your hubby sounds amazing. Hope they get you sorted quickly and you can continue along the bumpy road!

Tatyana, how are you? How are you tolerating the tablets? Itโ€™s annoying to have to get up early to take them isnโ€™t it?
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Re: May 2017 chemo starters

Thanks ladies. I miss my immune system and donโ€™t trust my body anymore. My husband was amazing last nigh insisted on all test my gp wanted. A&E Docโ€™s didnโ€™t want to do them. He then pushed to get me home. He could bare to leave me on a hard trolley in a cold noisy corridor at 1am. He has taken kids to school and is having the day off. Donโ€™t think he got any sleep and wants to keep an eye on me.
Honestly love him more than ever and that was pretty mahoosive already. Talk about valentines ๐Ÿ’—
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Re: May 2017 chemo starters

Good they let you go home Treehouse. Hope the infection clears up and your temp behaves.

 

H

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Re: May 2017 chemo starters

Treehouse, loads of hugs and an antibug dance for you ๐Ÿ›๐Ÿ›๐Ÿ‘ฏ๐Ÿ‘ฏ๐ŸŒŸ๐ŸŒŸ
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Re: May 2017 chemo starters

Treehouse what a &ยฃ@&ยฃ nightmare not surprised you have had enough hope they sort it out for you soon sending hugs xx

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Re: May 2017 chemo starters

How are you wolfee???
So X-ray is clear but blood tests show some sort of infection. They wanted to keep me in for observation but I burst into tears when I was given a trolley in a corridor outside A&E . After a long chat with a very nice registrar he let me go home but must return Friday for more test. Sooner if I get a temp etc.
Duck duckety duck!!!
Getting very fed up of this game now!!!!!!!!
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Re: May 2017 chemo starters

Treehouse, hope you are ok and they let you go home. What a way to spend Valentine's day.

Community Champion

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Mai, after a year of herceptin injections - that's it!! Just usual yearly mammo and then 3 yearly mammo. x
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Re: May 2017 chemo starters

WhyteFawn - I hope the uncomfortable fluid soon finds it's own way to drain. I was advised to gently stroke the skin with a little E45 - from wrist towards elbow - then elbow towards armpit then very gently from collarbone down the torso - no rubbing or up and down movements. Each section x5 and remember one way gentle strokes.  It certainly helped my fluid find it's own way without needing any drainage. x

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Re: May 2017 chemo starters

Hooray - congratulations and well done Katie on 1. going through the mammogram experience and 2. for getting an all clear result. You can breathe again!

Oh no poor you having the dreaded monthly return - the onc said as I haven't had anything yet and bearing in mind my age and the fact that I was def peri-menopausal before all this, she really doesn't think mine will return. Having been through all the cold/hot flushes, sleepless nights, emotional breakdowns etc I really don't want to have to do them again when my body thinks it's time to!

Hope your bowling went well today - I do love a bit of bowling!