Ahh ladies talking of babies - I've met my great niece today for the first time and she's sooo gorgeous! Just 3 months old and a bundle of sheer joy! My nephew and his wife organised a family meal (20 of us) at a local Harvester to welcome her to the family and we all had a really fab time - and the weather, WOW what a bonus!
This time last year was the same Nephew's wedding day - just before I started treatment! - can't believe where that year has gone in one way!!
Two more weddings this year - Niece in September and another Nephew in October - so exciting!
Mishy, how did the nudging go? At the secondary BC support group meeting at Maggies we were told there was a five week waiting list!! The numbers of people being diagnosed is increasing exponentially and so waiting lists are up hugely. Also, if you are waiting for a CT scan one of the scanners is being refurbished so a wait there,too! 😡
Poor you, Mishy. I agree. There's enough to worry about without checking on medical procedures. Had my first mammo two weeks ago at RVI. Experience not great as it was same room and same radiologist! Unbelievable ! Bit of a melt down, but she was wonderful . Apparently it is quite normal to feel emotional the first time. Also that same week had my first CT scan after three cycles of Palbociclib. Two weeks of hell waiting for results at clinic. I was convinced it had spread further as I have a few aches and pains now, plus a little dry cough I can't seem to get rid of. Great news though. My lung mets have shrunk, and there is no sign of further spread. Painted Newcastle red that night!! 🍷🎉🍾🙃. Hope you get appointment sorted. X
Appointment with GP today at 5.15 - to check the rampiril is doing it's job and to ensure it's not affecting my kidneys whilst repairing my heart!!!
Herceptin again tomorrow, then just 2 more to go.........! x
Mai and Daffodil - there are two very interesting threads on here regarding reconstruction. I highly recommend you having a read. First one is under "Moving forward after treatment" "Recovery after treatment" "A flat way of life" and the second one is under "Going through treatment" "Surgery" "to reconstruct or not".
I'm still very much undecided. Like you Mai I'm keen to let sleeping dogs lie and in another way I'd love not to have to think about prosthetic etc when I get dressed in the morning!
Aww, thanks ladies for the lovely words. I am deeply moved. Likewise, you have all been amazing and whilst I shared all knowledge researched you double checked and sense checked it too and just knowing there was someone else out there feeling as crappy and isolated as me was a great comfort. I'm sure we will be friends for life now. I think our shared compassion and sense of humour has been a great distraction from some pretty harsh realities we've faced! xx
I had my lymphodema check up last week and all good, only a 2% difference so Im considered low risk for lymphodema.
Binocular woman!!! thats funny Shi. x
Daffodil, I still have my head in the sand on the recon at present but would be interested to hear what you have to say after your appointment. I feel a bit nervous about the prospect of the tissue in that area being disturbed again - let sleeping dogs lie and all that...... but want to feel balanced and symmetrical again! :-? xx
Thanks for all the wishes for today. So, I need an ultrasound scan, but surgeon didn't seem too worried. Have to see him again in two weeks time, so more waiting, first to get a scan and then for the results.
I will also attend a BRA meeting on 8th May to meet other ladies who have had or are waiting to have breast reconstruction surgery. It is an opportunity to discuss options and outcomes. Still about 9 months till I am due to have mine, but surgeon wants me to the research so I can make an informed decision.
Take care ladies.
Thanks for sharing this Treehouse.
Of course, you'll have no need to use them - you're off on holiday and you're going to have a wonderful family time xx
Yes indeed Tatyana - please do pop onto facebook and take a look at what's arranged - you could well be tempted!!
I do like the way Treehouse has become known as "Binoculars" Woman - when my son was small he used to call binoculars - knocky woods! - all have a connection, in a funny way with the name "Treehouse".....!
If it wasn't for this forum - I'm sure I would have gone crazy (sorry.... crazier!)!!! Love you all, xx
Wow a year ago from first chemo already! Mine will be 11th May!
Mai, how grateful are we to have met someone as wise, brave, positive and encouraging as you. I can still recall reading your first posts (I wasn't brave enough to come on board at that time!) - your detail helped me enormously in preparing myself for the torture of chemo - your reassurance that everything was going to be ok - you'll never know just how much your inspirational posts meant to me in those early, dark, scary and nervous days - just saying the words "thank you" seems so insignificant but I say them anyway and I times the sentiment behind them by at least a million...... you, my lovely, are priceless.... xxxx
Treehouse, maybe keep a doughnut and a dummy in your pocket in case of emergency when you return to work. A comfort food and a pacifier! 😂😂 xx
Good news about your phased return, Treehouse. We will do this together. My next shift is on 10th May, only 3 hours, but a start.
Take care, brave warriors. We are survivors.
8th May will be my cancerversary.
I am seeing surgeon on Monday so he can check out my swelling between breast and armpit. Most likely a bit of lymphoedema.
Talking of "in your pocket" reminds me of when I went to see these guys live in London a few years ago, who were awesome!
Mishy, your cancerversary must feel quite bittersweet between the battle you have survived and the loss of your lovely Dad who is now in your pocket telling you to keep going. Sending positive vibes your way. 💗 Xxx
Treehouse, I hope your phased return goes smoothly. It is good to get back some normality in your life but make sure you set the pace and learn to say no. You have been through far too much to allow anyone to push you. If you are tempted to allow others to stress you out just remember your buddy Mai7 is in your pocket saying "not allowed" 😂😜 xx
It's a year today since my first chemo and how grateful I am to have been able to go through it with you lovely ladies here. Thank you. 💗 This forum is priceless. 💗🌸✨
Katie11 - are you still on here?? We haven't heard from you in a while and hope all is good. I have sent you a pm and look forward to hearing from you! J x
Thanks ladies I survived the ordeal! A bonus for having just one now meant it was done really quick and the other one didn't keep getting in the way! Also, when I had the one last year before final diagnosis - my hair was long and kept getting in the way too!
The lady operating the mammo machine was lovely too - really chatty so that helped relax the situation.
Now just got to wait for the results.....
Tomorrow - hair cut - so looking forward to a bit of pampering!
Got a busy weekend too - so lots to keep my mind busy...