Mai - thank you for flagging it up - I'll be checking with my onc when I next see her in August (which should be my final one....!). x
Hi Mai and Jay, I'm from the Oct thread and TN. I was given Zoldronic Acid every other chemo and then as a stand alone infusion in April and will do again in Oct and then six monthly for another couple of years. My oncologist told me that it was orginally given to protect the bones, but in fairly recent studies in the US it was shown to help prevent recurrances of bc. I've been told to make sure that I have regular dental check ups as it can affect the jaw x
Hi Mai - thank you sharing that interesting article. Forgive me but is basel-like breast cancer the same as triple negative? The lady I met during chemo - she's HER2+, but she's on this acid infusion twice a year - it's for bones - ie if you have arthitis in your family or your bone scans have shown a sign of it. I didn't know they were using it like a targetted therapy - very interesting. It does have side effects associated with it though - ie gum problems - making some dentistry a little complicated.
The beautiful weather is slightly breaking down here with the odd rumble of thunder, ergh! However, the birds are still chirping!
Oh Mishy - I'm delighted that you too have been reassured - it was the same for me, and it's really weird how the feeling of lead immediately comes off your shoulders isn't it?
As Mai has said - isn't it strange that we can cope nowadays with any other diagnosis thrown at us - I think that's because we've all experienced the day the Breast Consultant using the word "cancer" in our diagnosis, we know almost nothing can ever be as soul destroying as that moment. However, we've battled and we're still here to enjoy today. At the end of the day, there's no denying, cancer really is a truly horrible disease and it affects not only those who have been diagnosed with it but all the people close to them.
I've read about chostondrities, following which, I'm sure a lot of us ladies who have had chemo and rads experience from, however, we all put it down to internal scarring and just carry on. Was you given any medication or advice for dealing with this discomfort at all.
As you rightly say - all of these new diagnosis are a pain but a small price to pay for being able to wake up this morning - smile and be alive xxx
Sorry I've been a bit quiet but just been really busy. Our May meet up was fantastic and it was so lovely to meet everyone in person. Kinda strange that we already have a special bond and then meet afterwards. 💗
That's great news Mishy. Can you believe that we are now grateful to have anything wrong with us as long as it isn't cancer. What a twisted world we live in! Xx
Jay, that's fab news, you must be feeling very relieved and perhaps celebratory. Xx
Dafodil, great news for you too. Such a beautiful word "benign". I would just be saying it repeatedly now if I were you! X
Treehouse, don't feel that your are putting on any of us if you need a rant, that's why we all came here in the first place! Hope things get better soon with your work and checkups. Just think how far you have come, so don't let a few rocks get in the way when you've already moved a mountain. Xxx
Shi, hope you are doing well lovey and still sparkling. ✨✨✨💗💗xxx
Time to share some GOOD news ladies - I went for my routine appointment with oncologist yesterday morning, I was in a "mess" - I'd suffered terribly from a panic/anxiety attack in the night previous and my head was seriously not in a great place. However, bad quickly turned to good - my red blood count is back to pre-chemo days and all is looking well, the great news is my recent echo scan shows my heart is back to 65% which is fantastic as it means my final two herceptin injections can go ahead with no delays - my final one being 14 June. The even better news.... my mono-mammogram result is all clear... HOORAY! I had a concern over a small lymph node in my neck and the oncologist reassured me all is ok, it's really not unusual for lymphs to enlarge for all kinds of different reasons - the very fact it goes down shows there's nothing to be worrying about - the fact too that it is an extremely long way from the breast is also a positive - but she was pleased I mentioned it and I was so glad I did as I left feeling totally reassured me. My next appointment with her is 3 months time, where she is planning to be in a position to sign me off from the oncology department and handing me back in the care of the breast consultant for yearly check-up and mammogram - again, HOORAY!
I'm now preoccupied organising a big family/friend party for July to celebrate!!! xxx
Thinking of you Mishy.
I had my follow up appointment with the BS. He confirmed that my swelling was not sinister but should be removed. As not sinister, he can do it, or the reconstruction surgeon can do it when and if I have a reconstruction in 9 months or so. So all good. Will just wait to hear what they decide.
We all worry about lumps and bumps now so it is a relief when we get reassurance.
Saturday was fabulous and it was wonderful to meet the May Starter Wonder Women.
Ah Shi sorry you couldn't make this meet up - maybe next time - your name came up in conversation a few times today - hope your ears weren't burning...! x
Ok, Mishy, you're being ridiculous! Come on....life can't be that sh**€! But...you are quite right to have it checked. Fingers crossed, and toes, for you! X
Such a relief Daffodil - I think the scar tissue (which no one really warns you about before having the treatment) causes us quite a lot of anxiety! Great news on the clear mammogram too. Onwards and upwards! xx
Good news. Ultrasound done on swelling near mastectomy site. Apparently likely scar tissue so nothing to worry about. Also mammogram of remaining breast clear.