Mishy - I repeat what others have already said - thank goodness no spine mets but sad to hear you've more surgery ahead of you.
Wolfee - so sorry for the decisions you're having to make. Whatever you decide and whatever happens you know us May Warriors are right behind you - supporting you all the way my lovely x
Mai - interesting. Do you have an appointment to see surgeon to discuss recon? I'm not seeing my surgeon until March and then he's going to refer me to a recon specialist depending on my thoughts. Have you made any decisions yet? I'm still unsure whether to have any recon. Most of the time I'm happy as I am - but every now and again I wish I could just put on any bra or bra top and not have to spend time adjusting myself (if you know what I mean) - also I do find the implant heavy and I'm sure that makes me achey at times especially after a long walk!
I'm currently in the big wide world with very little support harness and I'm not quite sure how I feel about it all! I'm just under the GP now and it feels......strange.....!
Mishy, glad it's not spine mets but not nice that you have to go through more treatment to fix it. Glad you don't have to try juggling a job around all of this as well. Xxx
Wolfee, my ovaries are staying in at the moment as they are monitoring my menopausal status for now, I haven't had a period since June 2017 and if they don't reappear by June 2019 then they consider me post menopausal and therefore ovaries inactive anyway so no point in removing them. I had blood tests to check menopausal status and it confirmed menopausal stats, Have you had all of these checks and discussions with a gynocologist?? Xxx
My recontruction leaflet arrived a couple of days ago and I've got to read it before seeing surgeon so I'm fully aware of all options. On scanning it it's looks like implants only = 2 lots of surgery 3 months apart due to expander but diep flap = 2 lots of surgery in a 5 hour session for tissue transfer.
Hi Shi, I look forward to seeing you later today! 💗 💗😍😘😝
Just returned from my "FIANL" oncology appointment! She's happy with everything, I'm happy with everything so that's it no more oncology....
The final echo heart scan I had done a week ago has shown my heart to be functioning well and the percentage has gone back up to 60% - so I can now stop taking the Ramipril with immediate effect!
Hooray - no more meds!
I've been recommended to have blood tests for thyroid and diabetes - just precautionary as all the meds I've been on can cause these problems - so to nip any problems in the bud it's best to get them checked.
It sure feels good to know - no more oncology - hopefully forever....! xx
Thanks, ladies. I will go to the BRA group in early September to see how other ladies are coping and then chat to the surgeon again. As I have that scar tissue that needs removing, the plan was for it to be done at reconstruction. I may also wait until about March as I have to go to Leicester Hospital for the DIEP reconstruction and then have to have recovery time so more time off work and dealing with post surgery issues.
Jay, maybe we can do this bit together too before our May get together!
Hope everyone else is enjoying the holidays.
Hi Daffodil - I'm in the same position too - and I really can't decide what to do! One day I think without question I'll go for reconstruction - next day or even that same day - I'll think no way do I want any op's etc and quite possibly the thought of it going wrong!
When my time comes to discuss with the surgeon which is ages away - next March(!) - I'll listen to all he has to say but won't make any rash decisions - it's something that can happen anytime - maybe I'll wait until my 5 year anniversary is up and celebrate with a new boob!!
I'm interested to hear what you decide to do. I know Heather is happy with her decision of staying mono and yet others are happy with the recon they've had - no decision is easy!
Hope all is well and you're enjoying the summer weather! x
Good luck, Jay. Trisha, hope your pains disappear soon.
I am still trying to make a sensible decision about reconstruction before my next appointment with reconstruction surgeon at the end of September.
Any advice from those who have either had, or thinking of, having.
Enjoy the rest of summer. x
So wish me luck as I'm off this afternoon for what could be my final echo scan - finished herceptin on 14th June - been on rampiril since February as the heart was starting to show signs of failure. Won't know until August 14th when I see the oncologist, which again may well be my final meeting with her... Fingers crossed x
Hello ladies - long time no post - but I feel I simply must put on here the news that last night I held my celebration party - to celebrate end of treatment - after chemo, surgery, radiotherapy and 18 herceptin treatments - I'm the other side. In order to pay something back to this amazing charity Breat Cancer Care - I had donation pots strategically placed around the room. I did a speech in which I praised this charity - saying without it, my "journey" would have been significantly more difficult - I met a wonderful group of ladies - we shared some amazing experiences together and we found support, hope and love from one another - accordingly, I wanted to pay something back - I'm proud to say at the end of the evening we emptied the pots - a total of £269 was raised - I am totally amazed! x
All good here. Busy too with visitors and part time work. Trying to get back to normality and enjoying the good weather.
Enjoy hearing how the rest of you are getting on. Proud of the walkers and runners doing it for charity. Well done.
Take care and keep strong!
Hi Shi and Mishy - yes all doing OK - I guess as most of us have returned to work and our "normal" lives, we're too tired to report on here! We are in touch on facebook more regularly - why not join us over there? I do try and come on here at least once a week! I'm sorry to hear your boob is still playing you up Mishy - and good luck with your 1st mammo today - eeks - I had mine just before Easter - it was strangely nerve-racking - even more so waiting for the results..... well done on having the genetics test (fingers crossed for you).
I've got my final Herceptin injection a week today....! Yippeee - end of active treatment for me! (Just got to get my heart back on track and off the Ramipril!) I'm really busy and absorbed in organising a huge family/friend celebration party for 14 July - I'm so excited and so is everyone around me! I can't believe I've made it to the end of active treatment!
I also did a 5K Race for Life "walk" last Sunday - raised an amazing £770 (plus £90 gift aid) for Cancer Research UK - it all felt so surreal whilst I was taking part - truly fantastic!
Love to all x
Treehouse - oh I feel for you I really do, it's so horrid having to wait but personally, I take it as it can't be anything too bad or else you'd be seen urgently. Not great and I know it's difficult but try and put it to the back of your mind - easily said, I know how I felt very recently but really try not to worry my lovely xx