Ok I'm seriously considering not cold capping. Just the thought of it at the moment is making me feel sick!!
treehouse - that's great news. Such a relief for you
Katie - glad it all went well for you, gives me hope for tomorrow
Mai - was just thinking the same thing about how many of us there are and so young
For all those with tnbc, my sister had it when she was 29 (they didn't call it that then, just knew it wasn't hormone receptive) and is now 50 and fit and well. It was all distant memory for her until I was diagnosed lol
Re temperature, I do mine 3 times a day. If I get a headache, from hay fever at mo, I will also check temp before taking paracetamol. My chemo ward said to ring if 38 or above or if have severe side effect or just not feeling right. Mine hasn't been higher than 37.5
Day 16 hair started dropping out yesterday and a bit today, haven't shaved it yet, had a busy day. May leave it until weekend, friends at school today said it looks ok and no bald patches, just thinner at temples, but is ok.
MJK, glad it went well for you. Lol Dulux paint colour! I've read the anti-cancer book - I really liked that book, hence the obsession with mushrooms! Are they magic? 🙂 I'm currently reading Radical Remission, which I can also recommend.
Katie, glad it went well today. You seem ecstatic and relieved! Both times, the post-treatment euphoria reminds me of when I had all of my wisdom teeth removed by local anaesthetic! 😜
Everyone, I just had a count up of how many of us have joined May 2017 starters and there are 18 of us (excluding visitors not having treatment). What I find disturbing is that we are only a percentage of May starters in the UK and even more disturbing is how many of us are under the age of 50 and therefore under the age of the NHS screening programme?
Treehouse, no wonder you've been filled with paranoia - the waiting must have been quite an anxious time for you. X
Treehouse, that must be a huge relief for you. Sending you a virtual hug. Do you have to have neck lymphs removed? Do they always look at neck lymphs? They didn't show any interest in looking at mine. X
Hi Rosie, I cold capped for my first session and started shedding on day 18 or 19 to the extent that it made me decide not to cold cap for the second treatment. I decided I just wanted to get that chemo into every cell in my body and worry about the hair later. I must admit, the cold cap did make me feel a bit sicky just before treatment = not good!
Thanks for all the welcome messages. When did you all start losing your hair noticeably? I haven't lost much yet but only day 13 after one treatment, with my next session tomorrow. I cold capped last time but wondered if that's why I was sick as had a blinding headache afterwards. Undecided whether to cold cap again tomorrow.
Hope all goes well for you MJK. X
Thanks Mai7, my appoinment is before my bloods. Ha Ha I like that going to door with towel on head I worry about the postman coming but that is good way round it.
Anniej how awful for you with your hair in the plug hole, that was why I took mine off before hand as I think it would have really upset me to see that happening. What a fantastic husband you have giving you a nice distraction.
Raithchr good luck taking your hair off, i had a wig but when I put it on my sister and husband said they prefer me with no hair and I have to say I even do myself. I am wearing mostly scarves as not brave enough to go out the house with no hair lol.
Morning all. Hair is hanging on. Think it will get chopped today sometime as husband away to morrow so can't do it myself. Washed it gently this morning, looking a bit dull and fragile. The boys want a lock of hair to keep until mine grows back.Slept in a chemo hat last night so I didn't wake up with it all over the place.
I am not having a wig, its just too hot and I usually have my cut in a short bob for summer as I hate being so hot.
My Oncologist appmt is before my blood test so he don't know my bloods but suppose it will go ahead depending on bloods next Tues.
Ratchr, if you want my opinion, I'd say give it a grade 2 all over. It seems bold but like others have said, it means you are taking back control. Also, the shedding is less visual, less painful, less uneven and it becomes easier to go for the wig. I was wandering around the house this morning without the wig and said to my partner "if the postman comes to the door, I'll just wrap a towel around my head as people get freaked out by inconsistency"! My partner took a couple of artistic black n white photos of me for the record. I look like I'm off to Tibet to join a pilgrimage!
Well done Katie for going for it, I'm sure it was the best decision. I bet you're relieved!
Welcome Rosie to our lovely group. Glad you plucked up the courage to join us, it really helps to share what you are going through at times with people who are in the same position.
MisyAngel, when you have the blood test your results will go straight to Oncologist who will discuss blood levels in your appointment the day before treatment and give the go ahead to come back the next day (assuming your Oncolony and treatment appointments are on two different days, like mine). I get my bloods done at the local GP surgery in the morning and they get picked up in the community pick up in the afternoon to be delivered to the hospital for processing. It just means I only have to go to hospital two days instead of three days!
Wow, grade zero - I didn't want to risk getting my head cut even though partner regularly uses a beard trimmer lol!
Thanks treehouse. Hopefully that's the one I'll get. On the plus side he did say that the lump had shrunk a bit after the first dose so I felt that being sick was a small price to pay if it's going to work.
Thanks Katie - hope all goes well tomorrow
Hi all, after saying I wasn't bothered re hair loss apparently I am! 😢 Yup, wept this morning when I washed my hair and it came out in handfuls, literally! Thought we were going to have to get dynorod for the plug hole clearance. Big bald patch at front!!! Wonderful hubby whipped me off for a walk along the river, plus coffee, then dropped me off at Maggies for the afternoon. I was able to join a yoga class which restored my equilibrium. Big thank you there. Also met people a LOT worse off than me. After all, I've only had ductal carcinoma. Yay me! X
I've been reading all your posts but having only just plucked up the courage to join in! It's been really helpful to read all your experiences with chemo. I was diagnosed with triple neg bc in April. Had first EC 11 May and as its accelerated EC the next dose is on Thurs. Was unfortunately sick last time so feeling a bit apprehensive although the oncologist has upped the anti sickness, so fingers crossed
Same for me raitchr my mum has had to book time off work and she doesn't have any more holidays if it gets cancelled as they are all booked with my treatment
I am day 15 first FECT, head has felt like it has sunburn for 2 days now its falling out in 2 or 3 strands at a time. How short did you cut yours? Wondering if I should have buzz cut say 2 or 3 grade all over??? Any suggestions...
I am seeing Oncologist this Fri and blood test next Tues for 2nd Fec on Thurs 1June. I will ask the question about getting blood results back. I need to know as its half term hols and need Mum to take me to chemo and husband have the boys so need to know if there is a chance of it being delayed as Mum doesn't live locally to me..
Thanks kate11 and well done on the hair I felt so much better once mine was gone, I felt like it is constantly there and you are waiting for something to happen wth it.
good luck with your second one tomorrow, they certainly are coming round quick xx