I am due have my second fec next Friday and I have a appointment the Tuesday prior where I will get given the form to do bloods which means I won't get bloods done till Wednesday, do they phone you prior to chemo if yours bloods aren't right or do they tell you when you get there on the Friday, I would hate to phyche myself up then they tell me on the day of chem that I can't have it
Katie, don't worry about your 2nd treatment. I'm on FEC 2 day 6 now and have been even better than last time as I've been able to anticipate which side effects will hit on which days and start using products as preventative rather than cure. I was a bit anxious before my second treatment and I think it's because you know exactly what's coming and feel a bit rebellious about all that self discipline and whether you will be as good at drinking the water again etc. I've generally had a bit more energy this time. I went to bed early last night though as I was falling asleep trying to watch TV at 8.30pm! I love how you're testing the wig by the way! General public don't bat an eyelid, whereas nearest and dearest don't miss a trick! X
i got serious case f what is named, with commendable restraint, steroid intolerance which really had me bouncing off the ceiling. it will be interesting to discuss what alternatives there are on my pre therapy visit this thursday
Morning all. Just catching up on posts.
Steroids, I was told to take 8am and 12pm never after 2pm to minimise sleep disruption. I was wake 3am on first cycle so started taking them earlier to get them out of the way so I could power nap in the afternoon.
Water, drink 2 litres day before, day of chemo and day after
Sickness, take tablets before nausea take hold, more prevent than cure. I took mine for 4 days.
Hair, woke up this morning, my eldest son's 14th birthday, my hair still hanging on. However just showered and many strands fell out. Also lady garden is on its way down the plug hole, like I had overdone it with Immac. OMG on the slippery slope to being as bald as a coot...
Wow treehouse, that's quite the mix you have going on there! So lucky you spotted it. Ah, you're the complety the opposite to me as I'm ER+/Her2- My lump is immediately behind the nipple and outwards into the ducts/lobules. I think her2- is slower growing but a bit more stubborn to respond to treatment from what I've read. I'm expecting to be introduced to Tamoxifen at some point for ER+. I've had fibroadenomas since age 18 so got used to the idea of lumpy boobs early on but this one came along and tricked me!
Treehouse, what cocktail of drugs are you on? Just curious to know about pre-surgery drugs as I'm in the same position as you: stuck with the lump inside me until they can shrink it enough for surgery.
It's great to get first one out the way wolfee, I agree with Kate11 make sure you rest even if you feel fine as I did to much also and ended up exhausted. The medication did keep me awake to and after a few days it finally caught up with me
That's good to hear, Wolfee. Keep drinking plenty of liquids as that will help with headaches and also constipation with drugs. I think it's the steroids that has us twitching so early. Someone said to take morning and lunchtime, not night. Have to say it made no difference to me! One down,miso that little bit nearer the finishing post.☺️. So awful about Manchester. 💔
Glad to hear your first chemo went well WolfEE, take it easy and keep drinking the water!
Katie11, I just read the news after seeing your post, that's terrible news. Such tragedies bring home to us how fragile life is. Knowing you have a chronic illness means you know you have calculated risks (which are treatable) but those victims were completely unaware of any risk. 💕
Aw, that's lovely Katie, they miss you! I got some flowers delivered from work in Friday. Isn't it lovely how everyone is so supportive and really kind. X
Treehouse, yes getting rid of the malfunctioning real hair felt quite liberating. I quite like the army look on me (it was in a jaw length Bob before). My partner, this morning, after shaving it said "you're in the army now" and I said "yes, fighting for life". The wig is comfortable and a bit better than my real hair lol!
I got my partner to shave my head this morning to a grade 2. I decided I was caught between hair and no-hair which makes it tricky with the wig. I felt a teeny bit emotional as I watched my hair fall to the ground. So now all shaved and wearing my wig. When Mum called in though she immediately said it looked great and I thought "it's obviously, obvious that I'm wearing the wig, otherwise she wouldn't have noticed quite so much" 😂
Morning treehouse, my lump feels slightly different, I think the swelling seems to have gone down a little as originally my nipple was turning outwards but has now realigned (and I'm delighted to share the intimate details of my nipple alignment with everyone!). The hard centre of the lump feels a little more defined too (as in, it feels more lumpy rather than just a dense mass). I, probably like you, keep thinking maybe this is wishful thinking but I do think there is a slight difference. The Oncologist expects you to be the first to notice so this is a good sign. X
Is anyone else finding the top of their head getting a bit tender as the hair falls out? I've had to change my parting to the opposite side to cover up a thinning patch on top. Im thinking I may get my partner to shave it all off tonight rather than keep coping with shedding and thinning and transitioning through a temporary Gollum state!
Same here, Treehouse. Onco not keen at all on supplements so didn't push it. Upsetting a delicate balance was how he put it. I miss them as I always thought they were extra protection, but as my SE's last time were minimal, perhaps not?
As good as my friends are, they haven't been on this journey themselves so its good to have virtual friends on here who know exactly how it is!
Was told ok for multivitamins by chemo nurse but haven't taken any this time. I see Oncologist on Fri so will take the packet and show him before I take any.
Good to hear we are all well, enjoying our good weeks, heading into round 2 together ❤
Katie, sending a big hug to you and your friend. What a friend, we should all be so lucky.
I've just been going back through the threads and thinking how very fortunate , or lucky, or well prepared we have all been so far . I think we are indeed wonder women to have tolerated the treatment so well. Big pats on the back for us then! 😇 I am going to enjoy every minute of next week before round 2 on Friday. Love and hugs to all. X