Hi Mai, yes I was rather pleased too! I'm not sure whether the blood pressure increases immediately - it does peak during the first week - then starts to subside towards the end of the second week. It's never (thankfully) dangerously high - but that could be due to the ramparil balancing it out. So at least the medication appears to be working - of course, it gives me minor side effects - a dry cough and nasal congestion but hey it improves the heart failure I've developed through Herceptin so I'm not complaining.... just 5 more injections to go and counting...... (although if I'm honest - I'm scared they're coming to an end.....).
By the way Mai, out of interest, do you ever suffer from intermittent rib discomfort on your MX/rads side?
Mishy, I agree with you. When your own body has tried to kill you from the inside there is nothing left to fear on the outside. Those threats are all external and no bother at all compared to what's happened inside! A whole new perspective. X
Jay, glad your blood pressure is normal. Does it increase immediately after each injection? And for how long usually? Xx
Treehouse, I dot think any of us will ever be "normal" again! Paranoia is the new fragrance. I agreed a 2 week rule with my GP. I don't go in unless a problem has persisted for 2 weeks and it needs to be progressively getting worse instead of better. Xx
Shi, best wishes for your last zap-bap-a-do-wap-a-lam-bam-boo my tooty frooty! Sparkling all the way to the bell ring. ✨✨✨✨ 💗💗💗Xxx
Mishy, the anxiety is tough straight after treatment. Have you looked at Lola: Lifeafterlola.blogspot.com
Hope this helps. Sending hugs. Xxx
Yes I've got something "normal" and that's my blood pressure at last.... well, until next Thursday when I'm due the next Herceptin injection!!
Treehouse - I've definitely come to the conclusion that I was never "normal" - thank goodness! x
Hi Trisha, lovely to hear from you. I thought you had finished your rads? Are you having a second helping? I get stiffness, aches and pains from treatment, Tamoxifen and surgery but feel generally well. You should speak to your GP if you are struggling that much and see if they can run some blood tests. Glad your hair is going well, at least! Xx
Thanks Mai for sharing your blog - it is a wonderful thing to do - I remember in the early days of being diagnosed and then facing chemo - how I plugged into Victoria Derbyshire's blog and found it so helpful and when I went to chemo - I really wasn't scarred as I'd seen what to expect. It's hard to look back on the chemo days - I was reading last year's diary this morning and I almost can't remember until I read that how bad my mouth felt - how I simply couldn't drink water let alone eat!
Hi Trisha - glad to hear you're still very much a part of us still - I really recommend all Herceptin ladies on here to take a little peak at the Targetted Therapies section of the board and in particular Herceptin Side Effects discussion (it's currently the one at the top) - find Yorkie's comments - she's a lady whose now 8+ weeks on from final herceptin injection - her words are truly inspirational and full of hope - well worth a read and may explain some of the reasons why we feel so rubbish at the moment.
So it's onwards and upwards this week - no medical appointments due and just an achey body and a bunged up nose to carry around!! (I've also seen herceptin can be to blame for the nose thing too - I'm still not complaining though - it has far more benefits than negatives!) x
Thanks Mishy and Treehouse, I really enjoyed writing the blog and it's nice to help others who are starting this horrid journey. You have all contributed to the knowledge base which I built up so I think there is a bit of us all in there somehow. I feel like I'm coming out some very deep thoughts now after the inertia of treatment finishing. I can't change the future but I can change my thoughts. Xx
My son popped home this weekend so I've enjoyed spending time with him. Been out for a lovely canal walk this afternoon.
Here's the blog I've created so here it is for anyone who would like to have a read: https://lifeafterlola.blogspot.co.uk/
love to all. Xx
Mishy - I was only thinking this morning, bearing in mind I had my op last Sept - I've not really been given any info on lymphodema - I feel, especially as I've had all lymphs removed under my right arm coupled with rads - I should have been given some instruction on massage on assisting lymph drainage. I'm surprised I haven't been offered a sleeve - maybe that's going to be discussed with me at my 6 month post op appointment with the surgeon at the end of the month - we'll see!
Obviously the lady who made the comment on forums is entitled to her view - however, personally I have found the forum invaluable - I have been extremely fortunate to have the most amazing support of my hubby, family and friends but the ladies from May 2016 kept me sane! We were all going through the same treatments and only us were able to truly know how each other were feeling and offer invaluable advice and support. The reassurance that I wasn't truly going mad was immeasurable. I would recommend anyone going through this whole thing to join a forum like ours. So don't feel wimpy that you too used one - as you say it's not all cancer talk - but the laughs and good times are also extremely important. x
Hi Wolfee - it's definitely Mai who takes CBD oil - I'm sure she said she puts 2/3 drops under her tongue - but I don't recall where she gets it from - hopefully she'll be on here soon to direct you!
Hi Ladies, hope you are all doing well.
WolfEE, sending hugs as you hit your anniversary. My diagnosis was on 20th March so it's looming. The daffodils are starting to bloom and I am very happy to see them again.
Treehouse, take it steady and I hope your recovery continues to go well. Do they comment on whether they expect your heart rate to slow down eventually?
Mishy, sod superwomen who don't need forums. I think they're great. They enable us not feel alone at any time, day or night and we don't have to bore "normal" folk with our BC talk, because people expect the cancer story is over and we can move on, but in reality there are still a lot of issues and anxieties we need to talk about. This is a safe space to do so. I also like to think it's useful for health professionals or researchers to peep at if they want to know what we go through and how we manage it.
CBD oil. Yes I am using daily since I finished radiotherapy. As it is not conclusively medically proven there is no recommended dose so we are our own test. I buy from canabidol.com and their 500mg is about £40 which should last me about 2 months. They deliver next day. I just put 2-3 drops under my tongue twice a day. It's als good for anxiety.