Lots of good luck Tatyana for surgery - we look forward to hearing from you when you're awake and feeling like communicating with us again! x
Treehouse - my lovely - I am sad to read you're update. There's no way you can leave us. We're here as a listening ear even if we can't offer any advice. We've all been together for 7 months and we've been through some tough times, we've all had times when we've thought no one is interested or listening but coming on here you can guarantee a reply from someone or someone asking after you.
If your health determines you need a break that's different but don't feel we're not interested in you because we quite clearly are and indeed it's not nonsense what you're going through, we can listen and try to support you.
Please Treehouse - re-think your decision - we are all still here for you. xxx
Mai - I agree with the advice of pushing yourself - I too was being too kind to myself - but it wasn't until week 4/5 that I started to really push myself and I have to say the "cording" I thought I'd developed gradually improved and today I don't have any evidence of it and I can use my arm as well as I could pre-op! So go steady but prepared for a little pain!! x
Treehouse, you are still our May musketeer so no way are you going off on your own cardio trip. We are here to support all of your treatment. Update us when you can and let us know you're ok. Xxx
Tatyana, best wishes for you for tomorrow. Hope all goes well. I'll be thinking of you. Xx
My OH has to give me massage twice daily from elbow to armpit for the cording.
WolfEE, the Physio is just the post surgery arm exercises and assessment of progress. I've been told today to start pushing outside of my comfort zone. Eek, I need my noo noo comfort poo cushion at the ready! 💩
Treehouse, please, please let these antibiotics do the trick!
Mishy, it's great that you braved the world! I had a slight cold last week and was SO worried it was going to get worse and then get in the way of my s*****y. But it was just a 3-day slight cold/sore throat, and you wouldn't believe how proud I was of myself for shaking it off and it not turning into some kind of mega-infection -- yes, proud, even though I can't really claim any credit!
Shi, thanks for the good vibes! I have to be on the ward by 7.30 am tomorrow, but the BC nurse told me I most likely will have a long wait, because they do the day cases first (fair enough, to give them time to recover), whereas I'm staying in overnight so there's no hurry! In that case, why couldn't they tell me not to come in till later?! Still, I don't suppose I'd exactly be having a nice restful sleep even if I was still at home. They say I can eat and drink until 2.30 am. So what am I meant to do, set the alarm for 2 am and have a fry-up?!!
I'm really shocked at the amount of travelling that some of you guys are having to do. My hospital is a 35-minute drive (well, that's true if it's 7.30 am and there's no traffic!!), which is bad enough, and parking is downright impossible, hence I've had to rely on hubby to drive me there, otherwise you have to allow at least an extra hour to park and walk. I've had all my chemo and surgical appointments there, but some of my other appointments such as oncologist and various nurse-led clinics take place at a smaller hospital which is slightly closer and MUCH nicer, with hassle-free parking! My husband's cousin's daughter (I don't know if there's a shorter word for that!) is currently doing a 30-mile-each-way trip for her rads, even though she lives within a couple of miles of a large and relatively new hospital; they've got everything there except radiotherapy, which seems bizarre.
Good to hear from you Treehouse. It's tough getting pushed through more machinery and having more needles stuck in you but stay strong poppet. We are here for you if you need to rant/offload etc. Xx
Rosie, I'll be seeing Oncologist tomorrow. I've mentioned it before and they didn't seem concerned but I'll mention again.
WolfEE, that's what put me off the clinical trial: the risk of being in the placebo group! I mean there are many isolated trials which seem to be pro aspirin so I'm going with that! I don't want to wait til 2021 for answers.
I throughly enjoyed catching the buses today and felt quite independent and reintegrated back into the world again instead of watching from a distance or through glass! I'll be catching buses again tomorrow for Oncology appointment to discuss rads. My Physio assessment went well today except that I have cording from the surgery which needs additional massage. No wonder I'm finding the exercises so painful! Yup, you can get cording from the ANC surgery as well as from chemo. Hooray. The gift that keeps on giving!
Good to hear from you treehouse, hope you get your scan and they get to the bottom of this soon.
Mishy - I know when I finished chemo it seemed really weird not to be going every Thursday anymore, I’d got so used to going there. Eat well and look after yourself and hopefully you’ll avoid any colds.
Mai - I’m signed off until after Christmas but in reality won’t be going to the office until least end of Jan. Will see about working from home once Christmas is out of the way. Like you I’m enjoying the break. Did you check with anyone first about taking the aspirin daily? It’s something I’ve thought about. I’m on the blood thinning injections following my op so not a good idea at the moment.
Physio is is tough at times. There’s very limited exercises I can do for the first four weeks though. Went for a short walk but this really is baby steps. I’m quite bored already.
Lovely to hear from you Treehouse. I'm sorry to hear they're still pumping you with antibiotics - rather than finding out what's causing the infection. I do hope you get the heart scan done tomorrow at the latest - you've been feeling so unwell for too long now it's time they got to the bottom of this.
Apart from being laid up in a hospital bed with iv antibiotics going in at an alarming rate - how are you actually feeling?
I do hope this new lot of antibiotics bring you the relief you must so desparately need right now lovely.
Sending lots of love and hugs and I really do hope you feel better very soon xx
Hope you are okay, Treehouse.
I also have a very long distance to travel as we moved. My day visits involve 160 mile round trip, but I plan to stay down near the hospital for 4nights a week during rads as definitely can't manage 4 hours a day on the road. But I will have to drive down on a Monday and back on a Friday.
I will transfer to the local Trust in the new year but needed to complete the programme in one Trust.
Tomorrow I am going to do the return trip for the orientation and information meeting, so long day ahead.
Hope everyone has a good day.
Rosie, the surgeon has signed me off as unfit to work until 6th Dec so I'm going to enjoy a rest. I plan to phase in whilst on rads. I don't know if that's over optimistic on my part but I'll try it! To be honest, I'm finding the Physio hard work and slow. You just can't push it or you risk further injury. How long are you signed off.
As well as the Tamoxifen, Ive started taking a daily low dose of aspirin (75mg) as many clinical trials suggest it may reduce the risk of recurrence. Also as I'm on Tamoxifen with increased risk of thrombosis and blood clots it should counter balance this effect. I've done lots of googling for medical and oncology research for "aspirin and tamoxifen" and there appears to be no interaction between the two drugs but suggested benefits. With aspirin you just have to make sure you take it with food as it can attack the stomach lining and cause bleeding. Is anyone else planning to take daily low dose aspirin? My gran always took it daily and lived to 90, she'd had breast cancer in her 70s and was on Tamoxifen.
Been thinking of you treehouse. Big hugs xxx
Lands End lighthouse lol
I’ve been on the bus to appts a few times, it is quite good fun 🚎 Especially now we’re not so worried about germs. Are you working from home atm Mai?
katie - how are you. Are you looking for a new job, or will you wait until after Christmas now? 🎄
Thinking of you Treehouse and hope you will soon be home. 💗 Xx
Buddyfan, where do you live? in the Lands End lighthouse? I can't believe how far your journey is for rads. Wow, it's going to be a full day each time for you.
im going to catch to bus for my rads, 2 buses each way but I'm also hoping to get the bus 2 days to work. I have my Physio assessment this afternoon so getting the bus on my own to that. This is my first time on public transport since before chemo. I'm quite looking forward to the feeling of independence and being back out there! 🚌
Thinking of Treehouse today - hope they've made you comfortable and getting somewhere with their investigations. xx
Shi, I didn't know about the lgfb free parking. Did you know you get reduced parking for chemo if you get your ticket stamped and then go to parking office? Max 3hr charge. 💗✨
Mai it would have been a 60 mile round trip, however, thankfully in 2014 we got a purpose built centre for radiotherapy in the hospital grouds where I had the dreaded Docetaxol chemo! So not my nearest hospital but the main one for our area. So I should be extremely grateful but I can't help thinking 45 mile round trip is still too far to go everyday for 3 weeks!
Chips, gravy and mushy peas - nice!
WolfEE, I was thinking your hospital experience seems below par compared to others but now you're private with designer hand soap, things are looking up.
Big hugs Treehouse. Thinking of you and hope they get you sorted out soon. 💗 Xx
Tatyana, I didn't know about Zoladex but will mention it to Oncologist. Is it also regarded as contraception too? As I'm ER/PR+ I can't go back to the Mirena coil so was thinking of sterilisation anyway.
Trisha, glad your results confirm all removed and you are moving on to the rads phase now. 👍🏼 15 days of a 60mile round trip kinda sucks though.
Jay, 45 mile round trip kinda sucks too, not as much as 60 but still.....
My Mum came over again today and we went for a walk and called for chips, gravy and mushy peas again!