Jay - in our area they are setting up support/well being clinics for people moving forward after treatment instead of the Moving Forward courses. Might be something worth attending in the New Year. Saw it on the hospital website.
treehouse - you should maybe check to see if you're anaemic, my hb is taking ages to return to pre-chemo levels. It's good enough now for surgery but still not what it was before.
My op will take 8 - 10 hours eeek!!!! They will do physio on me while I'm asleep as I'll be in one position for so long. I've read the leaflets now so need to go and buy a few things as will be in for possibly 5 days as it's bilateral mastectomies and DIEP flap.
It's basically just an excuse to buy lots of new things and distract myself from next week.
Heather/Mai, I completely agree, this diagnosis has definitely made me see that things need to change. I was very stressed and almost desperate for a break after a very difficult 18 months. Although I've worked from home, I am ready to go back to the office but want to make sure I don't fall into the same trap of long hours and housework/ sorting dinner.
My children are adults but I was still running everything as if I was still part time and they were unable to get the dinner. This changed on chemo and I want to make sure it stays this way.
Mai, the counsellor said that life is now plan B not A. Were we really happy with plan A before or has breast cancer made us slow down, rethink our lives and make it better. I have often found it hard to ask for help, in the house we have now shared out jobs, the boys are helping more and if I can't manage to get things done then it really doesn't matter. It is a chance to hit the reset button and make a few changes to make us feel better.
I feel going back to work earlier will help me sleep, to push the negative thoughts away. On the days I have been busy I have slept so well, on the days I just potter around I am awake for hours. I have loved being at home with boys since March though but it is time to slowly get back out there.
Heather, I think you have the right idea, getting back into work is the best way to get back into it, just ease in gently and don't do more than you can cope wth. We have each other here for support but we need to engage with the real world again too. I've been thinking about your moving forward course and how you were all discussing embracing your new selves and I do wonder if we should be embracing what we have gained rather than what we have lost, like the chance to see my kids graduate etc. These are the things I feel are worth embracing and the losses are what make it a possibility. There is such a lot to reflect upon and it's so multi faceted that it will take time to process. 💗
My dentist said not to use mouth wash straight after brushing as you wash off the toothpaste. I have booked a dental check up and hygienist for end on Nov.
Thinking of going back to work a month earlier than planned. Maybe just 3 hrs on a Weds morning in Dec and use up holiday for other days. I think I need some kind of distraction to help me get back into it.
Mai - I should have given a warning about swapping sides of the bed with other half! - I had to swop sides to allow my drain to hang freely and I'm still on that side 7 weeks on....! Appears Hubby likes my side of the bed better than his own...!!
Jay, it sounds like we will be going through our radiotherapy at the same time. My CT planning is next Thursday and I will get all my dates then. But they assure me I will be finished by 20th December as we are off to Italy to our daughter for Christmas.
Phase 3, then Christmas!
Afternoon ladies, looks like we are all hobbling along! I've had my Mum with me today making me cups of green tea so I don't have to lift the kettle! I got up around 10.30am and have been sitting most of the day to avoid filling my drain bottles. I've output about 60ml in 24hrs so no way will the DN take these off yet. They have to be outputting less than 30ml in 24 hours for that to happen or 7 days post op, whichever is first. I had a reasonable nights sleep but felt weird sleeping on my back. My partner and I still managed to share the bed but swapped sides so I could have the drain on the left side and we put a couple of cushions between us so he would roll into them and not me. It seemed to work ok. I had my heart shaped cushion in my armpit to stop my arm pressing hard against my body.
With regard to to the teeth cleaning, whilst using a soft toothbrush - dental wood sticks are very good as long as you are very careful and don't scrape them against your gum. They are angular at one end and taper to a point at the other (not cocktail stick shaped) so you can use them as a toothpick or as a gentle scale and polish.
So, in the post this morning arrived the next lot of appointments! HOORAY!
I've got rads plannning/CT next Monday and will have first rads on Wed 29th - finishing on 19th December - which is just before the schools break up for Christmas, which means I won't loose any of the build up to Christmas time away from my Son - YIPPPEEE!!
it'll be the first school holiday since February where Mum isn't disapppearing to a Hospital appointment at some point.....!!
I'm so delighted!
It does, however, mean I now have 3 hospital appointments next week!
It does mean that Wolfee and her sister can now celebrate their birthday without me intruding!!
Glad to see you're both home Mai and Trish. Another hurdle jumped.
treehouse - glad you're finally feeling better and that surgeon was happy with new boobs!
Hope your ear infection clears up soon Missy, there's nothing worse.
Moving Forward course sounds good Heather, thanks for the update.
I'm just about to enter the "head firmly in sand" zone as s*****y is a week today. I want to have the mastectomies but worried about the length of the op. I feel so well at the moment it's annoying that I've got to go backwards. I have been meaning to read all the pre op leaflets I've been given but always seem to find something else I need to do ha ha. I will have to make myself read them at some point.
Well done curlyh on passing the end of rads - that's another step finished. I know what you mean with regard to not being at the end - I've got herceptin injection at the hospital every 3 weeks until at least next June although the onc said until next September when I saw her this week?!
Second Moving Forward session today. First bit was talking about how unique each person's cancer is, like a fingerprint so each will have their own unique treatment plan. Explained about ongoing fatigue, can last upon 2 years. Also reminded to do monthly check boobs etc as before.
This was followed by a group session with a psychologist discussing who we are now and how to move on and accept that we have been dealt a bad hand but to get to grips with who are are now. Lots of tears in the room but good to share and see we all think the same.
Hope you are all ok, love to all
Well done Curly, there are reasons for you to celebrate as you have completed the big treatments and the rest is ongoing mantenance. I am also ER+ 8/8 but have only had Tamoxifen mentioned so far. I will discuss all options with Oncolgust in my next appt, pre rads. I am still considered premenopausal as I'm 48.
Well done Trisha rest and recover...glad you are home and resting Mai take it slowly...healing takes time...good your cold is improving Treehouse..
I had last rads yesterday...skin a bit pink, op arm a bit uncomfortable and feeling tired today...was a bit emotional but don’t feel I am at the end ..
Is any other er + ladies having zoladex injections to shut down ovaries I have to start those and also have zometa infusions twice a year so it will be ongoing...take care all x
Well done Trisha, I can't believe how well you coped with the anaesthetic. My experience of anaesthetic is always followed by vomiting and even more sleep. After an hour and a half of surgery it took them 2 hours to wake me up in the recover room before I could be taken into the ward! I have no recollection of this! 😂 Glad this is now over for you and you can focus on recovery. X
Jay, well done on going into work! 💪🏼
Shi, the Clarytin mentioned is "Loratadine" which can be purchased under any brand name.
ive been asleep on the sofa for the last 2 hours or so! Not very good at this being ill thing, not sure what to do! I guess that is kind of the point: don't DO anything! 🤔
Mai and Trisha, well done. Hope your recovery is rapid.
Treehouse, pleased you are recovering.
Shi, Clarityn really does help with T side effects.
Well done Jay for getting back into work.
I hope everyone else is doing well.
Have a good day.
I survived my 2 hour working day!! and what wonderful news to return to, Mai is back home - YAY! Welcome home and welcome back on here! You will soon get used to the new "YOU" - embrace it and feel proud - that's my motto!
Sorry - the lasagne was my priority! but the focaccia was good too - enough left to have with pasta tomorrow! By way anymore veggie dishes you or indeed anyone wishes to share, I'd be extremely grateful. Anyone got any receipes involving kale - I usually simply steam it or bake it in oven making it crispy.
Shi - there is no set way to deal with the side effects of T - each of us is different when it comes down to it - it's really a case of wait and see how you feel and seek advice from others if necessary. Any concerns should be asked of the onc who is the person most qualified to give advice. Of course, having been through it, us May ladies have lots of hints and tips to assist but it's best to wait and see how your own body copes and not worry too much about it.
Thanks Treehouse, I am comfortable and have one drain. I didn't see the surgeon afterwards but the registrar visited to check on me. I assume the full discussion will happen on results day. They seem happy that it's all starting to heal well. X
Morning Ladies! What's left of me is now back home! Good god, how do we keep surviving this crap! 💩 Slowly adjusting to the new me. 🤕 Thanks for your good wishes and I'm very thankful to be moving forward in this triathlon. 2 down 1 to go! 💉✔️ 🔪✔️ 🔥
best wishes Trisha for your second surgery. 💗
Jay, you never mentioned the focaccia! That sounds yummy!
Treehouse, hope you are soon feeling better. Glad your consultant scanned you and confirmed he is happy with everything.
Rosie, glad you had a nice outing with friends before your surgery.
I'll catch up on posts properly now I'm back on my iPad.