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May chemo starters 2018

Shi Community Champion
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Re: May chemo starters 2018

Keep 💃🏻💃🏻🕺🕺🕺💃🏻💃🏻💃🏻Ladies your all on the jet plane to the Greek island and currently over France, each chemo is another few miles on the so 3rd one in you’ll be over Italy, feel free to run riot in the plane, dance in the isles, play air hostess whatever you feel left me really but keep focused knowing there is a beautiful resort waiting for you in a few cycles time 👍👍👍you are doing great 💕💕✨✨✨Shi xx
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Re: May chemo starters 2018

Morning all agreeing with many of you cycle 2 a bit more difficult.
TraceyMac I’m feeling what you are going through- looking thin here too- decided to make the phone call and buy the wig I selected. Trying to be positive but finding this distressing. I need to refocus and focus on getting through this and coming out the other end well.
Take care all
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Re: May chemo starters 2018

Hang in there ladies, it's a tough several days but it will get better..
Thanks JemPD, I am feeling more energised as the week progressed, I find it's easier to give into it than try and fight it. Hair loss settled a bit but so thin and dry, have to make my shaving decision this weekend.

We can do this 💪💪
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Re: May chemo starters 2018

Sorry for the typo.. spange not sponge 🙄 xx
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Re: May chemo starters 2018

Sorry your not feeling great sponge. I’ve never had any sickness but I was advised to take all the anti sickness meds anyway which I have. Prevention is better than cure!! I’ve got strong anti sickness to take for couple days after treatment and mild anti sickness to take as and when but have never needed them after taking the strong ones with my steroids.
Hope you feel better soon. You got this xx
Shi Community Champion
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Re: May chemo starters 2018

Spange, keep 💪💪💪💪have plenty of cat love and snuggles too, a lot of us with cats found they were very attentive during chemo, they sense we need extra love ❤️❤️And the thing that will make your heart sing is they still recognise you as mummy even with no hair which is that extra bit of love when you need it. Ladies who have braved the shave well done and don’t forget little princes trust that take your hair donations to make wigs for children ❤️❤️Helps turn the hair loss into something positive 👍👍keep 💃🏻💃🏻💃🏻🕺🕺🕺💃🏻💃🏻💃🏻💃🏻Ladies you are doing amazing 😘😘💕💕✨✨✨Shi xx
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Re: May chemo starters 2018

Hey all Smiley Happy I’m 7 days into the second cycle and finding this week tough going - tougher than first cycle, I know that it will all pass, but finding it hard this week. Feeling nauseous and v tired. Just trying to go with it but struggling a bit....I’m gonna take the first pill I’ve had to take for nausea and hopef that will help. Cat being v cute though, and not leaving my side which is kinda nice Smiley Happy 

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Re: May chemo starters 2018

Hi everyonehooe all ok
Hopefully you’ve all been enjoying the sunshine over the weekend and that’s why we’ve been so quiet on here 🤞
So I’m 12 days post 2nd cycle. And have been so lucky with no bad side effects except a little constipation sorry for too much info!! Lol.
I have been enjoying the sun and trying to safely tan my white scalp after burning it last week and peeling.. oops!! My bcn would go mad if she knew!! But other than that my skin doesn’t of seem to changed lik I thought it would which I’m glad of as going to Gran Canaria next month so I should be fine. My oncologist said I’m fine to go just postpone my 4th cycle until I get back! Got travel insurance today and was so surprised how cheep it was had to ring to confirm it was right!! It’s nice to have something to look forward to.
Everyone loves my bald look and are so supportive. I’ve only worn my wig a couple times but it’s there if I want it.

I’m going to the LGFB group next Tuesday looking forward to that and getting my goodies. Got bloods same day oncologist wed and chemo Thursday might just take my sleeping bag lol

Sending hugs to all
Leanne xx
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Re: May chemo starters 2018

Thanks Tracey Mac. xx
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Re: May chemo starters 2018

Its 4 fec then 4 tc or visa versa. They do 2 tests to see if fec or tc is best but you are randomly allocated fec or tc then if need be you have the other one although 30 or 40 per cent just have 4 cycles. 

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Re: May chemo starters 2018

Hi all - we have all been quiet for a few days. Hope everyone doing ok.
Tracey Mac- being good to yourself sounds a good plan. Has fatigue improved today? Sorry hair continuing to shed. Mine is too, but so far looking OK. Your daughter is amazing to even think of shaving hers if you decide.
Linda Corrine - what is your trial? Sounds tricky to make decision. Hope 3rd fec goes as well as can tomorrow- thinking of you.
Joandbasilthedog- hope treatment went ok today. Is it your 2nd?
Tropic_al- let us all know how LGFB goes- in on one on Monday.
Today was cycle 2 treatment day. Chemo drugs arrived 3+ hours late😖, they were expecting them on time so started cold capping- 5 1/2 hours later I took it off!!! On the positive side - the hair follicles will have well and truly frozen so hoping hair loss will reduce! My nurse for the day was so apologetic for delay- not her fault . Apart from delay all went well, now at home exhausted so a sofa evening. Ginger ale at the ready to combat nausea- really helped to have one before o got up last time.
Take care all xx
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Re: May chemo starters 2018

Good luck for third cycle tomorrow Linda xx
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Re: May chemo starters 2018

Saw oncologist today so need to decide if I come off the trial I am on. If I do then she said I may have 1 of the 2 drugs  I would have had on the trial at a higher dose although it would be discussed at the MDT Meeting. As my second ultrasound has showed no change in size although there is marginal change I think its a no brainer as they don't need to stick to the trial protocol and I avoid having another biopsy after the fourth chemo cycle. Anyway I am having my third fec tomorrow which I am not looking forward to!

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Re: May chemo starters 2018

Hi Sarah,

My hair has thinned so much and just not looking good so why hang onto it ? I think i have lost 50% and can feel it patchy underneath. My daughter wants to shave her head with me so I don't have to do this alone bless her, she is 21 and happy to shave hers for breast cancer awareness. She is braver than me but I think you are right, the anticipation might be worse than the actual event.

I will make my decision over the next couple of days as I get my energy back.

Thank you for your words, it's so good to have this support and know what we are going through is expected.
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Re: May chemo starters 2018

Hi all,

Day 19 already and cycle 2 looming on Friday. Had a port fitted today which went fairly well..only two attempts to get a cannula in..glad I now have the port. Hair started shedding yesterday after washing it. I have a lot to lose so will persevere with the cold cap and see how it goes. 

Not looking forward to the next outing for chemo but got a call from Maggies to say they had a space on LGFB on Thursday so it feels like something nice rather than someone shoving a needle in me for once!

 

Hope you're all doing ok.

Tropic_al

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Re: May chemo starters 2018

@TraceyMac - I also found the symptoms more intense on the second cycle.

For me they lasted one day longer than the first and then settled.

 

Re:hair - I'm not coldcapping, but as my hair seemed to be gradually thinning all over I initially planned to let it all go naturally.

However, a week after the second cycle it seemed to be stuck on 30% and a combover where my parting had widened considerably, so I had it all shaved off and was much happier.

 

With hindsight I left it a week too long,  as for the last three days before the shave I couldn't bare to look in the mirror, whereas now I'm happy to rock bald with a headband Smiley Happy

 

If you are waivering, the apprehension and fear of the shave is much worse than the reality.

Or - if you follow the pattern I did - it seems to stop shedding after the first week of the second cycle.

I don't seem to have lost any more hair since the shave - a number one crew cut - although when it sheds naturally it probably won't regrow until the end of chemo.

How much hair do you think you've lost?

 

Sarah x

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Re: May chemo starters 2018

Morning ladies,

Thanks for the update Tanya, we have all been quiet for 24 hours.

I had my 2nd FEC on 7th and the fatigue has hit me harder and faster this time. I had the usual headache and wooziness, nausea manageable but this tiredness is awful. I am being kind to myself and allowing rest hoping it will pass soon.

I cold capped again but the machine wasn't functioning properly and didn't seem as cold as last time, I have not stopped shedding since and now in a dilemma of shaving it off or persevering to see if it settles, not sure what to do.

I hope everyone is doing okay even if not responding have a read and feel the support xx
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Re: May chemo starters 2018

bald.pngHi ladies  I thought I would share my bald look with you too, I am now 10 days post second FEC and Im still doing ok apart from being awake at stupid o clock every morning.  I got prescribed fluconazole  on my last session for a very sore mouth and it has worked wonders, no oral thrush this time.  I am also still wearing my contact lenses and have not had any problems as of yet.  As well as my hair on my head  I have also lost every shred of hair on my body arms, legs armpits the lot .... But I still have my eyebrows and lashes and no signs of them thinning so far but will wait and see how long that lasts.  I cant believe that by the end of this month I will be half way through my journey.  Sending everyone love and good wishes and positive thoughts xxxx

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Re: May chemo starters 2018

Sorry Linda no, I’m finding my oncologist really informative and trustworthy when it comes to those decisions.

On a lighter note (because day 10 of 2nd cycle I’m still wiped out and slightly nauseous so need to find excuses to be positive!£, according to The Times today the kaftan look is THE look for this summer - it will probably be the first time in my 50 years I’ve actually been ‘on trend’ 🤣🤣🤣
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Re: May chemo starters 2018

I have had alot of hair cut out at the top as it matted after last chemo using cold cap so wondered if i need to use anything on my head where theres not much hair when i use the cold cap next time?
Also i am seeing the oncologist on tuesday.i was doing 4 cycles then op then maybe 4 more cycles. Now i need to do all chemo first so wondered if i should come off the rosco trial as i was told you normally do 6 cycles on fec-t.my ultrasound showed its fragmenting after 2 fec cycles but i dont know if fec or tc is the best type of chemo as they do a test on the trial to see which is best but allocate you randomnly to fec or tc first. I am having therepeutic mammoplasty op so want the best result possible from the chemo to get clear margins when they do op. Has anyone got any thoughts re this?
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Re: May chemo starters 2018

Hi

Thanks..that's good to know! 😊 X

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Re: May chemo starters 2018

@Joandbasilthedog I’ve only just seen that you’re on the same drugs as me. I had them over 2 days in first cycle and over 1 day for second cycle (yesterday)....I was worried too, and I know all peeps are different, but over one day went fine for me. No complications at all...just a long old day. Hopef will be same for you. Main change in having both in one day for me is that my taste buds seem to have died a day earlier. Oh, and woke up with a headache, but had breakkie in bed with steroids and lots of water and a paracetamol and headache went by the time the steroids kicked in Smiley Happy 

 

Are u taking pills for the diarrhoea? I’ve been quite fortunate with that and only mild loosenings (soz for detail), But someone told me that you need to use the pills to help stop it, as the chemo prevents it stopping naturally....

 

Hope your energy returns soon, so that you have nice days before your Tuesday treatment...

 

Sending hugs x

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Re: May chemo starters 2018

 
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Re: May chemo starters 2018

I have contacts but 1 split into 3 so I have not worn them since.

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Re: May chemo starters 2018

Hi All Firstly can I say the pictures have been amazing ...I was telling my son how the ladies on mu forum are rocking their new looks and look so chic. I am day 17 of first cycle and up to yesterday had lost nothing . I am now multing like my old cat . I have long shoulder length hair so it has a while to go but I think its the beginning of the end ( no cold cap due to migraine sufferer) . I have an appointment to see the wig lady at my hospital tmw as she has ordered some wigs for me . I get £100 towards one. I think though knowing how hot I get I may lean towards the scarf .
I have felt very tired and lethargic this week so far and the diarrhoea is back . I had hoped that I would be energised before the next cycle on Tuesday but not at moment. I think its a bit of dread of knowing whats coming.... i feel with my heceptin/perzamab going in on the same day as doctaxel and carboplatin that I haven’t felt the full force of all in one day rather than two days like before .
I have a Lgfb course booked in for june 25th which I am looking forward to as I think I will be ready for it and its nice to have something to look forward to . Booked only last week .
Anyway ladies keep going and your words and tips are definitely helping me so thanks 🙏🏻 to all.
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Re: May chemo starters 2018

JemPD I wear contact lenses and my optician said it was fine but I might feel my eyes are drier than usual with the chemo, been okay so far.

Just finished FEC cycle 2 and cold capped again. It was way more tolerable than the first time but I did take co codamol before I went.

Planning on a quiet evening, hope you ladies are all doing well x
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Re: May chemo starters 2018

@tropic-al I’ve got a port-a-Cath and love it- it was
Sore for a week after but since then haven’t looked back. Def worth getting for anyone who can.
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Re: May chemo starters 2018

Hi all,

Great to catch up on all of your stories and to feel that were not alone. Also some lovely photos.

I'm day 14 now so expecting everything to start dropping out but not just..it's only a matter of time.

im cold capping so we'll see about the head hair but touch it only when I need to and wash it once a week. First time my dry frizzy thick hair has been an advantage!

 

No idea what will happen to the brows and lashes yet. Hearing essential oils are good to put on them but who knows. Everyone's experience seems to be different and good to hear that many of you have kept yours for some time.

 

Was looking forward to my 'good' week but now booked in for a port on Tuesday to ruin that ahead of cycle 2 chemo next Friday. Still it has got to be better than 4 collapsed veins and agony last time..I sympathise with others going through that.

 

Other than a few headaches and sore throat, I've been ok this cycle so far with the help of Mr Ginger, lots of water, green tea and walking every day. Let's hope this continues.

 

Hope you all have a good day today.

Tropic_al xx

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Re: May chemo starters 2018

Thanks Herts

Sorry hair all disappearing - smooth legs over the summer has to be positive.

Agree totally - private cover through hubbies work.  This all seems to be costing a fortune - new tops to cover PICC line, ginger ale (got through lots 1st cycle!!, helped loads with nausea), etc etc.  Re wig I only need to purchase once I need, but will make decision this afternnon - have a friend coming with me to help.  Private health doesn't cover wig but does everything else - it's fine. WIll ask about Macmillian grant when I go to center for Look Good Feel Better session week after next.  Has anyone been to session yet? How was it?  Feeling a little nervous as so out of my comfort zone (again!!). Has anyone else applied for?

Love Jem xx

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Re: May chemo starters 2018

Lots here again. Will try to share my pic but like many I mainly seem to be getting triangles. Day 7 of 2nd cycle I have spent the last 4 days in a state of feeling sedated, with headache etc but coping with painkillers and also just taking it easy - eating a lot of chocolate! @jem I’m being treated privately and like you there seemed to be a question mark around getting nhs voucher (which is ridiculous because lucking out in private healthcare because of work doesn’t make me rich!). However I called the healthcare provider and they covered a wig up to £250. Worth checking if you haven’t already. I’ve lost 90% of hair on my head but shaved when it started and just go bald everywhere. Pubic hair much thinner but not bald (yet), legs and arms 90% bald, eyebrows much thinner but were bushy before (result) and eyelashes still there. My prediction is that all will go by end of 3rd cycle latest
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Re: May chemo starters 2018

HI lovely ladies.  Loving your photos beautiful women.  

Well day 16 of cycle 1 and appear to be doing OK so far.  Thanks for those who are into cycle 2 for posting how you are doing.  I'm guessing it's back to 1 day at a time again for us all.  Frantically getting everything sorted for next week so I can just take it as it comes.

Thanks Spange for info re eyebrows and eyelashes - will look at.  

Does anyone know if I will be able to continue wearing contact lenses if (I'm being postive) eyelashes and eyebrows go?

TracyMac and Linda Corrine - fellow cold cappers - lost quite a bit yesterday if I put my fingers through my hair but 'hair wash' day today and not much - fingers crossed.  Hair wash day has become an event I look forward to as I feel more me like!! Off to wig appointment today - have selcted 6 and now to try on to select.  I then don't need to buy until needed - hoping not.  Due to having treatment privately there is a big question as to wig voucher - appears I'm not going to get one.  

Those who have treatment in next couple of days hope goes well and SE are minimal.

Take care all  Jem xx

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Re: May chemo starters 2018

Welcome Ria - the hairs in my chin and on my upper lip (yes, I have a few yuck) seem to have stopped growing (silver linings yay). And the hair on my legs has def slowed down - I am shaving (carefully) but only needing to every every three days or so at the mo. 

 

I had my second treatment today and all went to plan. No probs. And pumped full of steroids, but starting to feel a bit shivery from the immunotherapy which happened a few hours after on cycle 1 too, but nowt for me to worry about - will just go to early Smiley Happy 

 

Eyelashes and eyebrows. My nurse today at the chemo unit at the unit gave me some advice about eyebrows and eyelashes and suggested that I buy a product that will help them NOT fall out. No guarantees, obv, but worth a try, less cos of the aesthetics (though that’s obv a driver too) but cos of the impact of not having eyebrows/lashes, which help stop dust and other crap getting into dry eyes, which nurse said is most unpleasant. Here’s a link to the product she recommended. Not cheap, but seems might be a good buy,,, but...https://www.amazon.co.uk/gp/product/B000TD5KR6/ref=oh_aui_detailpage_o00_s00?ie=UTF8&psc=1

 

 

Tracey - you have your second treatment tomoz don’t you? Hope it goes well - sending peaceful vibes xx

 

Will try to repost my bald pic - using public option rather than hidden. I’ve gone shorter now as was getting bit patchy...number 1 all right round now. I have a pic with a blue wig too, which is quite a fun alternative Smiley Happy But not worn it yet. Too hot, and too busy getting used to bald look...

 

AD042C26-6B3E-49A8-A970-38888399D833.jpeg8C1D24D2-14C8-4CB2-BD69-ACF4C8B91858.jpeg

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Re: May chemo starters 2018

Hi, Linda!

 

I'm shaving them as normal in the bath, but being extra careful and it seems fine xx

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Re: May chemo starters 2018

I do t think shaving my legs was a good idea in case I cut myself and I was told not to wax. What's everyone doing re hair removal on legs? Thanks.

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Re: May chemo starters 2018

Photos are awesome, you are rocking the look, so proud of you.

I am having my 2nd cycle tomorrow and will use the cold cap again.

Hair coming out running my fingers through it bit not too bad yet.

Welcome Ria, let us all know how you are doing x
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Re: May chemo starters 2018

Ive lost all the hair on my body apart from my eyebrows and eyelashes. I’m hoping they’ll last but doubt it. Loving the fact I don’t have to shave or wax and it’s great as I’m going on holiday in July so don’t have to worry about doing my bikini line haha. I’m day 6 of cycle 2 but lost most of my hair 2 weeks after 1st cycle.

I’m loving the pics you all look amazing. I can’t post mine as I’m on my phone 😕
Leanne xx
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Re: May chemo starters 2018

Hi, Melissa!

Your photo's bold and clear and I love your top!

 

No, I'm not getting a wig.

I've had the voucher for a few weeks but although I may change my mind after chemo when my hair is taking forever to grow back I'm going to stick with scarves and turbans and today just a headband over a bald scalp because it's so hot!

A week ago I would never have even contemplated going bald in public, but now I'm quite happy with it - funny how things change Smiley Happy

 

Glad you have no nausea.

My head hair seems to have stopped falling out now.

But I'm still having to shave my legs, that never thinned at all!

 

Sarah xx

 

 

 

 

 

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Re: May chemo starters 2018

Hi, Ria...and welcome!

 

Aahh, the hair thing - although my head hair's gone I'm still having to shave my legs as that is showing no sign of slow growth at all!

 

Sarah x

 

 

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Re: May chemo starters 2018

I still have eyebrows & lashes & most leg hair. Am using the cold cap so hoping to keep hair on my head too. I am day 15 of cycle 2.

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Re: May chemo starters 2018

Can you see this picture? I've changed setting from hidden to public. Sadly every strand is now just placed on my head, can't touch or wash it. Had shower last night and where the water hit my hair line all the hair came out. I'm trying to last a few more days with hair ! My pubic hair have pretty much gone. Hoping to keep brows and lashes for as long as possible. I feel once they go I'll begin to look poorly. those a week ahead of me how are your brows/lashes lasting? It's day 2 of cycle 2 for me. I have to say Emend anti sickness is marvellous..no nausea, just a little tired today, but I did wake at 5am so that's not helped. Are you now wearing a wig Sarah? I've got mine ready but also have a lovely summer turban  I bought at the wig shop which I almost prefer if I have the courage to wear it out!  

Good luck to Everyone having treatment this week xxx Melissa xxxIMG_0030.JPG

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Re: May chemo starters 2018

Hi All.  I'm Ria.  Found a lump in April and have been diagnosed with Triple Negative Grade 3 Stage 2 Invasive Dunctal Carcinoma.  Just completed the second EC on Monday and shaved my hair off about 10 days ago.  Wasn't easy, especially as it was shoulder length and blond and had taken many £150 sessions in Toni and Guy to make it look as best it good.  Have tried to post my baldie look but awaiting approval and then I've had a rather lovely wig made which I'll post as well.  Only worn it once so far because it's been too hot but is fun to wear.  Will be annoyed if I'm still having to pluck the hairs of my chin if the hair on my head is gone.......


@Sue C 

 

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Re: May chemo starters 2018

Melsy68 and Spange, not able to see your photos, please send again would.love to.see them
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Re: May chemo starters 2018

Melsy68 and Sarah, you both look bloody gorgeous Smiley Happy and I love the idea of sharing pics. Nice to put faces to names. Here’s mine...7B481537-5CC6-4944-A2B5-46A28FEFC538.jpeg

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Re: May chemo starters 2018

@Melsy68 - I couldn't view your photo, it's got a triangle in it, but that could be just my dodgy laptop.

However, I can see your hair in your profile pic and short suits you!

 

Love the idea of sharing baldy photos, it's really good to put a face to names, and share the positive  part of bald - that  the anticipation and dread is so much worse than the actual deed!

 

Sarah xx

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Re: May chemo starters 2018

You look great Sarah .. you've gone a lot shorter than me, thought I'd share mine too! 

Ive woken today from cycle 2 feeling ok. Had breakfast, Emend & steroids. Feel a little tired to going to have an easy day. The suns not shining in Essex so a sofa day! I've got my LGFB day on 2nd July which will only be 5 days post cycle 3. Really hope I'll be well enough to attend as it sounds like the side effects are lasting longer now we're getting into it. IMG_0034.JPG

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Re: May chemo starters 2018

@Hets67 - I alo found the side effects of cycle 2 more intense than cycle one for the first six days - one more day than cycle one.

But I am now day 8 and for the last two days my energy levels and taste are back up to normal again.

 

I went for the dreaded headshave yesterday, which I found quite emotional and frankly terrifying taking my seat in the barber's chair, but my dad was with me for support, the barber was wonderful, and I actually quite like the bald look!

(Although I will say black and white is more flattering than colour!!! 

 

Sarah xx

 

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Re: May chemo starters 2018

So much on here now it’s hard to keep up! @spange your post has really helped. I sailed through the first cycle and am also loving the bald look. But yesterday morning, day 5 of 2nd cycle, tiredness, headache (😱), and lowness really hit me like a bus, and last night the headaches in my dreams were awful. And today I feel the same, so this must be what I managed to escape last time. Def now need to pace myself and the way I feel atm there is no way I could work. Hi hum. I was also more sick yesterday so stuffed myself full of carbs and my rocking bald look is starting to look distinctly puffy!! 2 down, 4 to go!
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Re: May chemo starters 2018

Morning lovely warrior women - I’ve been catching up on all the news Smiley Happy I’ve been a bit radio silent for the past week or so. Essay update follows (hope you sitting comfortably with a glass of cold water...) x

 

I’m heading to get blood tests done today in prep for tomorrow’s treatment (TPDC). Second cycle and all in one day rather than two. Am more nervous about it this time round, as the past week has been just lovely so not looking forward to doing it all again, but teeth will be gritted and brave face will go on. Also, I know a bit more about what to expect this time round, and so hopef better able to handle/counter the effects.

 

I thought might be useful to share what I experienced in the cycle - I hope so anyway Smiley Happy 

 

Days 1-4: Mainly the steroid effect and feeling a bit spaced out. Lots of energy and not enough sleep. But a positive head. Lots of soup making and walks. Taste buds went on day 3. I have bought some dark choc with raspberry (Montezuma) as a treat for this time round - hopef the taste will cut through Smiley Happy 

 

Days 5-10: Main things were v dry mouth/nose, inflamed gum, constant soreness around SNB wound, fatigue, feeling low and not wanting any social interaction, low appetite, headaches and general malaise! Things to hopef help this time round? I found that pineapple chunks REALLY helped with dry mouth, so stocked up on those. Someone also said that cucumber might also help so will try that too. Fatigue/low mood - am going to try to listen to my body a bit more...and not say yes to things I don’t need to. Also, I’m going to write a low energy list of things that I like to do, so that when feeling low, I can give myself good things to choose from - even if it’s just getting up and going outside and sitting on the back step for 10 mins to experience something. I have borrowed an online audiobook from library, so that’s on there too. And Netflix boxsets of The Good Fight, and Alias Grace, and The Rain lol. Need to be kind to gentle to myself on these days. 

 

Days 11-13: Woke up on Day 11 and recognised myself again Smiley Happy Taste buds starting to return too. Main thing from these days for me is to take it a bit easy. Great to have energy again but all too easy to overdo it and then crash! 

 

Days 14-21: Good days - looking forward to these days will help me with the hard days that will come before. I will write down the good things I did on these days as a reminder to myself! Actually, keeping an ongoing list of the good things throughout this process might be a bloody good idea! Hmmm.

 

Main other thing from cycle 1 was hair loss, as I see it is with most ladies. My hair was very long (down to waist) and I cut it short just before start of cycle 1. Started get itchy head and to lose a few strands from day 12/13 and then much more day 14, so got clippers out and did number 2 on top and number 1 on back and sides. Gulp! Glass of Chablis helped...While it’s not a choice I’d ever have made, it’s actually OK. I echo Leanne and am trying to rock the bald look. I’ve decided not to wear a wig (though do have a cheeky blue bob that I think I will wear on occasion), and will go with beanies and turbans, or naked (so to speak). Found some nice turbans at https://www.hipheadwear.co.uk/jersey-with-knot. Going to try for the Macmillan grant (I thought was means tested too, so thanks for steer), as can only use the NHS wig grant for wigs rather than for other headwear, and am booked on LGFB workshop end of June.

 

So that’s me. I’m feeling positive ooverall atm, but nervous about next cycle. But know that the symptoms are temporary. I went to my acabella group last night and for warm up we sang a song with the words below, which are holding me up today Smiley Happy

 

I am a tower of strength within and without
I am a tower of strength within

I let all burdens fall from my shoulders
all anxieties slip from my mind.

I let every shackle be loosened
I let every shackle be loose!

And repeat from beginning! Tune - if you want to check out here’s the tune (not me singing lol, but gives you an idea!) https://youtu.be/WxK2CSTACYI 

 

Have a good day ladies - and if you’re feeling low, sending you a warm and gentle hug xxxx 

 

We can do this xxxx

Member

Re: May chemo starters 2018

Tanya, I am going for bloods and seeing nurse this morning in preparation for chemo on Thursday.
I am a District Nurse Team Manager , I am not doing patient visits because of our low immunity but I am able to base myself.in the offoce on the days I feel well. You are a week ahead of me, let us know how you are feeling.
I have LGFG booked for July at Velindre xx
Member

Re: May chemo starters 2018