Good to catch up with your news.
JemPD thanks for the T tips..I have my dark nail polish ready and use factor 50 so will re,ember to put it on the nail beds.. Always worry about taking paracetamol when my temp could be high.
Havent used any theatre caps but good tip if it goes thinner as very cold last time. You're nearly there. Well done on the wig. I haven't bought one and wear bandanas and buffs instead. Too hot for wigs for me 😊
Went to work for a while today..strange but good to see everyone.
Will be back at the end of the week no doubt.
stay well everyone,
@JacB - so sorry your liver reading was wonky, delays must be so frustrating!
Has anyone found the crashing fatigue worse the more sessions we have?
I'm on course for my 5th of 6 on Monday - docetaxol - but this week I'm stuggling big time with fatigue!
@Jacqb Thanks. Will be there ate 1 so will probably see you tomoz. Glad to hear they have lowered the dose. I did ask re that too & maybe they will end up doing that for me too!.x
Just been told my neuts are 0.88 and need to be 1 for chemo tomorrow. I have to go in an hour early for another blood test tomorrow to see if they will be able to do the 5th chemo. Not sure why as the last 2 times it was higher than before I started chemo although I am on Docataxel now after having 3 FEC? Just hope it is higher tomorrow & that I havn't taken the steroids for nothing.
They have agreed to use the cold cap again (as last time they refused) using a paper theatre cap or gauze as I got an e mail from Paxman saying that they can use a theatre cap or gauze!
Hi everyone..not had much to report for the last 2 cycles and I count myself so lucky with escaping most SE. I have been checking in daily though and am so impressed with how strong and positive everyone is doing/keeping despite some of you having a few struggles, hospital visits, delays and nasty SE. I’ve been routing for you all daily xxx
Shi’s Encouragement is absolutely fabulous, I can’t thank you enough for taking the time to boost us on.
I had my 4th FEC (4/6) on Wednesday. I’m actually finding having the chemo the most traumatic part. Again my WBC was down from the day before bloods, but new bloods on the day showed ok, I find that wait so stressful to see if chemo is going ahead or not. My Veins are shot to bits so they had to go in through my hand and for the first time I was hit by fatigue pretty hard! I was ok on the Thursday, day one, but Friday Saturday Sunday I just kept dozing off! However new week, new me, feeling so much more energised and back to normal..wait what is normal?!?!
We’re all about to turn that corner real soon and see that light....keep going everyone xx Melissa xx
sorry I have been away for a week or so. Haven't been away on a holiday unfortunately, although the flight is sounding wonderful Shi!
On my good week or cycle 3 of FEC and feeling great as you do so working and seeing friends 😊.
Days 5-9. were not so good this time with a temp and feeling unwell day 7. Think I got too tired after not sleeping at night and not resting enough in the day. Got as far as A&E then temp dropped a bit and didn't go in as felt like a fraud the last time so went home to bed...really stupid but survived ok and told off by the specialist nurse the next day. Took me a few days for my immune to pick up and spent says watching football and tennis till I felt better. Will go in quicker next time.
I have my first Herceptin this coming Friday so need to stay in hospital all day for monitoring then my first T next Monday with the cap. Dreading T as have heard nothing good. Have my nails painted dark, plenty of pineapple in stock, Manuka honey, peppermint tea, ice lollies, difflam and will hope for the best! Busy time at work and have been trying to help out as we're a small team but will have to work around the down days.
Sorry some of you ladies have very sore mouths..that's been my main problem so will have to work hard on keeping an ulcer free mouth.
If if anyone needs any cold cap info then I'm still doing it despite losing quite a bit of hair on top It's given me a lot of confidence. Can't say that this summer is the easiest to be doing it though as wearing bandanas and hats out and hard to keep a cool head with these steamy nights in a very hot house! I'll help where I can if anyone has questions.
Will be back soon...no doubt whinging more next week! 😀
Best wishes he's for some healthy days for all
Good afternoon ladies,
I hope those rashes clear up for you Tanya.
Thank you for the positive vibes for the dentist, unfortunately I had to get the tooth extracted this afternoon whilst my wcc is optimum but that means no first T for me tomorrow after getting myself mentally prepared for it. I had already taken my double dose of dexamethosone so I will be buzzing tonight no doubt. I am on a strong antibiotic for 7 days as well. I am sure the steroid will help reduce the extraction inflammation so not taken without cause!
I am a bit upset as I have all the dates mapped out when treatments are and when I can work and now I have to change it all again but on the positive side, I can go to my LGFB session on the 24th feeling well. I have to go for bloods again that day and I have to phone Velindre Friday for my next chemo appointment which they can't guarantee being a week later or the venue so I am feeling apprehensive about that as I have got to know the nurses and it will be the first T so already worrying about it.
Have to stay positive and just deal with what they offer me. Sorry for the negative emotion in my message, think it has got me down a bit today 😞