Hello, sorry to read that quite a few of you are suffering after having T. I'm from the Oct thread and for me, the first one was definitely the worst, so hoping that will be the case for you too x
Hi Tracey Mac...I'm also day 5..spent last night back in A&E following the rules as my temp was high all afternoon and into the evening and a really sore throat. So another late night of tests. Was fine but spending today sitting still, resting and with a fan by my side! Not heading back to the madhouse of the hospital again if I can help it. Like you I have pelvic and thigh aches and lower back but bearable for now. Just tired. Bring on cooler temps.i too sleep on and off but at least I don't have to get up for work if I don't want to as working if and when I can.
Food has definitely become a little dull as nothing tastes so great now. I love curries but even worried I'll start not go enjoy them which is a shame.
Hope you're all well today and make the most of the weekend.
Bring on Greece!
All the best ladies,
Back again..day 4 after first docetaxel and Herceptin, permuzutab was last Friday. Long days as always. This cycle has hit me harder than the FEC and I'm so tired and achy right from the first few days. So hot again here up to 30 degrees which isn't helping. Monitoring my temp which is quite high on the borderline today, but hopefully it'll drop again and I'll avoid a trip to hospital tonight. Can't take paracetamol for aches just in case. Hate the uncertainty. Have a sore throat so starting fluconazole and Difflam early tonight to try to stop any issues there. Totally different feeling than when on FEC.
For the cold cap girls it is at least better on T as yes only 20 mins afterwards instead of 90 mins I had on FEC...such a relief. Have still lost quite a bit of hair on top but maintaining the bandana look and hoping to persevere on to the end after this effort. The first 10 mins are horrible now that my hair is thinner but just about bearable.
We're all doing so well...keep on going ladies. I'll be back feeling better tomorrow hopefully.
Best wishes to all,
Morning Tracey Maci hope you are doing well today. Re cold capping on T- yes a much shorter time- it was a pleasant surprise for me. My nurse showed me the chart with all the chemo drugs on and the time lengths for each. Xx
Tracey and Tropic_al hope all goes well today with first docetaxel. Thinking of you. Sorry you didn't sleep Tracey😣
Herts- I am hoping that you haven't had any infections this cycle 😀. I was remembering your stories of your fellow patients yesterday whilst at my Casa NHS! I'm home now 😀, still feeling pretty ropy with tonsillitis but hoping by tomorrow will feel more me like.
Mouth issues - sorry lots of you are suffering too - my top tips -Difflam and GelClair - someone suggested this after last cycle,as did my nurse, the combo is amazing- the GelClair allows you to be human again and eat. My doctor hadn't heard of it but was happy to try.
As Herts has mentioned it would be good for us to support each other through the next roller coaster. Who has already had surgery? For me I had mx and reconstruction before chemo, due to small margins skin side I will need rads next - waiting to hear from this consultant. I am hoping to have active treatment finished by end of October- booked to go away with family- I think by then I may just sit by a pool and sleep!
Quick question - those who are adjuvant chemo - have any of you had scans of any sort?
@Hets67 I was given fluconazole steroids for a really sore ulcer filled mouth while on Fec. I didn't use them at the time as I wanted to see if they would resolve themselves with just Difflam, and they did. However, my mouth and throat were so bad on docetaxol that I took the whole 5 day course and they really did work xx
thanks so much and hope you feel better really soon. Glad you were looked after so well. Rest up and take care of yourself.
Thank you so much for your replies and support. Well it turns out I wasn't suffering terribly with side effects from the dreaded docetaxel, but I have a nasty dose of tonsillitis! My temp was high yesterday and called the nurse who sent me to a and e, no room on oncology- they were really good and found a bed on oncology for the night. Lots of fluids and iv anti biotics and feeling a little more me like now. On my way home soon armed with anti biotics and need to rest from this.
tropical_al - hope all goes well tomorrow.
We are all getting to Greece where the amazing Shi will welcome us as we descend from the plane that is chemo!
Shi..you're hilarious. I'm handing out Mojitos all round from the galley if that's ok?😎 If you don't like it I'll drink it!
Had my first Herceptin on Friday..very dull long day. Didn't feel too bad, although lots of steroids today for my first docetaxel tomorrow..feel a bit spaced out...eek...not looking forward to it. How lovely to spend another day in hospital... Not.
i also seem to have ramped up on hot sweats at the mo. It is so lovely to have a few days away from the heat before it builds up again. I'm in the south east where it's due to be 30 again next Friday..day 5... That'll be pleasant.
Seems like some of us are already looking forward to the end of the chemo. Can't wait for it to be over but just need to focus for now. Hope all of the sore mouths feel better soon. I'm going to be on alert for that as I seem to get affected by that. difflam at the ready!
Hope you all have a good Sunday and I'll be in touch next week...hopefully not whinging too much.
Take care all xx
I can sympathise with the bone pain and am sending you a virtual hug.
It will pass.
For me, the side effects kicked in on day 3 with horrendous mouth ulcers and a sore throat.
The next day the bone pain started, with the worse days being 5 and 6.
But by day 8 all side effects had subsided, except for the night sweats and fatigue, which seem to have continued all cycle.
I have my second docetaxol - and 5th of 6 chemos - on Monday.
Hope you feel better soon,
@Hets67 I think I may be first over the chemo finish line, barring hiccups, as my last chemo should be 20th August. And then a three week break before 20 rads sessions - it was supposed to be 15, but at the radiology appointment on Monday they'd added a fourth ''booster'' week, which threw me a bit as I had a finish date in mind. xx