Wow - I really handled all sessions of chemo quite well but now that I've finished number 8 two weeks ago, I really feel exhausted... has anybody else had this problem? I did hear that the 8th is the worst, but maybe it's just psychological as it's the end? I am trying to rest every afternoon so hopefully this will pay off.
Would love to hear from others that have noticed that the last one was the hardest - I guess it's the accumulation of all?
I have my double mastectomy date set for 13th November - scary monsters but I'll get through it, I guess....
Click on the link below it should take you to it.
Hi all, just thought I would check back in here as have been on the FB page a little more but wanted to say hello to Lovely Shi and see how anyone who isn't on the FB group is doing.💜
I finished he'd radiotherapy on Friday and don't feel too bad. A little redness developing so putting lots of E45 cream on. Radio was way easier than chemo, just a bit of a pain going every day.
Trying to look forward a bit now, although still have Herceptin and permuzutab infusions until next year so lots to come with hormones.
Hope all goes well this week for you all. Shi, you're a star on this group ⭐️
Shi the October surgery thread has not returned. Can you mention it please as just had op and cant work out how to send a message re this. Ta. Thanks for tips re surgery as were helpful. Not been told to wear a bra although can try to see if a bra is comfy.
Ellen Fraser - I live in Vienna - my photo is a side shot with shoulder length hair (obviously old picture) and the other photo is with my husband in ski gear.... Hope you are able to find me as I wasn't able to find Linda 😞
Please advise your FB profile photo details so either Deborah or I will find you.Are you set up to get messages on the forum?
Unfortunately I didn't get a message from you 😞 Would you mind sending it again - firstname.lastname@example.org
Thanks a lot,
Hi, oh dear we are a bunch of old crocs aren't we! Oh well at least i know its normal, I walked about 10 minutes to the hospital today and my calves and thighs felt like I had done a hike... hope it passes eventually.
Thanks for your input though.
Hi JemPD, thanks for the reply, glad to hear I'm not the only one! Unfortunately treatment not finished yet... I had a masectomy in May, then the chemo and am scheduled for a node clearance on 23rd Oct followed by radiotherapy so still have a way to go, but nothing can be as bad as chemo can it? Would be glad to hear how you get on with the achyness, its definately something I wasn't expecting. I feel like I have done a huge workout, without actually doing the workout! My calf muscles ache, my thigh muscles ache too and if I squat down I can get up but boy does it hurt.... everyone thinks because I've finished chemo I must be bouncing around.. far from it.. but I'm still here so thats a bonus!
congratulations on finishing chemo - it's a great feeling to have finished but then we are left with these horrid lingering side effects. How good is it taste and enjoy food once more 😀
i finished 6 weeks ago and then had radiotherapy (finished this on Friday), so today is my first week day without treatments/worries of op or wondering which se are going to appear today for 8 months - a strange but great day.
like you I have suffered from terrible achy legs - climbing stairs is still hard work, I'm ok walking on the flat, also suffer with restless legs. My oncologist 6 weeks ago said this was a normal side effect. Sorry you're suffering too but It is good to know I'm not the only one. After speaking to the physio at the 'moving on course' she recommended that I ask for a phyio assessment, to ensure I was helping my recovery rather than hindering it. Going to email my oncologist today.
I'll pop onto the June thread and let you know any outcomes and ways forward.
Is that you finished with active treatment?
have a good day.
Hello May chemo ladies, sorry to hijack your thread. I'm from the June chemo page and have finished my FEC-T 3 weeks ago today. Just wanted to ask a question. Since finishing chemo (the last week or so) although I feel great in myself, taste back etc... my legs, back, bottom and feet and arms really ache, I have such restless legs in bed at night and have to toss and turn to get comfy only to feel really stiff again. Even walking makes me feel like I've done 10 miles.. is this a normal SE from chemo? I feel like 100 sometimes.. I'm much better once I'm up and moving but just ache and feel old...
OH IS still looking for accommodation on Friday night Shi. Will book somewhere to mod. It's expensive in Surrey due to golf so may stay near Bath on way home. Maybe find somewhere for us to meet up!