Janie, you shouldn't be sick. Phone the unit , let them know, and ask for a change of drug. I hate being sick, I mean really really hate it. So I was very specific I needed help here. I was given Emend and although a teeny tiny nauseous I was very ok. When I was put onto a newer, super drug it just sent me whirly and then to sleep, so I requested the Emend again, and no probs. The medical team want to get you through this as safely and best they can. Don't be shy! Shy bairns get nowt! X
Janie, apparently Emend is the best anti sickness medication but it's more expensive so you have to ask for it specifically under stress. Hope you get the nausea and sickness stays under control but if not don't be afraid to ask your medical team for something better. Xxx
Hi Janie, I was one of the ladies from the Oct thread that Shi mentioned who used sea sickness bands whilst having chemo. I don't know if it was just a coincidence, but I wasn't sick during chemo. (I kept the bands on for several days after I'd had chemo) x
Janie, congratulations for getting through the first session.
Hopng you're still feeling less nauseus this morning.
DIEP is the immediate reconstruction method I chose at time of mastectomy. They take fat from your tummy to make a new breast. Although my surgery took 7.5hrs I can honestly say I didn't experience any pain and recovery is extremely quick😊
Ironic we we all seem to be 50ish x
I know! I didn't have a lump or anything, mine was caught on my very first, welcome to being 50, screening mammogram in January!
I'm also 50, diagnosed on 9th February.
I had a WLE and SNB, followed by a second operation for clear margins and full lymph node clearance as I had a positive sentinel node.
I'm in Wales xx
Thanks Sue for more tips/advice.
Hello to everyone, I think we are all going to find this forum extremely helpful!
To introduce myself: diagnosed end of January. Sentinel biopsy 14th February. Nodes clear. Right mastectomy and DIEP in March (discharged on my 50th!). Not the best birthday present but recovery has been extremely good and now the next chapter is 6 x FEC. I'm under Broomfield hospital, Melissa x
Thank you, Sue x
The problem with injecting yourself is that you can't look away 🙂
I think I'm going to have to face that fear head on, take a deep breathe, jab and hope for the best!
Yes Hets, injections in the mouth are far worse than anything else we have to bear!
Re. gscf injections........I was provided with a sharps bucket by the chemo nurse. No wipes though, although no one asked for that to be done. I'm currently having monthly zoladex injections and they give me a cream for that to numb the area, so if you have problems, ask for that. I initially had the district nurse come out and do it, but they weren't keen long term and I was a real woss, so couldn't do it myself. In the end a friend/ nurse did it for me! What I would say is that it can give you bone pain after. Take the ibuprofen and it clears up pretty quick.
I must admit, I'm slightly concerned about the injections.
I've been told I'll be self injecting at home for seven days each cycle.
The ocologist said ''it'll be easy, you just grab a bit of fat from the tummy with one hand and inject with the other''
However, I'm not convinced it'll be that easy...
Do I need to buy alcohol wipes and a sharps box or do the hospital usually provide them?
(long list of things to ask at the pre assessment tomorrow!)
Welcome Hets and Janie
In terms of meds, your chemo team will give you the steroids, anti sickness tablets and possibly gcsf injections. If the anti sickness tablets are not effective, then let them know as there are others they can try. Main essentials for you to get would be a thermometer, constipation/ diarrhoea tablets, and some ibuprofen ( try to avoid paracetamol ). Personally, I didn't need anything else.
If you can prepare any meals in advance, that would be great, or just get in some simple things that can be heated up in the oven.
If you want to ask us anything at all anytime, you can pop into the May or October 2017 threads and someone will help you. We May and October ladies are all buddies as two of us made friends in the real world so we have kind of joined forces! We have a lot of experience! Have you got your biotene toothpaste, mouthwash and gel for dry mouth? That's what most people use on chemo and get yourselves some sudocrem in stock. Nuff said. Xxxx
What a wonderfully written blog Mai, I've made a note of the foods & drinks you found beneficial and glad you're now doing so well. thank you Cassie for popping over to give us support too x
To Cassie and Mai - I think it's so lovely that you have popped over from previous threads to advise and chat - thank you!
Hello May ladies, I just wanted to wish you all the best as you start your chemo. I joined the May starters a year ago and i just want you to know you can get through this. I can't believe is a year ago since I started chemo and here I am now with hair once again. We May ladies gathered a lot of knowledge along the way and I have documented it in a journal so its easy to share with others.
Here is my story which I hope you find both comforting and useful: http://lifeafterlola.blogspot.co.uk/
Much love. xxxxx
I'm also having my first FEC T next week, on the 7th.
Not really sure what to expect, at the moment it seems a bit surreal.
This thread is for those of you who are starting chemo in May. Hopefully you can all help and support each other along the way.
I had chemo in 2016, so happy to help where I can.