Hi Linda, I'm from the October thread and Shi asked me to pop in and see if I can help re: cold cap. I cold capped through my fecx6 chemo and kept a fair amount of hair. Did you have your hair cut shorter prior to chemo? I had mine cut to a short inverted bob as I wasn't sure if I'd be able to stand the cold cap or if it'd work. I used to wash and comb mine only once a week and the rest of the time styled it with my fingers. How many cycles have you had? I found I lost quite a bit just after my 2nd cycle and unfortunately the hair seemed to get matted. You could try something like almond oil or olive oil as this would not have any parabens in it. I ended up losing most if the hair on the top of my head but the back, sides and fringe all stayed so it didn't look too bad. Feel free to pm me if you'd like with any cold cap questions.
Good luck ladies, hang on in there and look after each other! It'll soon be over and you'll be out the other side 😊
Help. I have a big hard mass of hair on the top of my head which is after using the cold cap and not washing out the conditioner for 2 days. Tried Aussie detangling spray and now leaving in Palmers intensive conditioner for an hour or so with cling film over it as tried for around 20 mins or longer but only made it a bit softer at the front. My hairdresser recommended the oil leave in conditioner which is intensive so may try that next but wanted to not use anything else with paragons in it. Anyone got any suggestions? Ta.
Hi, Tropic_al - and welcome!
I would recommend yoghurts - I'm just about to start my second cycle on Monday and have found that my main symptoms so far have been ulcers...still present but clearing up, thanks to Difflam mouthwash...and a really dry mouth.
I wouldn't worry too much about what you eat, the main thing is to eat enough as the nausea hits for the first few days.
And water - as much water as you can.
I struggled with fluids in the first few days for some reason, so little and often.
Gnocci was my go to food during the first week - and cornettos!
Funny how your taste changes, I went right off tea and coffee from the very beginning, but for the last 10 days or so my appetite - and taste - is back to normal.
Good luck for Friday.
thanks for the message Jem. I'm going to have FEC-T with Herceptin starting a couple of cycles in as I'm HER2 also. Luckily I love ginger so have ginger sweets, drinks, fresh ginger, biscuits at the ready! Have a soft toothbrush but have stuck to normal toothpaste unless people really advise otherwise. Will aim to drink lots of fluids to flush the toxins out and will try to go for regular short walks when I feel up to it.
my main concern is food for meals as I love most things but not a big fish fan..might have to try to eat more of at. I eat quote a lot of meat so maybe I need to cut back and think of some good Vege ideas and stick to chicken mainly! Any tips on good recipes or snack meals from anyone that I can get in for when I don't feel like eating much appreciated.
So so glad you're feeling ok today Jem..well done, keep going...you're inspiring me!
Just joining this thread as about to start chemo on Friday...a great hot bank holiday weekend in store! Lovely to hear all of your positive posts and I'll be taking some tips in with me for this first unknown experience. Considering trying the horrible cold cap but will abandon if too much and embrace the baldness. Will then have to crack on and get my wig organised quickly. Daunted by the whole experience and very nervous but I know I can do it like you lovely ladies.
Hello @Joandbasilthedog 🙂
Advice on what to take...well, I took a back packed for everything - book, drink, snack, babywipes etc, but all I ever used from the over stuffed bag was a pair of warm socks!
I'd definitely recommend the socks, so much more comfortable than shoes.
Hi hopefully i am in the right place . Starting chemo today . ( 6 cycles before op) . First over two days . Today is heceptin and perzamab . Advice what to take with me? 🙏🏻
Love the update @spange, it helps to know we are all feeling as we should.
I am day 6 and the heaadache has not left me yet, doing all the right things and resorted to calling the helpline earlier to be told to contact my GP if still troublesome.
From yesterday I felt the fogginess, tiredness and weakness in legs, made myself go for a walk and just felt washed out and unable to concentrate all day.
Since finishing 3 days of dexamethosone I am sleeping better but I wake up feeling as tired as I did going to bed.
I am going to be kind to myself today and give myself permission to relax and rest, I am really hoping to feel well enough for a meeting at work I would love to attend tomorrow but......... day by day.........
Good luck to you all ladies, we are doing amazing, lets keep it up xx
Morning - soz have been out of the loop for a few days. Just adjusting. I’m ok. 4 days of steroids from weds through to Saturday resulted in my body (understandably) running out of steam on Sun/Mon. Energy was fun while it lasted though 🙂 Taste buds disappeared entirely on Saturday, but seem to be creeping back a bit now.
Have also managed to give myself the injections - was v nervous about the first one, but it’s really not as difficult as I thought it would be.
Side effects are def there, but doable, so far. Headaches, aches, fogginess, and tiredness mainly, but none too bad, so trying to be kind to myself and give my body what it needs. Have had an inflamed gum for a few days, so keeping mouth as clean as poss, and using a baby toothbrush. I’ve been spraying a little colloidal silver on the gum which seems to be helping too. My head’s quite itchy and pimply, and not using cold cap, so assuming that’s an early sign of what’s going to happen there (eek). Skin is quite sensitive. Been using Udderly Smooth morning and night on skin to keep it m***t, and can recommend the cream....it feels lovely to spread on 🙂
But all of that is doable....and it is temporary. I’m having a few low moments, of course, but am keeping my head above the water and am in good spirits. I’ve challenged myself to clear a set of drawers out today that haven’t been cleared for years....foggy, tired head permitting....
@Tracey and @Ollie - how are you doing?
@Jem - good luck for today xxx let us know how it goes x
@Sarah - curly grey hair is what I’ll be expecting too lol. You’ll rock it 🙂
@Linda - I'm on day 14 and for the past two days I've been losing odd strands of hair, a definite loosening!
Not lots and definitely not clumps, but if I run my hands through my hair I shed a few strands and have found a few single solitary strands randomly on my arms.
(I'm not using the cold cap)
As I work from home with a craft business I've become increasingly paranoid about sending items out with hairs on, so my new must have accessory has become a rather unfetching hairnet for packaging and sewing 🙂
I was expecting to get a few signs that my hair was going to start shedding, but aside from an occassional crawling rather than itching sensation there's been no pain or tightness.
Alarmingly, the loosened hair folicles have confirmed what I already knew...the tips of my hair are pure white rather than the (bottled) chestnut brown I've been dying it for over a decade, so I'm expecting it to grow back grey and curly!
My hair started coming out on Saturday day 18 but am hoping as I used the cold cap I will keep a lot half of a quarter at least. Have pre assessment tomorrow and then 2nd cycle on Wednesday.