November 18 chemo starters

[Lisajayne11]

Hi Juzcooper1971

Ready for today?

This week has been a much better week so far, although I have come to the conclusion that the injections are the devil!

Apart from my "toilet episode" on Friday I was totally fine until yesterday when I ached from head to toe.  Had a hot salt bath and watched some netflix.  Feel ok this morning apart from a bit of a headache, but we'll see how the day goes.  Usually start to flag at work around 3ish. I agree that so far its been ok but don't want to jinx it!  I'm convinced if we manage ok on this chemo cycle it will be the FEC that gets us later on!

Glad to hear everyone else isn't doing too bad as well so far. Look after yourselves ladies and gents

Love Lisa xxx

[Kateday]

Hi
Well today is day 15 and well my hair as decided it won’t just be the odd strand anymore
And either tomorrow or the next day I may have to be brave and share it
My head also feels funny tingly , itchy hot all on and off
I can’t run my fingers through my hair now as they end up full
And I have to agree with not wanting to be anywhere near anyone that coughs or sneezes
The first time I went out
I messaged a friend and said if anyone coughs or sneezes near me I will Kung foo there arse away from me haha
I have to also add my erm how to put this lady garden hair started to really come out first 😂😂
No need to shave my legs either anymore xx

[pinklily]

Well ladies, I've had a pretty good month, apart from the hiccup the first few days after treatment 1, although that might have been my fault trying to do too much too soon.

I've been feeling pretty good this past couple of weeks and having my bloods done today, I'm keeping my fingers crossed that I'm ok for round 2 on Wednesday.  I'm hopeing I get through the next one without any problems, just need to learn to rest a bit more. Had the bloods done at 3pm and was told they would phone me if the count was not high enough, so far, no phone call.

My only hitch has been the dressings used for the picc line, my skin does not like the adhesive on the dressings and I've had a few trips back to the hospital just to try and sort it, I had the same problem with the dressings on the lymph node scar, so I'm not surprised. Today the nurse put a great big brown plaster over the picc line with just a small amount of adhesive around the edges. I can't see if the area around the picc line becomes red or anything, but fingers crossed it behaves.  

If it was not for the picc line, cleaning my teeth three or four times a day and wearing my lovely scarf hats, I would not believe there was much wrong with me. The only thing I've noticed is a growing paranoia about people coughing and sneezing when I'm out, I feel like running a mile from them and my hubby told me today, I have a look of terror or fear on my face. But I'm still going into shops, at quiet times and trying to live a normal life, even went to Knole Park and Scotney Castle last week, lovely doing the walks around the estates.

Is it just me, or does anyone else have this constant anxiety about people with coughs and colds.

[Sals]

Hi pigeon,

I’ve had a bit of an itchy scalp - was seriously hoping I hadn’t picked up nits from somewhere!!!! How many days are you post chemo? I’m 7 and I think they say 10-14 for the fair loss haven’t lost any body hair yet either - that I don’t mind i’ve not waxed my legs in 2 months, it seemed like a waste of money!!!
I’m really lucky I have a great mum (lost my dad last year so she is happy to have me sround for company I think) and amazing girl friends around me, husband is also very supportive but doesn’t find it as easy to joke about it which is what I enjoy with the girls - many boob jokes! Not sure about my 4 boys they can’t seem to get to grips with the fact that business is not quite as usual and it would be nice if they did a little more for themselves than usual - but they are teenage boys/men so I guess that could be asking the impossible!! I think they feel it more than they let on so as long as they are coping it’s ok for me. I agree though this nasty ****** changes your perspective there’s no time to waste on people or things that don’t nourish you, stick with the goid guys and let the rest fall by the wayside. Take care

[pigeon]

Hey Kateday, if you don’t mind my asking, how is your hair doing?

Ive had an itchy scalp this weekend, and today it feels sore, kind of like a sunburn feeling on my scalp (but I haven’t been out in the sun!), is anyone else getting anything like this?

Also, I may be imagining it but I think a few more strands than usual have come out when I run my fingers through my hair... 

I’m picking up my wig on Wednesday so hopefully it’ll last until then!

[juzcooper1971]

Hey Lisa, sorry forgot to ask how you're getting on after the Paclitaxel only on Friday? Are you having less side effects than having it with the Carboplatin or is it just the same? Hope you're not feeling too bad xx

Ladies, me, Lisa and Lilypad are on a trial where we have our treatment every week for 12 weeks then 3 cycles every 3 weeks of EC after. It's Carboplatin and Paclitaxel for the first week then Paclitaxel on day 8 and 15 then the cycle starts again up to week 12. Alot of different side effects for different variations of chemo by the sounds of things. Take care everyone xx

[juzcooper1971]

Hi Lisa, the hangover feeling has gone thankfully. Will wait with anticipation for the 'foo' feeling at tomorrows sesh 😮 I've been quite fortunate I think as I've had no sickness or nausea, haven't lost my appetite and have had little trouble sleeping, so the drug combo seems to be working for me at the moment. My side effects have been the fuzzy head and tiredness for the first few days and achy legs after the injections. I even managed a few hours out yesterday and had a couple of halves of lager but it did feel like I'd had 8 pints 😮 Had a trip out to the cinema today too. My 2nd chemo tomorrow morning and may eat my words this coming week so fingers crossed. I will make sure I don't eat any grapes during my treatmeant 🙈 xx

Hi Harkes, I've had the odd one of two where they've gone quiet on me but I'm very fortunate to have such great family and friends. The ones that don't make the effort aren't worth your time lovey, you've bigger fish to fry and make the most of the ones that are there for you xx

Hope everyone is doing okay, we've got this **bleep** 💪 😍 xx

[Kateday]

Hi Harkes

I’m sure we have all felt/feeling the same
I have had some amazing people well about five of them the rest well
Including my own sister
I gave up messaging her over a month ago as she would never even ask how I am
Needless to say I have heard nothing at all from her
Yes I was upset and angry but this is how she is a very selfish person who the rest of my family have up on many moons ago
Like you my list will be shorter this year
But we need true genuine people to support us and even that’s not as many as we had hoped for it it’s all we need 😘

[harkes]

Hi All you lovely ladies,

Has anyone else been disappointed by the lack of support from people you thought would be there for you?

If it wasn't for husband, daughter and friend of 45 years I would feel so isolated. Lets just say there will be a lot

fewer people on my christmas card list this year.

[Kateday]

Hi sals
I have three girls one 19 and spread her wings and started uni in September miss her so much
The other two are nearly 14 and 10
They have coped brilliantly through this yes they had tears but I told them how hard me and the doctors will fight so on
They had bit of a shock as chemo literally took me off my feet for few days
They have never ever seen me like that
I felt so sick I couldn’t even speak to them more than a word or too
Next cycle they will be more prepared
I’m not quite ready to shave my hair will see how it goes over next few days
My other lady hair is falling out quicker which I find bizarre
But hey no need for shaving and trimming anywhere else on my body now xx

[Sals]

Good to hear you are feeling less tired, how old are your girls? The hair is definitely going to be a traumatic point even if we know it’s coming, we just have to learn to make good friends with our wigs, and keep going, it must be very hard to make the decision that today is the day the hair needs to go, sending you strength for that 💕

[Kateday]

Good morning

I was very tired the first few days now I manage to stay awake most of the day
Even managed a cinema trip with my girls yesterday 😀
My hair is slowly starting to shred so I will have to make that decision soon to just shave it off which I’m prepared for as in have my wig and hats ready
But not sure I’m mentally prepared for it
Hope your all feeling as well as can be expected xx

[Sals]

Hi All, how is everyone? I can’t believe how tired I have been in the last 24hrs! I keep reading one line of my book and falling asleep then 5 mins later i’m awake again doing the same thing, literally just fell asleep drinking a cup of tea! Massively swollen boob too 😬 still nausea seems to have passed 🤞

[Lisajayne11]

Hi Juzcooper1971

Was not in the mood for the session yesterday, felt like a spoilt child, very irritable!  Anyway at least it was only the Paclitaxel.  Had the itchy foo thing again, apparently its the steroids, then once they've put the antihistamine in it wore off! Not sure if its a weekly torture of pleasure

After about an hour of being home I had the worst "bottom explosion" for about 40 minites which I didn't get last week.  I'm wondering if it was all the grapes I ate whilst having the treatment?!  Note to self to give them a miss next week!

I have only been given the injections for this week and to carry on with the antibacterials.  So no steriods this week or next.  Should be sleeping better for the next couple of weeks.

Keep me posted on how you are doing - Hope the hangover feeling has settled

Lisa xxx

[Lisajayne11]

Hi Harkes

Just checked out your video recommendation, and you are so right reference the lyrics -

Oh yes I am wise
But it's wisdom born of pain
Yes, I've paid the price
But look how much I gained
If I have to, I can do anything
I am strong (strong)
I am invincible (invincible)
I am woman

You can bend but never break me
'Cause it only serves to make me
More determined to achieve my final goal
And I come back even stronger
Not a novice any longer
'Cause you've deepened the conviction in my soul

Great inspirational words xxx

[harkes]

.Dear all,

Hope you are feeling OK and coping with your treatment. A song popped into my head yesterday from 1971/72 when I was 11, I remember being inspired by it then and tried to live my life as a woman by it.

Go to You Tube, type in, Helen Reddy - I am Woman. I am sure you will all agree what an inspirational song it is and how the words still hold true today. I have adopted it as my anthem

[Hmdhelen]

Hi all,

Day five after first FEC here, feeling much more rubbish today... have felt fine until now, but today I feel nauseous and have a tight head and am feeling generally low. I called the helpline and had a chat - they said an emotional dip after finishing the steroids (which I did lunchtime yesterday) is v common, so that makes perfect sense. Has anyone else experienced this? I've taken paracetamol for head and arm pain (had PICC line cleaned yesterday as well) - seems to be helping. Sals - my diagnosis and treatment is v similar to yours, only I'm HER2- so no herceptin here. 

Interesting to hear that injections don't hurt if you do them in the evening - I'm doing mine in the evening just because it's more convenient, but I haven't experienced any bone/muscular pain so far either. All makes sense now!

Disturbed sleep is vv annoying and I don't know if it's due to anxiety or medication.... anyone got any tips??? or a magic wand???

GOOD LUCK EVERYONE AND HAVE A GOOD WEEKEND!

Helen

[tracybev]

Hi all, I too felt well after first chemo and thought ok this manageable I can do this ! then unfortunately 5 days after ended up in a & e with a nasty breast infection feeling absolutely rubbish but they fixed me up with antibiotics and finally feeling normal again.

Take care everyone x

[Kateday]

Hi all
And liloc your not making a fuss
This journey is bloody terrifying but we’re on it
I have gained a cough today after such a good day yesterday boo boo
The worse you sit thinking do I calm the hotline or do I not
So far no temp 😀
Bazzies
It will soon come round my second scycle is on the 19th
For all you starting or having your second dose I hope it’s kind to you zx

[juzcooper1971]

Hi Lisa. I am so relieved for you with your bone scan it must be a massive relief as I know you were so scared. Apart from feeling like I've had a massive hangover for the last 3 days and aching today due to the injection yesterday I'm quite surprised how manageable it has been. Maybe it's to do with how our chemo is being given on the trial Lisa? We'll see. Thinking of you today on your 2nd chemo 😉 Love to you all too xx

[Liloc]

Hi Sals, thanks for your reply, sorry I completely misunderstood about your temporary implant, humble apologies, I was thinking it was the portacath implant that I am being assessed for today. Sorry, I was only diagnosed 3 weeks ago and it’s been a whirlwind of terminology since then. Going straight into chemo with surgery and rads not til next June/July so surgery is still off my radar. Appreciate that most of you have been fighting this battle for longer. Hope your boys are helping you out, I’ve got a 14 year old, not expecting too much out of him (Fortnite will take priority) but then again don’t want him worried about me, think you did well to try and keep things as normal as poss. Thanks for the tip about the GP nurse for injections!
Kateday, thanks for the reassuring words, hopefully I’ll look back at this thread in a few moths time and wonder why I was making such a fuss 🤞

[Lisajayne11]

Hi Kateday

I've also been diagnosed triple negative (2 tumours) plus lymph node involvement so stage 3.  I'm doing the same trial as Juzcooper1971 & Lilypad so will be interesting to see how we all get on.

Had the results of my bone scan yesterday which were clear (thank god), I was sooooo scared another sh*t storm was coming my way!  I'm off for my second chemo session today so fingers crossed the upcomming week is similar to the last, completely manageable if it is.  @Juzcooper1971 - Yesterday (day 7) was the best day ever.  Felt totally normal and ate like a pig!

Stay strong everyone and lets keep each other going.  #WEGOTTHIS

Much love Lisa xxx

[Sals]

Morning Liloc,
Early reply from me, my slee is a bit erratic and my newest chemo side effect is heartburn so i’ve Been burping all night, regardless I had imagined myself laying in bed for a werk barely able to lift my head so in a way I have been pleasantly surprised by the managbiluty of the chemo itself and side effects. I am just having cannula each time as i’m ok with needles and my veins are ok, but for the self injection don’t panic I just popped into my GP the next day and the nurse did it as I forgot to get the chemo nurse to show me what to do, I might do it myself next time - let’s see...the temporary implant was a good option for me it’s also known as an expanded as it leaves you with lots of options, I didn’t want to be flat if I could avoid mainly as I have 4 teenage boys and I thought it would be even more for them to handle if I looked so different but I didn’t want to do anything that might cause me more troubles as I was warned having a permanent recon at time of surgery could cause problems if you have chemo or radio after it’s slim chances but I wanted to keep options open and this means you keep your skin so should be no need for grafts when and if you go for permanent recon. If anyone wants to get some information there is a really good book called the complete guide to breast cancer written by 2 lady doctors one a breast surgeon who both had breast cancer, one of the writers is called Liz, laying in bed now without the book but if you can’t find it let me know and i’ll put the authors up - it’s on kindle too so if you have one no need to go out of the door
Hope everyone feels a little better today whether that’s health or nerves 💕

[bazzies]

Hi All,

I am a bit behind some of you guys 7 wks post op mx recon and node clearance done on 18 th sept.  Delay due to me agreeing to do trial, then spending a wk doubting my decision ( the doubts made me feel ill, worse in fact that how I felt on initial diagnosis).  Spoke to oncologist so no longer on trial and now going ahead with chemo, having PICC line and bloods 16 th 1st round Fec 19th.  Bit anxious but need this journey to start moving...... keen to hear how everyone gets on.  Fingers crossed our SE’s not too bad.....🤗 hugs to you all.

[Kateday]

Wow jazzcoooer your are a strong woman agreeing to a trial
I’m triple negative grade three no node involved I had surgery first now I’m having 4 EC the. 4 t
And 4.5 weeks radio after that
liloc
I was never told about the injections untill I had chemo and the the goody bag of Medican appears
I swear to you the actual injection isn’t bad you don’t feel it the needle is very small I promise
If your not able or someone close to you isn’t able to do it for you then they can arrange district nurses
I didn’t want that
I didn’t want to be waiting in all day for them
Also there advice was to take at night so again I wanted to be able to do this as much as possible
I will keep you all updated on the hair situation
I would say it has thinned but if you didn’t know me then you wouldn’t know
It’s funny the first thing I do when I wake is feel my head to check my hair is still there
When the time comes I will just be brave and shave it , but for now at least it’s ok
I managed to go and see people at work today which has lifted my spirits
Keep strong ladies
Good and bad days is going to be the new norm
I have decided to try make the most of a good day xx

[Liloc]

Hi all, I’ve got a start date for chemo on Weds14th so getting very nervous now. A real needle wuss so reading this thread isn’t helping 😂. Nobody has said anything to me about having to inject myself, 😱maybe the word has spread around whole hospital not to mention anything about injections to the hysterical freak who sobbed all the way through the CT scan just because she had a cannula put in....
Sals, have you got a portacath? You said you have a temporary implant.... Going to the Royal Marsden tomorrow for an assessment, so see if that would suit me better.
Getting a bit down about having to do any of this stuff 🙁 Had a bad period when I was waiting for all the scan results, thinking it had spread everywhere, but when the consultant said it was just the one battlefront (triple negative grade 2 lump) I was dancing on pixie dust. Think I need a top up 🧚‍♀️

[juzcooper1971]

Hi Kateday. I was diagnosed with triple negative Invasive Ductal Carcinoma with no lymph node involvement. I am currently on a trial which involves 12 week of constant chemo. The first week of Placataxil and Carboplatin then day 8 and 15 of Placataxil then back to the same cycle again up to week 12. Then EC every 3 weeks for 3 cycles. Will then have surgery then Radiotherapy. On day 3 after my 1st chemo and managing okay so far. Good luck to everyone. We've got this 💪 xx

[Sals]

Hi Kateaday
I also find it so confusing as to why the treatments vary so much even when it seems the condition is the same? For the record i’m Stage 2 with a grade 3 tumour went straight to surgery and even though lump was smallish 2.1cm mastectomy was only option (small boobs and position of tumour I think) and am now on 6 cycles of chemo 3FEC then 3T with herceptin snd hormone therapy to follow. I am er+ and HER 2 + too. Make any sense to anyone? I didn’t get offered any trials. I am day 2 after chemo day not sure if that counts as day 3 but still feeling ok not as tired still nauseas and have a tight chest but might due to still swollen temporary implant.
I just want to say it’s so great to discuss our situations on here and to remember everyone is different, different treatments responds differently and we should all listen carefully tonour bodies I am a constant doer never sit down so I am struggling but really making sure I sit down for a big part of the day so being in here is also keeping me occupied 😀 keep going everyone and keep sharing

[Kateday]

Well I’m day 11 of you count the day I had it
I actually started end October but started this thread as I felt a long way behind some of the lovely October ladies
All though I have asked advice there once or twice
Good luck to all staring the next few days
Today I have managed to do some work from my laptop when yesterday I could barley move
It’s such a tough journey but us woman are strong
Would be interesting to see what treatments people are having for what diagnosis
So many with same diagnosis yet different treatment plans x

[SB1610]

Hello Kateday

I'm from the August thread and I started to shed my hair around day 14 - it was quite minimal at first and then ramped up just after my 2nd treatment. I think everyone can be a little different but from what I've heard others say these timescales can be fairly typical. On a positive - I've just had my 5th EC and I've started to notice a little bit of re growth.

To all the ladies on the injections - I was advised to do mine in the evening and to date I've only noticed the bone pain once. Not sure if this is because I've been lucky so far or if the discomfort is occurring whilst I'm asleep but it's not enough to wake me up.

Like a few of you I was really apprehensive about injecting myself but I have to say I've found it much easier than I thought possible. Just squeeze a bit of your belly fat, wipe it with a disinfectant swab, push the needle in (honestly you will really hardly feel this) and press the plunger. Trust me - I'm the biggest wuss in Yorkshire - but it really is ok. I think the thought of doing it was far worse than the reality of doing it.

Good luck all

Sue xx

[MichaelDavid]

Hi, @juzcooper1971 just read your message I feel sorry for you and my prayers with you and if you or anyone is looking for some information on cancer so please visit CancerBro they have latest and authentic information on cancer.

[pigeon]

Kateday, I didn’t cold cap either, they’re not available in my hospital (I’m not sure I’d have chosen to do it anyway).

I’m on day 7 (I think? Had treatment 2 nov) and no hair loss yet, Ive been told it starts to go sometime after day 10.

Hope you’re all doing well, and good luck to anyone reading this who starts today. xx

[purplekat]

Good morning All,

I started chemo yesterday.  Biggest problem was the cannula, so hope to have a PICC line in for next time.  Just feeling very tired so far today, all the anti sickness medication is working.  Will need to keep close eye on blood sugar as diabetic, the stress sent it up quite a bit.  

i didn’t expect to be well fed while there, or get a short therapy session while waiting, very nice extra.  

[Kateday]

Good morning ladies

Well one is in less pain now I’m on strong pain killers
Could I ask have any of you not cold capped
I’m just starting to wonder how long my hair will last before it comes out xx

[Lisajayne11]

Hiya Juzcooper1971

Next chemo is Friday (tomorrow) off for the blood tests this morning to check all good to go.

Yes, just the Placataxil so shouldn't be there as long 

The Injections, my sister lives around the corner so has been popping over to do them.  She watched a video on YouTube which helped as well as reading the leaflet. She's a dab hand at it now!  The needle is so thin, you can barely feel it so you'll be fine.  I think after the second one i started to feel a bit achey in my legs, so that would have been day 5, but appart from that I felt fine in myself, it was quite a good day.  Yesterday was a good day again until about 4pm then I felt like I had been run over by a bus! My neck, back, everything ached and hurt to touch I had a hot bath and a lie down.  This morning I feel pretty much ok again apart from a little headache, but as I'm off to the hospital this morning I'm just going to mention it, but sure these will just be side effects.  I've also found that the days I was taking the steriods, i wasn't sleeping.  Top Tip - Invest in some Senokot!!  3 Days in and a brought some 

Hope youn are doing well yourself?

Lisa xxx

[Kateday]

Hi all glad to read so far your all doing ok
My side effects haven’t been so kind to me once the nausea settled I then began with pain everywhere especially my back and arms
Chemonteam think this is most likely a side effect of the injections
So will discuss all of this again before my next cycle
I’m awaiting my hair to start falling out as I chose not to cold cap
I hate being cold so decided it wasn’t for me
Well done to you that have though 😀

[harkes]

giving lots of love to everyone out there, it is great to read your stories. Now day 5 and it is the first day I haven't felt as though I was away with the fairies. I expected the tiredness, but not to feel as though I had drunk 2 bottles of red. I am using the cold cap but I don't know whether to have a wig if I do lose my hair. As regards the injections I am an ex-nurse of 35 years so said I would do them myself, that way I can do them when it is convenient for me in the comfort of my home at the time that is right for me. I think the thought of giving oneself an injection is worse than the reality, after all millions of diabetics do it every day.

We are wonderful!

[Lou43]

Hi Sals, Well done you! That's good advice, had heard that drinking plenty helps and good to keep track of how much. I'm always telling my kids they should drink more so they can nag me for a change.
I didn't know that about the cold cap so thanks for sharing and that's really positive, I really hope it works for you. Went shopping with a friend today and she made me try on all these crazy hats. x

[Sals]

Hi Lou and all, today is the day after my first chemo and to be honest i’m surprised at how ok ish I feel, I drank 3 litres of water throughout yesterday and am up to almost 2 so far today I think this really helps, I bought a 750ml sports bottle so I can keep track and took it with me to chemo, it’s definately worth trying. I also cold capped I know there are no guarantees but thought it worth a go - I found out the time you wear it depends on what drugs you have I am on FEC and of course that is the longest 30mins before, during and 90 mins after so about 3.30hrs all in all but after the first 10 mins I couldn’t feel it and the rest of me was warmed up so if the thought of losing your hair is causing you added stress it’s got to be worth a go. Good luck next week 😘

[Lou43]

Hi there, I start my chemo next Friday 16th - it's good to read all your posts so far. It will be great to be part of such a supportive group. I hope you're all doing ok and coping with the side effects of treatment and good luck to those of you who start treatment this week.
I go for a look round the unit on Monday and am still undecided on the cold cap or not. Hope I can decide then with some more information from the nurses. We'll be needing those woolly hats to see us through the winter. xx

[juzcooper1971]

Hiya Lisa. How are you doing? All ready to do it all again tomorrow 😕 It's just Placataxil tomorrow? I don't mean 'just' but no Carboplatin this time? How have you got on with the tummy injections? Any side effects with them? Sorry, so many questions 🙈 Hope you've been okay xx

[Lisajayne11]

Good luck today Lilypad

Lisa xxx

[Hmdhelen]

Sals - 🤢 was how I felt last night. Much better today (see above) and the injection was pleasantly easy to do.

[Hmdhelen]

Hi everyone,

Great to read all your news, seems like we're doing pretty well so far...fingers crossed!

I'm feeling surprisingly well today - didn't sleep much (thanks to the steroids I think), but I haven't felt nauseous (eating little and often seems to be key, as well as taking the antisickness meds) and my headache has gone. I have developed very rosy cheeks though! Not sure what that's about...

I administered my first filgrastim injection this evening - it was much easier than I'd anticipated!

Managed to walk to the shops this morning and take the dog for a walk this afternoon, so energy levels are also pretty good.

I'm not taking anything for granted, but at least I've had a very positive start. I'll keep you posted, and wish everyone all the best.

[Sals]

Yes great thanks i’ll look into it going to GP tomorrow for my injection as I am not sure about doing it myself has anyone done it yet? Starting to feel a bit 🤢

[Mai7]

Hiya, I just wanted to wish you all well and I'm glad to see you are determined to do some serious butt kicking, you totally have got this and if you can't be positive some days then be determined instead!  Remember to drink 2 litres of water the day before, on the day and the day after chemo.  Here's my blog which has lots of useful tips which may help:  http://lifeafterlola.com/

Today, I am officially one year NED (no evidence of disease) since my surgery.  There's a light at the end of the tunnel for you.  Sending positive vibes your way. xxx

[juzcooper1971]

Hi Sals

Mine should have been £165 but was free on the NHS after they sent my referral through to the shop in Leeds that supplies them. The lady in the shop said it should last about 6 months if I look after it. If I did want another I would have to pay but minus the VAT. I'm sure there is probably a limit but not sure how much it is but she was trying wigs on me up to £260. Hope it helps xx

[Kateday]

Hi Sals

I’m not sure how it works
Mine cost 71 with nhs not sure what it should have cost though
X

[SB1610]

Hello sals

I got mine from the chemo unit - maybe ask your BCN as a starting point.

Sue

[Sals]

Quick question I have bought a wig as backup plan, I got the VAT off but I heard you can get a voucher from NHS anyone know anything about that?