Thanks for your reply 🙂
I'm doing a trial, so I'm having 12 weekly sessions of some different drugs, but will be doing the FEC afterwards for another 9 weeks in 3 cycles. Thanks for the heads up though xxx
Good luck to you as well
That's hilarious re the 'Itchy Foo! My nurse looked at me gone out!
Sorry to hear you had a rotten weekend and I hope you are feeling better now?
I feel almost back to normal today (Day 5) but assume this will not last!!
juzcooper1971 - Good luck today, you will be fine
We're all gonna knock this Cancer out of the park!
Hi, had my first session of FEC-T today, all went ok. My arm hurts a bit as I had the PICC line fitted and then had the chemo immediately afterwards, so it feels like I've been punched repeatedly! I had the cold cap - a bit painful for the first 10 minutes, but fine after that - except for feeling very cold - I wore lots of layers and had my partner's ski jacket over my legs, but actually it was a lovely cup of tea that finally made me feel a bit warmer. I'm now feeling a bit nauseous and have a slight headache but probably better than expected.
Good luck everyone!
Lisa, I had that itchy feeling too! My nurse said I might get a “prickly bottom” when she injected the steroids, but it was exactly as you said, hot sweaty itchy feeling “down there”! It passed quickly though.
I hope everyone who has had their first treatment is feeling ok. I didn’t have the best of weekends, I had to have the district nurse out to give me anti sickness injections twice on Saturday as I wasn’t keeping the drugs down... but am feeling much better today (touch wood)
3 days after first chemo and not feeling too bad. Was a little bit sick on Sat but otherwise the nausea is manageable. The worst bit has been getting up at 6 every morning to go to the loo and then being tired in the afternoon. Sleep patterns totally disturbed. Had a bit of moment yesterday when I Just wanted my Mum! I am 58 and unfortunately she passed 4 years ago so just went to see my Dad who is 85 - he his brill although worried to death. My brother's partner is 6 years post treatment so they have been a great help. Must mention my best friend who has been my rock other than my husband - taking me to appts and out to lunch! with regard to work, I work 3 hours a week in a private physio clinic so won't be working at all during treatment. I think a lot of it depends on what you do, also my nurse practitioner said to see how you feel during the first cycle. Hope you are all feeling a little better this morning.
I was told I'm not allowed to work as I work in a gp surgery and the risk to infection is too high even though I work upstairs in admin with no patient contact the consultant was not happy for me to go in ! May look at doing some work from home but going to get Christmas out the way first.
Good luck everyone x
First chemo today of Paclitaxel and Carboplatin. Apart from being almost 3HOURS late starting, all went ok. Had a weired hot, itchy feeling in the "Lady Garden" area with one of the pre-meds - Nurse was "Confused!"
With the Paclitaxel the fingers on my left hand (same as drip) swelled. I had to pull my rings off with my teeth! Again, nurse's were "Confused!" Still have one fat finger, but it does have a cut on it from opening a mushy pea tin on Halloween so could be to with that?!!
Carboplatin - fine, no problems at all.
Had the cold cap. Absolutely fine. First 5 mins, mega brain freeze and a little head ache but wears off quite quickly. Had 3 hats in total. Easily doable so give it a try x
Came home with lots of meds - Anti sickness, Antibacterials and steroids. Also have x3 injections. (Think these were for your blood cells)
Think this first session will be the easiest. Think the side effects will kick in next week.
Watch this space!!!
Was diagnosed on 7th Sept with a grade 3, 19mm tumour ER 8, Pr 5 HER2 negative. Had
a wide local excision and lymph node removal on 21st September. 1 node was positive and one had individual tumour cells out of eleven.
Had my first chemo today and used the cold cap, uncomfortable for the first ten mins while getting cold but after that was ok. Was given hair care advice, but told not to have my hair cut. Can anyone give me advice?
I had had my pre-assessment/introduction and PICC line fitting yesterday, and am going in for first chemo treatment today. 😱
The nurses were all lovely when I was there yesterday, and kept saying that the worst part is the fear of the unknown, and once you have the first treatment you’ll be a lot more relaxed.
Good luck to all of the other November starters!
Im triple negative with lymph node involvement. Starting weekly chemo today (im doing a trial) and im going to try cold capping. This will be followed by surgery then radiotherapy. Think theyre a few of us on here that a tripple negative. I think the chemo first seems common with triple negative
Good luck with your journey
I'm Helen and I'm due to start Chemo on Thursday next week. Which will be 6 weeks following masectomy. Going for an introduction on Chemo unit next Tuesday and PICC line fitting.
This weekend I am decontaminating the house, kids, husband and cats. If it moves I'm going to clean it, if it doesn't move I'm going to clean it, not taking any chances ha ha.
My main worry is how will I get through 6 rounds of chemo with a three year old who picks up every bug thats going?
Take care and have a good Friday
Hi I had my first chemo today I'd decided to try the cold capping and found it wasn't as bad as I was expecting ! The nurses are great and made me feel better about the whole thing, feel a bit calmer now that I know what to expect.... 1 down 5 to go !! . Good luck ladies stay strong x
I'm starting on Monday, I've got my 'chemo chat' at the hospital tomorrow. Good luck everyone, I think it'll be really helpful to swap experiences.
I'm starting tomorrow. Wish me luck!
Anyone on here doing the Partner Trial for TNBC, BRCA1/BRCA2 Gene, let me know how you're getting on.
Juzcooper1971, I have drawn option 1 on the trial so just the chemotherapy. I little disappointed, but still positive about the drugs being given. Let me know how you get on.
Good luck everyone
Morning all you lovely ladies
Just wanted to pop in and say hi ....... I was were you are now this time last year! I was on the November 17 chemo thread.
The help and support that I gained from the thread was incredible ... a group of chemo warriors who have been thrown together on this awful journey, sharing laughter and tears, good times and bad.
But you do come out the other side! Your hair does grow back ..... but not like it was! You do lose the steroid look and you do get back to normal, it just might be a different normal.
My bits of advice woud be as you start off ....
If you are feeling nauseaous/being sick let your unit know right away, dont wait to see if it gets better. They start you off on a base line anti-sickness and it doesnt suit everyone. If its not working for you - sing out and try another one, they work incredibly quickly when they do hit the mark so you will get quick relief.
If you are worried about anything, anytime, speak to your chemo unit. They have been asked every stupid, daft question in the book and wont mind reassuring you.
Invest in a ear thermometer - your temp will do weird things over the coming weeks and you need to keep a close eye on it.
If you are having the injections post chemo to boost your blood production, try taking Clarityn once a day, it keeps the joint pains at bay.
And finally use this board as a safe place to offload and ask questions.
I now have a strong band of chemo friends - there are 9 of us who are still in touch and meet up - spread from Glasgow to Melbourne Australia. I couldn't have got thru it without this board.
love and hugs to you all, I will be thinking of you all as I mark off my chemo chair anniversaries!