Up soooooo early (since 4.30) anticipating chemo day and the appointment isn't until 4 p.m. I'll be the one on the unit fast asleep. Wishing everyone a good day - wherever you are on the cycle. It is freezing here and my audio book won't download to my new phone for some reason. I would say the day can only improve but then I remember I am off to The Marsden! I have a meeting in town beforehand which will keep me occupied and I think it a good thing.
In other news, the wig is ready for fitting apparently. I am going on Monday. I still have intermittent tufts of hair, although I am now wearing scarves and hats constantly as I am not fit for public display! I think I should probably crop it short before the fitting? What do you reckon wise women?
Poppywheel, I did a similar thing to Shi I measured out how much water in one of my glasses and worked out how many a day I needed to drink. I also try to split so that I have half in the morning and half in the afternoon. I also try to drink my water by 7pm to allow it to get through my system so I'm not on the loo all night.
glad you are back in the land of the living JC
continue the vegging until you feel better.
I'll let you all know about the green tea and also what has been said about clarityn when I get in the unit tomorrow.
I feel absolutely cream crackered tonight, it's been a long old slog of a day.
Time for some good food, gallons of water and crap tv - perfect!
Thanks for all your support today, just crashed on the sofa doing nothing except play a few games on my tablet & have a kip 💤💤💤
Meesh, hopefully you are right and this is a blip today 🤞
Lesley either I missed the chippendales or they're running late, trying to get to see us all
I think when the weather is rubbish, it's hard to drink water, but i think that may be part of my issue, i haven't drank so much over the last few days.
Good luck to the Thursday chemo ladies 🍀👍
Hugs to all
I'd just get the rats from I'm a celebrity!
I've got very strong eyebrows - I've never plucked or waxed them so I am hoping that they hang on in there - I think I will be more affected by their demise than my hair.
Head hair is still shedding but all other areas are hanging on in there ........... it's only a matter of time though!
JC, I also suffered on chemo 2 with feeling really down and teary on days 5-6 for no real reason. I think a few of us on the Oct thread did, just to let you know it may be a one off as I didn't suffer with it this time round. So fingers crossed for you. Just relax as others have said I'm sure you'll be back to your cheery self tomorrow.
how are you doing JC?? had that run around the block yet???
The chippendales are on their way over to you, so you had better be ready!!
I'm struggling to get my water down today - only managed a litre so far and I'm not enjoying it at all - which isn't like me!
I think its psychological ..... a bit like the veins ..... my body knows what is coming next.
I also never used to have a problem taking tablets - I could pop a couple of paracetamols without even a glass of water ...... but by day 8, I was heaving as I put a tablet in my mouth...... how weird are we??? or is it just me???
Having a mare of a work day - been at it since 6am and I still cant see over the pill of 💩
But no call to say my bloods are buggered ...... so every cloud!!!
oh JC sending big hugs 🤗 🤗 🤗 🤗 🤗 🤗 🤗 🤗
When did you stop taking your steroids - maybe it's a crash from that??
Don't beat yourself up - you have done brilliantly to get this far unscathed.
Laze on the sofa, stick a couple of christmas films on and you will be right as rain!
Day 5 & 6 were my worst ones last time.
If you dont feel any better by this afternoon, let me know and I'll definitely give you a 'big knickers on bald head' selfie!!
Morning, thanks for your tips Shi, I didn't know any of this.
I' m 5 days post chemo 2 and not having a good day. Feel very teary and low 😢 I don't know why. It's not walk inspiring weather today, just feel like lazing on the sofa. My whole body feels whapped, no energy.
Sorry for the downer
Good luck to all the chemo 2 ladies this week xx
Hello lovely ladies,
I survived the first night after the 2nd chemo yesterday, SE very similar, so hopefully one more day of nausea and then only better days x
I have good veins in my arm, but they don’t go up there in my unit; my hand/ wrist veins misbehaved last time and I came home bruised after 3 attempts in different places and both hands, but yesterday.... hey ho, first time and in 👍 so keep thinking positive, ladies xx
lesley, please tell us what they said about green tea, I drink it, I like it, diddn’t know we shouldn’t
my wig is ready, still in the box, not sure whether I will ever wear it... feel the same about the reconstruction of the breast... I Will probably stay breastless 😂 after mastectomy
my hospital pays £100 towards the wig, regardless of income, they work with the trendco company based in Notthingam, but they have a website too. They have nice hats and turbans too, so you might want to have a peek
I’m wearing hats outside as it’s really cold now, but proudly take them off inside. The scalp is not sore anymore once I shaved.
Good luck for today xxx
we can do it 💪🏻👍💕💕
thanks Shi - not a great way for you to find out about it!
Presumably that also is the same for all utlities?? I might do a bit of digging!!
hope you get it sorted soon
Lesley, good luck today 🍀🍀🍀🍀🍀 here's a little vein dance for you 💃🏻🕺🏻💃🏻👯♂️🕺🏻💃🏻🕺🏻💃🏻👯👯♂️💃🏻🕺🏻👯♂️👯💃🏻🕺🏻👯♂️👯🕺🏻💃🏻✨🌟✨⭐️🌈💃🏻🕺🏻👯♂️💫🦄💫👯👯♂️💃🏻🕺🏻
Mamadeacs, sorry your wig appointment wasn't up to scratch, what a bitch and also what a shame! My wig lady was lovely and really helpful, she also is some sort of support nurse in the chemo ward so that probably helps. I don't know why people do these jobs if they have no interest or don't care.
Have a lovely day ladies with minimal SEs.
Bit early for a walk AnnaKarenina!! But good luck to you.
I'm busy pinging off emails to all and sundry and trying to get ahead of the game so I can have two days of peace whilst I throw up!!
Looks like its going to get nippy out there - warm hats ladies!!
Morning team, how is everyone doing? Are you all set Lesley? I hope the phone didn't ring and it is vein dances all round today. I am off for a walk in the cold to blow away the cobwebs before tomorrow's chemo. I'll need to stay within reach of a loo though as it is water on board (not to be confused with water boarding) day! x
This forum is the first social media I've ever done! Never really been interested before. Might have to join the modern world now! 😂
you girls have got to get with the action!!
Instagram is the new twitter ...... it's quite fun actually, because you can put photos up in your stories bit and they are only live for 24hrs and then they are gone. So they cant come back to haunt you in years to come.
I get to see what my son and girlfriend are up to - they tend to post photos of their evenings out etc.
Twitter I use to follow some celebs and theres quite a lot of health care info (profesional not personal) that I follow as well.
Facebook I use to keep in touch with my friends up north and aboard
I'm completely social media'd up!
Lesley you are a 🌟
I don't do Instagram, so not sure how to check you out. You are one fab lady!!
Well done you xxx 👍👍👍
After my trip out yesterday - I took the plunge and posted a baldy picture up for the #givingtuesday #givepink
to raise some money for BCC ..... and now I am on the BCC instagram story!! fame at last for all the wrong reasons!!
You've got to laugh!!
I've raised £50 so far and FB are matching donations upto £200
Lesley, mine seem to start with the hand and work their way up the arm, elbow crease is last resort. I couldn't see the vein they used on the forearm but the nurse obviously could! They keep asking if the can use the other arm..... er no that would be surgery arm!
i usually drink loads all the time but increase it day before, day of and day after chemo. Seems like you'll be good to go Thursday, yay for you! Good luck 🍀🍀🍀🍀
Our veins aren't daft Meesh, they know what's coming!
My unit wont go into the hand or the elbow so its got to be in between, when the expert came on chemo1 she slipped it in really easily - I couldnt see what she was aiming at but she obviously knew what she was doing.
I will be drinking loads and getting all bloated in preparation for battle on Thursday........ I'm watching the clock tick around to 7pm ... no news is good news re bloods xx
Hi Lesley, thatvwig looks fab! Ive had fecx3 so far and have also had trouble with veins. When they saw me at pre chemo appointment they said I had good veins but I think my veins must have heard what was coming and said "nope you ain't putting that **bleep**e in here" and made things difficult on actual chemo day. Fec1 cannulated in hand but then couldn't get good return so ended up having expert use crease of elbow vein. Fec2 cannulated in side of forearm but again they weren't happy with the return so after trying to cannulated another vein gave up and again used crease of elbow. Fec3 again used forearm and actually managed to use it for chemo hoorah!
So I'll also join you ladies in a vein dance 💃🏻 👯♂️🕺🏻👯💃🏻🕺🏻👯👯♂️
Shi, I am willing to bet you probably did post the Thieve's Oil recipe and it is me not seeing it or not remembering seeing it. I have dispatched daughter to H&B so I can concoct away tonight!
Thanks for telling me about your port JC1262. It sounds do-able, even if I am the biggest wuss in the world. I am just back from my pre-assessment appointment and they were immensely kind, informative and reassuring. It will be a local with sedation and dissolvable sitches both of which probably make it a bit easier. Only challenge will be if my blood count has dropped as it is scheduled for day 7 post-chemo. No point in second guessing though.
Wishing you all a good evening and see you again tomorrow. xx
thanks Otter, I'll give the gloves a try.
They only have my right side to go at due to the ANC
Bit of a pain but there you go!