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November 2017 Chemo Starters

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Re: November 2017 Chemo Starters

πŸŽ‰πŸŽ‰πŸŽ‰ well done Annakarenina πŸŽ‰πŸŽ‰πŸŽ‰πŸ’•
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Re: November 2017 Chemo Starters

Well done AK πŸŽ‰πŸŽ‰πŸŽ‰πŸŽ†πŸŽ†πŸŽ†

 

Anadan hand on there you will be soon crossing that finishing line

 

πŸ€—πŸ€—πŸ€—πŸ€—πŸ˜˜πŸ˜˜πŸ˜˜πŸ˜˜

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Re: November 2017 Chemo Starters

Whoop whoop AK πŸŽ‰β˜„πŸŽ‰β˜„
Well done on crossing the finishing line & climbing off the chemo 🎒
Try and rest now and enjoy the weekend πŸ€—

Anadan - we are counting down now to your finishing post, it will be here before you know it πŸ€—

Xxx
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Re: November 2017 Chemo Starters

Well done AK - you had your wobbly moments there, but you did it!!!

I think I am now paying the price for getting thru T easily without any sickness or fatigue ..... just the desire to eat!! lol - but bigger fish to fry! Literally!

have a lovely weekend all - I am just about to fall into the arms of my OH for a well deserved hug!! xx
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Re: November 2017 Chemo Starters

Hello everyone, I did it! Cycle 8 was completed yesterday. Thank you all for cheering me on and getting me to that finishing line. I think of you like whichever of the Brownlee brothers it was who rescued his poor sibling when he was completely out of it and struggling to reach the finishing line in the triathlon. It has meant so much that you have kept supporting me as you all moved into the next phase of your treatment.

 

Anadan, I know how impossibly far away the finish seems, especially when the cumulative effect of chemotherapy means each cycle seems to get tougher, but I promise you will get there and I also promise that we will all be here for you throughout these last few weeks. Hang in there and let us lift you up when you need help or a place to vent. I am getting the space blanket everyone here had ready for me as I staggered over the finishing line and keeping it safe for you. I too am having a bilateral Mx but it hasn't led to any further meetings or interrogation from clinical and surgical staff who have all understood my decision and supported me unconditionally. I hope the psychology meeting is as supportive as you surely deserve. When you have talked about your choice, you have always seemed clear and resolved - you will be able to draw on that reflective approach to express your wishes/feelings. 

 

As always, I am grateful for the trailblazers who are moving on to radiotherapy. I know it is a while away for me as I have the small matter of surgery on 16 April and the recuperation period first, but your shared wisdom and experience will be invaluable. Thank you for continuing to share your experiences here.

 

As for BMI, I intend to remain in denial until I am through surgery, but bizarrely, I have lost quite a bit of weight on chemotherapy. I think it is the nausea/loss of appetite/mouth ulcer diet. Still got more reserves than I would like though, so I will be aiming to get on the exercise/healthy, healthy, healthy regime as soon as I can once I can move effectively post-surgery and do more than the arm exercises BCC recommend. 

 

Have a happy weekend my friends. xx 

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Re: November 2017 Chemo Starters

Morning 

 

Yes it would be great to reclaim our normal  but think it's going to take a long time active also been trying to be good and not eat snacks and too much🍰🍰🍫but no movement on the weight front my BMI is also in the overweight bit so really need too lose it

 

My legs are still very heavy achy and tingly so find it hard to excercise but I'm tfyitr to walk as much as I can

 

2 Nd Rads done needed a hand to get off table as legs had gone to sleep 😱😱

But otherwise all ok 

 

Hope you all have a good Friday and that we don't get this snow they are forecasting ⛄❄

 

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Re: November 2017 Chemo Starters

Morning all

Lesley I too am trying my very best and eat well but my chemo weight is refusing to go. I think the chemo is still in our system as I am still Mrs achy heavy legs and it can only be the chemo hanging round.
But being determined I am off for a walk around the race course 🐎🐎 with my friend and then off for s healthy lunch 🍰🍰 πŸ˜‚ Have a lovely weekend with your mum and dad and then start again Monday. One of my friends told me it was my age that was also determining my weight 😱 thanks for that I thought.

Have a lovely week end everyone and may side effects and the pesky chemo have a lesser effect on us all so we can reclaim our normal πŸ’•πŸ’•πŸ’•
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Re: November 2017 Chemo Starters

Morning all,

Finally, I feel better πŸ˜€ so off for a walk with the dogs Smiley Happy 

 

JC, BMX for me after chemo; I have an appointment with a psychologist in two weeks to check I’m menatally fit for this surgery 😱 I’m not sure what to expect from this meeting, what questions they want to ask ...

 

Oh, ladies, I will still have one chemo left when you’ve finished your rads 😱😱😱😱 so frustrating!!! 

How are you feeling on rads? What are the SE? 

 

Lesley, I hope you have a great weekend with your parents xxx

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Re: November 2017 Chemo Starters

Lesley good luck with your mum & dad being with you - I think the drugs are probably still in our system as I'm still feeling sluggish. I'm planning on doing more walking πŸ‘£ - especially as It's sunny here at the moment.

 

Happy Friday  πŸ€—πŸ’•β˜„

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Re: November 2017 Chemo Starters

I'm just starting mine as you finish Otter - 20 for me starting on the 3rd April!

 

I know that I have had a few naughty days this week with food, but the rest of the week I've been super good, but I seem to have put back on almost everything I have lost so far ..... I am very frustrated!

 

I'm wondering if the drugs could still be in my system??

 

Mum and Dad arrive over the weekend for a week, so they will be trying to feed me up - despite me telling them at every opportunity I need to watch what I eat!

 

I know it's a really shallow and superficial thing to worry about - but my BMI isn't good and I feel awful being this heavy!  

I think I need a Rocky soundtrack in my head for the next few weeks! 

 

xx

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Re: November 2017 Chemo Starters

15 should finish 6th April
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Re: November 2017 Chemo Starters

Evening all

Just catching up after a hectic week. Lesley & fmb it was great meeting up with you on Monday & I can't wait for the next one!!
AK hope you were successful today & rang that bell!!
Anadan good luck for Tuesday's 🍸 - what's your treatment plan once you're done on this 🎒?
Sorry to hear about your feet Lesley, are you able to rest up now for a few days?
I'm sorry we couldn't get to FaceTime you Bythesea, but we guessed you were caught up with the hospital, just not a different one!! Glad you're home again - recovery is always better at home
Carole & Otter I had problems knocking the fatigue off & am still suffering a bit with heavy legs. I am managing short walks & then legs up!!
Otter, we'll done on getting your first rads done, how many are you having?

Wishing you all a fab Friday xx

πŸ€—πŸ€—πŸ€—πŸ’•β˜„πŸ’•β˜„
Shi Community Champion
Community Champion

Re: November 2017 Chemo Starters

Zap bap a loo la a zap bam boo 😎😎πŸ₯“πŸ₯“fine ladies, when you finish club Tropicana πŸ–πŸ–awaits which spiderwoman in Feb rads thread with me set up for us all to use for after a treatment free bit where we can πŸ’ƒπŸ»πŸ’ƒπŸ»πŸ•ΊπŸ•ΊπŸ’ƒπŸ»πŸ’ƒπŸ»πŸ₯‚πŸΈπŸ·πŸ₯‚πŸ₯‚πŸΈπŸΉπŸΉπŸ–πŸ–πŸ–πŸ–chill whatever, so something for you all to look forward to πŸ˜˜πŸ˜˜πŸ’•πŸ’•βœ¨βœ¨shi xx
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Re: November 2017 Chemo Starters

Hi ladies

 

First πŸŒžπŸ› session done was early and seen early but they have changed all !y appointment so from all being at 10 so easy to remember they are all different times 1 in the evening 😒

 

I will also be on different machines so will just say I'm in the Caribbean 😎😎😎😎☒☒☒☒☒

 

Bythesea glad you are home rest up and fingers crossed the ******** has finally gone

 

Xxx

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Re: November 2017 Chemo Starters

I did joke with them Carole ..... but they weren't playing ball!

 

It is quite an odd feeling having someone draw on your boobs!  But I'm not going to knock the attention 🀣

 

Glad everyone is coming out of the chemo fog - AK and Anadan will be there before we know it!

 

Bythesea - rest up - the anaesthetic will have taken it out of you 

 

xx

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Re: November 2017 Chemo Starters

Morning ladies

Good luck today Otter and I hope those aches and pains start to go soon. I can't believe I'm still dragging around heavy legs

Hope the tattooing goes well Lesley, I dare you to ask for something more creative than a dot πŸ˜ƒ

Bythesea good to hear your home and let's hope all our dancing and finger crossing has done the trick.

And Annakarenina nearly there πŸ€—

Now thinking about that walk before the rain clouds come back 🌦🌦🌦

Xxx
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Re: November 2017 Chemo Starters

Morning ladies,
Many many thanks for the dancing and wishes, hopefully that's the bugger right outta me! So long mother f@!!er!!!!!!!!!!!!
Annakarenina got the space blanket ready for you xxx
Lesley good luck with the tattoo, we are soo modern! Rebellious Warriors ❀️
Otter hope they don't have you waiting long and your first sunbed goes well. What's your machine called????
I got home last night so lazy day for me listening to the wind and maybe picking winning Cheltenham ponies πŸŽπŸ‡πŸŽπŸ‡πŸ‡
Highlighted
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Re: November 2017 Chemo Starters

Hi Lesley

 

Yes first rads for me today just hope they don't keep me waiting around to long as my legs are very stiff and painful at the minute and sitting still for too long doesn't help

 

Hope your planning goes ok it was my first tattoo always said I would never have one πŸ˜‰ but they just Lok like a little black dot 1 either side of your chest and 1 in your cleavage so no one can see them

 

Lovely and wet here again so will be a wet walk to hospital

 

Hope everyone is doing ok 

 

πŸ€—πŸ€—πŸ€—πŸ€—πŸ˜˜πŸ˜˜πŸ˜˜πŸ˜˜β˜’β˜’β˜’β˜’πŸ˜ŽπŸ˜ŽπŸ˜ŽπŸ˜Ž

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Re: November 2017 Chemo Starters

Morning all

 

hope Bythesea got on ok with surgery - if you are out of the fugg - lets us know you are ok

 

AnnaKarenina - last one for you!!  Remember when you didn't think you would ever get to the end??  

 

Anadan - the last two seem like a massive mountain to climb, but you are well on your way to planting a flag at the summit!!

 

Two days stood around at an exhibition, I have discovered, plays havoc with docetaxel feet.  I have lost another complete layer of skin and I think another one will be going shortly. The nerves are still obviously very sensitive and I'm in discomfort this morning .... but there's worse things happen at sea, as my nana used to say!

 

I'm off for my rads work up today - my first tattoo!

 

Otter do you start rads today?

 

Hope everyone else is getting over the side effects and returning to the human race and preparing themselves for whatever is next on this 🎒 journey! 

 

Happy Thursday peeps!   🌞

 

xx

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Re: November 2017 Chemo Starters

Hi Carole

 

I've been the same also keep getting swollen ankles and knees which doesn't help with the getting about and legs are painful

 

 .

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Re: November 2017 Chemo Starters

Lovely photos ladies so sorry I couldn't make it, but will hopefully make the next one.

Still suffering from this last docetaxel a bit, legs are so tired and heavy. Having to drag myself along for my daily walk, feeling like a poor little old lady. Hopefully it will pass soon 😊

Xxxx
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Re: November 2017 Chemo Starters

Good luck bythesea have everything crossed 

 

πŸ˜˜πŸ˜˜πŸ˜˜πŸ€—πŸ€—πŸ€—πŸ€πŸ€πŸ€

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Re: November 2017 Chemo Starters

Bythesea doing a good luck dance now with fingers and toes crossed too. πŸ’•πŸ’•πŸ€πŸ€πŸ’•πŸ’•
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Re: November 2017 Chemo Starters

Hang in their AK! It's the final sprint for the line. I confess I've felt a bit worse since the final chemo, but I think it's that thing where you hold it all together for so long then collapse. Just went to a seminar thing on 'beyond treatment' and shared lots of stories about how the end of treatment brings up all sorts of mixed feelings. Hope everyone gets some sun and some rest. I'm off to interview Alina Ibramigova (Brit/Russian fiddle player) so desperately trying to stop my eyes watering everywhere. I think sunglasses may be my best bet. Harryfiddler xx
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Re: November 2017 Chemo Starters

What a gorgeous photo! Raising a glass to all you beautiful ladies!
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Re: November 2017 Chemo Starters

Hi Jencat, Lesley

 

I had a meeting with the genetic oncologist too, and will have the blood test eventually, mostly because I have two daughters. I came out realising how little I knew about my family! I thought that both sides of our family were relatively cancer free -- mostly heart attacks and strokes as cause of death. Subsequent phone calls revealed that one of my aunts died in her 50s from breast cancer (I knew she died but I was 6 or 7 -- never knew why) and that one of my cousins also suffered breast cancer. It put my father's reaction to my diagnosis into perspective. 

 

Hope yours goes well.

 

Harryfiddler

xx

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Re: November 2017 Chemo Starters

Thanks for the heads up about other relatives Lesley, I'm not sure how much more info I'll be able to remember or even know x

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Re: November 2017 Chemo Starters

hi Jencat - yes I sent mine in prior to the appt as well, but they went thru that again and pushed further - trying to remember how many children my cousins children in australia had (the one's I have never met and don't hear from !) was a bit of a challenge!
x
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Re: November 2017 Chemo Starters

Bythesea - doing dances and sticking pins into a wax effigy of unclear margins!! Knock it into the ball park girl! You'll be tucked up in your own bed before you know it.
take care and sweet dreams! xx
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Re: November 2017 Chemo Starters

Evening ladies. Kicking myself that I missed FaceTime. I had a hospital boo boo on Monday. I basically turned up at wrong hospital!!! It was a rescheduled app and they switched hospitals. I never noticed and neither did they. Doh! Got seen anyway but had to wait longer. Daddy took me to appoint then dragged me shopping so by the time I got home it was nearly 5pm, I thought about face timing but thought idve missed you. Mighta known you would still be chatting/drinking x
Well that's me booked back in same ward as a fortnight ago!
Everyone please cross your fingers and do good luck dances for me, for clear margins PLEASE xxx.
Hopefully should get out tomorrow. Loved the pictures of you all. Soo nice to see what you look like 😊 Warriors xxx
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Re: November 2017 Chemo Starters

Thanks very much Lesley for the info. Glad they do the blood test there, wondered if it might be another hospital visit! I had to fill in a form about parents etc and send it to them before tomorrow's visit, so already had to have a bit of a think about relatives xx

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Re: November 2017 Chemo Starters

hi Jencat

saw the consultant - was there about 30 mins (I think), blood test was done there and then.

He asked about relatives - parents siblings and their children and their children - which was a bit of a challenge - probably worth having a think about them in advance - boys vs girl numbers and any occurence of cancer anywhere

 

I found it quite casual and informal - was made to feel very at ease and he was generally very helpful about other none generic cancer questions I had.

 

 

FMB- had a great catch up with my son - it was soooooo lovely!

 

Absolutely cream crackered now after a day at the ExCel - back again tomorrow 😫 ....... I'll sleep tonight!

 

xx

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Re: November 2017 Chemo Starters

Hi Lesley, I noticed that you're TN and went to Guy's for genetic testing. I've got an apointment there tomorrow, and hope you don't mind me asking, but just wondered how long you were there for and what the meeting involved. Did you have a blood test whilst you were there? Thanks  xx

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Re: November 2017 Chemo Starters

Ladies, so nice to see you happy and smiling xx big hugs from me xxx 

 

AnnaKarenina, I have a good week this weekbefore the next 🍸on Tuesday and I’m trying to catch up with things.  I’m 6 down, 2 still left and this ratio 6:2 keeps me going. 

 

Have a good evening xx

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Re: November 2017 Chemo Starters

Hello everyone, what wonderful photos. I thought of you all, including Bythesea on FaceTime, yesterday and I am delighted there will be a summer opportunity. I would love to join you and say thank you in person for all the friendship, support, humour and listening.

 

Today was my pre-chemo assessment and I am delighted to say that I am all set for the final and 8th round on Thursday morning despite some borderline bloods. I am right on the edge with my neutropils, but they're happy for me to go ahead as it is the last go and they think I should recover a bit between now and Thursday. Phew. Haemoglobin is also a bit rubbish, so spinach for supper for me. I am wrung out now, but just thrilled to be able to keep to schedule, especially with surgery booked in for 16 April.

 

How is everyone doing? Bythesea, do you have a clearer idea of next steps now? And Anadan, how are you managing? Harryfiddler, we had some sun (now gone) but I suspect you'd laugh if you saw passes for 'sun' in March in SW London. JC, Carole, Otter, FM and Lesley - hope you're well too? xx

 

 

Shi Community Champion
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Re: November 2017 Chemo Starters

Hi Nov girls, Rosie h had posted a beautiful post on jan thread, please read if you get chance πŸ’•πŸ’•βœ¨βœ¨shi xx
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Re: November 2017 Chemo Starters

Had such a lovely afternoon meeting you both 🍾🍾
Count me in for a summer meeting, I'll bring my washboard abs 🀣🀣

Lesley, hope you had a lovely night with your son.
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Re: November 2017 Chemo Starters

Lovely picture Lesley, looks like you had a great time together Smiley Happy x

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Re: November 2017 Chemo Starters

Thanks Lesley  - it was a fab afternoon πŸ₯‚

Bythesea how did you get on today πŸ€—

 

Xx

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Re: November 2017 Chemo Starters

Here you go ladies - raising a glass ..... or two πŸ˜‡ to all the beautiful November heros

We sat down at 1pm and before we knew it it was nearly 5pm .... another met up in the summer I think and hopefully we can get a few more along who have finished treatment

Couldn't have got this far without you all

xx

 

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Shi Community Champion
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Re: November 2017 Chemo Starters

Hope you’ve had a lovely get together in Covent Garden, sorry I couldn’t make it this time πŸ’•πŸ’•βœ¨βœ¨shi xx
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Re: November 2017 Chemo Starters

Hope you've all had a lovely day. I've been thoroughly spoilt by my girls & OH πŸ’–

Lesley & fmb looking forward to meeting up with you tomorrow & having face time with you Bythesea. Good luck to you for tomorrow , we'll be thinking of you πŸ€—

Carole sorry you won't be joining us tomorrow and to hear your sad news. Good luck to you and your family for the next few weeks πŸ€—

Wishing you all a good week xxx

πŸ€—πŸ˜—πŸ€—πŸ˜— β˜„πŸ’•β˜„πŸ’•β˜„
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Re: November 2017 Chemo Starters

Lunch booked for 1pm - you've got my number so give me a Facetime when it suits!!

 

I'm sure we will all be happy to hold your hand .... regardless of the appt 🀣  but could put your consultant off a bit!!

 

xx

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Re: November 2017 Chemo Starters

Carole, so sorry to hear πŸ˜”x. Sending you and your family much love ❀️ xxx
FMB Hope your dinner worked out well and you were spoiled x
What time is your meet up tomorrow so I can FaceTime? Got hospital appointment tomorrow for my other problem and would hate to be on a bed with legs akimbo when you call 😬
I'll be up for another meet up unless tomorrow's is wild and you all get arrested 😊
Have fun xxx
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Re: November 2017 Chemo Starters

Oh Carole - I am so sorry to hear your sad news - awful time for you and your family - love and hugs to you all

 

We'll definitely have to have another one 

 

xx

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Re: November 2017 Chemo Starters

Happy belated Mothers Day ladies!

I hope you have all been spoilt rotten today. I am now finally relaxing 🍸 waiting for my Sunday roast.

I am afraid that I will not be able to make tomorrow's lunch date, I myself am now fine, but I am very sad to say that I lost my father-in-law on Friday evening to secondary prostate cancer and I am spending tomorrow with my OH helping out. I hope you all have a fun time and hopefully I will make the next get together.

Carole xx
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Re: November 2017 Chemo Starters

Fab - FMB - I'm looking forward to meeting up in person too!

 

 

Otter are you still ok tomorrow?

 

Carole - how are you feeling?  would be lovely to see you if you feel able, but understand if the T is still getting the better of you!!  Pesky stuff!

 

FMB, I'd get them to do the washing up at least .... and they do say it's the thought that counts! 

 

xx

 

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Re: November 2017 Chemo Starters

Hi Lesley- just to confirm I'm still coming tmr, c u and the other lovely ladies tmr, looking forward to meeting some of the members of this fab group.

Happy Mothers day to the Mums in this group, reading the comments it sounds like our kids have been amazing thru our journeys.
My hubby announced that today our 14 year old is going to cook a roast dinner to celebrate mothers day...so far I've put the roast in the oven and hubby, son and dog have gone to play football so dinner will be interesting 🀣🀣

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Re: November 2017 Chemo Starters

Dear Bythesea
Sorry to hear you are back in again, but like Otter shared, good that you are in again so soon. I didnt have clear margins after my first lumpectomy and had to wait 3 weeks to have another one.
Big hugs to you for wed xx
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Re: November 2017 Chemo Starters

Anadan, so sorry to hear you are having a bad time on the Docetaxel - it is evil stuff.

 

Lots of great advice from JC, and I would echo the request to reduce the dose for the next two.

 

I didn't have the fatigue, but had awful problems with the feeling in my feet and the dose was reduced by 25% for the last two - it made a big difference.

 

We will raise a glass to you and everyone else tomorrow!!

 

Happy Mother's Day everyone - I'm seeing my mum next week - first time since October, and my son tomorrow..... going out with two other home alone mums later on!  Not necessarily the best way to kick off week 2 of my diet! 😫

 

love to you all 

 

xx