Hello everyone, I did it! Cycle 8 was completed yesterday. Thank you all for cheering me on and getting me to that finishing line. I think of you like whichever of the Brownlee brothers it was who rescued his poor sibling when he was completely out of it and struggling to reach the finishing line in the triathlon. It has meant so much that you have kept supporting me as you all moved into the next phase of your treatment.
Anadan, I know how impossibly far away the finish seems, especially when the cumulative effect of chemotherapy means each cycle seems to get tougher, but I promise you will get there and I also promise that we will all be here for you throughout these last few weeks. Hang in there and let us lift you up when you need help or a place to vent. I am getting the space blanket everyone here had ready for me as I staggered over the finishing line and keeping it safe for you. I too am having a bilateral Mx but it hasn't led to any further meetings or interrogation from clinical and surgical staff who have all understood my decision and supported me unconditionally. I hope the psychology meeting is as supportive as you surely deserve. When you have talked about your choice, you have always seemed clear and resolved - you will be able to draw on that reflective approach to express your wishes/feelings.
As always, I am grateful for the trailblazers who are moving on to radiotherapy. I know it is a while away for me as I have the small matter of surgery on 16 April and the recuperation period first, but your shared wisdom and experience will be invaluable. Thank you for continuing to share your experiences here.
As for BMI, I intend to remain in denial until I am through surgery, but bizarrely, I have lost quite a bit of weight on chemotherapy. I think it is the nausea/loss of appetite/mouth ulcer diet. Still got more reserves than I would like though, so I will be aiming to get on the exercise/healthy, healthy, healthy regime as soon as I can once I can move effectively post-surgery and do more than the arm exercises BCC recommend.
Have a happy weekend my friends. xx
Yes it would be great to reclaim our normal but think it's going to take a long time active also been trying to be good and not eat snacks and too much🍰🍰🍫but no movement on the weight front my BMI is also in the overweight bit so really need too lose it
My legs are still very heavy achy and tingly so find it hard to excercise but I'm tfyitr to walk as much as I can
2 Nd Rads done needed a hand to get off table as legs had gone to sleep 😱😱
But otherwise all ok
Hope you all have a good Friday and that we don't get this snow they are forecasting ⛄❄
Finally, I feel better 😀 so off for a walk with the dogs
JC, BMX for me after chemo; I have an appointment with a psychologist in two weeks to check I’m menatally fit for this surgery 😱 I’m not sure what to expect from this meeting, what questions they want to ask ...
Oh, ladies, I will still have one chemo left when you’ve finished your rads 😱😱😱😱 so frustrating!!!
How are you feeling on rads? What are the SE?
Lesley, I hope you have a great weekend with your parents xxx
Lesley good luck with your mum & dad being with you - I think the drugs are probably still in our system as I'm still feeling sluggish. I'm planning on doing more walking 👣 - especially as It's sunny here at the moment.
Happy Friday 🤗💕☄
I'm just starting mine as you finish Otter - 20 for me starting on the 3rd April!
I know that I have had a few naughty days this week with food, but the rest of the week I've been super good, but I seem to have put back on almost everything I have lost so far ..... I am very frustrated!
I'm wondering if the drugs could still be in my system??
Mum and Dad arrive over the weekend for a week, so they will be trying to feed me up - despite me telling them at every opportunity I need to watch what I eat!
I know it's a really shallow and superficial thing to worry about - but my BMI isn't good and I feel awful being this heavy!
I think I need a Rocky soundtrack in my head for the next few weeks!
First 🌞🛏 session done was early and seen early but they have changed all !y appointment so from all being at 10 so easy to remember they are all different times 1 in the evening 😢
I will also be on different machines so will just say I'm in the Caribbean 😎😎😎😎☢☢☢☢☢
Bythesea glad you are home rest up and fingers crossed the ******** has finally gone
I did joke with them Carole ..... but they weren't playing ball!
It is quite an odd feeling having someone draw on your boobs! But I'm not going to knock the attention 🤣
Glad everyone is coming out of the chemo fog - AK and Anadan will be there before we know it!
Bythesea - rest up - the anaesthetic will have taken it out of you
Yes first rads for me today just hope they don't keep me waiting around to long as my legs are very stiff and painful at the minute and sitting still for too long doesn't help
Hope your planning goes ok it was my first tattoo always said I would never have one 😉 but they just Lok like a little black dot 1 either side of your chest and 1 in your cleavage so no one can see them
Lovely and wet here again so will be a wet walk to hospital
Hope everyone is doing ok
hope Bythesea got on ok with surgery - if you are out of the fugg - lets us know you are ok
AnnaKarenina - last one for you!! Remember when you didn't think you would ever get to the end??
Anadan - the last two seem like a massive mountain to climb, but you are well on your way to planting a flag at the summit!!
Two days stood around at an exhibition, I have discovered, plays havoc with docetaxel feet. I have lost another complete layer of skin and I think another one will be going shortly. The nerves are still obviously very sensitive and I'm in discomfort this morning .... but there's worse things happen at sea, as my nana used to say!
I'm off for my rads work up today - my first tattoo!
Otter do you start rads today?
Hope everyone else is getting over the side effects and returning to the human race and preparing themselves for whatever is next on this 🎢 journey!
Happy Thursday peeps! 🌞
I've been the same also keep getting swollen ankles and knees which doesn't help with the getting about and legs are painful
Hi Jencat, Lesley
I had a meeting with the genetic oncologist too, and will have the blood test eventually, mostly because I have two daughters. I came out realising how little I knew about my family! I thought that both sides of our family were relatively cancer free -- mostly heart attacks and strokes as cause of death. Subsequent phone calls revealed that one of my aunts died in her 50s from breast cancer (I knew she died but I was 6 or 7 -- never knew why) and that one of my cousins also suffered breast cancer. It put my father's reaction to my diagnosis into perspective.
Hope yours goes well.
Thanks for the heads up about other relatives Lesley, I'm not sure how much more info I'll be able to remember or even know x
Thanks very much Lesley for the info. Glad they do the blood test there, wondered if it might be another hospital visit! I had to fill in a form about parents etc and send it to them before tomorrow's visit, so already had to have a bit of a think about relatives xx
saw the consultant - was there about 30 mins (I think), blood test was done there and then.
He asked about relatives - parents siblings and their children and their children - which was a bit of a challenge - probably worth having a think about them in advance - boys vs girl numbers and any occurence of cancer anywhere
I found it quite casual and informal - was made to feel very at ease and he was generally very helpful about other none generic cancer questions I had.
FMB- had a great catch up with my son - it was soooooo lovely!
Absolutely cream crackered now after a day at the ExCel - back again tomorrow 😫 ....... I'll sleep tonight!
Hi Lesley, I noticed that you're TN and went to Guy's for genetic testing. I've got an apointment there tomorrow, and hope you don't mind me asking, but just wondered how long you were there for and what the meeting involved. Did you have a blood test whilst you were there? Thanks xx
Ladies, so nice to see you happy and smiling xx big hugs from me xxx
AnnaKarenina, I have a good week this weekbefore the next 🍸on Tuesday and I’m trying to catch up with things. I’m 6 down, 2 still left and this ratio 6:2 keeps me going.
Have a good evening xx
Hello everyone, what wonderful photos. I thought of you all, including Bythesea on FaceTime, yesterday and I am delighted there will be a summer opportunity. I would love to join you and say thank you in person for all the friendship, support, humour and listening.
Today was my pre-chemo assessment and I am delighted to say that I am all set for the final and 8th round on Thursday morning despite some borderline bloods. I am right on the edge with my neutropils, but they're happy for me to go ahead as it is the last go and they think I should recover a bit between now and Thursday. Phew. Haemoglobin is also a bit rubbish, so spinach for supper for me. I am wrung out now, but just thrilled to be able to keep to schedule, especially with surgery booked in for 16 April.
How is everyone doing? Bythesea, do you have a clearer idea of next steps now? And Anadan, how are you managing? Harryfiddler, we had some sun (now gone) but I suspect you'd laugh if you saw passes for 'sun' in March in SW London. JC, Carole, Otter, FM and Lesley - hope you're well too? xx
Here you go ladies - raising a glass ..... or two 😇 to all the beautiful November heros
We sat down at 1pm and before we knew it it was nearly 5pm .... another met up in the summer I think and hopefully we can get a few more along who have finished treatment
Couldn't have got this far without you all
Lunch booked for 1pm - you've got my number so give me a Facetime when it suits!!
I'm sure we will all be happy to hold your hand .... regardless of the appt 🤣 but could put your consultant off a bit!!
Oh Carole - I am so sorry to hear your sad news - awful time for you and your family - love and hugs to you all
We'll definitely have to have another one
Fab - FMB - I'm looking forward to meeting up in person too!
Otter are you still ok tomorrow?
Carole - how are you feeling? would be lovely to see you if you feel able, but understand if the T is still getting the better of you!! Pesky stuff!
FMB, I'd get them to do the washing up at least .... and they do say it's the thought that counts!
Anadan, so sorry to hear you are having a bad time on the Docetaxel - it is evil stuff.
Lots of great advice from JC, and I would echo the request to reduce the dose for the next two.
I didn't have the fatigue, but had awful problems with the feeling in my feet and the dose was reduced by 25% for the last two - it made a big difference.
We will raise a glass to you and everyone else tomorrow!!
Happy Mother's Day everyone - I'm seeing my mum next week - first time since October, and my son tomorrow..... going out with two other home alone mums later on! Not necessarily the best way to kick off week 2 of my diet! 😫
love to you all