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November 2017 Chemo Starters

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Re: November 2017 Chemo Starters

Hi Chaffinch...I had my first herceptin injection on Thursday so will have a look to join in there. Haven’t felt great. Hope you are ok xx
Member

Re: November 2017 Chemo Starters

Glad to hear that some of you November ladies are ringing bells 🎉🔔. Finishing chemo feels so great. After initial side effects were over I felt like running around shouting and laughing like a mad woman. Felt like a weight had been lifted from my shoulders 😊.
Is anyone in this group having Herceptin as part of their treatment? I’m trying to set up a group in the Targeted therapy section for help and support. It is called February Herceptin starters? I had my first injection on Friday and so far so good.
Member

Re: November 2017 Chemo Starters

Hi all

 

How are you bell ringing ladies doing? Hope you are all keeping well and SEs are at a minimum

 

I've had a lovely weekend .... and it's not over yet!

 

Enjoy the sunshine if you have it.

 

love and hugs to all

xxx

 

 

Member

Re: November 2017 Chemo Starters

🎉🎉🎉 well done JC 🎉🎉🎉
Member

Re: November 2017 Chemo Starters

Well done JC, another across the line!!

Beautiful morning here, enjoy the sunshine and build up those blood levels ready for next weeks 🍸🍸
Xx
Member

Re: November 2017 Chemo Starters

Thank you Lesley Smiley Happy

I'm definitely going to have a go at the bread once I've finished chemo-apart from it being healthier, I reckon all the kneading will be theraputic! My girls might not be so enthusastic though, I'm not usually great at cooking! xx

Member

Re: November 2017 Chemo Starters

Hi JC

 

🛎🛎🛎🛎🎉🎉🎉🎉🔔🔔🔔🔔

 

Well done now relax 🤗🤗🤗🤗🤗

 

My job was117 so plenty of protein and spinach for me too

 

Hope you all have a sunny 🌞🌞🌞 Saturday 

Shi Community Champion
Community Champion

Re: November 2017 Chemo Starters

🛎🛎🛎🎉🎉🎉well done Jc 😁😁😁💃🏻💃🏻💃🏻🕺🕺🕺💃🏻💃🏻💃🏻enjoy the meal 😘😘that’s your first 🎢carriage in now isn’t it amazing Nov ladies, harryfiddler whats 30 degrees 😂🤣😂🤣😂 and like ok on the 😁😁side at least when you go for dip in pool or sea to cool off its ☀️☀️so your glorious weather does have its bonuses 💕💕✨✨shi xx
Member

Re: November 2017 Chemo Starters

Whoop whoop 🎉🎉🎉🎉🎉🎉🎉 and I have ringing that virtual bell loud & clear 🔔🔔🔔🔔♪♫🎶🎵

I'm done & on my out for celebratory meal with OH whilst my girls party celebrating older daughter's birthday. Just making the most of this time before se's luck in!!

My hb levels are still low, 94, but they said not to worry as It's my last chemo but to keep up protein levels.

Xx

🤗😘🤗😘🤗☄💕☄💕☄💕 🥂🥂
Member

Re: November 2017 Chemo Starters

What did this Friday bring? A swim in the ocean! Now, I'm a strictly English style swimmer -- breast stroke, head above water, ideally wearing a flowery bathing cap -- but some of my Aussie girlfriends dragged me off to Curl Curl Beach for a very quick dip. The big problem here is that it is *so* sunny that I've got to be really careful about exposing my skin to too much sun. Yes, OK, it's a nice problem to have! Although I have looked enviously at your cool temps on those days when it's 30 degrees and the hot flushes come to play. 

 

Still battling swollen and bleeding sinuses - has anyone else had this delightful SE? However, I think I've dodged the finger tingling bullet, for which I am very grateful, and the aches and pains are all gone. So now it's time for a week of relative normality before LAST ONE. 

 

I also saw a psychologist specialising in breast cancer ladies this week. I don't think we have a 'moving on' program here but I was very impressed with how across it she was -- that big mush of relief and fear and what-happens-next. Felt good to know that there's guidance available through the next bit of the maze.

 

I'm parcelling up some rays of sunshine and sending them your way,

 

Harryfiddler xx

Member

Re: November 2017 Chemo Starters

Well done on the 2lbs Lesley.
I'm going to try and put 2lbs on 🍮🍰🍩 😂
Member

Re: November 2017 Chemo Starters

morning jencat - come and play with us!

 

I use a food processor to make the dough and then the rest is by hand, but with ciabatta its all about the proving - lots of time involved!

 

xx

Member

Re: November 2017 Chemo Starters

I feel like Maria in the sound of music, I just want to go running thru the hills, singing at the top of my voice - such an inspiring day!

 

AnnaKarenina, you can't go far wrong with Mr Hollywood http://paulhollywood.com/home/recipes/bread/ he says which is for the novice etc ..... let me know how you go 👩🏻‍🍳

 

lost 2lbs this week 😍

 

xx

Member

Re: November 2017 Chemo Starters

Hi Lesley, I wanted to add how nice your bread looked and although I'm not much of a cook, would like to have a try at making some myself once I've finished chemo. (I'm the only one from Oct not finished yet Smiley Sad)  Do you use a breadmaking machine or do it all by hand? xx 

Member

Re: November 2017 Chemo Starters

Good luck JC ring that virtual bell 🔔🔔💕💕

Beautiful day here so off for a walk in the Great Park. Been good all week eating healthy food and no weight has shifted 🙁 so it has to be done, cake and coffee after the walk as it makes no odds 😄

Have a lovely Friday everyone, hope SE ease and the sun shines for you all xx
Member

Re: November 2017 Chemo Starters

Oooh, JC and Otter - what a stage to reach! I am doing a happy dance for you both. Just brilliant. Vicarious celebrations and marking of THE END of chemo are a brilliantly inspiring way to battle through the next few days of Paclitaxel-induced nonsense. 

 

Lesley, I have been inspired by your bread making combined with a piece on the radio that claimed that bread is one of the most processed products we tend to buy when it could/should be made with 3-4 simple ingredients. I am nowhere near ciabatta level, but what would you recommend to a novice as a source of easy recipes?

 

Anadan, how are you doing? I really hope the pain has settled a bit?

 

Elorac, Bythesea, Harryfiddler and friends: what does this sunny (although not as sunny and certainly not as warm as it is likely to be where HF is at the moment) Friday bring you? Only good things I hope.

 

Off to try to heated body wrap to see if it can nip the aches and pains in the bud (bone). xx

Member

Re: November 2017 Chemo Starters

🎵🎶It's the final countdown 🎶🎵

Beautiful but chilly day, 1st steroids down. It's my daughter's birthday so we're having a double celebratory brunch this morning.

I don't think there's a 🔔so it will be a virtual one!!!!
Thanks for your support xx
Member

Re: November 2017 Chemo Starters

Good luck Jc, root toot toot!!! xxx
Member

Re: November 2017 Chemo Starters

Looks like a beautiful day out there for JC to get some bell ringing done!!!

 

Photo required!!!

 

💕🤗

 

Oh and no allergic reaction or unnecessary dramas please!!!

 

xx

Member

Re: November 2017 Chemo Starters

Thought it was strange as we are all near the end of our chemo.

 

Thanks for the warning Sue and well done Lesley for reporting the post

 

Had day 1 of steroids, off to bed now ready for my big day tomorrow xx

 

💤💤💤💤😴😴😴😴

 

Member

Re: November 2017 Chemo Starters

Thanks sue I reported it as inappropriate

Blood pressure went up a few notches!!
Community Champion

Re: November 2017 Chemo Starters

Hi Ladies

Please disregard the last post.

Thanks

Sue xx

Member

Re: November 2017 Chemo Starters

Oh Otter it sounds as if you've had a really tough time.
I don't know anything about rads but hopefully you'll get through this as you've come through your chemo. How long will you be on treatment

🤗🤗🤗🤗
Member

Re: November 2017 Chemo Starters

Oh bless you Otter ... these treatment plans just keep on giving!!
🎢🎢
Member

Re: November 2017 Chemo Starters

Thanks all just can't believe I've finally got to this stage fingers crossed SE behave themselves 🙃🙃🙃🙃

 

Planning a relaxing few days as I've got rads planning meeting on Tuesday and as its the shoulder and side of neck I've permanent damage from a whiplash injury I need to make sure it's fine as from what I understand you have to stay in the same position for 15 minutes which will be different as it will hurt 😢😢😢😢😢

Member

Re: November 2017 Chemo Starters

OMG, Otter it’s so exciting!! 😀👏😀👏 well done you! 💕💕💕💕

 

I finished my injections today, and I hope the pains are gone soon. 

Shi Community Champion
Community Champion

Re: November 2017 Chemo Starters

Otter 🛎🛎🎉🎉🎉well done lovely, did we snag your gold hotpants on our 🚂 from your nov 🎢 you’ve finished before our Ruthie babes and jencat? You’ll all be 🛎🛎🛎🎉🎉🎉soon and into rads 😎😎 before you know it, look at the jan and Feb rads threads, it’ll help and mishy18 talked us through rads in our Oct thread too and community champion ladybowler is brilliant for rads tips too. 💕💕✨✨shi xx
Member

Re: November 2017 Chemo Starters

🎉🎉 well done Otter 🎉🎉 🔔🔔🔔
Member

Re: November 2017 Chemo Starters

My chemo was reduced for cycle 5 as i had such a bad time with fatigue and loss of appetite on cycle 4.

So far I have managed to escape dreaded pins & needles.

🎉🎉🎉👏👏👏👏 well done Otter on finishing your chemo 🎢 now you can relax. Enjoy the sunshine ☀☀ xx
Member

Re: November 2017 Chemo Starters

 

 

Wooo Hooooo

 

🎉🎉🎉🎉🎉🎉🎉🎉🎉🎉🎉

 

well done you

 

Enjoy the sunshine but rest up as well.

 

love and hugs to you!! 

 

xx

Member

Re: November 2017 Chemo Starters

Hi all

 

Ringing a virtual bell 🔔🔔🔔🛎🛎🛎🛎🎊🎊🎊🎊🎉🎉🎉🎉

 

Chemo 6 nailed🤗🤗🤗🤗😘😘😘😘

 

I checked my dose had been at 75% for all 3 T due to fibromyalgia and greater chance of increased neuropathy which why if it was too bad they would have had to stop as couldn't reduce any further.

 

I've been getting increased night swests on T but was getting through FEC too

 

Lovely sunny day here so will have a bit of lunch then go for a walk as I've put on 2 stone as well so need to start to eat more healthy and do more exercise and as you say a good time to review my lifestyle

 

Hope eveyone has a good day

 

🤗🤗🤗🤗😘😘😘😘

Member

Re: November 2017 Chemo Starters

Anadan, yes the pins and needles in feet and hands is a sign, you need to mention at your pre-chemo check ..... they should be asking you anyway.

 

How are the injections going? how's your pain?

 

xx

Member

Re: November 2017 Chemo Starters

Lesley, your ciabatta looks amazing, I bet it tastes even better 🤤🤤🤤 

yes, this disease makes you think about your lifestyle, doesn’t it? I’ve always been active (my dogs are very demanding 😜) but now I want to do even more. More hiking 🧗‍♀️ Maybe canicross ... Bythesea, you have a dream job!! 😍  

 

JC 😂😂😂 yes, that’s exactly what I do every night now. At first I thought  it was a tropical fever  😂 but I measured the temp and it was ok, Just the sweats Smiley Sad 

 

Ladies, did you get  a lower dosage of the T due to tingling fingers and toes? I don’t have the tingling sensation but pins and needles in my feet. Is this the same? A symptom of neuropathy? 

I don’t know what my first dosage was because I forgot to take my little booklet with me, but I’m only 52kg and lost weight on chemo 

Member

Re: November 2017 Chemo Starters

Evening from windy Sydney,

That docetaxel just keeps giving doesn't it? I thought I was all AOK then I woke up with my sinuses all swollen and horrid. But clearing now and hoping that I'm into the near to normal phase. Good luck Otter, Bythesea, AnnaKarenina, and a big WOOHOO to JC. It's hard to believe we're nearly done! Time for bed here, xx
Member

Re: November 2017 Chemo Starters

Morning from sunny north London  ☀️☀️

 

My docetaxol  was reduced from 180mg to 148mg (I'm just under tall!!) 

Otter & AnnaKarenina wishing you both lots of luck & sending you hugs 🤗🤗🤗🤗

 

I don't think my unit has a bell so I will pressing the virtual bell & doing virtual cartwheels whilst whooping tomorrow.

 

Just had a Sainsbury delivery with a smashed carton of whipping cream going everywhere so I burst into tears 😭 so the driver has now reimbursed me that box of shopping.

 

I was advised to start the arm exercises before my op & continue them after. I just did the bcc ones ,  I think as long as you're doing some sort of exercise in that area it helps. I bought a V pillow from Amazon, which helped.

 

Anadan, I play the hokey cokey in bed with an arm in then out, leg in then out, covers on then off then I start  again. It's great fun!!

 

Bythesea I think you're the tallest of us all and you definitely need to be exercising your arm area for your job,  which sounds amazing.

 

Lesley, the lady from the moving forward talk said they discuss a lot of myths surrounding food and cancer at their meetings also there should be something on the bcc webpage about the daily mail article. Wine is definitely one of your 5 a day as It's made from grapes 🍇

 

Off to out shopping away & then visit my mum xx

 

Member

Re: November 2017 Chemo Starters

I had my first tiny glass of wine last night. Not sure if I've missed it. Will look into Mediterranean diet :0) love the drain cleaner thought. Sometimes that's what it's felt like x
Member

Re: November 2017 Chemo Starters

yes I'm trying to go healthy ...... in fact I have just cleared out my kitchen cupboards.

 

Obviously I need to lose weight - 2stone over what I should be.  

But I want to go fresh, fresh, fresh, so I am switching to a mediterrean diet 

Starting with a 4 week diet plan - the mediterrean diet plan by an American dietician originally from the Lebanon and endorsed by a Cardiologist.  And then inspired by the Hairy bikers Med adventure - great recipes in that.

Hence making my own bread as well.

The milk thing - I don't like milk and don't drink a lot of it, but again, not sure if we should be drinking another animials milk??  Just my view obviously!

 

Hopefully it will become a lifestyle rather than a 'diet'.  living by the sea I have not excuse to not to eats lots of fish and cut down on the red meat.  We have a great fish shop on the beach, literally straight off their own boat, but it's about making the effort to go down and buy whats good and fresh on the day.

 

But I want to bounce back from all this treatment as healthy as I can be. 

 

My son keeps saying that the chemo is like drain cleaner, it has cleared out all the 💩 in more ways than one! I definitely wont be needing a colonic irrigation anytime soon.  So it's my job to keep it clean now.

 

And wine is technically one of your five a day ............ right???

 

 

xx

Member

Re: November 2017 Chemo Starters

No free pillow gifts yet :0( physio comes to see me day after surgery so hopefully they will start me on the right track but I'll be flashing your new exercises. I have loads of pillows round the house now as my lymph node is swollen and sore so I've been sitting with it propped up since chemo 1 :0( I've been looking into the 5:2 diet for the toxic cleansing bit which I might give a try. Did you mention a lifestyle change a while back? Can't remember and don't fact trolling back through 107 pages xxx
Member

Re: November 2017 Chemo Starters

The photo is the ciabatta ... and I can report it tastes delicious.

 

Made me chuckle this morning scrolling thru the Daily Mail (font of all knowledge!) that shop bought bread is now classed as a highly processed food and 'can cause cancer'..... I'm starting trends all over the show!

 

I do worry that anything and everything you do 'can cause cancer' ...... but I am trying to minimise as much as I can anything that I dont know whats in it.  As my OH keeps saying, if it needs a label, someone has played around with it!!

 

You will be sore and stiff after surgery, stiff isnt really the right word, it's all the bits inside that need to learn how to stretch again.  little and often worked for me, but those exercises worked for me.... you know when you can feel them doing some good - it's hard to explain.  But dont start them too early, ease in gradually.

 

Lifting and carrying is a problem after too.  even carrying a handbag was a issue for me on one particular ocassion, and dragging a pull-a-long bag - just awful!  You dont think how much you use your arm until it becomes an issuel.  But its the node clearance that produces all this rather than than the breast surgery. 

 

Have they given an pillows? 

I was given a heart shaped pillow to prop under arms/chest whereever to help in chairs and sleeping.  

I didn't find I needed it, but my mum has a mx 4 years ago and she loved it when she came to stay ..... went home and bought one for herself.

 

xx

Member

Re: November 2017 Chemo Starters

Morning ladies,
I usually get a sweat around 4am but it passes quickly and no need to change. Carole changing 4 times doesn't sound much fun!!!
Good luck today Otter, boogie woogie right outta there when your FINISHED!!!
Annakarenina your like the Yoda of our forum! Loved your positive post. Good luck to you too. Boogie woogie x.
Lesley I am like you, lumpectomy and full node clearance. Thank you for the extra exercises. They look much more hard core than the ones I had. Quite worried about arm and shoulder movement as my job is a kayaking, climbing and sailing instructor :0( so will be exercising it like crazy!
Loved the photo but is that the bread or tiger nuts????
My dose has been 180mg I'm just under 70kg and they measured me at 5'5" ( I gained an inch but not complaining!)
Anadan only one more injection to go??? Good luck and hope your feeling better x
Ruth good luck to you too on number 6 xxx. Defo bell ringing photos ladies, I feel like I missed my prom so will revel in your ringing xxx
Member

Re: November 2017 Chemo Starters

Yes I have the sweats too and had them on FEC also. I have a couple if piles of clean clothes to change into by the bed. I think my record is four changes 😱
Member

Re: November 2017 Chemo Starters

No worries Anadan - I will be sticking around like a bad smell .... I won't dessert you!!

 

Yes I had a couple of nights when I woke up wet thru on the T - I've not suffered with night sweats before so it was a bit of a shock to start with and I panicked that my temp was sky high and an infection brewing, but no .... just the sweats!

 

xx

Member

Re: November 2017 Chemo Starters

Good luck today, ladies 😘😘😘😘

lesley, thank you for the links again; you must stay with us and guide us all the way through x surgeries are getting closer 😱

 

I’m sweating horribly at night on T, have you experienced it as well?

 

have a good day, everybody 😘😘

Member

Re: November 2017 Chemo Starters

Good luck today to Otter and Annakarenina, positive vibes to you both.💕💕💕

In regards to dosage I am 5" 2" and now 63kgs and my dose for both 4 and 5 was 164mg. I am only suffering from aches and a fury tongue nothing excessive, at the moment.

Dull here today too but will drag my heavy legs out for a walk .

Spoke to my BCN yesterday and have an appointment with my surgeon on 2nd March day after last chemo to discuss mx, so getting organized.

Xxx
Member

Re: November 2017 Chemo Starters

Good luck Otter - give that bell a good ring!!

 

My unit doesn't have one - so I'm thinking cartwheels down the corridor????

 

Get a snap of you ringing the bell if you have one 

 

💕💕🤗

Member

Re: November 2017 Chemo Starters

Morning all - another dreary one in Kent I'm afraid and another day when I am stuck in the house waiting for deliveries and pickups and carpet fitters who said they would be here before 8am ..... still to show!

 

Bythesea - I know you have surgery soon and I seem to recall you are having a mx??  sorry if I have got that wrong...... are you having any lymph node surgery?

 

I had a Sentinel node biopsy first, followed by a total node clearance and lumpectomy four weeks later.

 

They warned me about stiffness in the arm before each procedure, it wasn't too bad first time around, but the second time was much worse and there was a point after 10days that I thought I would never be able to move my arm properly again ........... It's perfectly fine now!  But you don't know that at the time.

 

The Trust gave me exercises to do - they were the BCC ones https://www.breastcancercare.org.uk/sites/default/files/publications/pdf/exercises_after_breast_surg...

but I didn't 'feel' that they were working for me.

I did a bit of research around other trust information etc and came across this set of exercises, which for me worked much better - http://www.ouh.nhs.uk/patient-guide/leaflets/files/101108axillarydissection.pdf

 

I just wanted to share just in case it can help any of our Nov Surgery girls! 

 

xx

Member

Re: November 2017 Chemo Starters

Slept a bit off for 🎢🎢🎢🎢🎢🎢 6 hopefully it will go ok 👌👌

See you all the other side

 

Hope you all have a good day

🤗🤗🤗🤗

Member

Re: November 2017 Chemo Starters

That's ok soap box aloud as its important as my friend at work has had permanent damage her chemo was over a year ago and she hasn't been able to work as she can't feel her hands so can't type so may have to go down the I'll health retirement route

 

Brain just on over drive as didn't get to see oncologist as to many patients so only saw nurse so she was only going on notes which said if increased neuropathy to stop but when I queried this as oncologist last time had said we could look at reduce she just disappeared then come back and said they had agreed to continue as current dose which I took to be full but now I don't know looks like I've probably been on reduced all along so hope it has been doing what it should to blast the little😈😈😈😈

 

Don't think I will be getting much sleep tonight steroids giving me hot flushes on top of normal hot flushes so will need a bucket soon and a change of pj🙃🙃🙃🔥🔥🔥🔥

Member

Re: November 2017 Chemo Starters

Firstly, Lesley I think I need to come & break bread with you. Hope it did the trick 😊
Annakarenina, Otter & anyone else in the chair, good luck for tomorrow 🖒
I can tell you my dose tomorrow but I can beat you ladies as I'm only 5ft 1/2" and 5ft 1" on a good day but I am rather curvy!! My dose dropped by 20% last time and again for Friday but can't remember the mg off the top of my head.

Off to bed now, 😴😴😴
Member

Re: November 2017 Chemo Starters

It’s a bit of a mine field .. mine was reduced by 25% ... don’t know if there was any more wriggle room if I’d had further reactions.
I’m 5’4 btw so overall we’re probably not dissimilar from a dosage point of view.
They don’t write in my book what the dosage has been. It was only because of all the mix up lady time that I asked them to double check and they gave me all the numbers.

I was quite forceful at my pre chemo che I last time and actually said I was concerned about permanent damage and if the dose wasn’t reduced and I suffered any lasting effects I would be looking for redress..... probably slightly over the top but I wanted to get my point across and heard!
If there are tolerances within the dose, then as patients we should have some input into his thise tolerances are used .... imho!

Rant over, soapbox back in the cupboard
😡

Xx