Anadan - my nails are the same as yours..... maybe not as pronounced but definite half and half. I am sure I am going to lose a few as they get towards the top. One in particular feels flaky on top where the 'joining ridge' is! Something else to look forward to!
I was completely out of it yesterday with tiredness, but still managed my walk around the village, it was just a lot slower. But AKs message came thru as I was enroute so I started reading it as I walked and nearly walked into the back of a parked car!!! What a wally!!!
First targeted rad under my belt .... so to speak - they have told me to expect sore nipple and armpit.
The area under my breast looks a bit like gravel rash .... or as the OH says a burn when the blister has popped. I have taken a picture, just so I can track what it is doing, but I haven't posted it - dont want to put anyone off their breakfast!! I'm seeing the MacMillan radiographer tomorrow for my review so I will find out when it is expected to reach it's peak and should start improving.
No aches today and energy levels are back so I had a very quick trot thru the hospital this morning from the furthest carpark to Oncology. I will be stormtroopering around the village at lunchtime!
Otter - good luck with your visit and start of work. The only bit of advice I can give you is that all thru this journey we have known that x, y, z is going to happen and we have built it all up and dreaded it and then we have had to get on with x and y and z and some of it has been ok, some of it hasn't been as bad as we thought, and some of it has been a bit worse ..... but we have got thru it all and, even if we don't feel it now, we are stronger people for it. You know your job, you can knock any of these new upstarts out of the ball park ..... hold your spiky haired head high, your shoulders back and give 'em hell. You have the November Army behind you - we have your back !!
It's always worth remembering that in employment law anyone with a cancer diagnosis falls under the DDA, so employers and employees need to be very careful about how they treat us both in a formal or informal setting. I have heard instances of subtle bullying .... where colleagues aren't happy because people are on phased returns or reduced duties etc.... but they can be prosecuted for discrimination - bit extreme I know, but it's worth making the point sometimes.
AK - good luck on Thursday - we will all be sat outside in the waiting room with you 😍
Hello November Ladies 💕😘
Lesley, congrats to your son and to you, too!
‘Weeping’ 😣 doesn’t sound right ... I hope you’re feling better 💜
Otter, I keep thinking of you 💜 I can imagine it’s stressful to come back after a long break, plus ‘new’ you and new people ... I hope 8th May will be a positive experience x
AnnaKarenina, thank you for your update 👍 I’m glad you’re doing ok post surgery. Yes, I do worry about it all...
The reduced dose of docetaxel was the right rhing to do. I feel much much better 😀 I didn’t have to take morphine, soaking in epsom salts did the trick. I feel very tired though, and my skin is very dry although I use tons of moisturisers of different type, and my nails ... I’ll show you the picture, but be warned , it’s gross ...
Also, my feet are constantly cold and my arms get numb, from elbows to fingers, like when you sit still for too long, this kind of numbness... and of course tingling and pins and needles all the time, I hope ut goes away with time ...
Went to the doctor's wig less today so getting a little more confident about it
He has agreed to me going back to work 50% of my hours for 8 - 12 weeks but to take it easy and expect set backs as he said it can take 12 - 18 months to even start to get back to my old self 😱😱😱😱😱😱
Which is probably going to be how long it's going to take me to lose this weight as even though l was good last week input on 2 lb not lost it 😞😞😞😞
Lesley hope the sore boob is improving
And that everyone else is doing ok 🤗🤗🤗
Hello everyone, how are you all doing?
Brilliant to see you and your son at the Marathon yesterday. It was so warm in London town that I was worried for everyone running the race - an amazing achievement by you both, him for completing and you for walking all those miles to support him, especially with a badly behaving breast (then again, we all have badly behaving breasts . . .). How are you doing this morning? I hope you are resting well.
HF, I really admire your response to the results/review meeting. Mine is on Thursday and I am dreading it (Lesley your words of wisdom about approaching the prospect of bad news helped enormously - thank you - although I still may be borrowing the gold jumpsuit). When does radiotherapy begin for you, HF? We all have to keep on keeping on in the determined and supportive way that brought us together when we started chemo. Right?
Otter, I am super impressed that you're planning to be wigless and JC that you've taken the plunge. I don't hate my wig which is just as well as I have barely a hair on my head 5 weeks after my last chemo. I know I had more doses than most on the thread, but I am beginning to fear that I may be one of the rare ones whose hair never returns. I have been lathering up with the Lush soap shampoo but there is zip all to see yet. I look like an egg. On the return to work point, I have worked through treatment but mostly from home with a few bits and pieces/visits throughout. I went back to the medical school 10 days after my last chemo cycle and it was so good for me to be back properly. Everyone was wonderful and I have to say I am itching to return post-surgery. I hope you find that the new team is as supportive and welcoming as you deserve.
Anadan, how are you doing now my lovely 8-cycle companion? I am guessing you might be getting a bit apprehensive about surgery and I just wanted to say that, as you know, I am a complete coward and was so frightening before I went in last week, but it really isn't anywhere near as bad as I feared. Compared to chemo, it has been really okay. I was discharged the day after the bilateral mx and node clearance and going for walks 3 days post-surgery. I went to the cinema at the weekend and have been managing with paracetamol only since day 4. I am here if you have any questions at all. Do ask and know we're thinking of you.
Wishing you all a good start to the week team November. xxx
This was us at the finish line - to be honest I don't know who had the most difficulty getting up!!
Just spoken to him and he literally can't walk - bless him - wish I had been there this morning to cook him a fry up, instead of being fried myself!!
Well done to your son Lesley and to you for walking nearly 10 miles! I'm worn out just walking down the road!
Sorry to read about your poorly boob, it sounds really painful xx
Hope you all had a good weekend enjoying the sunshine 😎😎😎👒👒👒🌞🌞🌞 safely
Looks like it's going to be colder know that I made my mind up to go wig less so not sure that I'm brave enough now 😞😞😞
I should be having a meeting this week to met the new team before I start back on the 8 May but not sure what to do as my head gets cold but the wig makes me hot and itchy
I suppose I should just bit the bullet and say this is me like it or lump it and if my head cold wear a scarf or silly hat just don't know what to do as my confidence isn't what it was 😱😱😱
Sounds like everyone's making great progress. Well done, AK, you got over the mountain! And JCMB, did you have the tissue reconstruction? I am in awe of your bravery. Sorry to hear about the seeping, Bythesea. Not a favourite word. I'm enjoying a little seepage myself, but not on your scale! Down to smallish waterproof dressings over each wound, hopefully coming off in a few days.
Last week was a bit sobering. Visit to medical oncologist to talk about next steps. I'd managed to persuade myself that it was basically all over but he reminded me that I had a few small tumours in my nodes (which they didn't pick up in pre-surgery scans) and gave me probably more information than I really wanted. But I bounced back quickly -- a cup of tea and a chocolate biscuit and I'm back into 'what will be will be' mood.
Then I had a drama on Thursday because my 17 year old daughter went to an 18th birthday party and did a complete number on herself. I had to pick her up and ended up spending an hour sitting on the stairs with her feeding her ice chips -- thank you, chemo, for that handy tip! She was very very apologetic and mortified and adamant that she's never doing that again. I couldn't really be angry -- she's been such a trooper, so responsible through all my treatment, and the hangover was punishment enough!
Now I get a nice week off treatment and, hopefully, my ache-y boobs will gradually calm down. Thanks for the updates about rads, everyone. I'm psyching myself up for it. They're going to zap my armpit. Also talking about a trial of new hormone therapy on top of aromatase. We'll see.
Also - went to the opera WITHOUT wig. Very proud of myself (although there are so many wigs at the opera that I was probably in the minority.)
Hang in there everyone,
Hi Lesley, I had my first stand alone Zoldronic Acid yesterday and so far so good! (Have you got a information sheet about potential se's?) The nurse said to me I should be fine as bone pain se is usually only felt by people that have already got prolems with their bones. It felt strange though as I had to go back to the chemo unit for it.
Chemo nurse confused me as she gave me calcium tablets to take home even though she said my calcium is fine! She said they would let me know if I needed to take them, but I'm not going again until Oct! When I said this to her, she said she thought I'd be having blood tests more frequently than that! My onc hasn't mentioned that to me, has yours? I'm wondering if the nurse got confused because Zoldronic Acid is also used for secondary cancer and maybe she hadn't realised that wasn't the reason I've been offered it x
Yes definitely too hot for a wig so was brave today and walked round Tesco without and I wasn't aware of any one looking at me
Have a chat with my work and I'm going to meet the new team next week and if it's like this I might just decide to bite the bullet and ditch the wig
Hope everyone is enjoying the sunshine safely
8th May will be a big day for both of us as its my planned day to return to work after 6 months off and the whole team dynamics have changed as well as me 😱😱😱😱
Also the decision whether I'm drave enough to go wigless or not
Hope everyone is enjoying the sunshine 🌞🌞🌞😎😎😎🤗🤗🤗
Love the hair JC mine is nearly that length the my girls say I should just ditch the wig and go as I am but not sure I'm brave enough out in public yet
Lesley my knee and ankles are really puffy the last few days so hoping it's the heat on top of the weight which isn't shifting even though I trying to be good and exercising 😂😂😂
I'm using amber solar 50+ arms are a little bit browner
HF - what advice do they give you re the sun - do they recommend any particular brand/creams at all?
We don't get enough exposure to this sort of problem ☔️
JC I have been using factor 30 and no burns ....where I have applied it! Just bog standard Nivea.
But I have only been out in the sun for short periods of time
I am thinking when I go away I need factor 50 or higher tbh ???
I've put it all over my head as well - my hair seems to like the attention
I've got a baseball type cap which I have been wearing when I go for my daily walk, but in the garden I've been wearing a wide brimmed hat - I think both will be a staple element of the summer.
I am really surprised how sensitive my skin has become to the sun - how does that happen?
But I am still determined to enjoy it ☀️
Good afternoon ladies on this bright and cheerful sunny day
Bythesea, so far no more nails lost, though I did laugh at Carole and imagined her nail in her stir fry!!! Hopefully your wound has stayed closed 🤞. Are you able to have a bath? 🛀
Lesley, about time they made a decision regarding your dressings . Thanks for sun cream advice - there always seems to be a bit somewhere missed. I don't know if it's fluid retention or extra weight 😄
AK glad you're home and it wasn't as bad as you thought. Enjoy relaxing in your garden and remember to do your exercises as they do help
Fmb, good news regarding your mastectomy and reconstruction . Enjoy your rest in hospital. My toe is slightly tender, it looks as if there is a nail underneath.
Ladies, what sun screen are you using - I don't tan too easily, red first and then a light gold if I'm lucky, so have been avoiding the sun a bit. I have a straw hat to wear in the sun, my gp also advised sunblock on my scalp.
Enjoy the good weather xxxx
I am going to have to order a parasol for the garden!! Another thing I never thought I would have to!
Can I ask - has anyone else noticed more fluid retention since the temperatures increased? Or is it just me 😫
Glad all went well 😘😘😘 take it easy and enjoy the room service 😊😊
Hope everyone else is doing ok and enjoying the sun 🌞🌞🌞😎😎😎