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November 2019 Chemo Starters

Debknits
Member

Re: November 2019 Chemo Starters

Met with one of the chemo nurses who was lovely. 
There were four couples together and she talked through in depth about ALL side effects from sore gums to life threatening ones. 
Over and over she repeated DRINK FLUIDS. 

Feel slightly more prepared for tomorrow now. 

Jencat
Member

Re: November 2019 Chemo Starters

Hi Christine, glad I was able to give you a bit of reassurance. My consultant didn't make a big deal of it, just said chemo would sort it out. I did have a CT scan afterwards, but it wasn't until 6mths after I'd finished radiotherapy because my onc said if I had a scan too soon it might show up things that weren't really there because of scarring after radiotherapy. I must admit I did find the wait quite stressful, although my onc was always very reassuring that there would be nothing to worry about xx

Chris631
Member

Re: November 2019 Chemo Starters

Thanks so much Jen for responding to my post. My anxiety levels have been of the scale since I found out. It's good to hear that the chemo shrunk it and radio anliated it. Hope mine goes the same for me. Can I ask did you have a scan after to show that it had gone

 

thanks

christine xx

VivMc
Member

Re: November 2019 Chemo Starters

Hi northernsky 

I just wanted to see how you are getting on? I know you had treatment day before me..how are you dealing with any sideffects, emotions..I know I had a day where I had everyone telling me that I was strong and could do this and I just wanted to shout that I wasn't!! I guess the difference is that I have kids at home so need to say focussed for them. Take everyone's love and use it as your strength

Viv xx

nmm
Member

Re: November 2019 Chemo Starters

Hey there - yep I'm doing fasting to bookend treatments.  I'm on a weekly schedule (pre-surgery to shrink a large tumor and treat 4 affected lymph nodes) so I'm fasting 36 hours before and 24 hours after -  supported fast though - green veg juices, miso soup and vegetable broth.  I did it last week for my first treatment and it was fine.  I'm also getting acupuncture and shiatsu treatments weekly to help with side effects.  Had an outpatient procedure today to get a portable catheter put in just below the collarbone.  I hope it's going ok for everyone!

Nhlanhla
Member

Re: November 2019 Chemo Starters

Hi, how are you so far? 

Jencat
Member

Re: November 2019 Chemo Starters

I meant to say I'm from the Oct'17 group x

Jencat
Member

Re: November 2019 Chemo Starters

Hi from the Oct'17 group and wanted to send best wishes to you all as you start chemo. One thing that I found that helped me when I had chemo was wearing travel sickness bands whilst having the chemo and for a few days afterwards. I don't know if it was due to the bands, but I wasn't sick at all x

Jencat
Member

Re: November 2019 Chemo Starters

Hi Chris631,

I'm from the Oct'17 group and just wanted to give you a bit of reassurance about the lymph node in your chest. I had something similar and chemo shrunk it and the radiotherapy got rid of it completely x

Jencat
Member

Re: November 2019 Chemo Starters

Hi Viv, 

Just wanted to give you a bit of reassurance regarding the bone scan. My onc said that it was just normal procedure when you have chemo (I had a CT scan as well) and they weren't expecting to find anything abnormal. I wasn't told it was because of my age, but it might have been as I was 58 at the time x

rachel43
Member

Re: November 2019 Chemo Starters

Morning VivMc,

 

Thank you for your best wishes. I don’t think I’ve felt like the usual me for a little while. I’d say I’m on  90% battery power 💪 which is ok. Every little lump or bump definitely makes you feel uneasy. I worry about how I’m going to recognise any potential new concerns as our breasts are different from before surgery. I suppose it’s better to ask the professionals to check if there are concerns, better to say something than not to.

im definitely ready for tomorrow, I had my surgery in September so it’s taken this long to get a definite plan of action together due to waiting for Oncotype results and further scans. Mine is a preventative intervention. 1 in 2 lymph node positive (Micrometastasis only) and positive for Lymphovascular invasion (LVI) so going to clear out whatever might floating around. 

 

Best set wishes to you xxx

VivMc
Member

Re: November 2019 Chemo Starters

Morning Rachel,

Hope you have a chilled day getting ready for tomorrow. It's a wierd feeling knowing you're feeling fine and suddenly you are actively going to feel worse to make yourself better! Once you start though it gives you that sense that you are finally fighting it...

Good luck tomorrow and hope e erything goes well.

😊 xx

rachel43
Member

Re: November 2019 Chemo Starters

The nurse that lead our new patient meeting was lovely. They often give you lots of info on paper don’t they, I’ve got quite a collection going on since July...😂 will recycle all of it once this is over. Hope your meeting is informative and best wishes for tomorrow too.

 

I feel quite calm about starting CT tomorrow. I think just focusing on each day has been my strategy since diagnosis. Today is another prep day, washing and shopping 🙃 xx

Debknits
Member

Re: November 2019 Chemo Starters

Hi I start my pre surgery chemo tomorrow 

FEC-T for 6 months plus denosumab 

I have a single spinal metastasis plus “extensive” lymph nodes affected and the breast tumour is “quite large”

Off to visit the chemo ward this afternoon and meet the team, I expect they’ll have tons more information for me to read before tomorrow. 

 

 

VivMc
Member

Re: November 2019 Chemo Starters

Hi everyone, 

Hope you are all doing Ok? I had to have another US today to check 2nd shadow in my breast but turns out it was a cyst. I had an US in the same spot as my tumour in Feb where they didn't find anything so radiologist said they might have missed it 6 months ago... 

Anyone else have to have a bone scan ?  I was told it was due to my age ( 50) to check for bone changes due to my chemo treatment for HER + although i am now panicking a bit.

I had a few blips on my lungs too but oncologist was not too concerned about those as starting chemo 1st and said random people who could be scanned could show up the same...

Viv x

Chris631
Member

Re: November 2019 Chemo Starters

Hi Helen 

im am the same as you had a mastectomy about 3 weeks ago, lobual cancer grade 3 her2 - ER positive. In 1 & 1/2 lymph nodes. Due to start my chemo probably around the 20th or 27th so slightly behind you. Didn't have oncotype as oncologist said it would probably come back as high score. And I learnt today that there have found a pin prick of 1mm slightly suspicious in one of my lymph nodes in my chest so definitely doing the chemo. Same chemo cycle as yours. Are you going to use the cold cap?

Would love to keep in touch to see how things go. 

Christine xx

Chris631
Member

Re: November 2019 Chemo Starters

Hi just been to see my oncologist today and due to start chemo near the end of the month. I had my Ct scan results today which was fine apart from the oncologist saying there was a slightly suspicious node in my chest where it showed a pin prick of 1mm. This sent my anxiety levels of the planet. She has said if it is related to the cancer that hopefully the chemo, radiotherapy and hormone treatment will get rid of it or contain it. I would like to join the thread for November as I,m not sure what's going to happen and hopefully we can share some tips to help 

 

thanks 

Christine x

rachel43
Member

Re: November 2019 Chemo Starters

Thank you for your replies, whatever I try and find effective I will share with you. I know some things work for some and not others. I managed to get everything on my list today. I took notes from others who have shared ideas which has helped me organise things. I have not been in this situation before like the majority of us. 

Best wishes to all xx

HelenofBrum
Member

Re: November 2019 Chemo Starters

Hi Rachel.

Welcome to the forum. Sounds like you are getting everything ready. I have never heard of eyebrow wigs!! You must tell us if you find some.

I have heard about fasting but I am not sure how evidence-based it is. I am planning on eating healthy, fresh home cooked food and drinking lots of water. 

If you do try fasting please tell us how you get on. 

Good luck for Wednesday, we will all be rooting for you xxxxx 

 

VivMc
Member

Re: November 2019 Chemo Starters

Hi Louie,

I too have IBS, and sorry to hear about the Osteo, at least they can monitor that with your bone scans and help you as needed. Yes Her+ is long haul chemo and really daunting  but it's made treatment alot more succesful. I am feeling really woozy still but trying to do stuff around the house. It is windy and cold and the idea of going for a walk is not tempting me....

Let us know how you get on with Oncologist. 

Viv x

Louie604
Member

Re: November 2019 Chemo Starters

Hi

i am in the same boat. Her 2 pos. Chemo before surgery to shrink. I’m petrified of the chemo as I have severe osteoarthritis and IBS so not looking forward to the side effects. Seeing the oncologist today so will

know more. 
Good luck on your journey. Sending massive hugs 🤗 xx

rachel43
Member

Re: November 2019 Chemo Starters

Hi I’m Rachel. 

I start chemotherapy on Wednesday, I’m having 3xac then 3xT 

im going to donate my hair to the princess trust-not sure when to cut it though I know it has to be within a week really.

not sure what to do about my eyebrows- I think you can buy eyebrow wigs too 🙂

im painting my nails a dark colour- I read this helps keep them in good condition

today im going symptom relief shopping-got some boots advantage points so going to take advantage.

yesterday I read some articles on fasting prior to and after each chemotherapy session, is anyone else considering this? 

Best wishes to you all xxx

mini mad
Member

Re: November 2019 Chemo Starters

Hi Viv,

 

when i had trouble ' going ' i bought low sugar liquorice,  took a small piece twice a day and by day 3 things were on the move !!
worth a try maybe for you and of course drink LOADS.... 

Minimad xx 💖💖

Shi
Community Champion
Community Champion

Re: November 2019 Chemo Starters

It’s usually people from your make up counters in boots and Debenhams etc that take you on the look good feel better session that you can book through your local Macmillan. If you are unable to get on for months, if you are able to pop down explain you could do with a bit of tip and they usually are able to advise on products and what to do. Also a lady who has alopecia does good tutorials on YouTube how to do brows etc. Hope this helps 💕💕shi xx

VivMc
Member

Re: November 2019 Chemo Starters

Hi everyone, I've had to come to hospital as no poop for 3 days. Since it's Sunday couldn't speak to Oncology nurse so oncology helpline referred me to hospital...thought I would just be told to get laxatives, ho hum.... 

At least managed to grab sandwich on the way.... 

My daughter has promised to paint me nice eyebrows so hoping she'll do a good job, ha ha.

Great idea that you can take your son to the Chemo unit and visit with you Flou.

Yes, speaking to other people going through the same thing is a great thing, even if you just want to read and not contribute. I probably talk too much as I am  biology teacher and used to being quite matter of fact about everything....

If I start annoying anyone please feel free to tell me to shut up....

Keep up the spirits girlies

Viv xx

HelenofBrum
Member

Re: November 2019 Chemo Starters

Hi Flou

It sounds like we will be Chemo twins...it is great that you are getting a tour first with your child (a bit like a tour of the delivery suite before giving birth, I suppose).

 

You sound like you are really organised, and have lots of great ideas to make this journey better. I have never heard of a MacMillan consultation at Boots! If they can teach me to draw my eyebrows back on without looking like a pantomime dame then I may have to enquire.

 

HelenofBrum
Member

Re: November 2019 Chemo Starters

Welcome Jen.

 

You sound like you are living in a similar timeframe to me re treatment. Great to hear that things are going well so far.

I think for many of us, it is the initial fear of the unknown, so it is always really reassuring to hear people are doing well on the other side.

 

How is everyone responding in terms of appetite, nausea, eating and taste?

flou
Member

Re: November 2019 Chemo Starters

Hi Viv,

Hope you’re doing well today.

Its not me having the PICC line but Helen, my set up sounds pretty similar to yours.

We (me & my son) go for a meeting at the chemo suite next Saturday so I’ll hopefully know more then including when I start, I’m expecting around 15th.

I’ve not cut my hair shorter but will be shaving the minute it starts to go.

I’ve gone fully organic at home now and have a list of supplements too which I’ll check out with the nurses first.

I’ve got my first acupuncture session tomorrow which I’ve read can help before & during chemo. I’m also going for a Macmillan beauty consultation in Boots as I’m useless at all the stuff!

Rest up today xxx

JenC72
Member

Re: November 2019 Chemo Starters

Hi All, 

This is my first time posting on this forum. I was diagnosed with BC in July of this year, i had mastectomy in September with reconstruction at the same time. No complications thank goodness. 
I had my Picc line inserted last Tuesday, which wasn’t to unpleasant, although my arm was sore for a couple of days. 
i had my first FEC chemotherapy (first of 3 followed by 3 taxel, in 3 week intervals) on Friday, no major side effects to speak of so far, fingers crossed it will stay that way. 
I was given a fantastic box of kindness from chemo hero on Friday Which was a fantastic surprise and filled with lots of things to help through chemo, I am sure this is a local charity (I live in North Devon) 
I decided not to have cold cap, as didn’t feel it was for me, so had my hair cut short a couple of week ago in preparation for chemo, I was given a prescription for a wig, and have now ordered one in preparation of losing my hair! 
Best of wishes to all starting treatment this month. 
Jen

VivMc
Member

Re: November 2019 Chemo Starters

I am having 8 cycles with normal chemo drugs then 18 cycles with herceptin, targeted treatment. Not sure if I could cope with keeping it dry for a whole year....i guess if veins stop working that would be a option. With HER + they recommend chemo before surgery. Also my tumour is 6cm so pretty huge... so shrinkage def best option and treatment suppposed to reduce risk of reoccurring...

Anyone else started chemo?

Viv xx

HelenofBrum
Member

Re: November 2019 Chemo Starters

Reassuring about the PICC..thanks .

I think they put them in so the drugs can go straight into a larger vein and they don't have to get a line in each time. If you do have problems with this during your chemo perhaps you can request it?

 

My friend said to wrap it in cling film before showering!

 

I am having 6 cycles as an adjuvant therapy as I have a high recurrence score. I think quite a few people on here are having chemo to shrink their tumours prior to surgery, as obviously lumpectomies mean less surgery and better healing.

 

mini mad
Member

Re: November 2019 Chemo Starters

Hello,

re PICC line.... i had one put in for my 12 weekly chemo sessions....paclitaxel and carboplatin.

i was dreading it but actually the numbing injections were more uncomfortable than the procedure,  took about 45 mins.   Had no problems with the picc right thru my chemo.

you can buy picc covers for your arm on ebay and they keep everything nicely covered and in place.

just ask if you need to know anything else,  good luck with picc and chemo.

what type of bc and what is your treatment plan ?
mini mad xx 💖💖

VivMc
Member

Re: November 2019 Chemo Starters

Hi everyone, it's a rainy day up here in Scotland. I've been dozing all day, think anti sickness drugs are making me extra woozy...

I was never offered a PICC line, is that because you have more frequent treatments Flou? 

Yes GP never mentioned pneumonia jab either but I'll take anything if it reduces chances of infection. Ordered my beanie hats today...

Viv xx

flou
Member

Re: November 2019 Chemo Starters

Hi all, 

It’s a rainy weekend perfect for relaxing - hope you all have a restful time xxx

Flou xxx

HelenofBrum
Member

Re: November 2019 Chemo Starters

Hi All

 

Hope all those who have started are still going well, and getting through it.

 

Good idea about pneumonia shot- I just got the flu jab, and didn't think to ask.

 

I have finally got the letter telling me about when I will start.

 

PICC line is going in on 13th, and FEC will start on 15th.

 

What is the PICC line insertion like?

 

I tend to get really nervous before things- and then they never seem that bad in reality!!

 

Mai7
Community Champion

Re: November 2019 Chemo Starters

Hope you are all doing well and getting into chemo-mode.  I just wanted to mention that if you set up your own private group elsewhere please stay here for public discussion.  The reason I ask this is because I know from experience that for every person chatting in the group there are others watching but may not pluck up the courage to post a message.  Some people will watch for a while and join in later so for these people your conversations are really important.  Xxx

VivMc
Member

Re: November 2019 Chemo Starters

My nurse recommended having a pneumonia vaccination before or during cycle one for extra proection, I'm going to get one from GP before next treatment.

I went to have my head shaved on wednesday, down to a No 3 so I could control my hair on my own terms. It helped me psychologically and thought it might prepare my kids for next stage

😊

VivMc
Member

Re: November 2019 Chemo Starters

Goid luck for Monday Jippy 😊. You've got this...

 

VivMc
Member

Re: November 2019 Chemo Starters

Hi Flou,

Better today. Had to go for pelvis Ultrasound and ECG and both fine 😊. Had a Neulasta injection after so hoping helps my immune system although one of the side effects is bone pain. The nurse told me alot of people have an ok week, then a downer week then a better week before next cycle. I feel very woozy but reckon that's also the antisickness meds too. 

When do you start yours? Who is next?

Viv 😊

HelenofBrum
Member

Re: November 2019 Chemo Starters

Hi Jippy. What is the reason for your Chemo? Like you I have already had my surgery, so the Chemo came as a bit of a shock after my Oncotype score.

Hope it goes well- I have been told the FEC is easier to tolerate than the Taxol- so hopefully we are starting with drugs that are easier to tolerate (fingers crossed!)

HelenofBrum
Member

Re: November 2019 Chemo Starters

Hi Flou

That would be great to meet sometime- perhaps we all need to think about setting up a WhatsApp group that is more secure and private, and easier to log in to!!

flou
Member

Re: November 2019 Chemo Starters

Hi,

How did you get on yesterday?

xxx

flou
Member

Re: November 2019 Chemo Starters

Hi Viv,

That’s one down 💪🏻
How are you feeling today? xxx

VivMc
Member

Re: November 2019 Chemo Starters

I started Chemo today, just lying on my sofa feeling woozy and a bit dopey. I feel like I am waiting for something to happen 😬

Jippy
Member

Re: November 2019 Chemo Starters

I start chemo on Monday I've already had 2 surgeries. I'm having EC fortnightly for 4 rounds followed by Taxol fortnightly for 4 rounds. Not looking forward to it as I react badly to a lot of drugs. So will be glad to have Monday behind me.

Shi
Community Champion
Community Champion

Re: November 2019 Chemo Starters

Pre loved not preloaded 🙄sorry text gremlins 💕💕shi xx

Shi
Community Champion
Community Champion

Re: November 2019 Chemo Starters

For wigs your local Macmillan’s have range of preloaded wigs for a donation. Also loveyababes have great selection too (not just fancy dress ones) I ended up happier in a £14.99 one than the real hair one that cost a lot of money. Also you might have some shops about that sell extensions, they usually have a good range of wigs too 👍and don’t forget a tinsel wig for Christmas 👍 got to keep your humour 😁💕💕shi xx

Shi
Community Champion
Community Champion

Re: November 2019 Chemo Starters

Just a gentle reminder everyone these threads are open to the world to read and view, do be careful how much info you are giving out about where you live and work etc. Just want to keep you all safe ❤️💕💕shi xx

HelenofBrum
Member

Re: November 2019 Chemo Starters

Thansk SHi- there is some very useful advice there!

 

I was about to get happy with the clippers but I may wait until after my first chemo.

 

Best wishes

 

Helen

flou
Member

Re: November 2019 Chemo Starters

Hi Helen, 

I’ve bought a couple from eBay as they were more affordable but have also got cotton caps to wear underneath them. I’ve also gone for hats/beanies and scarves.

Apparently the microblading can be done up to a week before treatment starts but earlier the better - I’m just glad I found out in time!

I work in Thurmaston but live in Oadby, I’ll send you my number if you ever want to meet up for a (decaf) coffee & chat xxx