Hi SueW, good luck with your own treatment. You are winning me on the wig stakes, the wig salon attached to the hospital is a charity and they only had one longer hair wig in when I went for a fitting having sold the others so some more have been ordered for me to try. Love your positive attitude, mine is on the whole positive, nerves are jangling a little bit now it's closer to.
Hi Cw1895, first off sending you a virtual hug as not surprised you are anxious, it's a horrid time. I hope your side effects aren't too debilitating with you having such a young family. I was given a list of side effects today at my pre assessment, I felt less stressed after the appointment as the nurse explained what they could do to help me with them. All the best to you with your own treatment.
Thank you very much Sue, been to my pre assessment today and have been given anti sickness tablets and mouth wash. My hospital won't give me the cold cap I did ask. I am having my hair cut short in preparation. Will check out the September thread for the list, thank you!
Thank you for the info Angela. I did ask about it but apparently my hospital doesn't use cold capping.
Hi Patchworkgirl and Cw
Welcome to the thread. Sorry that you've found yourself here, but hopefully we can all help each other through it.
My chemo was slightly different to yours, but there does seem to be common side effects throughout. The first week is the hardest, when fatigue is certainty a challenge. Sickness and nausea can also occur, but this can be treated, so let your team know if this a problem.
I didn't get neuropathy and it is not mentioned much on this site, so I would assume that it is quite rare, so hopefully you will be fine.
Hair loss happens at about 3 weeks after treatment starts. Its a good idea to think about how you are going to deal with it. Wig or scarf? Have you considered cold capping? It's not something I did, but there are other threads on here that specifically deal with that. If you have long hair, it may be worth getting it cut short, because when it starts to shed, it does make a mess. It is upsetting, but there is no getting round that I'm afraid. Its just dealing with it as best you can.
Try to prepare for the first week as much as possible. Eg, stock up the fridge, get the washing done and make sure you've got all the meds at hand that you may need. If you can get child care at all, I would advise it for that week. If anyone offers help, then accept it! This is the time to let others help!
On the Sept thread, some ladies have put on there a list of things that you may need, so its worth a read ( its right at the start so you will need to keep scrolling down!) .
Hope this helps and let me know if you have any questions.
Hi Sue, I am starting on Thursday, I go for my pre assessment tomorrow. Had PICC line fitted last Wednesday. Already injecting blood thinners because of a clotting condition so hoping I can keep dvt free throughout my chemo treatment. Having 3 FEC and 3 docetaxal and possibly herceptin (awaiting FISH results). My main worry is the docetaxal as I sew and crochet and would hate to get neuropathy really bad where making things becomes difficult. Losing my hair is going to be upsetting. Thank you for starting this thread. Any tips would be appreciated.
This thread is for anyone who is about to start chemo next week.
Hopefully you can all help and support each other as you go through your treatment.
I had chemo last year, so I will try and help as much as possible. If you have any questions please ask and if I don't know, I can at least point you in the right direction of who to ask!