Hi Reboot, glad your first chemo went okay. Your mum on board will be a brilliant help for you. Hope today the effects aren't too bad for you. I can understand them telling you to get the flu jab as early as you can, my injection site (the derrière) is so sore at the moment and my first chemo is tomorrow morning.
Hi SueW. We may have the same bc, it is highly oestrogen and progesterone positive but my HER status is under review, it initially was tested as negative but on retest came back borderline so was sent for a FISH test, they tried 3 times but the sample wasn't good enough so another sample has been sent off, if positive I will need herceptin alongside the last 3 chemo sessions.
I havent looked for an outfit yet, I have lost over 2 stone since diagnosis (I needed to) and would like to lose some more if facing more operations but the steroids during chemo may not help.
Lol SueW, we are similar ages, I am 51. Because I am not classed as menopausal having not gone a full 12 months without a period I am down for ovary removal surgery after chemo and radiation therapy. I am mother of the groom in August 2018 so not sure I will be completely out of treatment by then before then starting 10 years of hormone therapy.
Welcome Marg. You may find you get a flu letter sent through the post, I did. I went to the surgery nurse who refused to do it until I had spoken to my oncologist. She did write down which flu jab they use at my doctors. My oncologist said I could have it before chemo started. Best to check with your own hospital though. Good luck at your appointments. You will get a chemo pack at one of your appointments with information on all the drugs you are being given and told the side effects that CAN happen. No you are definitely not alone, we can all support one another. Xx
Good to know that I’m not the only newby struggling; Wish it was woo woos on 13/10 but like you say that’s not gonna do the F off bit to the bc- : taking one step at a time xxx
Thanks for your advice on flu jab and agreed, the lingo is a lot to get to grips with : .will follow your advice & seek out flu jab tomorrow; best of luck for your chemo start date tomorrow will be thinking of you & sending lots of positive thoughts xxxx
I too am new to the group ..have recently been diagnosed due to start chemo on 13/10. Have been feeling so overwhelmed by the enormity of it all but reading your posts has given me strength & made me realise that i'm not alone. So thank you for that .You all sound so knowledgeable about your treatment , i'm not as yet ..have a pre drug thing on 9th ....Can someone tell me what the FEC drugs are you all talk about and if i'm a started on 13/10 should i get a flu jab ? XXx
Just wanted to say welcome to the group.
Please ask if you have any questions and I'll do my best!
I had my chemo last year, so I can tell you my experiences and hopefully help along the way.
Welcome to the group.
How are you feeling after yesterday?
Do you have help with the children at all? It must be so difficult to deal with everything. You may find fatigue hits over the next few days, but then hopefully you will feel ok.
Hi Reboot, welcome! yes I was the same with the September thread I wasn't sure where to join, so decided to join the October thread. How did your first chemo go? Hope you are feeling okay...I have a few sickness tablets given to me already to take before and after so am presuming that is one of the major side effects with FEC. Hope you get childcare sorted out. My youngest is 16 so I don't have to keep up with small children and go through treatment, that must be doubly difficult. Hope you get childcare sorted, and everyone else does with small children and have lots of help.
I had had a flu letter arrive Sue, so asked my oncologist. She said to have it if it could be arranged before chemo starts or it would be a waste of time...wondered with how close chemo is if it is still a waste of time but had it anyway. That is just my experience not sure what others have been told. Re the PICC line I was told the hospital try to avoid putting FEC into the veins of the hand as it is cruel to the veins but the blood clot factor does concern me with the PICC line.
Your hair looks really fabulous Sue, I love pink....my dad is buying my wig too when they come into the salon! It's a club none of us ever wanted to join isn't it but we do have to adapt and not let the worry and fear take over. I went for my flu jab yesterday and the nurse avoided both arms so my derrière is a bit sore today. Are you having a PICC line put in, I was dreading that but it went ok, I just have to inject blood thinners now again as well due to a clotting condition I have. I am having 3 cycles of FEC and 3 of docetaxal.
Hi Sue and welcome.
You've raised a fantastic amount for MacMillan! Well done you!
Glad you're feeling so positive. Let me know if you have any questions.
Hi SueW, good luck with your own treatment. You are winning me on the wig stakes, the wig salon attached to the hospital is a charity and they only had one longer hair wig in when I went for a fitting having sold the others so some more have been ordered for me to try. Love your positive attitude, mine is on the whole positive, nerves are jangling a little bit now it's closer to.
Hi Cw1895, first off sending you a virtual hug as not surprised you are anxious, it's a horrid time. I hope your side effects aren't too debilitating with you having such a young family. I was given a list of side effects today at my pre assessment, I felt less stressed after the appointment as the nurse explained what they could do to help me with them. All the best to you with your own treatment.
Thank you very much Sue, been to my pre assessment today and have been given anti sickness tablets and mouth wash. My hospital won't give me the cold cap I did ask. I am having my hair cut short in preparation. Will check out the September thread for the list, thank you!
Thank you for the info Angela. I did ask about it but apparently my hospital doesn't use cold capping.
Hi Patchworkgirl and Cw
Welcome to the thread. Sorry that you've found yourself here, but hopefully we can all help each other through it.
My chemo was slightly different to yours, but there does seem to be common side effects throughout. The first week is the hardest, when fatigue is certainty a challenge. Sickness and nausea can also occur, but this can be treated, so let your team know if this a problem.
I didn't get neuropathy and it is not mentioned much on this site, so I would assume that it is quite rare, so hopefully you will be fine.
Hair loss happens at about 3 weeks after treatment starts. Its a good idea to think about how you are going to deal with it. Wig or scarf? Have you considered cold capping? It's not something I did, but there are other threads on here that specifically deal with that. If you have long hair, it may be worth getting it cut short, because when it starts to shed, it does make a mess. It is upsetting, but there is no getting round that I'm afraid. Its just dealing with it as best you can.
Try to prepare for the first week as much as possible. Eg, stock up the fridge, get the washing done and make sure you've got all the meds at hand that you may need. If you can get child care at all, I would advise it for that week. If anyone offers help, then accept it! This is the time to let others help!
On the Sept thread, some ladies have put on there a list of things that you may need, so its worth a read ( its right at the start so you will need to keep scrolling down!) .
Hope this helps and let me know if you have any questions.
Hi Sue, I am starting on Thursday, I go for my pre assessment tomorrow. Had PICC line fitted last Wednesday. Already injecting blood thinners because of a clotting condition so hoping I can keep dvt free throughout my chemo treatment. Having 3 FEC and 3 docetaxal and possibly herceptin (awaiting FISH results). My main worry is the docetaxal as I sew and crochet and would hate to get neuropathy really bad where making things becomes difficult. Losing my hair is going to be upsetting. Thank you for starting this thread. Any tips would be appreciated.
This thread is for anyone who is about to start chemo next week.
Hopefully you can all help and support each other as you go through your treatment.
I had chemo last year, so I will try and help as much as possible. If you have any questions please ask and if I don't know, I can at least point you in the right direction of who to ask!