Hi everyone, I've never posted anything on a forum before, so I hope I've done this right! I hope those of you who started last week are starting to feel a bit better. I'm due to start 6x fec on Tuesday 3 Oct. very anxious, read September starters and sickness seems to the main problem, especially if you don't get the right Meds to take home. I just feel so unprepared. Is anyone planning to carry on working through their chemo?
I had TC chemo which is different again I'm afraid, so can't really help you with that.
But I just wanted to say that there is no reason to be scared. It really won't be as bad as you think. Fatigue is probably one of the common things to have to deal with. And some suffer with sickness, but this can be medicated. Just prepare yourself for the first week eg stock up the fridge! And then just rest. After a week, you will start to feel yourself again.
Just had the District nurses take my temperature and my new not cheap digital thermometer is giving me wrong readings apparently, their readings show normal, what thermometers can you recommend girls that appear accurate so far? Also realised I have been taking half the amount of my steroids per day as directed, told to ring the hospital to check with them, cant believe I have done that!
Thank you Ali49. I am 51 but still not menopausal as not gone the full 12 months so an operation to remove my ovaries is on the cards after. Glad the mouth wash etc is helping you a little.
Hi SueW that sounds ideal, never heard of these bottles before but I do have frozen berries in, can you buy them from Amazon? My temperature is going a bit high and glands under neck seem swollen so waiting to see what the District nurses thermometer says, mine wasnt cheap but yesterday the readings differed. Glad to see you are getting prepared for your first session, good luck with it all x
Thanks for the info re the drug Ali49, I couldnt find much info on it. have had my lumpectomy and sentinel lymph node biopsy (positive in one node) already as my HER status was initially negative. When they removed the tumour, all 1.3 mm of it they always retest and some cells were borderline so it was sent for a Fish test. They tried 3 times to do the Fish test but the sample wasnt good enough so it has all had to be repeated and still awaiting results which I should get when I see the oncoligist on 15 October. They started chemo as if positive will give me Herceptin 4th chemo onwards and had heart echo scan which was ok. Were you given mouthwas? I was sent home with some, my mouth still isnt too bad at moment but I am a few days behind. My sleep is rubbish at moment. Having gurgling tummy bit myself. Hope you manage to enjoy some food today.
Thanks Jay68, someone else mentioned flat coke to me and I forgot to try it, thank you I will try it! Yes ready for stewed apples today, looking forward to it, nausea has replaced the sickness but it is getting less...love the tips thank you!
Hi Reboot, glad to read you have improved at day 6, gives me hope. They gave me a mouthwash at the hospital, a sore mouth isnt nice is it... Mine isnt too bad yet but 3 days behind you so it may come but I do use organic virgin coconut oil a lot for ailments even before cancer and as it isnt a strong coconut taste am still managing to swill it around my mouth as it is good for germs and is kind to any soreness. I watched a you tube video of a cancer patient using it she said she had no mouth ulcers or mouth problems throughout her treatment and whereas you can take these things with a piece of salt using it a lot myself over the years esp with any soreness us ladies can get I did find it worked for me. I give it to my 17 year old dog too, he loves it lol but the rest of my family wont touch it.
Hi Cassie, my taste buds havent as yet changed too much perhaps delayed with all the day 1 sickness I had, not too bad a metal taste in mouth either, hope today is a good day for you symptoms wise
Hi Ali49, I may be having Herceotin too my sample was borderline twice so has been sent for a Fish test, must google the permuzetab bit of your treatment not heard of that! Well sounds to me you are enjoying much tastier food than I am able to at the moment thats great! My nausea is less now though myself, hope it continues, but my sleep is rubbish hence my early posting lol...good luck today
Just popping in......
I suffered from tummy problems at times during chemo, and was told by the Dr that Lucazode is really good for replacing salt and sugar. Tasted good too.
I found mouth problems ( i called it furry tongue! )did appear round about day 6, but only lasted a few days.
Cassie, strangely my taste buds havent gone awry yet, surprised with all the vomiting, nausea and heartburn I have had...keeping it very plain and simple, dry toast, nibble on a rich tea biscuit, dry cracker and they all tasted as normal. Cant drink anything with milk in, none of my usual cups of tea and warm drinks the thought makes my nausea worse so its plain water and some heavily diluted ginger squash. I do Fancy trying a spoonful of stewed apple later as someone suggested. Hope you can find something to eat that tastes pretty normal soon x
Ali49, thats strange how we come home with different medications, are you on FEC full strength x 3 like me plus doxetaxal after x 3. Fish & chips that did made me smile, aw hope you feel better soon. I am on plain toast, and a cracker at moment and still nauseous with heartburn
So thoughtful thank you SueW, hug gratefully received..Day 3 for me and the violent sickness of Day 1 for me has subsided, still left nauseous, legs hurt and ache, thick headache wont go, and heartburn probably as unable to eat much but to be honest now the sickness has subsided I can put up with the rest. I came home with anti sickness injections to store in the fridge only to be given by a nurse and they saved the day in my case or I would have ended up back to the asessment unit, as they give you a sheet with green, amber and red symptoms at the appointment talking over your chemo as I was just one sick off the red. The Emend anti sickness tablets seem to be the best tablets to come home with but in my case they didnt stop my vomiting. I guess I was just unlucky as I am reading so many arent sick at all so we are all different. Good luck for next week, will follow your progress and support where I can....oh and my hair started to shed a little after Day one!
Aw no Ali49, glad the extra anti sickness helped a little in the early hours. Did you come home with anti sickness injections to store in the fridge as they are only to be injected by a nurse? My sickness was so bad on the afternoon of my chemo that I was sicking back the anti sickness tablets so I had to ring the out of hours district nurses who came at 10 pm to inject me with one. I had been violently sick since 4.30 pm and one more time of sickness I was in the red zone on the paper they give you of symptoms to go back to the emergency assessment unit. Yesterday I felt extremely nauseous but not sick. I still have bad heartburn, not eating much at all, just want a nibble of plain things at the moment. Hope you feel better as the day wears on, and you arent actually sick, but the injections do seem stronger anti sickness meds. I am Day 3.
I have got some epsom salts in so yes will use them, the aches in my legs were so bad last night I slept in my anti thrombotic stockings which helped. Wasnt expecting leg aches with FEC. Oh right, just normal symptoms then, what a learning curve it all is, thanks so much CK
Hi CK, welcome...thank you for the help you can give us....can I ask did you get heartburn at all? had such severe sickness yesterday ended up having the out of hours district nurse out after 5 bouts in 5 hours, sicking tablets back up and had an injection in my thigh...today I feel really nauseous but wasnt sick, but managed to eat a tiny bit, Emend doesnt even seem to be working...I am getting heartburn now, severe aching legs, flushed face and skin is like it has been in stinging nettles, lets hope day 3 is better lol.
Good luck for Thursday Sam34. Hope your cold clears up. Day 2 of my chemo and after a severe day of sickness yesterday, not been sick today, felt very nauseous with heartburn and leg aches but still cant eat much. I seem to have felt a lot sicker than many so my advice is to try and get some good anti sickness in place just in case you are unlucky.
Good luck with everything Runnerbean. I was dreading thr picc line as they can never find a vein usually but this is different. First you have an ultrasound to see if it can be done, after that you are given a local aneasthetic and I just felt a bit of discomfort, a pushing sensation, you then have an heart scan to check it is away from your heart, all done whilst lying on the bed, I didnt look and it was done very quickly. It is not a problem once in it doesn't restrict your arm movements. I just have to have blood thinners as I have a clotting condition. Mine is going to be flushed every week at the hospital. Easy to get the chemo through it.