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October 2017 Chemo Starters

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Re: October 2017 Chemo Starters

Patchwork i am having 3 FEC then 4 docetaxol with permuzetab and herceptin. They gave me 3 days of sntisickness and steroid tablets to bring home and 7 GCSF injections. They also gave me 7 days of anti sickness tabs in case i need them. Anyway just had potato waffles with eggs and beans, cooked by the hubby, and it was lovely xxx
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Re: October 2017 Chemo Starters

Cassie, strangely my taste buds havent gone awry yet,  surprised with all the vomiting, nausea and heartburn I have had...keeping it very plain and simple, dry toast, nibble on a rich tea biscuit, dry cracker and they all tasted as normal.  Cant drink anything with milk in, none of my usual cups of tea and warm drinks the thought makes my nausea worse so its plain water and some heavily diluted ginger squash. I do Fancy trying a spoonful of stewed apple later as someone suggested.  Hope you can find something to eat that tastes pretty normal soon x 

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Re: October 2017 Chemo Starters

Ali49, thats strange how we come home with different medications, are you on FEC full strength x 3 like me plus doxetaxal after x 3.  Fish & chips that did made me smile, aw hope you feel better soon. I am on plain toast, and a cracker at moment and still nauseous with heartburn 

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Re: October 2017 Chemo Starters

Taste buds well and truly knackered! I love a slice of hot buttered toast. Just had one and it tasted of nothing! Very disappointed. Watching Saturday Kitchen and the Hairy Bikers got me feeling hungry but thought I'd better take it steady and stick with toast.

Cassie x
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Re: October 2017 Chemo Starters

No snti sickness injections patchwork just the gscf injections in my fridge. To be honest i felt like fish and chips last night but now realise it was a mistake!! Glad your sickness is subsiding xx
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Re: October 2017 Chemo Starters

So thoughtful thank you SueW, hug gratefully received..Day 3 for me and the violent sickness of Day 1 for me has subsided, still left nauseous, legs hurt and ache, thick headache wont go, and heartburn probably as unable to eat much but to be honest now the sickness has subsided I can put up with the rest.  I came home with anti sickness injections to store in the fridge only to be given by a nurse and they saved the day in my case or I would have ended up back to the asessment unit, as they give you a sheet with green, amber and red symptoms at the appointment talking over your chemo as I was just one sick off the red.  The Emend anti sickness tablets seem to be the best tablets to come home with but in my case they didnt stop my vomiting.  I guess I was just unlucky as I am reading so many arent sick at all so we are all different.  Good luck for next week, will follow your progress and support where I can....oh and my hair started to shed a little after Day one! 

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Re: October 2017 Chemo Starters

Aw no Ali49, glad the extra anti sickness helped a little in the early hours.  Did you come home with anti sickness injections to store in the fridge as they are only to be injected by a nurse?  My sickness was so bad on the afternoon of my chemo that I was sicking back the anti sickness tablets so I had to ring the out of hours district nurses who came at 10 pm to inject me with one.  I had been violently sick since 4.30 pm and one more time of sickness I was in the red zone on the paper they give you of symptoms to go back to the emergency assessment unit.  Yesterday I felt extremely nauseous but not sick.  I still have bad heartburn, not eating much at all, just want a nibble of plain things at the moment.  Hope you feel better as the day wears on, and you arent actually sick,  but the injections do seem stronger anti sickness meds.  I am Day 3.  

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Re: October 2017 Chemo Starters

Hope you lovely ladies feel better today x I can’t offer any practical advice because I don’t start until next week but can send you a hug xx
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Re: October 2017 Chemo Starters

First rough night for me last night. Have felt nauseous all night. Took an extra anti sickness at 4am which helped a bit. Got a gurgling tummy and just feeling rough. Day 4 !
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Re: October 2017 Chemo Starters

I have got some epsom salts in so yes will use them, the aches in my legs were so bad last night I slept in my anti thrombotic stockings which helped.  Wasnt expecting leg aches with FEC.  Oh right, just normal symptoms then, what a learning curve it all is, thanks so much CK

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Re: October 2017 Chemo Starters

Brilliant ideas for me to try, thank you very much CK

CK
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Re: October 2017 Chemo Starters

Get some Epsom salts for a soak in the barh for aches and pains Patchwork and a spray mist for face! Keep window open. Rosy cheeks is rhe norm even if no temp.xx
CK
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Re: October 2017 Chemo Starters

Hi Patchwork
I had milk to sooth my hearburn but you could try Gaviscon?Half teaspoonful of Bicarbonate of soda in flass of water and lemon could help too! Made ne burp In fact days 3/4 first cycle I only had croissants, biscuits and milk! Water tasted awful so put slice of lemon in it! Murray mints! Ginger drops! Skittles! Chocolate Minstrels! Ginger biscuits! X
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Re: October 2017 Chemo Starters

Hi CK, welcome...thank you for the help you can give us....can I ask did you get heartburn at all? had such severe sickness yesterday ended up having the out of hours district nurse out after 5 bouts in 5 hours, sicking tablets back up and had an injection in my thigh...today I feel really nauseous but wasnt sick, but managed to eat a tiny bit, Emend doesnt even seem to be working...I am getting heartburn now, severe aching legs, flushed face and skin is like it has been in stinging nettles, lets hope day 3 is better lol.  

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Re: October 2017 Chemo Starters

Hi ck I will do recruiting lol x will start a new thread when it gets nearer and I will invite everyone as all will be welcome to join us x will have to see how many rooms at hotel etc and play the cancer card see if we get a discount xx
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Re: October 2017 Chemo Starters

Good luck for Thursday Sam34.  Hope your cold clears up.  Day 2 of my chemo and after a severe day of sickness yesterday, not been sick today, felt very nauseous with heartburn and leg aches but still cant eat much.  I seem to have felt a lot sicker than many so my advice is to try and get some good anti sickness in place just in case you are unlucky.  

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Re: October 2017 Chemo Starters

Good luck with everything Runnerbean.  I was dreading thr picc line as they can never find a vein usually but this is different.  First you have an ultrasound to see if it can be done, after that you are given a local aneasthetic and I just felt a bit of discomfort, a pushing sensation, you then have an heart scan to check it is away from your heart, all done whilst lying on the bed,  I didnt look and it was done very quickly.  It is not a problem once in it doesn't restrict your arm movements.  I just have to have blood thinners as I have a clotting condition.  Mine is going to be flushed every week at the hospital.  Easy to get the chemo through it.  

CK
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Re: October 2017 Chemo Starters

Hi ladies! I'm like Ali49, Sept group but I'm gonna join you on here now and then to see if can help with my experiences...but I will do it quitely so you dont throw me offSmiley HappySmiley Happy
Good luck and best wishes to all you October starters! SueW, you need to round up a few more spa ladies for when we are mended!!!😘😘😘
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Re: October 2017 Chemo Starters

Ye I've had the flu jab xx
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Re: October 2017 Chemo Starters

Day 3 and not too bad. Awake from 1am due to steroids and just couldnt get back to sleep. Got up and had tea and toast. Went back for a couple of hours this morning and felt better. Did my first injection and that was easy. Ivtook it out of the fridge and took 2 paracetamol half an hour before jabbing it!! I havent been dressed today but i have done the washing, hung it out and done ironing. I am glowing with the steroids and i have been the loo!!! Hope everyone is feeling better and ok xx
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Re: October 2017 Chemo Starters

Thank you Rosie, and good evening to everyone x

I hadn't appreciated how tired I was before I started my chemo to be honest, so I think that's why this week has been more tiring than I'd expected. I do so need to learn how to ask for help though!!

Hope everyone has relaxing weekends xx
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Re: October 2017 Chemo Starters

Hi Sam hope your feeling better soon have you had flu jab? X
Runnetbean I am actually considering asking for picc in all of this the needles etc don’t bother me but I hate canula with a passion and cry every time I have to have one x
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Re: October 2017 Chemo Starters

Hey everyone not been on for a couple of days

Hope your all well? I'm full of a cold 😢

I start chemo Thursday 5th xx
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Re: October 2017 Chemo Starters

Evening ladies, I am due to start my chemo next week. Assessment Monday, PICC line Tuesday and first chemo Friday. I am on holiday at the minute due to fly home tomorrow then straight into the next stage of my treatment. I'm worried about the PICC line as I am scared of needles and pass out at the sight of blood. Hoping it's not as bad as I fear!
Member

Re: October 2017 Chemo Starters

Thank you Rosie for posting here your news about having come through the chemo gives us all such a lift : thank you xxxx

Community Champion

Re: October 2017 Chemo Starters

Hi Reboot

I am so sorry that you find yourself on this thread when recently recovering from having a baby! 

The chemo treatment will pass and being here on this thread will help you through the journey as you share the ups and down side with the other ladies going through the same experiences. I am from the April 14 thread. Five of us still post regularly on the thread and we have had 3 meet ups! We share so much more than cancer now and have become very much a part of each other's lives.

Our chemo started in April 14 and 3 years later we have all made a good recovery our hair has grown and we are getting on with our lives. Some of the ladies worked through their chemo. 

I hope that you have family and friends to help out with the children when you are feeling tired!

Look after yourself!

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Re: October 2017 Chemo Starters

I have just sat wrapping presents ready for my baby boy birthday tomorrow.... we’ll i say baby he is 6ft 2 with size 13 feet lol and is going to be 21 he gets mad when I tell him he is still my baby 🤣🤣
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Re: October 2017 Chemo Starters

Chaffinch glad you like your new hairdo. SueW hope she finds it useful. Reboot hope you feel better tomorrow. On we all go hey girls xx
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Re: October 2017 Chemo Starters

Evening ladies!
Chaffinch, I had my hair cut short today too. Such an odd feeling coming away with a completely new do when I've had the same style for years!
I've felt a bit useless these past couple of days and looking forward to heading upwards tomorrow 🙂
Best wishes to everyone xx
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Re: October 2017 Chemo Starters

Hi Ali

Ps thanks for other info have passed it all on to my daughter she is going to look into it before she makes any decisions I told her I have your friends email address if she wants to contact her too xx

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Re: October 2017 Chemo Starters

Evening ladies
Nothing to say other than hope your all ok xx
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Re: October 2017 Chemo Starters

I hope that you continue to do ok Ali49.
I have had my hair cut short today. My hairdresser was quite reluctant at first but then her creative juices started to flow and she got quite excited. There can't be many opportunities for a very experienced hairdresser with the same clients week in week out to be given free reign to do what she likes and not have to worry about her client having to live with the consequences for long Smiley Wink
I am quite pleased with it everyone says that I look younger which is nice.
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Re: October 2017 Chemo Starters

 
Hi all. Hope everyone is doing ok.
Day 2 and i have been ok! Up, showered and dressed by 9. Took my tablets and had breakfast. Made dinner for tonight and tomorrow. Sat and nattered with my auntie and went to M and S for a few bits and treated my daughters head for nits - the joys of going to an all girls school!! I've Just had tea and sitting down. I have sucked lots of sweets, had jelly, did my mouthwash and drank lots. So a bit jittery, a dry mouth and a bit tired but otherwise ok. THANK YOU GOD xx

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Re: October 2017 Chemo Starters

I think you do get use to them SueW. Lost count of how many times I've had injections, blood tests and cannulas. I'm more surprised that they didn't put the chemo drugs through and they all squirt out of the many holes in my arms lol. Cannula finally went in on 4th attempt today so covered in little plasters.

Cassie x
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Re: October 2017 Chemo Starters

rest when you need to 😄
Just got back from flu jab didn’t hurt think I am becoming immune to needles lol I used to be such a wuss too xx
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Re: October 2017 Chemo Starters

Back home now. Bit tired but otherwise all ok. Hope everyone else is ok? Hope you get on ok Vee

Cassie x
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Re: October 2017 Chemo Starters

I'm sure you will all the staff were lovely and tried to make you as comfortable as possible. But it's really nothing to worry about. The whole experience was ok. You basically just sit there anyway lol. Almost home x
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Re: October 2017 Chemo Starters

That’s nice hope we get the same x
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Re: October 2017 Chemo Starters

Yeah there's tea coffee biscuits sweets sandwiches. Waitress service from a lovely volunteer.

Cassie x
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Re: October 2017 Chemo Starters

Hi Cassie x hope it’s going well
Do you get a cup of tea of coffee if not I willl be going via coffee shop lol x
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Re: October 2017 Chemo Starters

Having chemo right now! Thought I'd drop a message in. On the last drug of FEC not too long now x
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Re: October 2017 Chemo Starters

Flu jab at 1.30 mom coming to hold my hand lol x
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Re: October 2017 Chemo Starters

Hi Sue, I had my flu jab last Saturday and it was fine xx (I did cry on the nurse though!)

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Re: October 2017 Chemo Starters

That's what I've been told, if one antisickness doesn't work for you, they have others they can try. Also try to eat something to subside nausea like dry biscuits or dry toast first and then take the tablets. I've been getting on fine like that 🙂
Also don't keep quiet about side effects, call with any questions. They'd rather you ask x
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Re: October 2017 Chemo Starters

To be honest Chaffinch17 I was expecting the opposite too, havent got anything in for diarrhoea so must get it in, will have to see which way I go.  I have been given Emend a good anti sickness from reading on here, one tablet to take before my treatment and one for the 2 days after, along with mouthwash.  

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Re: October 2017 Chemo Starters

Aw that's great to read Ali49 and reassuring, thank you! Look after yourself 

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Re: October 2017 Chemo Starters

Thank you SueW....yes am prepared as much as I can be.  

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Re: October 2017 Chemo Starters

Good luck to everyone starting today, hope the side effects aren't too bad for you all. Keep in touch when you can. I am having my flu jab on Saturday morning. Was just told to tell them that I was about to start chemo.
I have been reading the September thread and diarrhoea seems to be quite a problem with a lot of people having to take Imodium. I am expecting the opposite problem because I am usually more that way but who knows!
The other thing that comes through loud and clear is don't suffer in silence. If you are bothered by bad sickness or other side effects, make sure you contact your team because they can usually adjust your meds to help you out.
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Re: October 2017 Chemo Starters

Well done ali and thank you for posting such a reassuring comment x
Hope you manage plenty of rest x
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Re: October 2017 Chemo Starters

 

Ali49 

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3:57 PM

Hi All, first chemo done and it was fine. Had the cannula in and then sat there chatting while the different drugs and flushes went in. It was all very calm and organised. Apt was 10am and i was finished by 12.30. Had a cup of tea and biscuits during it too. Came home and had chicken soup!! Just feel a bit tired now. People starting tomorrow it will be fine. Nurses are so good and reassuring. Sending you all a hug xx