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October 2017 Chemo Starters

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Re: October 2017 Chemo Starters

Hi sueW and sam34, not sure what I'll do about work yet. I'm going to see how I go, the BCN said I'll probably want to dip in and out of work and my employers are fully supportive. I'm lucky (or not depending on how you look at it) I can work from home so may just do that. Are either of you trying the cold cap?

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Re: October 2017 Chemo Starters

Hi meesh I've also been advised to stop work from Tuesday during chemo as I work with food and people,and to be honest I'd rather rest and get better I'm sure I'll be off work now till march next year! As I have to operation after chemo xx
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Re: October 2017 Chemo Starters

So low not flow low autocorrect got me again lol
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Re: October 2017 Chemo Starters

Hi meesh won’t say it’s nice to see you here because obviously you would rather not but welcome x yes you have posted correctly
I can’t carry on working as I work at a School and my consultant has said as my immunity will be flow low to continue working is to risky x
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Re: October 2017 Chemo Starters

Hi everyone, I've never posted anything on a forum before, so I hope I've done this right! I hope those of you who started last week are starting to feel a bit better. I'm due to start 6x fec on Tuesday 3 Oct. very anxious, read September starters and sickness seems to the main problem, especially if you don't get the right Meds to take home. I just feel so unprepared. Is anyone planning to carry on working through their chemo?

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Re: October 2017 Chemo Starters

I start Wednesday too but don't know what my drugs are yet. Seeing oncologist again on Tuesday. Have a few appointments this week. ECG at 9am tomorrow then talk and tour of the chemo unit. Onc on Tuesday then treatment Wednesday. Such a rock and roll life! Hopefully organized but having seen my dad go through chemo I am expecting the unexpected
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Re: October 2017 Chemo Starters

Thanks both Sues x
Community Champion

Re: October 2017 Chemo Starters

Hi Sam

I had TC chemo which is different again I'm afraid, so can't really help you with that.

But I just wanted to say that there is no reason to be scared. It really won't be as bad as you think. Fatigue is probably one of the common things to have to deal with. And some suffer with sickness, but this can be medicated. Just prepare yourself for the first week eg stock up the fridge! And then just rest. After a week, you will start to feel yourself again.

Best wishes

Sue xx

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Re: October 2017 Chemo Starters

Hi Sam can’t comment on yours Hun I not met chemo nurses yet
Ali glad your feeling a bit better
Patch I have got s thermometer but not opened it yet so not sure if it is any good though my friend a nurse did suggest I open it and take temperature every morning so I know what my normal running temperature is do to speak
The bottle is an infusion water bottle if you use that title for amazon search
But have seen them in Sainsbury’s and the range x
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Re: October 2017 Chemo Starters

Trastuzumad ( Herceptin )

Pertuzumad ( Perjeta )

Docetaxel ( Taxotere )

Carboplatin.....


Has any1 had this? It's all new to me and like I say I see a lot of women on Fec-T which is very confusing,I start chemo Wednesday and to be honest I'm getting really scared! I'm having chemo 1st then surgery xx
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Re: October 2017 Chemo Starters

Just had the District nurses take my temperature and my new not cheap digital thermometer is giving me wrong readings apparently,  their readings show normal, what thermometers can you recommend girls that appear accurate so far? Also realised I have been taking half the amount of my steroids per day as directed, told to ring the hospital to check with them, cant believe I have done that! 

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Re: October 2017 Chemo Starters

Thank you Jay68, another one to try! And will bear that in mind.

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Re: October 2017 Chemo Starters

Thank you Ali49.  I am 51 but still not menopausal as not gone the full 12 months so an operation to remove my ovaries is on the cards after.  Glad the mouth wash etc is helping you a little.  

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Re: October 2017 Chemo Starters

Hi SueW, i am feel8ng ok thanks. Nausea has gone so just the sore mouth. Have been rinsing with warm salt water to try to heal it Jay. Patchwork hope you get your temp sorted. How are you SueW? Sending everyone a hug xc
Community Champion

Re: October 2017 Chemo Starters

Another good tip ladies - with the sore mouth try a simple salt water mouthwash. Also check to see if it could be oral thrush - lots of us ladies in the May 2017 suffered it and we were prescribed meds which helped but sadly didn't cure!
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Re: October 2017 Chemo Starters

Brilliant idea again SueW, yes we need easy but health food inside us.  

Member

Re: October 2017 Chemo Starters

Hi SueW that sounds ideal, never heard of these bottles before but I do have frozen berries in, can you buy them from Amazon? My temperature is going a bit high and glands under neck seem swollen so waiting to see what the District nurses thermometer says, mine wasnt cheap but yesterday the readings differed.  Glad to see you are getting prepared for your first session, good luck with it all x 

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Re: October 2017 Chemo Starters

Morning Ali how you feeling today ? X
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Re: October 2017 Chemo Starters

Hi Patchwork, no i wasnt given mouthwash but i bought biontene mouthwash and toothpaste which is super gentle and helping. I was her2+3 so drfinite for me. I went into menopsuse early and at 50 have been period free for 5 years and my fish test showed this. Hope your gurgling tummy improves. Try some cool boiled water - it helps me a little xx
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Re: October 2017 Chemo Starters

I bought soup maker too so I can have lots of vegetables x
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Re: October 2017 Chemo Starters

Posted not payed autocorrect
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Re: October 2017 Chemo Starters

Patchwork I think I payed this on another thread but I bought a water infusion bottle the one you fill with fruit and I put frozen berries in the tube so as it defrosts it puts a subtle flavour into the water
I don’t know if it helps with taste etc as not started my chemo yet but might be worth a try xx they are about a fiver
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Re: October 2017 Chemo Starters

Thanks for the info re the drug Ali49, I couldnt find much info on it.  have had my lumpectomy and sentinel lymph node biopsy (positive in one node) already as my HER status was initially negative.  When they removed the tumour, all 1.3 mm of it they always retest and some cells were borderline so it was sent for a Fish test.  They tried 3 times to do the Fish test but the sample wasnt good enough so it has all had to be repeated and still awaiting results which I should get when I see the oncoligist on 15 October.  They started chemo as if positive will give me Herceptin 4th chemo onwards and had heart echo scan which was ok.  Were you given mouthwas? I was sent home with some, my mouth still isnt too bad at moment but I am a few days behind.  My sleep is rubbish at moment.  Having gurgling tummy bit myself.  Hope you manage to enjoy some food today. 

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Re: October 2017 Chemo Starters

Nausea and gurgling tummy from 2am ish for me and my mouth is gross. I wish i could take my tongue out, scrape it and put it back! Took one of the spare anti sickness that sounds like Dom Perignon but its not! Permuzetab is the new drug for her2 that has been available since April. This drug is the reason why i am having neoadjevant chemo (before surgery) and not adjuvant (after surgery). Hope everyone is coping ok. Xx
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Re: October 2017 Chemo Starters

Thanks Jay68, someone else mentioned flat coke to me and I forgot to try it, thank you I will try it!  Yes ready for stewed apples today, looking forward to it, nausea has replaced the sickness but it is getting less...love the tips thank you! 

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Re: October 2017 Chemo Starters

Hi Reboot, glad to read you have improved at day 6, gives me hope.  They gave me a mouthwash at the hospital, a sore mouth isnt nice is it... Mine isnt too bad yet but 3 days behind you so it may come but I do use organic virgin coconut oil a lot for ailments even before cancer and as it isnt a strong coconut taste am still managing to swill it around my mouth as it is good for germs and is kind to any soreness.  I watched a you tube video of a cancer patient using it she said she had no mouth ulcers or mouth problems throughout her treatment and whereas you can take these things with a piece of salt using it a lot myself over the years esp with any soreness us ladies can get I did find it worked for me.  I give it to my 17 year old dog too, he loves it lol but the rest of my family wont touch it.  

Member

Re: October 2017 Chemo Starters

Hi Cassie, my taste buds havent as yet changed too much perhaps delayed with all the day 1 sickness I had, not too bad a metal taste in mouth either, hope today is a good day for you symptoms wise 

Member

Re: October 2017 Chemo Starters

Hi Ali49, I may be having Herceotin too my sample was borderline twice so has been sent for a Fish test, must google the permuzetab bit of your treatment not heard of that! Well sounds to me you are enjoying much tastier food than I am able to at the moment thats great!  My nausea is less now though myself, hope it continues, but my sleep is rubbish hence my early posting lol...good luck today

Community Champion

Re: October 2017 Chemo Starters

Hi Ladies

Just popping in......

I suffered from tummy problems at times during chemo, and was told by the Dr that Lucazode is really good for replacing salt and sugar. Tasted good too.

I found mouth problems ( i called it furry tongue! )did appear round about day 6, but only lasted a few days.

Sending hugs

Sue xx

 

Community Champion

Re: October 2017 Chemo Starters

Patchworkgirl - I suggested the stewed apple, give it a go - it really does work.

Another good idea is to pour some coke/pepsi into a glass and let it go flat - then at half hourly intervals sip a little very slowly. It helps to put back salts/sugars through being sick.
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Re: October 2017 Chemo Starters

I found Day 3 the worst to be honest, but I'm now on day 6 and felt back to normal this morning. My mouth's started to feel quite sore today so although my appetite's back, it's soft food for me 🙂
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Re: October 2017 Chemo Starters

I've had a jacket potato and cheese. Couldn't taste the potato but cheese was ok. Especially with a smidgin of brown sauce on to add flavour.

Cassie x
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Re: October 2017 Chemo Starters

Patchwork i am having 3 FEC then 4 docetaxol with permuzetab and herceptin. They gave me 3 days of sntisickness and steroid tablets to bring home and 7 GCSF injections. They also gave me 7 days of anti sickness tabs in case i need them. Anyway just had potato waffles with eggs and beans, cooked by the hubby, and it was lovely xxx
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Re: October 2017 Chemo Starters

Cassie, strangely my taste buds havent gone awry yet,  surprised with all the vomiting, nausea and heartburn I have had...keeping it very plain and simple, dry toast, nibble on a rich tea biscuit, dry cracker and they all tasted as normal.  Cant drink anything with milk in, none of my usual cups of tea and warm drinks the thought makes my nausea worse so its plain water and some heavily diluted ginger squash. I do Fancy trying a spoonful of stewed apple later as someone suggested.  Hope you can find something to eat that tastes pretty normal soon x 

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Re: October 2017 Chemo Starters

Ali49, thats strange how we come home with different medications, are you on FEC full strength x 3 like me plus doxetaxal after x 3.  Fish & chips that did made me smile, aw hope you feel better soon. I am on plain toast, and a cracker at moment and still nauseous with heartburn 

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Re: October 2017 Chemo Starters

Taste buds well and truly knackered! I love a slice of hot buttered toast. Just had one and it tasted of nothing! Very disappointed. Watching Saturday Kitchen and the Hairy Bikers got me feeling hungry but thought I'd better take it steady and stick with toast.

Cassie x
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Re: October 2017 Chemo Starters

No snti sickness injections patchwork just the gscf injections in my fridge. To be honest i felt like fish and chips last night but now realise it was a mistake!! Glad your sickness is subsiding xx
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Re: October 2017 Chemo Starters

So thoughtful thank you SueW, hug gratefully received..Day 3 for me and the violent sickness of Day 1 for me has subsided, still left nauseous, legs hurt and ache, thick headache wont go, and heartburn probably as unable to eat much but to be honest now the sickness has subsided I can put up with the rest.  I came home with anti sickness injections to store in the fridge only to be given by a nurse and they saved the day in my case or I would have ended up back to the asessment unit, as they give you a sheet with green, amber and red symptoms at the appointment talking over your chemo as I was just one sick off the red.  The Emend anti sickness tablets seem to be the best tablets to come home with but in my case they didnt stop my vomiting.  I guess I was just unlucky as I am reading so many arent sick at all so we are all different.  Good luck for next week, will follow your progress and support where I can....oh and my hair started to shed a little after Day one! 

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Re: October 2017 Chemo Starters

Aw no Ali49, glad the extra anti sickness helped a little in the early hours.  Did you come home with anti sickness injections to store in the fridge as they are only to be injected by a nurse?  My sickness was so bad on the afternoon of my chemo that I was sicking back the anti sickness tablets so I had to ring the out of hours district nurses who came at 10 pm to inject me with one.  I had been violently sick since 4.30 pm and one more time of sickness I was in the red zone on the paper they give you of symptoms to go back to the emergency assessment unit.  Yesterday I felt extremely nauseous but not sick.  I still have bad heartburn, not eating much at all, just want a nibble of plain things at the moment.  Hope you feel better as the day wears on, and you arent actually sick,  but the injections do seem stronger anti sickness meds.  I am Day 3.  

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Re: October 2017 Chemo Starters

Hope you lovely ladies feel better today x I can’t offer any practical advice because I don’t start until next week but can send you a hug xx
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Re: October 2017 Chemo Starters

First rough night for me last night. Have felt nauseous all night. Took an extra anti sickness at 4am which helped a bit. Got a gurgling tummy and just feeling rough. Day 4 !
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Re: October 2017 Chemo Starters

I have got some epsom salts in so yes will use them, the aches in my legs were so bad last night I slept in my anti thrombotic stockings which helped.  Wasnt expecting leg aches with FEC.  Oh right, just normal symptoms then, what a learning curve it all is, thanks so much CK

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Re: October 2017 Chemo Starters

Brilliant ideas for me to try, thank you very much CK

CK
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Re: October 2017 Chemo Starters

Get some Epsom salts for a soak in the barh for aches and pains Patchwork and a spray mist for face! Keep window open. Rosy cheeks is rhe norm even if no temp.xx
CK
Member

Re: October 2017 Chemo Starters

Hi Patchwork
I had milk to sooth my hearburn but you could try Gaviscon?Half teaspoonful of Bicarbonate of soda in flass of water and lemon could help too! Made ne burp In fact days 3/4 first cycle I only had croissants, biscuits and milk! Water tasted awful so put slice of lemon in it! Murray mints! Ginger drops! Skittles! Chocolate Minstrels! Ginger biscuits! X
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Re: October 2017 Chemo Starters

Hi CK, welcome...thank you for the help you can give us....can I ask did you get heartburn at all? had such severe sickness yesterday ended up having the out of hours district nurse out after 5 bouts in 5 hours, sicking tablets back up and had an injection in my thigh...today I feel really nauseous but wasnt sick, but managed to eat a tiny bit, Emend doesnt even seem to be working...I am getting heartburn now, severe aching legs, flushed face and skin is like it has been in stinging nettles, lets hope day 3 is better lol.  

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Re: October 2017 Chemo Starters

Hi ck I will do recruiting lol x will start a new thread when it gets nearer and I will invite everyone as all will be welcome to join us x will have to see how many rooms at hotel etc and play the cancer card see if we get a discount xx
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Re: October 2017 Chemo Starters

Good luck for Thursday Sam34.  Hope your cold clears up.  Day 2 of my chemo and after a severe day of sickness yesterday, not been sick today, felt very nauseous with heartburn and leg aches but still cant eat much.  I seem to have felt a lot sicker than many so my advice is to try and get some good anti sickness in place just in case you are unlucky.  

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Re: October 2017 Chemo Starters

Good luck with everything Runnerbean.  I was dreading thr picc line as they can never find a vein usually but this is different.  First you have an ultrasound to see if it can be done, after that you are given a local aneasthetic and I just felt a bit of discomfort, a pushing sensation, you then have an heart scan to check it is away from your heart, all done whilst lying on the bed,  I didnt look and it was done very quickly.  It is not a problem once in it doesn't restrict your arm movements.  I just have to have blood thinners as I have a clotting condition.  Mine is going to be flushed every week at the hospital.  Easy to get the chemo through it.  

CK
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Re: October 2017 Chemo Starters

Hi ladies! I'm like Ali49, Sept group but I'm gonna join you on here now and then to see if can help with my experiences...but I will do it quitely so you dont throw me offSmiley HappySmiley Happy
Good luck and best wishes to all you October starters! SueW, you need to round up a few more spa ladies for when we are mended!!!😘😘😘