62959members
330998posts
cancel
Showing results for 
Search instead for 
Did you mean: 

October 2017 Chemo Starters

Member

Re: October 2017 Chemo Starters

Best of luck Meesh. I start the following day, can't sleep!
Community Champion

Re: October 2017 Chemo Starters

The injections seem to depend on your type of chemo and which hospital you go to. I had them days 3 through to 7  ( that also seems to vary! ) and are given to boost your white blood cells, which helps fight infection. They are worth having, although they can initially create joint pain. Sometimes you have to do them yourself, but I was too much of a chicken, so a friend did them for me!

Sue xx

Member

Re: October 2017 Chemo Starters

Thanks Ali, I normally have porridge or eggs and was worried they might be too heavy so will try toast.

Member

Re: October 2017 Chemo Starters

Meesh i eas advised to have carbohydrates so i had toast xx
Member

Re: October 2017 Chemo Starters

Thanks Patchwork Girl and Ali49 for the feedback on your first treatments. It's encouraging that you're both doing well and feeling better, even despite your sickness Patchwork Girl. Does everyone have injections? They never mentioned any injections but I've found through this process that they like to drip feed you with bad news rather than give it to you in one hit, so guess I'll find out Tuesday. I'm booked in for 9am and have been told to have a bit of breakfast beforehand, any recommendations of what to eat prior to treatment?

Member

Re: October 2017 Chemo Starters

Good luck ladies having chemo this week. I am on day 4 of first chemo. Not actually been as bad as expected. Left anti Sickness tablet a bit late on first day but learnt to take it at first hint of nausea and it works fine. I was given the one that sounds that don perignon lol. Appetite hasn't been great so just eating what I fancy. Had some hot pot and veg today which was nice. Not a full portion as I don't want to overload my system but it was good to eat a proper meal. Mouth is dry and things taste strange or of nothing. It's annoying but no real issue. Tiredness is my biggest issue it just wiped me out. I start the injections tomorrow which hopefully I'll be able to do ok then should start to feel better.

Cassie x
Member

Re: October 2017 Chemo Starters

Hi Meesh , i had first Fec last wednesday and apart from a bit of nausea, feeling tired and a sore mouth i am doing ok. Have had 1 day so far where i didnt get dressed and just chilled. I didnt have any meds before but was given 3 days anti sickness and steroids to take at home plus 7 gscf injections to give myself at home too (they jave been easy to do). They also gave me an extra 7 days of antisickness in case i need them. Start taking your sachets the day before treatment i would say as they didnt give me any but i have needed them. Drink lots of water and get your ginger biscuits in for nausea. I find if i eat, even if its just a little, i feel better. Re work - i am a teacher so wont be going to work but some people are working through chemo. I think it depends on your job and how you are feeling. I am not cold capping. Good luck xx
Member

Re: October 2017 Chemo Starters

Welcome Meesh73, good luck with your chemo.  I had my first FEC last Thursday went home at 12.30pm and felt fine until 4.30 pm then had severe sickness, couldn't keep the anti sickness tablets down.  I was one sickness bout off heading back to hospital per my symptom sheet given to me by the hospital.  Luckily I had been sent home with a box of 10 anti sickness injections which I couldn't use myself but they left me an out of hours District nurse number to ring.  They came out to me at 10 pm at night and injected me, you can only have 3 in any 24 hours and she told me they are only for severe sickness as they will become useless as your body will get used to them and they won't be so effective.  Think I was just unlucky though with the sickness but when I have my review will see if I can have some intervention in case  it gets like that again treatment 2.  We all seem to come home with different meds.  My hospital won't give us cold caps, my long hair was shedding later that same night after first chemo.  Hope you manage to keep your hair.    

Member

Re: October 2017 Chemo Starters

Thanks everyone, for the advice. I've found it really useful. SueC thanks will give them a call tomorrow although as I'm due to start Tuesday might be a bit late. SueW I really admire you for the shave and well done for the money raised. 

Member

Re: October 2017 Chemo Starters

Good luck with forthcoming chemo treatments Sam34 and Chaffinch17.  Ali49 might be on similar chemo as you Sam34 from my memory if that helps.  Yes best to expect the unexpected Chaffinch17, my sickness was much more severe so now will be asking for help for next time.  All the best to you both 

Member

Re: October 2017 Chemo Starters

Thanks SueW, will definitely get one as go in both stores.  

Member

Re: October 2017 Chemo Starters

Meesh no cold cap for me my sister is doing brave the shave and we are shaving together on 9th October between us we have raised £1200 for Macmillan x
Community Champion

Re: October 2017 Chemo Starters

Sounds like you are organized meesh! Don't know about the ginger. It's not something I used. But I'm sure someone on here will know.

I was given steroids to take... Day before, on the day and day after. Maybe worth asking about those if you haven't been given any. My nurse forgot and had to be reminded! These steroids did upset my stomach though and had to take imodium for a few days.

Sue xx

Member

Re: October 2017 Chemo Starters

Hi Sam34 that's what I thought re: the cold cap. Didn't think I was going to bother with it but had all my long curls cut short last week and love it so much think I'll be more upset to lose it now! Not had short hair since I was 12. Also went for wig fitting on Friday in case it doesn't work or I can't bear it.

Member

Re: October 2017 Chemo Starters

Thanks SueC, I went shopping today, bought ginger everything for nausea and sickness. Couldn't find any ginger drops though what make are they?  OH does all the washing so no worries about that (I'm such a lucky girl)! Just making some soup and I have a journal to keep notes. I've not been given any meds yet (apart from laxative sachets for afterwards as they mentioned they would give me ordansetron which can make you constipated?) is it normal not to have any meds beforehand?

Member

Re: October 2017 Chemo Starters

Hi meesh I start hormone therapy Wednesday and chemo Thursday,yes I'm having the cold cap ( worth a try ) xx
Community Champion

Re: October 2017 Chemo Starters

Hi Meesh and welcome.

You can prepare in some ways. The first week is the most challenging time, so stock up on food, get the washing done, and have all your meds at hand that you may need. Then you can just sit back and rest. Let others look after you if possible.

The chemo goes in cycles, so if you keep a diary of how you feel for the first round, then it tends to follow a pattern for the rest. You may be able to work some of the time during the good weeks and you're find that out as you go along.

Best of luck for Tuesday.

Sue xx

Member

Re: October 2017 Chemo Starters

Sam34, do you also start chemo Tuesday like me?

 

Member

Re: October 2017 Chemo Starters

Hi sueW and sam34, not sure what I'll do about work yet. I'm going to see how I go, the BCN said I'll probably want to dip in and out of work and my employers are fully supportive. I'm lucky (or not depending on how you look at it) I can work from home so may just do that. Are either of you trying the cold cap?

Member

Re: October 2017 Chemo Starters

Hi meesh I've also been advised to stop work from Tuesday during chemo as I work with food and people,and to be honest I'd rather rest and get better I'm sure I'll be off work now till march next year! As I have to operation after chemo xx
Member

Re: October 2017 Chemo Starters

So low not flow low autocorrect got me again lol
Member

Re: October 2017 Chemo Starters

Hi meesh won’t say it’s nice to see you here because obviously you would rather not but welcome x yes you have posted correctly
I can’t carry on working as I work at a School and my consultant has said as my immunity will be flow low to continue working is to risky x
Member

Re: October 2017 Chemo Starters

Hi everyone, I've never posted anything on a forum before, so I hope I've done this right! I hope those of you who started last week are starting to feel a bit better. I'm due to start 6x fec on Tuesday 3 Oct. very anxious, read September starters and sickness seems to the main problem, especially if you don't get the right Meds to take home. I just feel so unprepared. Is anyone planning to carry on working through their chemo?

Member

Re: October 2017 Chemo Starters

I start Wednesday too but don't know what my drugs are yet. Seeing oncologist again on Tuesday. Have a few appointments this week. ECG at 9am tomorrow then talk and tour of the chemo unit. Onc on Tuesday then treatment Wednesday. Such a rock and roll life! Hopefully organized but having seen my dad go through chemo I am expecting the unexpected
Member

Re: October 2017 Chemo Starters

Thanks both Sues x
Community Champion

Re: October 2017 Chemo Starters

Hi Sam

I had TC chemo which is different again I'm afraid, so can't really help you with that.

But I just wanted to say that there is no reason to be scared. It really won't be as bad as you think. Fatigue is probably one of the common things to have to deal with. And some suffer with sickness, but this can be medicated. Just prepare yourself for the first week eg stock up the fridge! And then just rest. After a week, you will start to feel yourself again.

Best wishes

Sue xx

Member

Re: October 2017 Chemo Starters

Hi Sam can’t comment on yours Hun I not met chemo nurses yet
Ali glad your feeling a bit better
Patch I have got s thermometer but not opened it yet so not sure if it is any good though my friend a nurse did suggest I open it and take temperature every morning so I know what my normal running temperature is do to speak
The bottle is an infusion water bottle if you use that title for amazon search
But have seen them in Sainsbury’s and the range x
Member

Re: October 2017 Chemo Starters

Trastuzumad ( Herceptin )

Pertuzumad ( Perjeta )

Docetaxel ( Taxotere )

Carboplatin.....


Has any1 had this? It's all new to me and like I say I see a lot of women on Fec-T which is very confusing,I start chemo Wednesday and to be honest I'm getting really scared! I'm having chemo 1st then surgery xx
Member

Re: October 2017 Chemo Starters

Just had the District nurses take my temperature and my new not cheap digital thermometer is giving me wrong readings apparently,  their readings show normal, what thermometers can you recommend girls that appear accurate so far? Also realised I have been taking half the amount of my steroids per day as directed, told to ring the hospital to check with them, cant believe I have done that! 

Member

Re: October 2017 Chemo Starters

Thank you Jay68, another one to try! And will bear that in mind.

Member

Re: October 2017 Chemo Starters

Thank you Ali49.  I am 51 but still not menopausal as not gone the full 12 months so an operation to remove my ovaries is on the cards after.  Glad the mouth wash etc is helping you a little.  

Member

Re: October 2017 Chemo Starters

Hi SueW, i am feel8ng ok thanks. Nausea has gone so just the sore mouth. Have been rinsing with warm salt water to try to heal it Jay. Patchwork hope you get your temp sorted. How are you SueW? Sending everyone a hug xc
Community Champion

Re: October 2017 Chemo Starters

Another good tip ladies - with the sore mouth try a simple salt water mouthwash. Also check to see if it could be oral thrush - lots of us ladies in the May 2017 suffered it and we were prescribed meds which helped but sadly didn't cure!
Member

Re: October 2017 Chemo Starters

Brilliant idea again SueW, yes we need easy but health food inside us.  

Member

Re: October 2017 Chemo Starters

Hi SueW that sounds ideal, never heard of these bottles before but I do have frozen berries in, can you buy them from Amazon? My temperature is going a bit high and glands under neck seem swollen so waiting to see what the District nurses thermometer says, mine wasnt cheap but yesterday the readings differed.  Glad to see you are getting prepared for your first session, good luck with it all x 

Member

Re: October 2017 Chemo Starters

Morning Ali how you feeling today ? X
Highlighted
Member

Re: October 2017 Chemo Starters

Hi Patchwork, no i wasnt given mouthwash but i bought biontene mouthwash and toothpaste which is super gentle and helping. I was her2+3 so drfinite for me. I went into menopsuse early and at 50 have been period free for 5 years and my fish test showed this. Hope your gurgling tummy improves. Try some cool boiled water - it helps me a little xx
Member

Re: October 2017 Chemo Starters

I bought soup maker too so I can have lots of vegetables x
Member

Re: October 2017 Chemo Starters

Posted not payed autocorrect
Member

Re: October 2017 Chemo Starters

Patchwork I think I payed this on another thread but I bought a water infusion bottle the one you fill with fruit and I put frozen berries in the tube so as it defrosts it puts a subtle flavour into the water
I don’t know if it helps with taste etc as not started my chemo yet but might be worth a try xx they are about a fiver
Member

Re: October 2017 Chemo Starters

Thanks for the info re the drug Ali49, I couldnt find much info on it.  have had my lumpectomy and sentinel lymph node biopsy (positive in one node) already as my HER status was initially negative.  When they removed the tumour, all 1.3 mm of it they always retest and some cells were borderline so it was sent for a Fish test.  They tried 3 times to do the Fish test but the sample wasnt good enough so it has all had to be repeated and still awaiting results which I should get when I see the oncoligist on 15 October.  They started chemo as if positive will give me Herceptin 4th chemo onwards and had heart echo scan which was ok.  Were you given mouthwas? I was sent home with some, my mouth still isnt too bad at moment but I am a few days behind.  My sleep is rubbish at moment.  Having gurgling tummy bit myself.  Hope you manage to enjoy some food today. 

Member

Re: October 2017 Chemo Starters

Nausea and gurgling tummy from 2am ish for me and my mouth is gross. I wish i could take my tongue out, scrape it and put it back! Took one of the spare anti sickness that sounds like Dom Perignon but its not! Permuzetab is the new drug for her2 that has been available since April. This drug is the reason why i am having neoadjevant chemo (before surgery) and not adjuvant (after surgery). Hope everyone is coping ok. Xx
Member

Re: October 2017 Chemo Starters

Thanks Jay68, someone else mentioned flat coke to me and I forgot to try it, thank you I will try it!  Yes ready for stewed apples today, looking forward to it, nausea has replaced the sickness but it is getting less...love the tips thank you! 

Member

Re: October 2017 Chemo Starters

Hi Reboot, glad to read you have improved at day 6, gives me hope.  They gave me a mouthwash at the hospital, a sore mouth isnt nice is it... Mine isnt too bad yet but 3 days behind you so it may come but I do use organic virgin coconut oil a lot for ailments even before cancer and as it isnt a strong coconut taste am still managing to swill it around my mouth as it is good for germs and is kind to any soreness.  I watched a you tube video of a cancer patient using it she said she had no mouth ulcers or mouth problems throughout her treatment and whereas you can take these things with a piece of salt using it a lot myself over the years esp with any soreness us ladies can get I did find it worked for me.  I give it to my 17 year old dog too, he loves it lol but the rest of my family wont touch it.  

Member

Re: October 2017 Chemo Starters

Hi Cassie, my taste buds havent as yet changed too much perhaps delayed with all the day 1 sickness I had, not too bad a metal taste in mouth either, hope today is a good day for you symptoms wise 

Member

Re: October 2017 Chemo Starters

Hi Ali49, I may be having Herceotin too my sample was borderline twice so has been sent for a Fish test, must google the permuzetab bit of your treatment not heard of that! Well sounds to me you are enjoying much tastier food than I am able to at the moment thats great!  My nausea is less now though myself, hope it continues, but my sleep is rubbish hence my early posting lol...good luck today

Community Champion

Re: October 2017 Chemo Starters

Hi Ladies

Just popping in......

I suffered from tummy problems at times during chemo, and was told by the Dr that Lucazode is really good for replacing salt and sugar. Tasted good too.

I found mouth problems ( i called it furry tongue! )did appear round about day 6, but only lasted a few days.

Sending hugs

Sue xx

 

Community Champion

Re: October 2017 Chemo Starters

Patchworkgirl - I suggested the stewed apple, give it a go - it really does work.

Another good idea is to pour some coke/pepsi into a glass and let it go flat - then at half hourly intervals sip a little very slowly. It helps to put back salts/sugars through being sick.
Member

Re: October 2017 Chemo Starters

I found Day 3 the worst to be honest, but I'm now on day 6 and felt back to normal this morning. My mouth's started to feel quite sore today so although my appetite's back, it's soft food for me 🙂
Member

Re: October 2017 Chemo Starters

I've had a jacket potato and cheese. Couldn't taste the potato but cheese was ok. Especially with a smidgin of brown sauce on to add flavour.

Cassie x