Chaffinch17, I know what you mean. Sleep has been a bit on and off for the last week. I now just feel like I doze from about 1:30am and there's no sleeping after 5am. Hopefully it will be better once we've started and not so anxious.
SueW good luck with appointment today, hope all goes well.
I'm off to work in a bit, no idea how I'll keep focussed today and that's without chemo brain!
The injections seem to depend on your type of chemo and which hospital you go to. I had them days 3 through to 7 ( that also seems to vary! ) and are given to boost your white blood cells, which helps fight infection. They are worth having, although they can initially create joint pain. Sometimes you have to do them yourself, but I was too much of a chicken, so a friend did them for me!
Thanks Patchwork Girl and Ali49 for the feedback on your first treatments. It's encouraging that you're both doing well and feeling better, even despite your sickness Patchwork Girl. Does everyone have injections? They never mentioned any injections but I've found through this process that they like to drip feed you with bad news rather than give it to you in one hit, so guess I'll find out Tuesday. I'm booked in for 9am and have been told to have a bit of breakfast beforehand, any recommendations of what to eat prior to treatment?
Welcome Meesh73, good luck with your chemo. I had my first FEC last Thursday went home at 12.30pm and felt fine until 4.30 pm then had severe sickness, couldn't keep the anti sickness tablets down. I was one sickness bout off heading back to hospital per my symptom sheet given to me by the hospital. Luckily I had been sent home with a box of 10 anti sickness injections which I couldn't use myself but they left me an out of hours District nurse number to ring. They came out to me at 10 pm at night and injected me, you can only have 3 in any 24 hours and she told me they are only for severe sickness as they will become useless as your body will get used to them and they won't be so effective. Think I was just unlucky though with the sickness but when I have my review will see if I can have some intervention in case it gets like that again treatment 2. We all seem to come home with different meds. My hospital won't give us cold caps, my long hair was shedding later that same night after first chemo. Hope you manage to keep your hair.
Thanks everyone, for the advice. I've found it really useful. SueC thanks will give them a call tomorrow although as I'm due to start Tuesday might be a bit late. SueW I really admire you for the shave and well done for the money raised.
Good luck with forthcoming chemo treatments Sam34 and Chaffinch17. Ali49 might be on similar chemo as you Sam34 from my memory if that helps. Yes best to expect the unexpected Chaffinch17, my sickness was much more severe so now will be asking for help for next time. All the best to you both
Sounds like you are organized meesh! Don't know about the ginger. It's not something I used. But I'm sure someone on here will know.
I was given steroids to take... Day before, on the day and day after. Maybe worth asking about those if you haven't been given any. My nurse forgot and had to be reminded! These steroids did upset my stomach though and had to take imodium for a few days.
Hi Sam34 that's what I thought re: the cold cap. Didn't think I was going to bother with it but had all my long curls cut short last week and love it so much think I'll be more upset to lose it now! Not had short hair since I was 12. Also went for wig fitting on Friday in case it doesn't work or I can't bear it.
Thanks SueC, I went shopping today, bought ginger everything for nausea and sickness. Couldn't find any ginger drops though what make are they? OH does all the washing so no worries about that (I'm such a lucky girl)! Just making some soup and I have a journal to keep notes. I've not been given any meds yet (apart from laxative sachets for afterwards as they mentioned they would give me ordansetron which can make you constipated?) is it normal not to have any meds beforehand?
Hi Meesh and welcome.
You can prepare in some ways. The first week is the most challenging time, so stock up on food, get the washing done, and have all your meds at hand that you may need. Then you can just sit back and rest. Let others look after you if possible.
The chemo goes in cycles, so if you keep a diary of how you feel for the first round, then it tends to follow a pattern for the rest. You may be able to work some of the time during the good weeks and you're find that out as you go along.
Best of luck for Tuesday.
Hi sueW and sam34, not sure what I'll do about work yet. I'm going to see how I go, the BCN said I'll probably want to dip in and out of work and my employers are fully supportive. I'm lucky (or not depending on how you look at it) I can work from home so may just do that. Are either of you trying the cold cap?
Hi everyone, I've never posted anything on a forum before, so I hope I've done this right! I hope those of you who started last week are starting to feel a bit better. I'm due to start 6x fec on Tuesday 3 Oct. very anxious, read September starters and sickness seems to the main problem, especially if you don't get the right Meds to take home. I just feel so unprepared. Is anyone planning to carry on working through their chemo?
I had TC chemo which is different again I'm afraid, so can't really help you with that.
But I just wanted to say that there is no reason to be scared. It really won't be as bad as you think. Fatigue is probably one of the common things to have to deal with. And some suffer with sickness, but this can be medicated. Just prepare yourself for the first week eg stock up the fridge! And then just rest. After a week, you will start to feel yourself again.
Just had the District nurses take my temperature and my new not cheap digital thermometer is giving me wrong readings apparently, their readings show normal, what thermometers can you recommend girls that appear accurate so far? Also realised I have been taking half the amount of my steroids per day as directed, told to ring the hospital to check with them, cant believe I have done that!
Thank you Ali49. I am 51 but still not menopausal as not gone the full 12 months so an operation to remove my ovaries is on the cards after. Glad the mouth wash etc is helping you a little.
Hi SueW that sounds ideal, never heard of these bottles before but I do have frozen berries in, can you buy them from Amazon? My temperature is going a bit high and glands under neck seem swollen so waiting to see what the District nurses thermometer says, mine wasnt cheap but yesterday the readings differed. Glad to see you are getting prepared for your first session, good luck with it all x
Thanks for the info re the drug Ali49, I couldnt find much info on it. have had my lumpectomy and sentinel lymph node biopsy (positive in one node) already as my HER status was initially negative. When they removed the tumour, all 1.3 mm of it they always retest and some cells were borderline so it was sent for a Fish test. They tried 3 times to do the Fish test but the sample wasnt good enough so it has all had to be repeated and still awaiting results which I should get when I see the oncoligist on 15 October. They started chemo as if positive will give me Herceptin 4th chemo onwards and had heart echo scan which was ok. Were you given mouthwas? I was sent home with some, my mouth still isnt too bad at moment but I am a few days behind. My sleep is rubbish at moment. Having gurgling tummy bit myself. Hope you manage to enjoy some food today.
Thanks Jay68, someone else mentioned flat coke to me and I forgot to try it, thank you I will try it! Yes ready for stewed apples today, looking forward to it, nausea has replaced the sickness but it is getting less...love the tips thank you!
Hi Reboot, glad to read you have improved at day 6, gives me hope. They gave me a mouthwash at the hospital, a sore mouth isnt nice is it... Mine isnt too bad yet but 3 days behind you so it may come but I do use organic virgin coconut oil a lot for ailments even before cancer and as it isnt a strong coconut taste am still managing to swill it around my mouth as it is good for germs and is kind to any soreness. I watched a you tube video of a cancer patient using it she said she had no mouth ulcers or mouth problems throughout her treatment and whereas you can take these things with a piece of salt using it a lot myself over the years esp with any soreness us ladies can get I did find it worked for me. I give it to my 17 year old dog too, he loves it lol but the rest of my family wont touch it.
Hi Cassie, my taste buds havent as yet changed too much perhaps delayed with all the day 1 sickness I had, not too bad a metal taste in mouth either, hope today is a good day for you symptoms wise
Hi Ali49, I may be having Herceotin too my sample was borderline twice so has been sent for a Fish test, must google the permuzetab bit of your treatment not heard of that! Well sounds to me you are enjoying much tastier food than I am able to at the moment thats great! My nausea is less now though myself, hope it continues, but my sleep is rubbish hence my early posting lol...good luck today
Just popping in......
I suffered from tummy problems at times during chemo, and was told by the Dr that Lucazode is really good for replacing salt and sugar. Tasted good too.
I found mouth problems ( i called it furry tongue! )did appear round about day 6, but only lasted a few days.