62298members
327976posts
cancel
Showing results for 
Search instead for 
Did you mean: 

October 2017 Chemo Starters

Member

Re: October 2017 Chemo Starters

Sam34, sorry to hear you ended up the in hospital and that chemo affected your liver. Try not to worry, it may mean that they just need to adjust your treatment. The liver is able to regenerate itself so maybe that's why they're going to check it again before your next treatment?

 

Karana, I've also been really nervous about planning anything! I'm avoiding booking anything for definite and have been a bit like that since my diagnosis. I have a couple of Xmas do's for work that I've been invited to. I don't want to say no, but don't want to say yes either. I've just told them not to book me in for the meal, but that I may turn up for a drink on the day if I feel up to it. Our friends have also invited us over for dinner this Saturday and I have said a provisional yes to that too, although I think I'm definitely going to feel up to that now. 

Member

Re: October 2017 Chemo Starters

Why did you end up in hospital Sam?
Member

Re: October 2017 Chemo Starters

Had my 1st cycle of chemo and ended up in hospital! I'm ok now!! but my oncologist came to see me and said the 1st cycle of chemo has showed affect to my liver and will be checked before next chemo...

What will happen if I can't carry on with treatment I'm scared!!!
Member

Re: October 2017 Chemo Starters

Thanks SueW, I’m not having the Doxatel I’ve got 6 sessions of FEC only. I think you do get tingling with FEC but I don’t think there is the same neuropathy risk but it was that doubt that worried me last night. I couldn’t type in my phone it was so bad. I wonder if it’s because my hands had got too warm, I’ve had cold hands and feet since treatment. It’s much better this morning after a good night’s sleep I hit a wall last night after a busy day I think.
Karana don’t worry about panicking, going to the O2 would be a major undertaking at the moment and full of infection so probably just your body’s way of saying I don’t think so.
I’ve booked a small local concert in November for our anniversary and I thought twice about that, it should be in my good week and we chose seats st the end of a back row in a block so no one could sneeze on me from behind with hopefully a single empty seat next to us!
Member

Re: October 2017 Chemo Starters

I had a really good day yesterday and hoping that will continue!  My fingers sometime feel a bit tingly Meesha but doesn't last constantly!  Does anyone else feel panicky about planning things?  A friend asked if I wanted to go and see Neil Diamond at O2 next Tues and I nearly had a panic attack thinking about it!  I'm normally very confident...as it is I can't go as hubby away but really don't think I cld have managed the traveling and the crowds!!  Am I gonna turn into a hermit for 6 months?  

 

Hope you ladies managed a good nites sleep and those of you starting on Friday are keeping calm and drinking lots of water!! Xxx

Member

Re: October 2017 Chemo Starters

I got my pack today from chemo nurse and it says the following
Numb or tingling hands and feet
This is caused by the effect of docetaxal
Tell your doctor if you have these symptoms and they sometimes need to lower the dose and symptoms should slowly improve after treatment is completed
Talk to your doctors if you are worried

Not sure if this is relevant to you but all I can find in my pack xx
Member

Re: October 2017 Chemo Starters

Has anyone else got intense tingling in their finger ends and lips? I’m feeling odd tonight again after a good day, not sure if I’m just over tired. Just worried about neuropathy not sure if that is side effect of FEC or not?
Member

Re: October 2017 Chemo Starters

Well done Sue that was really brave 😊

 

Meesha im just finding the thought of wearing a wig strange...was fine trying them on (although did also get a fit of the giggles) and managed to pick one a similar style to my short hair....but now I've got it I don't wanna look at it!!  Was chatting to a friend this evening who is a hairdresser who has offered to style/trim it for me so it feels more like my own but think I'm gonna wait til I need it!

 

Its a week tomorrow since my first lot of chemo....any ideas when the hair will start leaving me?

 

xx

Member

Re: October 2017 Chemo Starters

Well done Sue that was really brave 😊

 

Meesha im just finding the thought of wearing a wig strange...was fine trying them on (although did also get a fit of the giggles) and managed to pick one a similar style to my short hair....but now I've got it I don't wanna look at it!!  Was chatting to a friend this evening who is a hairdresser who has offered to style/trim it for me so it feels more like my own but think I'm gonna wait til I need it 😬 

 

Its a week tomorrow since my first lot of chemo....any ideas when the hair will start leaving me?

 

xx

Member

Re: October 2017 Chemo Starters

I went out today without my wig following brave the shave x wore heavier make up than usual but loved my wash n go style x
Member

Re: October 2017 Chemo Starters

The first thing my wig consultant said to me was that they didn't have anything as curly as my own hair. So they let me order 2 short curly ones that were as similar to my own hair as we could find and also a straight one too. Bit worried I'll look like an old lady with the curly ones. 

Member

Re: October 2017 Chemo Starters

Oh Karana, poor you. Have you got a good friend who could help you face it? I think I'm going to have to face it Friday, they ordered 3 wigs for me so I'm going to have to try them on in order to choose. Luckily I have a friend who's coming with me to help.

Member

Re: October 2017 Chemo Starters

I went for my wig consultation today and have ordered on which is very similar to my current short style. I did try on some crackers though. One made me look like a cross between Boris Johnson and something from a 70’s sitcom!
Spent a lovely morning at my local Maggie’s too, met some very inspiring people.
Seem to have reached the wanting to eat anything that isn’t nailed down phase too!
Member

Re: October 2017 Chemo Starters

Picked wig up...got in the car, open ended the box and closed it again quickly!!  I'm not ready to try it on yet I don't think 😬 Xx

Member

Re: October 2017 Chemo Starters

I'm only having fec but I'll look up the evonail, just in case! I'm nowhere near Birmingham perhaps I'll see if there is a wig specialist near me that can help. 

 

Karana, how did you get on with your wig today?

Member

Re: October 2017 Chemo Starters

I think it's the T part of FEC-T which causes the nail issues most. I've started using a nail strengthener and painting my nails again to protect them and to stop me biting them. Annoying habit I know but something I've never been able to stop.

Well I'm on day 13 unlucky for some and certainly unlucky for my hair. Lots left in the bath and shall we say, I didn't wash the hair on my head today. At least chemo should save me money on razors.
Member

Re: October 2017 Chemo Starters

Meesh, I got the evonail in advance as the second half of my regime may cause nail damage. I'm just trying to be as prepared as possible! I have definitely become more forgetful and vague at times since diagnosis, so if chemo brain hits I'll be completely useless! :-)
Member

Re: October 2017 Chemo Starters

Meesh got them from the wig shop but went to a specialist shop for hair loss patients x
The one I used is in Birmingham x
Member

Re: October 2017 Chemo Starters

Oh beautician suggested I look at a semi permanent eyebrow stain that you can get in boots - so I can put it on whilst I still have the outline of my eyebrows to follow! Am going to take a look this afternoon and pick up sea bands too.
Member

Re: October 2017 Chemo Starters

Thanks Jelly tot - Meesh I just searched for evonail and found it on the live better with cancer site.
Flu jab done and dentist tomorrow. Also spoke to a lovely beautician who said I need two weeks b4 chemo to get blading done 😤 As you said why don't they tell you these things?!
Member

Re: October 2017 Chemo Starters

I didn't think fec was as tough on the nails as some of the others, is it? I haven't prepared for nails! Where can you buy the evonail?

Member

Re: October 2017 Chemo Starters

SueW where did you get your stick on eyebrows from?

Member

Re: October 2017 Chemo Starters

Hi ladies, just popping in - so good to see Ali that you're home!

 

I'm on Day 15 now and feeling generally pretty good. The normal days will come, honest.  Hair beginning to shed now, but since my first short chop made me look like a wrinkly escapee from a boy band, I'm content with it going.  Only wish it were spring, and then I could bung it in the garden for the birdies to make nests!

Member

Re: October 2017 Chemo Starters

Claire-bell glad to hear your feeling good...have a fab day celebrating 😊

 

I managed to to fit in flu jab and dentist but also wish they pre warn you wot maybe a good idea to have done!!!  

 

Have a a good day ladies xxx

Member

Re: October 2017 Chemo Starters

I bought my stick on natural hair eyebrows ready x
Although I have got tattoos I was scared to try micro blading in case it hurt x
Member

Re: October 2017 Chemo Starters

I wish I'd got my eyebrows microbladed, as well as having the flu jab and going to the dentist! I also wish they'd advise you about this stuff whilst you're waiting to find out if you need chemo. I waited for ages through the various tests and then when I was told they said I'd be starting the next week so too late for flu jab, dentist and microblading by then! 

 

Claire-bell glad to hear you've had 2 good days in a row!

Member

Re: October 2017 Chemo Starters

Hi everyone, two good days in a row! Wow that feels good- I'm on day 12 and it's my husbands birthday so I am up and have made a cake and eggs on crumpets(birthday breakfast in our house) for the family who are all off today (INSET Day!) yay! We are going out for afternoon tea later and to play TopGolf and I feel so relieved to have some normality! I have not lost any hair or eyelashes or eyebrows and my hand and toe nails are looking amazing even with no varnish! (Got scared of using it because of the chemical risk - look on breast cancer research website under risks) - phew ladies at least we know there will be a good week in every three! Hugs to you all for what you go through today - just take it one day at a time - tomorrow could be betterSmiley Happy xxxx
Member

Re: October 2017 Chemo Starters

As well as running a pub I'm also a nail technician and done a bit of research re nails before chemo started.  I've deceived to carry on putting gel on my own nails, they recommend using a dark colour, I worked on the assumption if I was gonna lose hair, eyelashes and eyebrows I'd quite like to keep my nails!!! Really wish I had my eyebrows micro bladded but by the time I had looked into that it was too late 😬 but it will be something I will consider after treatment if they are a bit sparse!!  I've always had quite easy to maintain full eyebrows and think I'm gonna look like an alien without them!!! xxx

Member

Re: October 2017 Chemo Starters

So glad to hear you're home Ali, rest well!
Ruth and mrsrims I read about Evonail on here and have been using it for a few days as I normally have acrylics but had to get them removed. It coats the nails and hopefully protects them from damage but time will tell. Have also had my eyebrows microbladed , it's expensive but lasts a year . Unfortunately you have to get it done before chemo due to the infection risk. Am just keeping my fingers crossed re eyelashes but there are things others have suggested if you search on here (this web site is brilliant!). Tried cold cap on yesterday at pre ass, my hubby thought it was great as the chin strap was so tight I could barely talk lol! Don't know if I'll cope with it but it's worth a try. Hugs to all xx
Member

Re: October 2017 Chemo Starters

Morning everyone! I did some yoga and meditation when I got up this morning, felt a bit shakey after breakfast but not as anxious. Feel ok now. I've also taken my sea bands off today. Hope you like your wig Karana, I'm going to get mine Friday.

Member

Re: October 2017 Chemo Starters

Morning ladies....hope u all had a restful nite...I left sea bands off last nite and debating whether to leave them off today!  Off to pick my wig up today!  Struggling imagining having to wear it yet...and also intrigued what I'm gonna look like hair less (don't like the word bald 😂) xx

Member

Re: October 2017 Chemo Starters

Amazingly I’m not bunged up which is a first for me! Although I didn’t go until Sunday morning but didn’t feel bad in that way. I eat a lot of veg and prunes and drink plenty
Member

Re: October 2017 Chemo Starters

Thanks Jay and Meesh! I’ll look those out 🙂
Wishing everyone restful nights xx
Member

Re: October 2017 Chemo Starters

Hi Reboot, I was warned about the constipation and they gave me some laxido sachets which I was told to use the day after chemo if I wasn't going as usual. They also recommended golden linseeds/ flax seeds (I got mine from holland & Barrett) but you need to be careful with them and introduce gradually as they can be quite strong apparently.

 

Ali, good to hear you are home that will make you feel much better!

Member

Re: October 2017 Chemo Starters

Hope you have a restful night Ali xx
Community Champion

Re: October 2017 Chemo Starters

Hi Reboot - I'm from May 2017 group and I've just seen your request for a gentle remedy for constipation. I too suffered when I was on EC and I found a natural remedy was prunes and prune juice. 4/5 with breakfast cereal and same amount later in the day - worked well.
Member

Re: October 2017 Chemo Starters

Fab news ali xx
Member

Re: October 2017 Chemo Starters

Home swert home amd all good. Now for sleep xc
Member

Re: October 2017 Chemo Starters

Thanks Cherry Bakewell good luck with round 2. Still no word from my unit on my dates but will try to be patient.
Mrsrims I am also nervous about nails and eyelashes - would love to hear any good tricks from anyone? I also plan to sit with pen and paper this evening to read through all the posts so I feel prepared. Just one day in the forum has made me feel better already 😌 Thank you ladies
Member

Re: October 2017 Chemo Starters

Hi everyone. Glad to hear Ali is out of hospital. Yay! I'm day 11 and felt great today. Obviously been careful not to over do it. I did too much on Friday and it floored me over the weekend. Getting my working from home stuff setup and got some telephone training tomorrow. Brain is getting quite bored now and ready to get some exercise!

Cassie x
Member

Re: October 2017 Chemo Starters

Hi Claire-bell, I’m only on day 3 so still early days. Your the first person I have come across that had these same symptoms which makes me feel a bit better. I guess they are just not so common so don’t get mentioned as much.xx
Member

Re: October 2017 Chemo Starters

Good evening ladies, I don’t feel as though I’ve logged on for ages! Hello to all the new names 🙂👋

I’m now two weeks after my first FEC and I am completely back to being me, it’s great! My next EC is a week today so I’m going to make the most of this week without wearing myself out. I’ve bought a FitBit so I can hopefully use these good days to boost my fitness a bit.

I haven’t lost any hair yet but my first turban, scarf and sleep cap order arrived today.

I do however seem to be struggling with constipation more than usual, does anyone have any gentle remedies please?

Thank you and love to everyone x
Member

Re: October 2017 Chemo Starters

 

Hi Claire-bell 

 

Hopefully now that you're on day 11 you'll find that they're all good days from now on, the worst will be over for this cycle. 

 

🍒 Bakewell xx

Member

Re: October 2017 Chemo Starters

Runnerbean- what day are you on! I had exactly those symptoms on Tuesday and Wednesday last week, and agin Friday and Saturday this week. The ups and downs are disconcerting but it's wonderful when you have a good day and feel half normal again Smiley Happy hugs xxC
Member

Re: October 2017 Chemo Starters

Good luck on Wednesday Cherrybakewell! I hated cold cap too but will try to persist - like you no hair loss yet just odd strands. Am now on day 11 so a week behind you. Managed quite a full day today, drive in to work and did three hours. Lovely to see everyone! Came back did school run and have just cooked dinner. I find it helps to eat regular meals but I know today was just a good day! Hope you all have some good days to enjoy this week! Hugs xxC
Member

Re: October 2017 Chemo Starters

 

Evening All!!!

 

Ali is out of hospital. Hurrah!!! So hopefully she'll be joining us later. Welcome Ruth. So sorry you've had to join the club 😒

 

Definitely give the cold cap a whirl. It's pretty grim (it made me sick during the actual chemo sesh - pretty sure it was the cold cap as I had no other nausea at all post chemo and I had fairly excruciating brain freeze for quite a lot of the sesh) but touch wood, it's day 20 and still no sign of massive hair loss. I'll probably wake up bald as a coot tomorrow now!! Ha. Noticed a few stray strands on my coat today but not sure if it any was more than I'd be shedding normally. I'm washing and brushing my hair so infrequently that I'm not getting rid of loose strands as I usually would. 

 

Chemo round 2 on Wednesday (bloods permitting), so it'll be interesting to see how the hair fares after that. Apparently it's the worst one for hair loss...

 

Cherry Bakewell xx

Member

Re: October 2017 Chemo Starters

Runnerbean, sorry to hear you're not feeling too great, rest up and hopefully you'll start to feel better.

 

karana, I also started to feel weird when I went to Tesco yesterday! I called the nurse today about feeling anxious as I seem to wake up with it and it continues in the morning but seems to go by evening time. She said that was quite normal during the first round and wasn't concerned. She said I could take some of the lorazepam they prescribed me but I'm not going to do that as it's not really that bad and those pills are addictive. I was wondering whether the anxious feeling is a withdrawal from all the drugs last week.

Member

Re: October 2017 Chemo Starters

Sorry you are still in hospital Ali, hopefully now it’s not the weekend you will be able to get the answers you need quicker. Welcome Ruth to the place no one wanted to come but it is a great support and everyone will understand what you are going through. I have been hit with fatigue really badly now. I’ve only been awake for a couple of hours in the last day or so and also have pain in my neck like my glands are throbbing. The nurses don’t seem concerned as my temperature is fine so just making the most of the extra sleep I’m getting for now. xx
Member

Re: October 2017 Chemo Starters

Welcome Ruth!!  I also have found this forum such help since starting chemo last Wed....although wish someone had told me not to eat Chinese last nite lol!!  I'm gonna attempt a veg bake for tea and add extra spinach...I can't stand liver or Guinness so won't be opting for either of those I'm afraid!!  Went to Tesco today and had to open a punnet of grapes before I got to checkout as started to feel very strange!!  

 

I also agree that that's a lot of wee sue!!!

 

How are you doing Sam?

 

xx

 

Highlighted
Member

Re: October 2017 Chemo Starters

Hi Ruth, you might be surprised by the short hair. My hair had been past my shoulders for about 20 years and when I had it cut everyone loved it including me! 

 

Good news about the liver, I'm not a huge fan but have eaten it fairly regularly over the last six months so will now add to the weekly diet.