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October 2017 Chemo Starters

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Re: October 2017 Chemo Starters

The red wee was so strange. At any other time it would send us straight to A&E.

Hoping to get out and about this weekend. Make the most of the nice weather.
Member

Re: October 2017 Chemo Starters

The red wee comes and goes very quickly.
Hopefully you will be at the 🍒Bakewell end of the side effects scale. Just take it easy for the rest of the day and drink loads x
Member

Re: October 2017 Chemo Starters

Just got out feel ok at the moment already got red wee lol x
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Re: October 2017 Chemo Starters

Hi Cassie, I've not had any afternoon naps at all either, although I have expect that'll change as I get further into the treatment. I'm also working from home this week and planning to go into the office next week. I was on steroids for the first 3 days after chemo but was told to take them all first thing in the morning (probably why no naps during the day)!

Member

Re: October 2017 Chemo Starters

My sleep pattern has been ok. Been getting around 8 hours per night. Only had afternoon naps the first couple of days after chemo. Though I didn't have any steroids to take after chemo so I think that helped. Last 2 mornings I've woken up with a headache which wears off. I tend to feel better later in the day. I've been working from home this week which has been good to keep my mind ticking over.
Member

Re: October 2017 Chemo Starters

Hi chaffinch, you're probably right with the doing more on the good days. I've been lucky as I seem to have good days all this week and am more or less back to normal apart from my sleep. I don't normally have a problem with that but I either can't get to sleep or I wake up at 3-4 and then can't back to sleep again. Last night I probably nodded off at about 12 but I did manage to sleep until 6.

Member

Re: October 2017 Chemo Starters

Best wishes SueW, Jelly Tot and mrsrims and any other chemo starters today.
I think the good day followed by bad day thing is true because we tend to seize the good days and do a lot so we pay the following day. I actually felt close to normal until just before bed last night then I crashed and felt queasy had some banana and yoghurt and went straight to bed slept well and just feel a bit tingly and tired this morning. My sleep pattern has returned to normal which is good but I’m having to be strict with myself to keep it that way. Bed at 11-12 up at 8-9 no naps. I find if I try to go to bed earlier I can’t sleep and once I’m awake that’s it.
Off out to see Hollie McNish a spoken word poet at our local literature festival tomorrow evening, I’m looking forward to it. It’s the only event which we booked this year normally we do quite a few. I’ll be the one in the corner in the surgical mask 😷 lol
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Re: October 2017 Chemo Starters

Runnerbean, I know the DVT must've been a big blow especially with thought of the daily injections but at least you're not too apart from that so that's something good to focus on!

 

Karana, I know what you mean about not wanting to look like a cancer patient. I have a crocheted slouchy hat I made last winter and plan to make some more I think, as I'm not really happy with the ones I've bought. I've been wearing it already as with the cold capping I'm only washing my hair once a week and by the end of the week it looks pretty rough!

 

let us know how you go today ladies!

Member

Re: October 2017 Chemo Starters

Like that idea Sue!!

 

i bet one of you will be asking the nurse if they have ever worked in Argos now 😂

 

Good luck girlies...look forward to hearing how you get on later xxx

Community Champion

Re: October 2017 Chemo Starters

Ladies

 

Just wanted to wish you all well with your chemo today.  Helena xxx

Member

Re: October 2017 Chemo Starters

Hi Meesh73, apart from the DVT I feel pretty good. The pain from that has gone with the medication so one week on the worst I can say is I’m still a bit tired and my throat is sore. I hope the next sessions follow a similar pattern as it gives me hope I can still get to do the things I enjoy while having treatment xx
Member

Re: October 2017 Chemo Starters

Yes a knitted woolly beeny hat 👍
Mrsrims also starts today I believe jelly tot good luck we can compare notes later 🤣 and I best not get an argos trainee either x
Member

Re: October 2017 Chemo Starters

Good luck to all those starting chemo today, it really won’t be as bad as you think. I have a busy day today including my first wig fitting. Don’t forget your drinks and something to entertain yourself. Hopefully no Argos trainees either! Xx
Member

Re: October 2017 Chemo Starters

Good luck Sue & Jelly tot 😘Sending you some positive vibes and smiley faces to help you 😊😊 

 

Hat wise are you talking woolly?  I'm not liking the idea of a wig all the time but also don't want to look like a cancer victim hat wearer!!!

 

Im worried I sound like an alcoholic too lol!!  I think it's just the fact I run a pub and i thought I'd find not drinking difficult...I think we are allowed the odd wine or g&t but people I have spoken to have said it has made them feel a bit strange and I think we have enough strange feelings to contend with!!  My brother has just messaged me to say he's making boozy cake for my Big Pink party next Friday 😱 

 

Have woken up this morning and everything feels dry...dry mouth, dry throat, dry eyes.....

 

xx

Member

Re: October 2017 Chemo Starters

Good luck to all todays starters xx
I seem to have a really good day then I'm shattered the next day! I have a cold and cough and feel achey and tired this morning. I wonder how i am going to get through 7 lots of chemo if this is all after 1. I am day 17 and my 2nd chemo is next Wednesday! Does anyone else feel like this pr is it just me xx

Member

Re: October 2017 Chemo Starters

Good luck Sue, Jellytot and everyone else starting today. We're all thinking of you!

 

Runnerbean how're you feeling today? I meant to ask yesterday, apart from the DVT how have you been feeling? 

Member

Re: October 2017 Chemo Starters

Good luck Sue and everyone else starting today. Am also en route and kind of keen to just get going. Hope I don't get an Argos trainee though !! Love to all xx
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Re: October 2017 Chemo Starters

Good luck Sue xxx
Member

Re: October 2017 Chemo Starters

Morning lovely people just en route to chemo 1 wearing a woolly hat knitted by my mom to keep my shaved head warm
Wore a wig last night when I went out for hubby birthday but my head was really hot lol xx
Member

Re: October 2017 Chemo Starters

Claire, that was my feeling x I wasn’t fussed about a wig at all, but having bought a pretty hat, it now all looks too ‘cancer patient’! I didn’t realise I wasn’t ready for that 😂

Cassie, I definitely need to try the screaming 😆😱

Ali, I absolutely love that analogy! I think I’ll use that with my son to help explain it all 🙂

Karana, I didn’t actually realise that I could drink during chemo! I was on antibiotics for a couple of weeks before it started and then just assumed, I think! I’m so conscious of my water intake, I haven’t even dared waste that space with a glass of red 🍷😂If you have a good non-alcoholic margarita recipe, I’d love that!!!

Love to everyone xx

(I haven’t seen Patchwork Girl’s name appear for a while? Is she OK?)
Member

Re: October 2017 Chemo Starters

Hi all,
I'm awake early again! So good to hear that your second cold cap was less awful than the first Cherry! I didn't like it at all and have been thinking of not having it the second time!
All new starters today- be confident, take a book, some cards, some snacks and a smile. It's going to be alright- we all did it and are still laughing, living and carrying on! It's a long day, good if you can have someone with you, but there's always someone in the chair next to you to share experiences with and the nurses have good advice. If cold capping take paracetamol half an hour before and concentrate on your deep breathing for the first twenty minutes then you will be back to chatting, texting and calling your friends and family and whether it's in for three or four hours you won't be bothered after that! Take a wide sweat band for your forehead too. Love to you all! Hugs xx
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Re: October 2017 Chemo Starters

 

Oh, my pube discussion was on the September thread so maybe I do have one side effect: chemo brain!! 

😬

Member

Re: October 2017 Chemo Starters

 

Evening Karana

 

Yes, what a strangely bonding experience going through cancer treatment is. As you say, discussing my pube status with complete strangers who, in the space of a few short weeks, have become close confidantes. 

 

Re. teetotal I've had no booze since September 16th (not that I'm counting!!) I love my cocktails but have decided I'm going to try and stack every card in my favour. No booze during treatment. (Maybe a glass at Christmas and my birthday.) But I'm going to research the very best mocktail recipes. I think I've always liked classic cocktails due to the interesting flavour combinations so I'm sure with a little effort I can create that aspect sans l'alcool. 

 

 

Member

Re: October 2017 Chemo Starters

Oh and I'm having a Think Pink party in the pub next Friday, have started selling raffles tickets today, better make sure I get some raffle prizes!!   Also gonna wear a pink wig!!  If anyone's in the Norwich area feel free to pop in 💖🦄 🎂 

Member

Re: October 2017 Chemo Starters

Only just managed to catch up on this afternoons/this eves posts and would like to say thank you for putting a smile on my face...it's so refreshing being able to converse with people that are going through, feeling & thinking the same!!!  When else in life will we be able to discuss pubes falling out with people we've never met (by the way I also haven't shaved mine coz want to see when they start falling out, bizarre I know!!)

 

Ive had a good day again today, went out for coffee with a couple of good friends and actually felt like I was a normal person!!  Only strange thing is my speech, I keep having to really concentrate on what I'm saying, it's a bit like when you've had 1 too many wines but your trying to act sober!!  Talking of wine i still haven't had any and don't even fancy it, that's 8 days without an alcoholic drink which is very unlike me, has anyone else become tea total? 

 

Good of luck again for starters tomorrow xxx

Member

Re: October 2017 Chemo Starters

 

Good luck Sue. I'm sure you'll take it totally in your stride as you did shaving your hair. And my very best wishes to anyone else starting their chemo. I promise you it won't be anywhere near as bad as you've built it up to be in your head. 

 

🍒 Bakewell xx

Member

Re: October 2017 Chemo Starters

Ali, I'm cold capping so in denial and trying to hang on to it! I keep hoping it'll be ok, but expecting it won't as I wasn't that confident that the fit of the cap was right or that they left it on for long enough (I had trouble as the first machine wasn't working and I only realised after 10-15 mins of having it on). Then there was a lot of faffing about switching machines, so not really sure what time I ended up getting it on. Anyway, I'm picking up my wig tomorrow and I have some hats, although not really sure about the hats (they seem too close fitting and make me look like I have a pea head and that's with all my hair still). I like your positive thoughts though so I'm going to pinch them and if my hair goes then I'll think of it as the leaves!

Member

Re: October 2017 Chemo Starters

Ali what a brilliant way of thinking 👍
Thank you all for your good wishes will update tomorrow x
Member

Re: October 2017 Chemo Starters

I am trying to make it doable Meesh. My path is fill of leaves - eventhough i dont have a garden or a tree! So as i was brushing them up the thought just came to me! How are you feeling about the hairloss?
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Re: October 2017 Chemo Starters

Ali, I like that thought about the hair going with leaves and coming back with the flowers. Very timely how lucky for us to be able to make that positive and lovely analogy! 

Member

Re: October 2017 Chemo Starters

Dont know why thats posted twice with a change in!
Member

Re: October 2017 Chemo Starters

Good luck tomorrow SueW and anyone else starting tomorrow. Remember to drink and have your sweets around. I have been ok today, day 16, and went for a lovely walk in the sunshine and a nice lunch with my friend. I even remembered to put sun lotion on!! I am also feeling tired Cassie and Claire. My 2nd treatment is the day before you.

I noticed this morning that my hairy legs are no longer hairy, my pubes are going and my hair has definitely started shedding. I had a little cry with my mum this afternoon!!

Anyway i have pulled myself together and said to my kids that we are going to think it can go now, in the Autumn, with the leaves and come back in Spring with the flowers!! As long as it doesnt come back like grass!

I just notices in a magazine that the up and coming trend this Autumn is the silk headscarf. Just like my mum used to wear, tied under the chin. What more could we ask for to keep our wigs on!
Hope everyone gets a good nights sleep xxx
Member

Re: October 2017 Chemo Starters

Good luck tomorrow SueW and anyone else starting tomorrow. Remember to drink and have your sweets around. I have been ok today, day 16 and went for a lovely walk in the sunshine and a nice lunch with my friend. I even remembered to put sun lotion on!! I am also feeling tired Cassie and Claire. My 2nd trestment is the day before you.

I noticed this morning that my hairy legs are no longer hairy, my pubes are going and my hair has definitely started shedding. I had a little cry with my mum this afternoon!!

Anyway i have pulled myself together and said to my kids that we are going to think it can go now, in the Autumn, with the leaves and come back in Spring with the flowers!! As long as it doesnt come back like grass!

I just notices in the Marie Claire magazine that the up and coming trend this Autumn is the silk headscarf. Just like my mum used to wear, tied under the chin. What more could we ask for to keep our wigs on!@
Hope everyone gets a good nights sleep xxx
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Re: October 2017 Chemo Starters

Evening all cherry as usual you have my laughing and make this path seem so normal 😂
Clairebell if you press on the persons name as long as you are logged in you get the option to private message them
Well I just been for a meal for the hubby birthday and going to try and have an early night ready for tomorrow however the 2 hour nap this afternoon might put a stop to dropping off to sleep easily x
Member

Re: October 2017 Chemo Starters

Hi Meesh

 

Good to hear that you didn't have too many side effects after your first sesh. Bodes very well as the nurse told me yesterday that your reaction to the first round tends to set a pattern for the following one but the side effects are usually fewer and milder the second time. Fingers crossed for you xx

Member

Re: October 2017 Chemo Starters

Hi Cherry Bakewell sorry but that really made me laugh, I'm sure it can't have been a very nice experience but I can just imagine an Argos trainee digging for potatoes in your veins! It's encouraging to hear you feel equally well after your second session. I too didn't really suffer too much after my first one so hoping for the same when I have my second in a couple of weeks. They also had trouble with the cannula in my hand (no trouble finding the vein or putting it in, just decided they wasn't happy with it) and opted to put it direct into my arm. The guy who put the one in my arm was brilliant there was no bruise at all and I didn't feel a thing! I hope it continues to go well for you.

Member

Re: October 2017 Chemo Starters

 

Evening Ladies

 

Not sure whether I should be posting here or in September starters but I know quite a few of you on here so I thought I'd just post a quick update on my 2nd chemo sesh. Couldn't post yesterday as I went out for dinner after my treatment (yeah, getting a bit cocky now!! 🤗)

 

As with last time the actual treatment day was somewhat eventful. I had a trainee chemo nurse putting my cannula in, unfortunately she made a bit of a bodge of her first attempt and I nearly passed out!! And cos she'd hurt the first vein she then had to inject the epirubicin (the scary, potentially flesh burning red drug) manually with a big plastic syringe which was pretty uncomfortable too. Not convinced she totally knew what she was doing. When I almost fainted she tried to take my blood pressure on my leg but that didn't seem to work either. I suspect she's actually a trainee at Argos but somehow ended up at Clatterbridge...

 

The magnificent news for all of you in the Cold Cap Club is that this time the cap was a much less harrowing ordeal. I think my electric throw really helped and I'd upped my painkillers from paracetamol to cocodamol.

Unbelievable really that it wasn't as bad because due to all the faffing about with my newby nurse I must've had it on for 4 and three quarter hours!!! 🙄 I better not lose one single strand this cycle!!!

 

Today, very little to report. Feel totally normal - not even my rosy cheeks this time. The only low point was having to attend a meeting with a new client and explain that I don't usually pitch up at meetings looking like I'm sleeping in the woods. I'm just glad that during my last oncologist appointment she announced that my lump had shrunk by half a centimetre or I'd honestly question whether the chemo was working!! 

 

Anyway, glad to see you're all perky as usual. Really sorry to hear about your picc line Runnerbean. I decided against one of those and despite my nurse apparently digging for potatoes in my veins yesterday, I'm still going to persevere with the cannulas now.

 

Cherry Bakewell xx

Member

Re: October 2017 Chemo Starters

Hi Reboot
I've had an itchy scalp all day today too. I realised today I don't want to loose my hair either and feel like you but I think I'm going to get a nice hat and not worry to much about a wig maybe? We will see! Hugs for you for Monday xx
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Re: October 2017 Chemo Starters

Reboot of course you can join. Everyone is welcome. Don't worry we'll all hold hands. The chemocoaster is like life. Every now and again you just have to throw your hands in the air and scream lol.

Cassie x
Member

Re: October 2017 Chemo Starters

Claire and Cassie, can I join your carriage please? My 2nd cycle is on Monday. Though I’ve always hated rollercoasters!!

Lots of love to everyone starting tomorrow xx

Sue, your FB announcement is beautifully worded, I wish I didn’t have to keep messaging everyone but at the same time I’m not ready for that yet.

My hair’s kind of aching today, I’m not sure I’m ready to start wearing the scarves yet. I really wasn’t worried about it in the build up to all this, but now it seems to be affecting me more than I thought.

Lots of love ladies xx
Member

Re: October 2017 Chemo Starters

Thanks for sharing your fb post Sue! It was really nicely written and covered everything! How do you dm people in the forum here? X
Community Champion

Re: October 2017 Chemo Starters

Good luck tomorrow Sue !!!!
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Re: October 2017 Chemo Starters

Thanks Debbie x
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Re: October 2017 Chemo Starters

Very best wishes tomorrow sue w on the start of your new journey,  and also to other ladies xx

Member

Re: October 2017 Chemo Starters

Chaffinch .... re ck I private messsged her and had reply yesterdsy she has been working and said she is on most right after chemo when she has to rest but has less time in her working days x
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Re: October 2017 Chemo Starters

Thanks for the best wishes for tomorrow, my chemo is at 11.30am. It is reassuring we all together on this 'chemocoaster' now the time is nearing I am terrified but your support means everything.

 

I will be drinking gallons of tap water tomorrow & over the weekend! 

 

I also had a problem with my picc line overnight like Runnerbean, hope you are ok now by the way.

 

After having it put in yesterday I had a 4 hour wait in my local a&e, my arm & fingers swelled I couldnt remove my wedding rings from my finger, after an examination I was sent home, the swelling has reduced today & seen a district nurse today & had numerous calls from the oncolgy nurses, I will be exmained tomorrow before the chemo too. 

 

Love to all xxx

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Re: October 2017 Chemo Starters

Cassie, I have only been shaving one armpit since my surgery as the guff I read said I shouldn't shave it anymore due to risk of infection in case you get a cut. Not that I've ever cut my armpits shaving but you know there's always a first time and it was bound to happen! Then I stopped shaving my legs and the other armpit because was told shouldn't when on chemo for same reason. I haven't bothered with my eyebrows for ages either as I figured they'd probably fall out.  So I look a right hairy state at the moment! I also popped on one of the monthly threads the other day and someone was talking about tamoxifen giving you facial hair, so I'm guessing I could end up looking like a bald hairy monkey with a beard too if my facial hair grows quicker than that on my head!

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Re: October 2017 Chemo Starters

Hi Runnerbean, sorry to hear you've had a rough time of it. I agree it is important to get things checked out if you're worried or not sure. That's what they get paid for, that's what my bcn nurse said they get paid to take care of our worries. My OH got a bit annoyed with me because I've phoned the oncology nurse about 4 times in the last week all about minor things but you just never know and I'd rather get things sorted quickly than let them escalate. Since I told him that some of you have ended up in hospital he has been a bit more understanding and asked me to phone them today to see if I could catch the flu from him when he has his flu jab Monday!

 

chaffinch, have you tried the September forum re: CK? When was her 2nd chemo?

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Re: October 2017 Chemo Starters

Anyone heard from CK since her latest chemo btw?
Not like her to be quiet, I’m a bit worried
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Member

Re: October 2017 Chemo Starters

Sorry to hear that Runnerbean, it’s a lesson to us all to get ourselves checked out if unsure about anything.
I told my Facebook peeps because I had found out by self examination following a documentary where a lady had been nagged by her friend to check herself. I decided to be the nagging friend and put the word out there and I made the post public too so that it could be shared too.
The bald hairy monkey comment made me chuckle.
SueW I’ve been thinking pink food too to up the donation level. Thought maybe bacon sarnies in the morning. Bacon is pink and we buy kilo packs of cooking bacon from Lidl which is usually really tasty bacon you just have to avoid the packets with big chunks instead of slices. We then cook it on trays in the oven and keep it in the fridge ready to microwave for breakfast. We thought that we could just take a load of bread rolls and the cooked bacon and people can help themselves, after donating obviously!
Might make some pink cakes for lunchtime too