Just got back from picking my wig up. It doesn't look too bad, my friend was really impressed. It just looks a bit bouffy on top so hoping it might calm down a bit. One of the curly ones did make me look like a little old lady with a dodgy perm! The one I've chosen whilst not completely perfect looks as near to my real hair as I'm going to get (still looks like a wig to me though). I wore it to come home as my hair and underneath looked atrocious and I didn't have a hat. So at least that's something else I've got out of the way! Sent a picture to my mum and she didn't realise it was my wig, just said I needed a haircut! OH just thought I'd done something different with my hair.
Well done SueW, yes I was surprised at how quickly I had the red wee, but it does go fairly quickly too, especially if you drink loads. I hope you are at the cherry end of the scales too for the SEs. Take it easy now the worst is over hopefully!
Just wanted to wish you all the best ladies on your chemo journey. I'm from the May 2017 starters and had my last of 8 FEC-Ts a week ago. It feels very daunting at the start but just keep looking after yourselves and it will all be behind you in no time at all. I did it and so can you. Feel free to pop over to our thread if you want to ask any questions. We're a lovely, friendly bunch and we all have a lot of chemo experience now. Best wishes and enjoy the weekend. Xxx
Hi Cassie, I've not had any afternoon naps at all either, although I have expect that'll change as I get further into the treatment. I'm also working from home this week and planning to go into the office next week. I was on steroids for the first 3 days after chemo but was told to take them all first thing in the morning (probably why no naps during the day)!
Hi chaffinch, you're probably right with the doing more on the good days. I've been lucky as I seem to have good days all this week and am more or less back to normal apart from my sleep. I don't normally have a problem with that but I either can't get to sleep or I wake up at 3-4 and then can't back to sleep again. Last night I probably nodded off at about 12 but I did manage to sleep until 6.
Runnerbean, I know the DVT must've been a big blow especially with thought of the daily injections but at least you're not too apart from that so that's something good to focus on!
Karana, I know what you mean about not wanting to look like a cancer patient. I have a crocheted slouchy hat I made last winter and plan to make some more I think, as I'm not really happy with the ones I've bought. I've been wearing it already as with the cold capping I'm only washing my hair once a week and by the end of the week it looks pretty rough!
let us know how you go today ladies!
Like that idea Sue!!
i bet one of you will be asking the nurse if they have ever worked in Argos now 😂
Good luck girlies...look forward to hearing how you get on later xxx
Good luck Sue & Jelly tot 😘Sending you some positive vibes and smiley faces to help you 😊😊
Hat wise are you talking woolly? I'm not liking the idea of a wig all the time but also don't want to look like a cancer victim hat wearer!!!
Im worried I sound like an alcoholic too lol!! I think it's just the fact I run a pub and i thought I'd find not drinking difficult...I think we are allowed the odd wine or g&t but people I have spoken to have said it has made them feel a bit strange and I think we have enough strange feelings to contend with!! My brother has just messaged me to say he's making boozy cake for my Big Pink party next Friday 😱
Have woken up this morning and everything feels dry...dry mouth, dry throat, dry eyes.....
Good luck Sue, Jellytot and everyone else starting today. We're all thinking of you!
Runnerbean how're you feeling today? I meant to ask yesterday, apart from the DVT how have you been feeling?
Oh, my pube discussion was on the September thread so maybe I do have one side effect: chemo brain!!
Yes, what a strangely bonding experience going through cancer treatment is. As you say, discussing my pube status with complete strangers who, in the space of a few short weeks, have become close confidantes.
Re. teetotal I've had no booze since September 16th (not that I'm counting!!) I love my cocktails but have decided I'm going to try and stack every card in my favour. No booze during treatment. (Maybe a glass at Christmas and my birthday.) But I'm going to research the very best mocktail recipes. I think I've always liked classic cocktails due to the interesting flavour combinations so I'm sure with a little effort I can create that aspect sans l'alcool.
Oh and I'm having a Think Pink party in the pub next Friday, have started selling raffles tickets today, better make sure I get some raffle prizes!! Also gonna wear a pink wig!! If anyone's in the Norwich area feel free to pop in 💖🦄 🎂
Only just managed to catch up on this afternoons/this eves posts and would like to say thank you for putting a smile on my face...it's so refreshing being able to converse with people that are going through, feeling & thinking the same!!! When else in life will we be able to discuss pubes falling out with people we've never met (by the way I also haven't shaved mine coz want to see when they start falling out, bizarre I know!!)
Ive had a good day again today, went out for coffee with a couple of good friends and actually felt like I was a normal person!! Only strange thing is my speech, I keep having to really concentrate on what I'm saying, it's a bit like when you've had 1 too many wines but your trying to act sober!! Talking of wine i still haven't had any and don't even fancy it, that's 8 days without an alcoholic drink which is very unlike me, has anyone else become tea total?
Good of luck again for starters tomorrow xxx
Good luck Sue. I'm sure you'll take it totally in your stride as you did shaving your hair. And my very best wishes to anyone else starting their chemo. I promise you it won't be anywhere near as bad as you've built it up to be in your head.
🍒 Bakewell xx
Ali, I'm cold capping so in denial and trying to hang on to it! I keep hoping it'll be ok, but expecting it won't as I wasn't that confident that the fit of the cap was right or that they left it on for long enough (I had trouble as the first machine wasn't working and I only realised after 10-15 mins of having it on). Then there was a lot of faffing about switching machines, so not really sure what time I ended up getting it on. Anyway, I'm picking up my wig tomorrow and I have some hats, although not really sure about the hats (they seem too close fitting and make me look like I have a pea head and that's with all my hair still). I like your positive thoughts though so I'm going to pinch them and if my hair goes then I'll think of it as the leaves!
Ali, I like that thought about the hair going with leaves and coming back with the flowers. Very timely how lucky for us to be able to make that positive and lovely analogy!
Good to hear that you didn't have too many side effects after your first sesh. Bodes very well as the nurse told me yesterday that your reaction to the first round tends to set a pattern for the following one but the side effects are usually fewer and milder the second time. Fingers crossed for you xx
Hi Cherry Bakewell sorry but that really made me laugh, I'm sure it can't have been a very nice experience but I can just imagine an Argos trainee digging for potatoes in your veins! It's encouraging to hear you feel equally well after your second session. I too didn't really suffer too much after my first one so hoping for the same when I have my second in a couple of weeks. They also had trouble with the cannula in my hand (no trouble finding the vein or putting it in, just decided they wasn't happy with it) and opted to put it direct into my arm. The guy who put the one in my arm was brilliant there was no bruise at all and I didn't feel a thing! I hope it continues to go well for you.
Not sure whether I should be posting here or in September starters but I know quite a few of you on here so I thought I'd just post a quick update on my 2nd chemo sesh. Couldn't post yesterday as I went out for dinner after my treatment (yeah, getting a bit cocky now!! 🤗)
As with last time the actual treatment day was somewhat eventful. I had a trainee chemo nurse putting my cannula in, unfortunately she made a bit of a bodge of her first attempt and I nearly passed out!! And cos she'd hurt the first vein she then had to inject the epirubicin (the scary, potentially flesh burning red drug) manually with a big plastic syringe which was pretty uncomfortable too. Not convinced she totally knew what she was doing. When I almost fainted she tried to take my blood pressure on my leg but that didn't seem to work either. I suspect she's actually a trainee at Argos but somehow ended up at Clatterbridge...
The magnificent news for all of you in the Cold Cap Club is that this time the cap was a much less harrowing ordeal. I think my electric throw really helped and I'd upped my painkillers from paracetamol to cocodamol.
Unbelievable really that it wasn't as bad because due to all the faffing about with my newby nurse I must've had it on for 4 and three quarter hours!!! 🙄 I better not lose one single strand this cycle!!!
Today, very little to report. Feel totally normal - not even my rosy cheeks this time. The only low point was having to attend a meeting with a new client and explain that I don't usually pitch up at meetings looking like I'm sleeping in the woods. I'm just glad that during my last oncologist appointment she announced that my lump had shrunk by half a centimetre or I'd honestly question whether the chemo was working!!
Anyway, glad to see you're all perky as usual. Really sorry to hear about your picc line Runnerbean. I decided against one of those and despite my nurse apparently digging for potatoes in my veins yesterday, I'm still going to persevere with the cannulas now.
Cherry Bakewell xx