That sounds a pretty good arrangement. I'm just doing as much as I can whilst I can. No idea what might be round the corner or how I'm going to feel by cycle 7 or 8 (😱) so not planning too far ahead at the moment. Work have been great though - it probably helps that one of the directors had cancer himself and underwent chemo back in the day, when I don't think they had the side effects as well under control. On that basis he seems to think I'm on Shi's kryptonite... Ha xx
thanks cherry x i have a wobbly belly lots of spare flesh
will update tomorrow think it just shocked me when my reminder came up on my phone with another set for 8am tonorrow lol x
Cherry I too have managed to have a fairly easy time of things for my first cycle, but was conscious of not trying to do too much. So have compromised by signing myself off for first week (and indulging myself with a week on couch and some walks) working from home the second week and then into office on the third week. Don't think work are expecting me to manage to work for the whole of my treatment but i agree it does give you something else to think about. 🙂
Please try not to worry about the injections. I know I thought that they would be the absolute worst bit of the whole treatment, as I am squeamishness incarnate but they're a doddle, I promise. The needle is so fine you hardly feel a thing. Definitely no pain whatsoever. Just find a wee bit of flabbiness on your tum, push the needle in and then the plunger. Simples!! 😜👍🏼 xx
SueW, sorry didn't have the injections so can't help. Ali and Shi are think did them so probably best to give tips on that! 🙂
Been catching up on all the posts and having a good chortle at Ali's tangled hairbrush story (that's no doubt what I looked like first thing this morning) and Ruth's Wee Jimmy Krankie hair reference.
Managed to survive the day with hair on head - despite ex-hurricane Ophelia's best efforts. Hacked at hair currently resembling one of the Bay City Rollers on top, so have finally decided enough of the bad hair days - Raquel is to be summoned from her shelf. Almost all of my aggro since starting chemo has been hair-related which is ridiculous and self-indulgent, particularly as some of you have actually had to be admitted into hospital and here's me still harping on about my damned hair!!! I may actually be admitted at some point myself as I shaved furry legs, armpits and tufty club with a razor this morning. Didn't even cross my mind I shouldn't be doing it!!! Jeez, this chemo lark takes some getting used to...
Anyway, very well done to Jencat and Reboot today. Jencat - the cold cap does get easier, although after this morning's matted fiasco I'm not its biggest fan at the moment. Ruth, I've carried on working during chemo - just off for my actual treatment days. I've found it fine and as my side effects have been mild to fairly non-existent it's no doubt helped to keep my mind off things. I'd say play it by ear though. I was quite blasé at the start but seeing people I know on the forum going into hospital has been a wake up call. I had been carrying on pretty much as normal but am now far more conscious of not doing too much...
Hi Ruth, gosh sounds like a busy week! I'm quite lucky with work as I can work from home, so did that last week (when immune system at lowest), then in the office this week. I have found it ok but do find it difficult to focus sometimes. My team are so busy at the moment that I think work are probably just happy with anything I manage to do! I am also making sure to spend time having a proper lunch break and went for a walk today too. To be honest if I didn't have the chemo still on my mind it almost felt normal today, which is good 🙂
Well done Jencat, sounds you like had a pretty rough day! As others have said take meds, drink loads and rest up now!
Reboot, well done on 2nd chemo, how did it compare to the first?
so glad to see you on here keeping us updated well done and big hugs x take meds when you should and plenty of fluids xx
I am having my picc fitted next week before next chemo on 3rd November so its not all done on the same day
Glad it went OK for you today☺
Make sure you take your anti sickness meds and let others look after you!
Sending a hug
Hi everyone, I'm back home! Thank you all very much for your good wishes x
It's been a long day as I had to be at the hospital at 9am for the PICC line to be fitted and it was after 5 before we left to come home.
PICC line fitted okish, my vein went into a spasm (?!) and so had to put it into a slightly different place. Surprisingly they let my daughter stay with me, which was great. I misheard them at one point and thought the nurse said she was going to cut my arm. My daughter said my eyes were as round as saucers! (That's all she could see over the cover) The nurse was actually talking about the line!
Bit of a mix up over the time, we were told 12pm, but unknown to us the hospital had changed it to 3pm! Fortunately as it wasn't busy they managed to fit us in, but still had to wait a while as the cold cap machine wasn't plugged in.
Cold cap was a bit of a shock as I'd misread the info about it and thought I just wore it at the beginning and end of chemo and not all the way through it! When it was first put in I must admit I didn't think I'd even do 5 minutes, but it definitely got easier after a while.
It's been a long day, but not feeling too bad apart from a bit tired and feeling a bit queasy and arm still feels sore. ED preparing dinner, feel hungry, but don't really fancy anything! xx
Chaffinch, yes my next one is next Tuesday (24th). Using my good days for work (probably not the best plan) but I have to look willing especially after my promotion last week.
Cassie, are you all stocked up and ready for Thursday? Having a wedding to look forward to is certainly a good thing!
Ha ha Shi, that made me chuckle!
No wonder they say you get dry skin, with all the hand washing I'm doing, I'm not surprised! Think this chemo might give me OCD!
Hi Claire-bell, if you find where they are running the LGFB you might find you can also access other stuff too. I'm lucky as there is a cancer charity centre at my local hospital and they signed me up for LGFB plus reiki as well. Just ask them what else is available to you, my centre was great and they're all so nice &friendly.
Claire bell here is the link
ps my amazon comment was for Manuka honey in case i canfused anyone lol
i just ordered some off amazon (used prime so will come tomorrow) £14 for bigger jar
they did a half size at £8.50
I would have gone to Aldi but my local one is closed for a refurb x
Cassie, I'm booked on LGFB course next Thursday, its two days after 2nd chemo so hoping I'll feel ok. They've said I can book onto the next one if not but that's not until end of November, so would like to go next week if I can! Sounds amazing.
I was looking at the manuka honey yesterday in H&B it's half price at the moment but still about £18. Perhaps I might try the Aldi one, although Ali you're right I wonder if it's the real thing? Just got home from work, did ok but it's tougher than working from home and I don't seem to get as much done! Kept washing my hands and using my anti-bac hand wash, paranoid about picking up a bug from someone. Nice to see people though.
Cherry how did you go at work today, did anyone comment on your hair!
not done mine yet Shi so dont know how long but if there is one local to you book in asap as mine is not until December ... 1st available spot x
here is the link you can put in your postcode and find your nearest one x
glad you enjoyed the course mine is booked for 6th December so got that to look forward to though i havent recieved the confirmation letter yet they said they would send perhaps it will be nearer the time x
I saw that honey in Aldi today...now wished I'd brought it!! It was with the chi seeds and linseed etc!! Do you take it every day just on its own?? Xx