66.5K members
1.2M posts
cancel
Showing results forΒ 
Search instead forΒ 
Did you mean:Β 

October 2017 Chemo Starters

SueW
Member

Re: October 2017 Chemo Starters

Morning all sorry I dropped off forum yesterday I spent the day being a cat 🐱 and just πŸ’€
Well done to those who had treatments,
Good luck today Cassie
Glad picc was successful
marg hope you feeling better today
Shi hope you are well this morning at home
In advance if I haven’t named you individually not personal a lot I trying to catch up on lol xx
Wishing you all a sparkle dancing unicorn day x πŸ‘πŸ¦„πŸ¦„πŸ’ƒπŸ’ƒπŸŽ‰πŸŽ‰ oh and butterflies πŸ¦‹ and rainbows 🌈 might as well throw them in our mix xxx hugs ladies
Ali49
Member

Re: October 2017 Chemo Starters

Karana you can have your wig styled to suit you. You should be able to get it done at the place where you got it. I have short hair (or should i say had!!) And when i got my wig the girl picked a mid length wig and cut it to my style. Before thst i was trying on short wigs that looked like old ladies wigs. So far mine is a great success. Xxx
karana23
Member

Re: October 2017 Chemo Starters

Glad your home Shi and looks like we will be cutting our hair the same day πŸ’‡ I just tried my wig on and really don't think I'm gonna like it...I just don't look right...what ever that is!!  I've been telling everyone I've seen today that my hairs on the way out then pull it to show them...I think I secretly like shocking people 😱 Maybe it's my way of dealing with it?

 

sending you all positive healthy vibes and sparkles πŸ’«πŸŒŸβœ¨πŸŒŸβœ¨πŸ’«

Chaffinch17
Member

Re: October 2017 Chemo Starters

Well done on the Picc line and good luck for tomorrow Ruth.
Glad chemo 2 went smoothly Ali, hope you have a restful night and the anti nausea meds do their thing.
Have a lovely night in your own bed Shi,
Night all ready to do normal tomorrow 😊
Shi
Community Champion
Community Champion

Re: October 2017 Chemo Starters

Thanks ali is it pasteurised? I am wary if not as I am obviously the light weight in the chemo stakes, floored at 1st attemptπŸ˜±πŸ˜±πŸ˜±πŸ˜±πŸ’•πŸ’•πŸ’•πŸ’•πŸ’•βœ¨βœ¨βœ¨βœ¨shi xx
Shi
Community Champion
Community Champion

Re: October 2017 Chemo Starters

Ruth, sorry I just read down a bit, so pleased your picc went in ok, I was fixated on that wig of yours. Have you gound That bit of leopard print yet too πŸ˜πŸ˜πŸ˜πŸ’•πŸ’•πŸ’•βœ¨βœ¨βœ¨βœ¨βœ¨shi xx
Ali49
Member

Re: October 2017 Chemo Starters

I got kine through amazon Shi x
Shi
Community Champion
Community Champion

Re: October 2017 Chemo Starters

😘😘thanks jencat, how are you feeling? Ok I hope 😘😘😘1st one’s done now and we’ll all get each other through this journey😁😁πŸ’ͺπŸ’ͺπŸ’ͺπŸ’ͺbecause together we are stronger πŸ’ͺπŸ’ͺπŸ’ͺand πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚and πŸ’ƒπŸ»πŸ’ƒπŸ»πŸ’ƒπŸ»πŸ’ƒπŸ»πŸ’ƒπŸ»πŸ’ƒπŸ»πŸ•ΊπŸ•ΊπŸ•ΊπŸ•ΊπŸ•Ίwhen we need to to dance it all better, the dancing got me home πŸ€—πŸ€—πŸ€—πŸ’•πŸ’•πŸ’•βœ¨βœ¨βœ¨love shi xx
Jencat
Member

Re: October 2017 Chemo Starters

Glad you're home now Shi Smiley Happy xx

Shi
Community Champion
Community Champion

Re: October 2017 Chemo Starters

Hi ali, I will be ordering that tomorrow where did you get yours from please. Glad your 2nd one going ok, i hope we all have good rounds 2,3,4,5,6 and if anyone’s got 7&8 too. 😘😘😘😘good luck cassie😘😘😘😘having each other will see us all safely through every twist and turn this throws at us❀️❀️❀️❀️Because everyone’s amazing and kind and crazy and we all have chemo brains for the next few months πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚love to everyone πŸ’•πŸ’•βœ¨βœ¨βœ¨shi xx
Ali49
Member

Re: October 2017 Chemo Starters

Yay Shi! Glad you're home. Get your pasteurised coconut water, eat fruots that you can peel - especially kiwi - and if you can afford the life mel honey give that a try too. Lets boost these White cells!

Chemo 2 went smoothly and quicker than the 1st. The onc told me i was not neutropenic when in hospital and they only lep me in as a precaution - it was the weekend and specialist nurse wasnt in til Monday! Anyway round 2 now and i am well equipped. Feeling a bit sickly and tired so tucked up in bed watching tv!

I am actually loving my number 4 haircut and wig and now realise that fellas definitely get the easier deal on the hair front!

Marg if the don peridone dont work ask for cyclizine - it worked for me. Hope you feel much netter soon xc

Good luck tomorrow Cassie - it is easier 2nd time round. Hope everyone has a good night sleep. Thank goodness for this forum xxx
Shi
Community Champion
Community Champion

Re: October 2017 Chemo Starters

Thanks Ruth, Or is it going to be Nikita you get it, it looks very Bridget Fonda (janes niece) when she played Nikita in that film with Gabriel Byrne from the early 90’s, I am going to check out that website tomorrow, might treat myself to another one after my casa nhs stay πŸ’•πŸ’•πŸ’•βœ¨βœ¨βœ¨βœ¨shi xx
Ruth07
Member

Re: October 2017 Chemo Starters

Shi
Community Champion
Community Champion

Re: October 2017 Chemo Starters

Thanks Ruth, let me know when your wig arrives, which web site was it again please, so I can have a lookπŸ˜˜πŸ˜˜πŸ˜˜πŸ’•πŸ’•βœ¨βœ¨βœ¨shi xx
Ruth07
Member

Re: October 2017 Chemo Starters

Gosh Shi so glad you came out of hospital safely πŸ€—πŸ€—πŸ€— stay well and keep looking after yourself 🌈🌈
Shi
Community Champion
Community Champion

Re: October 2017 Chemo Starters

My shaver is a Braun silk epic, it’s pink and white and got it from sainsburys, good for underarms and legs for those who have had our ops before chemo. Good luck tomorrow Cassie. Just read my discharge paper work and it was neutropenic sepsis!!!!!! They just told me I was neutropenic while I was in there with high risk of sepsis, not that I actually had it, and there is another 5 round of this to get through😱😱😱😱😱😱😱😱so please ladies anything you don’t feel is right even without a temp rapid response Make that fuss as it could save your life, better to keep safe on the chemo train and all get through keeping each other safeπŸ’•πŸ’•πŸ’•βœ¨βœ¨βœ¨βœ¨βœ¨shi xx
Meesh73
Member

Re: October 2017 Chemo Starters

Ruth, yay for the picc line, good luck for your first chemo tomorrow, sending you some of Cassie's πŸ¦„πŸ¦„πŸ¦„ hugs, Shi's ✨✨✨✨✨🌟🌈 and your Saturday night fever dances πŸ•ΊπŸ»πŸ•ΊπŸ»πŸ•ΊπŸ»πŸ•ΊπŸ»πŸ•ΊπŸ»For luck!

 

Chaffinch, I was thinking the other day that this is not a disease for the vain! It's complete madness really. 🀑

 

Got my flu jab tomorrow 😬

Ruth07
Member

Re: October 2017 Chemo Starters

Dizzy great news it wasn't your bloods - hope you have a better night tonight 🌈
Ruth07
Member

Re: October 2017 Chemo Starters

Chaffinch just saw you are heading in to work tomorrow - good luck πŸ’ͺπŸ’ͺπŸ’ͺπŸ’ͺ
Ruth07
Member

Re: October 2017 Chemo Starters

Evening lovely ladies what have I missed?

Hooray for the PICC (only in chemoland do you cheer when you have a plastic tube in your veins that practically reaches your heart!). Third time lucky with the consultant radiologist and second vein tried. Apparently the usual vein they like to use is a bit too bendy in my case!! Seems like it is a good job the nurse didn't try any harder yesterday or she would have ruptured a vein and caused quite major internal bleeding!!! So all set and ready for chemo tomorrow.
Cassie come and visit me in the carriage behind if you get the chance πŸ˜‰

Dancing to the radiologist seems to have done the trick so am going to dance my way to chemo now πŸ•ΊπŸ•ΊπŸ•ΊπŸ•ΊπŸ•ΊπŸ•ΊπŸ•ΊπŸ•ΊπŸ•ΊπŸ•ΊπŸ•ΊπŸ•ΊπŸ•Ί (The bee gees and staying alive seems a suitable sound track) I have decided that I will fully embrace the power of positive thinking and sparkles ✨✨✨

Best wishes and warm thoughts to everyone this evening X
Chaffinch17
Member

Re: October 2017 Chemo Starters

Day 15 for me so expecting it to start any day now. Still seems unreal, can’t wait for hairy legs to be smooth again, but having held out so far I will stick it out! Silly how conditioned we are with these things but it just feels wrong which is mad, we naturally have all of this hair so why can’t we wait to lose it but get upset about losing our head hair. We are victims of customs and fashion 😞
Good luck for tomorrow Cassie x
Meesh73
Member

Re: October 2017 Chemo Starters

Good luck for tomorrow Cassie, hope the chemo treats you kindly! Sending you some of your πŸ¦„πŸ¦„πŸ¦„ hugs and Shi's sparkles ✨🌟🌟🌈🌈✨🌟✨🌟for good luck!

 

Chaffinch, I've been worried about that too! One of the girls was quite surprised when I told her how quickly it can fall out, although I think she's expecting me to go bald overnight πŸ™„Luckily at the moment seems like cold cap might have worked a bit. I'm still losing some hair (but not in handfuls) so we'll see if it hangs around for the duration.

 

Karana, My Norfolk hairy legs are still intact too! ☺️

WhyteFawn
Member

Re: October 2017 Chemo Starters

Hope you're back home now Shi.

Chaffinch what day are you on now? This is last day of chemo 1 for me back in for second dose tomorrow. Moat of my hair has gone there's just a light covering now. My scalp is starting to get a little sore especially round the crown where pretty much all the hair has gone. Been wearing soft caps most if the day. I got a sleep cap off Amazon I think it was about 6 or 7 quid. Not expensive but it's really comfortable. Might go and buy a couple more. Wore my bakerboy hat out to tea tonight. Felt a bit daft but I'm sure I'll get use to it lol

How's everyone this evening?

Sending unicorn hugs πŸ¦„πŸ¦„πŸ¦„
DizzyBrummie
Member

Re: October 2017 Chemo Starters

Great news Shi βœ¨πŸ’–
Shi
Community Champion
Community Champion

Re: October 2017 Chemo Starters

❀️❀️❀️❀️❀️finally Home, thank you all so much, dizzy great news your bloods all ok, really pleased for you. Karana, i’m Clippering mine off on Friday, just in case I end up back in casa nhs, that really upset me yesterday when I thought I’d have to do it there instead of by myself at home, you do what you want your way, it’s your hair 😘😘😘😘I’ve got a big pile of washing to do and I am so happy to put the washing on 😁😁😁😁it’s like winning the lottery. Much love to you all πŸ’•πŸ’•πŸ’•πŸ’•βœ¨βœ¨πŸ’ƒπŸ»πŸ’ƒπŸ»shi xx
Chaffinch17
Member

Re: October 2017 Chemo Starters

I hope all went well, Ali & Ruth too.
My hair is still firmly in place. Feel a bit tingly, not sure if that’s all the hair follicles about to release at once. I suspect it will happen at about 9am tomorrow as I sit down at my desk for the first time in 17 days!
Meesh73
Member

Re: October 2017 Chemo Starters

Also meant to say Ali, hope session 2 went ok for you.

 

Ruth hope you managed to get you picc line fitted!

DizzyBrummie
Member

Re: October 2017 Chemo Starters

Hi everyone.

Ace news on coming home Shi!

Haven’t had chance to catch up today but hope everyone is well.

After feeling fished all night with a higher temperature I went in to have my bloods checks earlier. Feels like I have flu but apparently it’s a side effect of having the WBC boost injection. Bloods came back fine so quite relieved but still feeling flu-y and knackered. Here’s hoping for a good day 7.

X
Meesh73
Member

Re: October 2017 Chemo Starters

Evening ladies! Hope everyone has had a good day. 

 

Reboot, good job on the hair!

 

Karana, well done on the hair wash, can imagine its quite traumatic at the moment. I know mine was on Monday (I cold capped but quite a bit come out Monday), I'm in a state of constant "did it work or not?" πŸ˜•

 

Shi hi hope you got home safely and are being well looked after after your stay at casa nhs.

karana23
Member

Re: October 2017 Chemo Starters

Oh and well done reboot!!!!xxx

karana23
Member

Re: October 2017 Chemo Starters

My hair survived the wash, blow dry and even a quick whip with the straighteners, although I had very hairy body and legs by the time I finished 😱 I'm now seriously debating having it shaved on Friday during my Big Pink Day...I think I wld deal with that better than having it done privately then having to face customers!!!  Some people think this is a mad idea but I quite like being mad!!

 

Big congrats Shi but please take it easy as you don't want to end up back there!!! Definitely think all our sparkles helped ✨🌟✨🌟✨🌟

 

Chaffinch...hope you find a solution with the in laws soon...must be a big worry!!!!

 

xxx

 

Shi
Community Champion
Community Champion

Re: October 2017 Chemo Starters

Lol sue welcome to chemo brain, I wrote out a recipe for my mum before my casa nhs stay and wrote flour as flower, Mum said when I passed it to her, how do you spell flour? I said flour, she said then why have a spelt it flowerπŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚chemo brain, blame it all on chemo brain now, it’s allowed 😁😁😁😁😁love shi xx
SueW
Member

Re: October 2017 Chemo Starters

Lol I think I actually have dementia sometimes I have conversations with myself where I am out the othersde and my hair has grown back beautifully and I am about to go on holiday to celebrate x
Positive focus and all that x
Shi
Community Champion
Community Champion

Re: October 2017 Chemo Starters

Sue dementia from Adams family, you made me πŸ˜‚πŸ˜‚πŸ˜‚because I’ve got in my head when I do mine, i’ll Be rocking a fester from Adams’s family πŸ’•πŸ’•πŸ’•πŸ’•πŸ˜˜βœ¨βœ¨βœ¨βœ¨βœ¨shi xx
Reboot
Member

Re: October 2017 Chemo Starters

Thanks Sue, I thought I was organised but I feel the need for more πŸ˜‚
Shi
Community Champion
Community Champion

Re: October 2017 Chemo Starters

Silk pillowcase too kinder to scalp and regrow the was a tip someone gave me reeboot xx
Shi
Community Champion
Community Champion

Re: October 2017 Chemo Starters

Reeboot, that’s wonderful and the buzz cut is in for autum winter fashion ladies, we can look on trend a bit while we go through this ✨✨✨✨✨sparkle celebrations for reeboot s new Sinead do 😘😘😘😘😘😘love shi xx
SueW
Member

Re: October 2017 Chemo Starters

Reboot I got turbans and sleep caps on eBay really cheap but depends on how quick you want them x
I also went into city centre and got some bandanas from Claire’s accessories x
I also got a cheap thermal beany hat from Tesco x but started ordering a while ago so I was prepared x
Still convinced when I go bald I will look like dementia from the Addams family but I am cool with that πŸ‘x
Shi
Community Champion
Community Champion

Re: October 2017 Chemo Starters

Thanks Ruth, has your call girl wig arrived yetπŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚love shi xx
Reboot
Member

Re: October 2017 Chemo Starters

I did it! I am now sporting the Sinead O’Connor look, though my mum thinks I look like Tintin πŸ™ˆ I suddenly feel the need to buy more hats! Where have people found the best sleep caps?
Shi, I’m so relieved for you! Onwards and upwards now xx πŸ’ƒ πŸ’ƒ
Marg, Domperidone are wonderful things, I hope they sort you out and you don’t have this next time x
Sue, you’re right, it is empowering, though a tad chilly round the house πŸ˜‚
Love to everyone xx
Ruth07
Member

Re: October 2017 Chemo Starters

Fab news Shi πŸ•ΊπŸ•ΊπŸ•ΊπŸ•ΊπŸ•ΊπŸ•ΊπŸ•ΊπŸ•Ίβœ¨βœ¨βœ¨βœ¨βœ¨πŸŒˆπŸŒˆπŸŒˆπŸŒˆπŸŒˆπŸŒˆπŸŒˆβ™₯️β™₯️β™₯️
Shi
Community Champion
Community Champion

Re: October 2017 Chemo Starters

Thanks everyone, I’ve still got to be vigilant as still on the very low side, but yeeehhhhh going Home, I hope with all my heart none of you end up in casa nhs for any lengthy periods, but know this the ladies on these forums will pull you through with, love, laughter, kindness and care, you will never feel alone and even when it gets scarey if they tell you you are at high risk of sepsis infection like they did me, the ladies here will keep you strong even on wobble days ( day 5 was my wobble day yesterday) love you all and we are on the chemo train together and we will make sure we all get to end of this and the rads and any ops anyone has yet to take. Much love and sparkles and πŸ’ƒπŸ»πŸ’ƒπŸ»πŸ’ƒπŸ»πŸ’ƒπŸ»πŸ’ƒπŸ»πŸ’ƒπŸ»πŸ’ƒπŸ» Which appears to have worked thank again πŸ’•πŸ’•πŸ’•βœ¨βœ¨βœ¨βœ¨βœ¨shi xx
Marg
Member

Re: October 2017 Chemo Starters

Sorry Shi should have sent congratulations also .... must have been horrible in hospital & so glad to hear that your blood count has improved . Sending lots of love & healing thoughts πŸ’•xxxπŸ’•
Chaffinch17
Member

Re: October 2017 Chemo Starters

Great news Shi πŸ˜Šβœ¨πŸŒ€πŸ’ƒπŸ‘
Marg
Member

Re: October 2017 Chemo Starters

Thank you everyone should have got them sooner .... live and learn eh but hopefully should see an improvement . So lovely to read all your comments feels so less alone in it all .thanks again everyone πŸ’•xxxπŸ’•
Meesh73
Member

Re: October 2017 Chemo Starters

Hello marg, sorry to hear you've been feeling bad! ☹️I was told to tell them straight away about sickness as it's harder to stop once it starts than preventing it in the first place! although it now sounds like you're getting it sorted 😊 Hope you feel better soon.

SueW, I also had 3 days of meds to take after chemo, didn't really suffer with tiredness I was just really anxious & jittery when I came off meds. Just listen to what your body needs and rest if you need it! No-one will mind you snoozing 😴
Meesh73
Member

Re: October 2017 Chemo Starters

Hoorah Shi! So pleased for you! πŸ•ΊπŸ»πŸ•ΊπŸ»πŸ•ΊπŸ»πŸ•ΊπŸ»πŸ•ΊπŸ»πŸ•ΊπŸ»πŸ’ƒπŸ’ƒπŸ’ƒπŸ’ƒπŸ’ƒπŸŒŸβœ¨πŸŒˆπŸŒŸβœ¨πŸŒˆ We're all going to πŸŽ‰! Must have been all the positive vibes and sparkles ✨✨✨✨✨we sent you!
SueW
Member

Re: October 2017 Chemo Starters

Shi yay yay yay 🎈 celebrations πŸŽ‰ xxx
Shi
Community Champion
Community Champion

Re: October 2017 Chemo Starters

Hi marg, sorry to hear you’ve had πŸ™with the sickness, have you tried ginger biscuits? Reeboot how the clip clip coming along? Are you copying Ruth who’s sporting her sharon Stone look? 😁😁and good news ladies my counts up and my 6 days at casa nhs nearly over they are letting me home, I’ve hot to keep eye on things though, thank you all so very much for keeping me with constant company with laughter, smiles, whit and love and support during a very emotional time, I love you all. πŸ’•πŸ’•πŸ’•βœ¨βœ¨βœ¨βœ¨shi xx
SueW
Member

Re: October 2017 Chemo Starters

Marg glad to see you sorry it’s been a bit tough for you
I was on steroids they finished. though to be fair I am quite good at napping so going with the flow
good luck with hair clippers reboot I found doing brave the Shave empowering rather than traumatic but that was my way of dealing and everyone different xx
Ali you made me lol x thank you 😊
I got some scarves think I will you tube later xx