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October 2017 Chemo Starters

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Re: October 2017 Chemo Starters

Hi Jem x

Good luck for today BuddyFan x
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Re: October 2017 Chemo Starters

So sorry you are in casa NHS Cassie. Here is my little dance to hopefully get you home as soon as possible. 🕺🏼🕺🏼🕺🏼🕺🏼💃🏼💃🏼💃🏼💃🏼 Day 3 of second cycle for me so back to the dreaded injections. First signs of any pain in my hips and back this time and I will be asking for stronger painkillers. Also husband has a cough and cold and not sure how worried I should be about catching it? He’s banished to the spare room for sleeping but still managing to wake me up in the night! xx
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Re: October 2017 Chemo Starters

Just to add I am on daily lansoprazole (similar to omeprazole) - I think you could take it at any point if the acid has built up in your stomach. Because the antiemetics stop some bowel movements it can mean the acid has no where to go - always worth a chat with the gp xxx
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Re: October 2017 Chemo Starters

Hi Jem welcome - our phones can be a little unpredictable on the forum so watch out for the predictive text 😁
A few of us had acid reflux and sore throats in the first few days part of it is a possible side effect from the antiemetic particularly the domperidone if you are taking that. Just keep an eye on it in case you need to switch (quite a few if us switched). I am also on a PPI for the reflux now but I know a few of the girls successfully used some over the counter antacids - might be worth a call to your gp or BCN just to manage things early? We have all found it good to check in with our health care teams early if we think there might be a problem

Also lots of advice about mouthwashes if you want to scroll through our thread. Hope you feel better soon ♥️Ruth
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Re: October 2017 Chemo Starters

Hi Jem16 -normal Rennies are fine but also your team can give you a once a day antacid like omeprazole - may be too late for this cycle but next one they can offer this for a week over the worst days. If it is your actual mouth and throat then you can be prescribed benzydamine mouthwash or others swear by corsodyl that you can get yourself. I managed just with warm salty mouthwashes on the first 2 cycles then had benzydamine this time as had a lot of ulcers xx take care xx
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Re: October 2017 Chemo Starters

Meesh I have decided to go the no wash route to see what happens 😳 Have straight hair though so probably a little less troublesome than yours 😊 Although the conditioner from the cold so will have to be washed out!! I am planning to take my own conditioner in this time as can't really vouch for the chemicals in theirs! Plus it was really perfumed and the smell haunted me for days 🤢🤢
🤞 Your hair stays put after this cycle xx
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Re: October 2017 Chemo Starters

Hi guys, I’m new to this and not quite sure how to comment using my phone! Lol I started first chemotherapy last tues and had really bad nausea for the first few days, which had thankfully seems to have gone for time being but I’ve now got a burning throat; a bit like acid indigestion but not repeating on me if that make sense! Any tips or do you know if I can take normal rennies?
Shi Community Champion
Community Champion

Re: October 2017 Chemo Starters

Meesh glad your hair has survived the wash great news.  Lost a bit more with the wash today think it'll be full on bald by this time next week.  It'll be interesting to see what colours and if we end up curly when it all grows back wont it ladies.  Karana, agree buttering duties for oh for him then and also a bit of cleaning you need to avoid germs.  Mrs Meow, you have a good water company very very good service.  I am a woossy needle phobe no more and have just done my 1st injection on my own, funny how 6 days of being a pin cushion in casa nhs toughens you up isnt it.  Dizzy thats a relief for you that your daughter has gone off the sparkles this year for halloween bet her cosume is amazing.  For those of us with cats, is it just my cats that have forgotten how to use the cat flap because you are in they see you as their own personal back door opener?  or am I just too soft with them.  They've had me up and down like a yo-yo today and its only 10.15.  I've let them out, they then use the cat flap to come back in and then they want me to let them out the back door again.... I didnt expect at the start of 2017, I'd be playing door games with the cats by end of Oct.   Ladies have we agreed a destination yet where we are going to meet up?  We need to find a food place for us to book, unless we are all still craving the Maccy D's by then.  Speaking of Maccy D's I'm having one tonight, been craving one since Jencat had one the other day and can resist the craving no longer.  Has anyone risked a wig off amazon?  I've been having a look and see one thats under £20 that I might take a chance on.  Im not going posh wig shopping till the chemo's done.  Has anyone got a lgfb course this week?  Is anyone leaving it till after chemo before they go on it?  Cassie, hope you re ok sweety.  sending lots of love and sparkles and get better dancing Shi xx

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Re: October 2017 Chemo Starters

Morning ladies morning mrsmeow

Cassie so sorry to hear you have been booked in to casa NHS here is my big jig to help you get better
🕺🕺🕺🕺🕺💃💃👯👯👯👯🕺🕺🕺🕺👯‍♂️👯‍♂️👯‍♂️💃💃💃💃✨✨✨🌈🌈🦄🦄🦄🦄🦄🦄🦄

Hope today is going to be a good day for everyone ♥️♥️
Good luck with chemo two today BuddyFan 🍀🍀🍀🍀🌈🌈✨✨

I plan to try a little walk and then some admin and hope that this week can feel like a little lull in the storm. Also hoping to get my healthy diet back on track as last week was definitely all about the comfort food!! Wig fitting on Saturday which I feel a little wierd about. Am hoping to find something that will help carry me back into a normal working life when this stops and will be presentable at meetings and things without feeling like I am the cancer patient in the room. My eye lashes have definitely started thinning 😕 The one thing I hoped I might keep but no hair movement anywhere else although based on the reports from you lovely ladies I know it is a bit early (day 12).

Is it wierd that the thing I am most excited about this cycle is the time I feel safe enough to just go sit in a nice cafe and have a cup of coffee and read a book or better still a nice mindless magazine. Oh the simple things!!

♥️🌈♥️🌈Ruth xxx
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Re: October 2017 Chemo Starters

I’m still secretly dancing about him not golfing so yes he will be buttering bread! He has staffed it well just the preparation I will need to supervise, and shopping!!

I’ve been using mouthwash the hospital gave me but maybe shld switch to corsodyl ?? Keeping eye on temp and it’s ok at the minute!

Meesh glad you’ve got nice clean hair now 🤞 xxxx
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Re: October 2017 Chemo Starters

Hi Dizzie, i think that's the thing with curly hair it falls out then gets trapped in with the rest of your hair so when you wash it quite a bit comes out. I always had the same problem, plus I didn't brush it very often either! Sounds really manky I know but as you'll know curly hair doesn't deal well with being brushed! 😊

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Re: October 2017 Chemo Starters

Karen, I use the corsodyl mouthwash to (daily mouthwash) too.

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Re: October 2017 Chemo Starters

Chaffinch, perhaps you can persuade the cat to sit on your head to keep it warm 😹 My cat is not happy with me thus morning as she wants to snuggle up on my lap on the sofa and I've got to work so am at the kitchen table! I'm glad my supply wasn't cut off this morning, I couldn't have gone another day without washing my hair! 

 

Speaking of which, hair wash is done, loads of hair came out (probably end up with a blocked toilet and OH will go nuts, but didn't know what to do with it). I think I'm going to get a friar tuck look as the top is looking very thin, but elsewhere it isn't so bad, I'll see how it looks once it's dried, maybe I can do something with a wide headband 🤔, will definitely gave to get wig trimmed though. Glad to have nice clean head though and to be rid of the matting!

 

Karen, I'd be gleeful too about OH not getting to golf! They do sulk though don't they and sometimes dealing with that us worse than them going in the first place!

 

Cassie, sending some more 🦄🌟🦄🦄✨✨💃🏻🕺🏻💃🏻💃🏻🕺🏻💫⚡️🕺🏻💃🏻🕺🏻🌈🌈💃🏻

 

Buddyfan, good luck today with chemo 2 I'll send the chemo 🚂👨🏻‍✈️

 

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Re: October 2017 Chemo Starters

My T2 today

Just waiting for the porridge. Hubby stayed in bed all day, partly to keep away from me. My temp is v.good and uti that put me in nhs and delayed chemo is clear, so all systems go.

 

Meesh, sorry to hear you're in hosp but best place if you have infection. Do you other ladies have a specific oncology suite of rooms? We have a MacMillan unit which is where they admit you for initial investigations and antibiotic hit, during thw working week. outside hours it's A&E but I have a card to say they must see and give antibiotics within hour.  From either of those, fingers crossed it's the oncology ward with individual, en-suite rooms and excellent service and oncology doctors. Otherwise, it's the general wards where they aren't so specialised. eg. they take blood from arm rather than line.

 

Karama, I've started Corsodyl, fesh mint mouthwash, on advice. Tried the plain and it left a foul taste in my mouth in the night and morning. First few tries it was a real blast and I didn't like it, but used to it now.

 

Good luck any others on chemo today.

 

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Re: October 2017 Chemo Starters

Cassie, you’re in the best place for when you’re ill, I hope they get you all fixed up v soon though x

Welcome MrsMeow, the more the merrier and we do try to be merry. Always good to meet a fellow curly head 😊. My hair is currently staying put, although it might be thinning. It’s so hard to tell when I used to lose handfuls every time I washed it. Feeling the draft around my neck now it’s short though.

My little girl decided she didn’t want a “girl’s” costume this year so she’s gone for zombie. Maybe the sparkly phase is over for her 😁

Have a good day everyone ✨✨✨💖💖💖
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Re: October 2017 Chemo Starters

My head is freezing today not sure how men manage with bald heads and buzz cuts all the time. My hubby has been bald since he was 20! I’m sitting on the sofa in a hat with a blanket and a cat, it’s chilly.
Hope you get home today Cassie and that they are looking after you well xx
Looks like your hubby is on bread buttering Karen 😜.
Sounds like you had great customer service from your water company MrsMeow maybe I’ll give mine a call too. I suspect that I won’t get through their website has crashed this is a big problem I think. Many grumpy Monday people unwashed and caffeine deprived!
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Re: October 2017 Chemo Starters

Keep an eye on your temperature Karen and take it easy today xx
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Re: October 2017 Chemo Starters

Thank you for the welcome ladies - hope you all have a good day
Chaffinch - hope your water is sorted - I had a lovely experience with Scottish water when they sent a note of a planned change to our water supply last Monday - I rang the customer care line to make sure that the water would still be safe for me and they were so kind - they arranged for bottled water to be dropped off in advance and also put me on a register so that if anything else affects our supply (or access as I was worried they would dig our drive up) that they will keep me in mind - they even wished me well with my health - it's lovely when strangers especially in big companies go that extra mile I was quiet touched. Maybe you could contact your supplier!
Take care all - and keep cosy is a chilly one today especially in the head area missing my curls to keep me warm! X
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Re: October 2017 Chemo Starters

✨✨🌟🦄🦄🌟✨✨💃💃💃💃💃✨✨🌟🦄🦄🌟✨✨💃💃💃💃💃 let’s see if that helps Cassie xxx
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Re: October 2017 Chemo Starters

I’m secretly laughing to myself as hubby not been picked up for golf, he’s now sulking, I’m now cheering!! He does know about buffet as he booked it....he has this ability to not panic about these things, probably because I’m the one that takes control!!

Will try mouthwash Meesh, thanks for that tip! Hope you get on ok with hair Wash, keep us posted xxx
Shi Community Champion
Community Champion

Re: October 2017 Chemo Starters

Oh Cassie, I hope you are going to be ok, if you need any advise on what they are doing while you are in come on the forum the May ladies talked me through everything that was going on when I did casa nhs 1st round really helped because you don’t know what’s going on. Ali great news day 12 and ok, let hope that Life Mel Honey works for both of us this cycle. Mishy and tatyana, thanks for helping buddyfan and us with the t tips😘Karana, please look after yourself you are amazing but you need to put yourself first this is not your average train journey. Sue good luck with Hickman line tomorrow and who’s up for chemo this week? Good luck to you too and we’ll get us all through this and the whole journey. Wishing everyone’s se’s better and sending 💃🏻💃🏻💃🏻🕺🕺🕺🕺🕺caddies dance better, girls we need some dancing for Cassie, worked last time and got me home thank you. 💕💕✨✨✨✨shi xx
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Re: October 2017 Chemo Starters

Fun times this morning, the whole of our area is without running water after a water main burst overnight. Fortunately there was enough water in the kettle from last night to make my porridge pot and cup of tea. We have a couple of bottles of water in the house too and plenty of milk and fruit juice. Glad I’m not off to work this morning.
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Re: October 2017 Chemo Starters

Cassie, sorry to hear you're in hospital, hope they get you better soon and you can go home! Sending you some magical 🦄🦄🦄🦄hugs and ⭐️💫💫✨✨🌟🦄🌈💃🏻⚡️💃🏻🕺🏻💃🏻for a speedy recovery

 

Karen, the sore throats could be an effect of the chemo as I got a slight one both cycles and went cleaned my teeth and gargled with mouthwash, seems to have done the trick both times and got rid of it. So you could try that 🙂

 

Does anyone know if we will also get the dry skin on fec?

 

Welcome Mrs Meow, feel free to pop along here whenever you like, we all need to help each other through this as best we can and I've benefitted a lot from both this thread and the September one!

 

Have had my porridge stewed apple and cinnamon and am now psyching myself up for the dreaded hair wash! Wish me luck ladies! 😕

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Re: October 2017 Chemo Starters

Sorry to hear that Cassie but you are in the best place. They will soin have you sorted and on your way.

I am scared of changing to T chemo too!

Golf!!! Karana does he know about the buffet?
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Re: October 2017 Chemo Starters

Sending you a hug Cassie. Hope you get home soon.

Fairydust x

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Re: October 2017 Chemo Starters

Cassie x thinking of you xx get plenty of rest x

Mrs meow think we all dip into each other’s threads so welcome xx
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Re: October 2017 Chemo Starters

Oh no poor you Cassie..let’s hope they get you sorted and you get out quick!!

 

I went to sleep at 930 last nite and now only awake so have managed a great sleep, have got a bit of a sore throat so need to keep eye on that I think! 

 

Would love one to give OH a sick note, but hey ho he’s off to play golf this morning!!  On a plus note my sister is coming to stay for weekend so really looking forward to that and I shld be feeling quite well by then, fingers crossed!

 

Hope you’re all feeling well this morning ✨✨🌟✨✨🌟

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Re: October 2017 Chemo Starters

Sorry to hear that you have been taken into hospital Cassie. I hope that you feel better soon and get back to your own bed xx
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Re: October 2017 Chemo Starters

Am trespassing here from the September thread hope that's ok - am so grateful for the T tips as am dreading the first one in 10 days so thank you to all who are sharing tips. I've finished 3 fec and the final docetaxel will be just as Santa's sleigh is overhead - thanks again for sharing how it goes - the hospital painted such a black picture to me and my husband it freaked us out! Hope everyone has a good week especially those who have chemo this week, MrsMeow xx

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Re: October 2017 Chemo Starters

Evening nightowls. Guess who got herself checked into casa NHS!!! had a funny turn this morning and fainted which scared my husband to death. Then been feeling off so called the number and got myself a bed for the night. Apparently red blood cells are low and something is elevated. So they are treating for a possibly infection tho no other signs.

Cassie x
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Re: October 2017 Chemo Starters

Glad you shared Tatysna I only did it because someone bought me some foot soak sock things in a set x
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Re: October 2017 Chemo Starters

Hi ladies, just visiting from July and may threads, I actually started fec+t on 30 June and finished two weeks ago. To add to Mishy's excellent tips for T: things taste funny/nasty, even water does, so try San Pellegrino or tonic water or bitter lemon, anything a bit sharp. Cow cream needs to go on 3-4 times a day at least. If you start to get sore hands or feet, don't put them in hot water ever, wear rubber gloves with a lining for washing up, soft gloves for other jobs, and avoid friction or impact such as running, long walks, use of hand tools etc.
I was told not to put gloves or socks on after moisturizer as it can trap heat (which is the enemy) and may foster infections. Let the moisturizer sink in slowly. Pat it on gently, don't rub.
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Re: October 2017 Chemo Starters

Ha ha that’s funny glad it’s not just me x
She could be a zombie princess xx
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Re: October 2017 Chemo Starters

My phone did it too!! morticia!
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Re: October 2017 Chemo Starters

Sue Mortician is such a fab costume ♥️ Fancy dress can be real fun especially if you dress up as quite an eccentric character 😊

My daughter still wants there to be done form of 'princess' element to her costume so this year she wants to be a bat princess!! 🦇🦇
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Re: October 2017 Chemo Starters

Morticia not mortician lol phone changed it x
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Re: October 2017 Chemo Starters

When I was 50 in May I had a big fancy dress party (seems like ages ago now and before bc diagnosis) I went as Mortician Addams and hubby was Gomez and I would love to dress up in the costume for Halloween but as I got my Hickman line fitting on the morning in theatre and got to stay on day ward for 5 hours after I don’t think I will be up to it 😢😢 x
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Re: October 2017 Chemo Starters

Ali I asked x
It seems that the deciding factor for some of us and our treatments is ther difference between HER 2 positive or negative
Buddy I have found if I put e45 on my feet and then put socks on to try and encourage it to soak in xx
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Re: October 2017 Chemo Starters

Evening lovely ladies, so nice to catch up on everyone's posts as always.
Hooray for the last injection - hopefully I can get through the night unscathed and it feels like there is a small window to breath again before the next cycle.

Of course ridiculously the first plan for tomorrow is to go through my work emails and chase my pesky accountant so I don't get thrown in jail! I plan to try the week working part time. But like you Meesh I do feel a little unsure that I want to spend all my best days working before cycle 2. Might try to keep a full day to one side for doing whatever I feel like (usually gardening 😁)

Ali the idea of painting a brain on your head is hilarious!! I saw a very realistic squidgy one in tiger for a couple of quid and was very tempted! Just bought a necklace that made it look like my head was severed instead 😁😁 there has to be some fun when the kids come knocking!! Last year I dressed in full Mexican festival of the dead costume to DD's delight but not sure I am quite up to full costume this time 😊 We will be covering our front garden in spider webs again though I am sure!!

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Re: October 2017 Chemo Starters

Mishy, thanks that's great for the T tips. I'm try oil on the nails and gloves if I go out to combat the UV rather than nail polish. I have sheets of skin coming off my right foot but it isn't sore yet. I use creams every morning, I think I'll add night now. I don't normally go to bed before midnight anyway, so it'll be intéesting to see if I have sleep issues. ok so far but only had one. T2 is tomorrow.
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Re: October 2017 Chemo Starters

I was just ssying to my kids what fun us bald people could have with trick or treaters this year!! My son now wants to paint a brain on my almost bald head so i can pull my wig off when i answer the door. Either that or draw a face on the back of my head and answer the door backwards!

Every cloud!!
Xxx
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Re: October 2017 Chemo Starters

Was it SueW or Fairy who ssked about my diagnosis and treatment? Sorry by the time ive caught up.i forget!!

I am grade2 her2+ and er+..7 chemo - 3 x fec, 4 x docetaxol with herceptin and perjetta then herceptin will contine every 3 weeks for a year. I will have a masectomy a month after finishing chemo and will go on to letrozole at some point.

WHAT A SENTENCE THAT IS!!

I also hate putting the shopping away and emptying the dishwaher. I also hate putting the ironing away!!

Karana, i feel that i can plan very little at the moment as i just dont know how i'll feel day to day. You seem to be under enormous pressure to carry on as normal. Can you not give your hubby a sicknote and ask him to get someone in? I know its hard when self employed but you do need a break chick!

Today, day 12, dare i say it i have felt normal! The only thing i seem to be having is bouts of diaorrhea a little while after eating so feel i always need to be near a loo. This time last cycle though i was spending a 3rd night in hospital so glad that hasnt happened again.

Good luck to everyone for this week xx
Shi Community Champion
Community Champion

Re: October 2017 Chemo Starters

Mishy, float away sweety that you gave your last chemo this week 😘😘😘you are wonderful and have every right to 💃🏻💃🏻🕺🕺🕺🕺💃🏻💃🏻💃🏻🕺🕺🕺dance and be happy it’s the last one for you. We will be joining you in the new year too because we have meesh holding the gun to the chemo train drivers head and also carriages full of strong amazing ladies on our chemo train who will get each other through safely and we have you and tatyana and all the amazing May ladies too, we are a lucky thread to have such help and support and love, we also have our lovely community champion ladybowler taking care of us all too. 👍👍👍😘😘😘💕💕✨✨✨love and sparkles everyone we are getting there shi xx
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Re: October 2017 Chemo Starters

Thanks Mishy, good luck for your last treatment, you must be so pleased that this phase of your treatment is nearly over. 

 

Karen, sandwiches for 50, that's a lot of bread buttering! It'll be nice to have your dad come and help you. I'm considering taking next week off work (need to take 9 days before end of December) and going and seeing my folks as it's my dads birthday. Would also like to see my Nan as she's 95 and has just gone in a home, I haven't seen her since my op in August. I'm thinking it'll be nice to have some time off during my good week, think work would rather I have the days off when I'm having chemo, but I'm definitely not going to do that, who takes holiday when they feel like cr*p!

 

 

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Re: October 2017 Chemo Starters

This week shld be a bit quieter although we’ve got a wake tomorrow and have got to cater for 50...got my lovely dad coming to help with preparation, he’s made sausage rolls today and he’s great at making everything look presentable!  Making sandwiches for 50 is quite a daunting task!! 

 

Hope ur all having a chilled out Sunday eve ✨✨😘✨✨

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Re: October 2017 Chemo Starters

That was meant to say pineapple chunks BTW ☺️
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Re: October 2017 Chemo Starters

The tips for T are listen to your body rest when you need to, Epsom salt baths, drink plenty of water each day don't cut nails file the they get very brittle, wear dark nail varnish hot water bottle or a heat pad for aches cream for hands and feet pineapple checks good for slimey mouth a cheeky hand or foot massage off someone is good when you have sore hands and feet lavender essential oils on pillow to help you sleep eat little and often you might be more hungry on this one (steroids!!)
Hope that helps ☺️
Karana hope you are feeling a bit better I couldn't face all that when feeling rubbish Shi hope you are doing OK I'm hoping the nurse doesn't struggle tomorrow getting my bloods she always does I dread her taking them (GP's) I can't believe I'm having my last chemo on Wednesday I'm bothered excited and scared at the same time I am not ashamed to say it but I dreaded every one! I'm not a wimp just hate the rotten stuff even though I know it's my saviour 😃 sorry ladies for telling you it's my last one I'm not gloating I know how you all are feeling and honestly I can tell you all it goes over really quick once you get 2nd one out of the way I think you just get used to it and it weirdly becomes a part of your routine so it becomes almost like a normality if that makes sense ☺️
You are honestly all coping so well and you have a lovely thread so you can keep each others morale up! You are all very strong ladies 💪 just remember if you are feeling down or sick of it all why you are doing it
🌠🌠🌠🌠💖💖💖🌟🌟🌟🌟
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Re: October 2017 Chemo Starters

Karen, I think you've done amazingly well this week, will the pub be quieter over the next few days so you can get a bit more rest? It's definitely turned nippy this weekend, I've put my bigger coat on when I've been out to make sure I wrap up warm! I hate the cold, been lucky that the cat has been playing nurse this week and so has been acting as a lap warmer! She did that last round of chemo too, barely left my lap for the first few days!

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Re: October 2017 Chemo Starters

Hi Meesh, I'm at Mundford, nr Thetford. But I know that area from powerboat racing. We raced at Oulton Broads every Thursday night. So, I have a lot of good memories from there. My crash was at Windermere, not at Oulton!
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Re: October 2017 Chemo Starters

Buddy that description of your sailing trip has made me nauseous thinking about it! I do love porridge tho and been having that most morning although I love golden syrup in mine!!

I haven’t felt much like Wonder Woman this week, and it’s not easy only being upstairs, I can’t hide very easily so sometimes easier to face people and just go downstairs, but have been trying to rest! I’m now ticked up in bed but cld be because I’m freezing!! Xxx