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October 2017 Chemo Starters

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Re: October 2017 Chemo Starters

Thanks Meesh, Runnerbean and Ali xx I had traces in one node but no further scans or checks so Iโ€™m just not sure why.
Iโ€™ve always been susceptible to nose bleeds so I guess this is just par for the course ๐Ÿ™‚
Lesley, nothing had been mentioned to me about an alcoholic T at all, thatโ€™s the first Iโ€™ve heard of it.
Sending warm get well wishes to everyone xx
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Re: October 2017 Chemo Starters

Morning ladies....Meesh I wld rather pick my own toenails off than go stay with my parents....they wld get in a right panic!!  I slept ok and my nose has stopped running but Iโ€™ve got a cough....gonna take my temp in a minute usually wait 15 mins after I get up as bury my head under duvet so donโ€™t get true reading!! 

 

Hope everyone one has a good day xxxx

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Re: October 2017 Chemo Starters

Meesh I donโ€™t feel ill temperature okay but now started sneezing ๐Ÿคง grrr
Just hope when I go tomorrow chemo can still go ahead xx
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Re: October 2017 Chemo Starters

Lesley

Just a thought but would think your onco team would say if it was infused with alcohol as what if someone had issues around alcohol and they must know some people dtivevto their appointments x
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Re: October 2017 Chemo Starters

Karen, Sue howre you both feeling this morning? Hope your not suffering too much with your colds and coughs. Karen, do keep an eye on that temp ๐ŸŒกTry and take it easy today and keep yourself warm. Could you stay with your folks for a couple of days to get some tlc and to keep warm? A drafty flat when you have a cold is probably not a good combination! โญ๏ธ๐ŸŒˆ๐Ÿฆ„๐ŸŒŸ๐ŸŒŸ๐Ÿฆ„โญ๏ธโญ๏ธ๐ŸŒˆ๐ŸŒŸโœจ๐Ÿ’ซโœจ๐Ÿฆ„๐ŸŒˆโญ๏ธโญ๏ธ๐Ÿฆ„๐ŸŒŸโœจ๐Ÿ’ซ

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Re: October 2017 Chemo Starters

Morning all
I start t tomorrow so will ask when I go x when are you up Lesley hopefully it will be after tomorrow so you know Iโ€™m advance x
Meesh hope you have a good day at work

How is everyone? Xx
Sending positive vibes for a day without side effects xx
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Re: October 2017 Chemo Starters

Lesley, I'm not on t so can't answer your question sorry, fec for me all the way!

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Re: October 2017 Chemo Starters

Morning ladies! Hope everyone slept well, Runnerbean looks like you were up in early hours.

 

I had initial mammogram, biopsy and ultrasound, then op. Since then I had a heart echocardiogram and ultrasound type thing prior to chemo as fec can also affect the heart I think. Not had anything else, my nodes were clear s maybe that's why.

 

I also suffered with a dry nose last cycle and had a bit of blood but no real nose bleed. I stuck some coconut oil up there which seemed to do the trick.

 

Working again today, need to make up for the 2 hours I was at the hospital yesterday. Going to see the Druid later for my reiki๐Ÿ˜Š Rash is looking marginally better so going to carry on with the cream and antihistamine today and see what happens.

 

Hope you've all got good days planned. ๐Ÿ˜Š

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Re: October 2017 Chemo Starters

Morning ladies, just popping in from Nov with a question for you ..... Iโ€™ve just read that Docetaxal is sometime infused using an alcohol based infusion and therefore you could be over the limit to drive ???!!! I normally drive myself to my treatments ..... have any of you been told this? Felt an effect?
This might be a load of hog wash!! Dr Goggle!

Thanks for your help! Xx
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Re: October 2017 Chemo Starters

Hi reeboot, I have had a couple of nosebleeds since starting T. Not bad and they stop after a few minutes but I have been told this is a normal side effect. Regards scans I also havenโ€™t had anything other than the initial mammogram and ultrasound. I was told this was because my nodes were clear, had there been anything in my nodes they would have done further body scans to check if it had spread else where xx
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Re: October 2017 Chemo Starters

Hi Reboot, i had 1st T 2 weels ago and i havent had nosenleds but have had a very dry nose and there is blood whenever i blow it. Other people on the forum have had nose bleeds.

I have my original mammogram, then a deeper mammogram followed by biopsies. After diagnosis i had an ultrasound to check lymph nodes, a ct scan and bone scan to check for any spread - they were clear Thank God x

Since starting treatment i have had 2 heart scans - as i am having Herceptin which can affect the heart - and an ultrasound to check for response to chemo.

I dont know why some of us get more scans than others.

Xxx
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Re: October 2017 Chemo Starters

Buddy, my hair loss started in the third week after my first FEC. I went down to a grade 5 in the first week after my second cycle x
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Re: October 2017 Chemo Starters

Good evening ladies x

I hope everyoneโ€™s rashes and coughs are improving and SEs are treating you kindly.

I have two quick questions this evening.

1. Ladies on T/ finished T - did you suffer with nose bleeds at all? Iโ€™m getting one every other day pretty much.

2. Did anyone not have additional body scans/checks? I had my original diagnosis ultrasound, biopsy and mammogram, but I havenโ€™t had any other scans or checks anywhere else and it seems as though everyone else has?

Thank you lovely ladies, sending lots of love xxx
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Re: October 2017 Chemo Starters

I was so excited to see Santa I heard him coming from the bottom of the road so by the time he got by mine i had my hat and coat on so I could stand on the drive and wave 

 

hair loss for me cycle 1 lost lady hair 

cycle 2 .. day 4 hair started to shed and was bald by day 6 so once it started to go it was rapid but my hair was shaved to number 2 so no long bits hanging on

 

Wishing evryone a restful night xxx

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Re: October 2017 Chemo Starters

Hope your cold gets better soon Karen, keep a close eye on your temperature, remember too low is also an issue x
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Re: October 2017 Chemo Starters

My hair started coming loose around day 17 didnโ€™t go properly until a couple of weeks after cycle 2
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Re: October 2017 Chemo Starters

Evening ladies....sorry thought I posted earlier but didnโ€™t work!!

 

managed to get some shopping done although kept having to blow my nose and take my hat off!!  Not feeling too bad so think itโ€™s just a common cold but keeping an eye on my temp!  Feel a bit shivery now but I think itโ€™s just because Iโ€™m cold....now in bed with heated blanket on!!

 

Meesh hope the rash eases and you donโ€™t need antibiotics ๐Ÿ˜ฑ

 

Sue...hope ur cough improves and you gave Santa a big wave from us all!!

 

I now canโ€™t remember whatโ€™s happening with everyone else....bloody stupid chemo brain ๐Ÿ˜ฑ๐Ÿ˜ฑ๐Ÿคฃ๐Ÿคฃ

 

Love to you all anyway ๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜

 

xxxxx

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Re: October 2017 Chemo Starters

Sue, lucky you I haven't seen a santa like hat since I was a kid!

 

Buddy, I think hair loss can be anywhere from day 14 to 21. I saw mine start on hairwash on day 21 of first cycle and then during first week of second cycle. Since then it's been hair wash on day 14 that I've seen the most hairloss.

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Re: October 2017 Chemo Starters

Sue, I used to love when Santa came round :-)
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Re: October 2017 Chemo Starters

Hi Buddy, if youโ€™re just switching to FEC, hair doesnโ€™t start to come out until really late in the cycle. I think Iโ€™d got to say 18 or 19.
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Re: October 2017 Chemo Starters

 
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Re: October 2017 Chemo Starters

i wanted to share this happy pic .... Santa just been down my road xxxxsanta.jpg

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Re: October 2017 Chemo Starters

Bit wacked out now! ๐Ÿ’ฉ still ok though and only one more ondansetron to go. Right foot is already feeling the numbness. When does hair start falling out?
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Re: October 2017 Chemo Starters

Jelly, I stashed some of my ๐Ÿ‘ป๐Ÿ‘ป๐Ÿ‘ป in the secret box. Get back on that ๐Ÿš‚. Good Luck tomorrow. Do you get GCSF jabs to take? If not, ask if you can. My ๐Ÿ‘ป๐Ÿ‘ป were 34 after the jabs, back down to 4.1 by bloods time. ๐ŸŽ‡โœจ๐Ÿฆ„๐Ÿฆ„๐Ÿง๐Ÿง๐Ÿฆ„๐Ÿฆ„โœจ๐ŸŽ‡ You've got a penguin in there, that'll do it.
Shi Community Champion
Community Champion

Re: October 2017 Chemo Starters

Right then ๐Ÿ‘จโ€โœˆ๏ธ๐Ÿš‚is taking the fec I get t now, meesh Iโ€™ve got to the secret secret stash that you and I know about so on the way with ๐ŸฅŠ๐ŸฅŠ๐ŸฅŠ๐ŸฅŠ๐Ÿ‘๐Ÿ‘๐Ÿ‘๐Ÿ‘๐ŸฅŒ๐ŸฅŒ๐ŸฅŒ๐ŸฅŒ๐Ÿคธโ€โ™€๏ธ๐Ÿคธโ€โ™€๏ธ๐Ÿคธโ€โ™€๏ธ๐Ÿคธโ€โ™€๏ธ๐ŸŽณ๐ŸŽณ๐ŸŽณ๐ŸŽณ๐Ÿ”ซ๐Ÿ”ซ๐Ÿ”ซ๐Ÿ”ซ๐Ÿ’ฃ๐Ÿ’ฃ๐Ÿ’ฃ๐Ÿ’ฃ๐Ÿ’ฃgrab what you can girls the driver needs reminding we get each other through safely ๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜๐Ÿ’•๐Ÿ’•โœจโœจโœจshi xx
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Re: October 2017 Chemo Starters

Dancing for you Jellytot to get that blood count up ๐Ÿ•บ๐Ÿป๐Ÿ’ƒ๐Ÿ•บ๐Ÿป๐Ÿ’ƒ๐Ÿ•บ๐Ÿป๐ŸŒˆโœจโญ๏ธโญ๏ธ๐ŸŒˆ๐Ÿฆ„๐Ÿฆ„โœจโญ๏ธ๐Ÿ’ซ๐Ÿ’ซ๐ŸŒŸ๐Ÿ•บ๐Ÿป๐Ÿ’ƒ๐Ÿ•บ๐Ÿป๐Ÿ’ƒ๐Ÿ’ƒ๐Ÿ•บ๐Ÿป๐Ÿ‘ฏโ€โ™‚๏ธ๐Ÿ‘ฏ๐Ÿ’ƒ๐Ÿ•บ๐Ÿป๐Ÿ’ƒ๐Ÿ‘ฏโ€โ™‚๏ธ๐Ÿ‘ฏ๐Ÿ’ƒ๐Ÿ•บ๐Ÿป๐Ÿšถ๐Ÿผโ€โ™€๏ธ๐Ÿ‘ฏ

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Re: October 2017 Chemo Starters

Crikey Jelly, best dancing to get those bloods up in time for Friday ๐Ÿ’ƒ๐Ÿผ๐Ÿ•บ๐Ÿป๐Ÿ’–
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Re: October 2017 Chemo Starters

Bloody hell jelly how frustrating xx fingers crossed for them going up before Friday x
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Re: October 2017 Chemo Starters

Ffs, just getting over uti now my pre chemo bloods have come back( Neuts 0.6). They want to delay things, but have another blood test tomorrow so fingers crossed I'm still on the train,as they can pick up quickly.
Hope everyone is doing ok xx
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Re: October 2017 Chemo Starters

Ha ha ha just got back from hospital and as usual you crazy lot have made me laugh xx

Spoke to them about my cough they donโ€™t seem thebleasy but concerned I think it might just be s tickle throat as honey and lemon helped x

Meesh hope rash clears up quickly

Rach nearly time for us to jump back on board along with jelly tot

Ali I go to t on Friday yes Nails painted black ready hope you doingbok and big thanks for update so we know what to expect

Cassie hope you managed a nap

Karen get well soon

Chaffinch buddy shi Ruth fairy ๐Ÿ‘๐Ÿ‘ hugs to you all hope I not missed anyone xx

Canโ€™t wait to meet you crazy ladies in real life xx
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Re: October 2017 Chemo Starters

And now Meesh is at it too, thankfully I managed to swallow my coffee without spitting it all over the place!
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Re: October 2017 Chemo Starters

Shi, you make me ๐Ÿ˜‚๐Ÿคฃ๐Ÿ˜‚๐Ÿคฃ๐Ÿ˜‚๐Ÿคฃapparently the tai chi you do in the park can be used as a martial art if you speed it up (according to OH). I reckon you should try it out on the ๐Ÿ‘จ๐Ÿปโ€โœˆ๏ธ

 

Not sure about joggers it sounds like we'll all be burning our bras and running around with our tits hanging low for rads! ๐Ÿ˜ณ๐Ÿ˜ฎ๐Ÿ˜ฎ

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Re: October 2017 Chemo Starters

Shi, you always make me laugh! Iโ€™ve not started my hat as Iโ€™m trying to finish a shawl for my mom for Christmas. I started it for last Christmas ๐Ÿ˜ณ
Shi Community Champion
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Re: October 2017 Chemo Starters

๐Ÿ˜‚๐Ÿ˜‚๐Ÿคฃ๐Ÿ˜‚๐Ÿคฃmeesh I did the tai chi for relaxation and meditation, not to kick ass with, you know like you see them all doing in the parks in the mornings in Asia ๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜just keep eye on things you did right getting it checked over just to be sure darling and itโ€™ll stop me clicking. Sue and Karana hope you are both feeling bit better too ๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜dizzy, youโ€™ve always been the sane one on our ๐Ÿš‚ lovely a voice of calm and reason and a steady hand for us all when we start getting ๐Ÿคช๐Ÿคช๐Ÿคช๐Ÿคชthank you ๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜glad youโ€™ve been getting things done and managed work. Have you managed to get that other hat started you were planning on doing? Looking forward to seeing photo โค๏ธโค๏ธโค๏ธ๐Ÿ’•๐Ÿ’•โœจโœจโœจmeesh, whole ๐Ÿš‚got the gold hot pants on till we are through chemo, so everyone can get into the meesh emergency box at the back of the ๐Ÿš‚weโ€™ll change into some nice joggers for rads, the hotpants will have given us wedges by the time we are through The chemo๐Ÿคฃ๐Ÿ˜‚๐Ÿคฃ๐Ÿ˜‚๐Ÿคฃ๐Ÿ˜‚๐Ÿ’•๐Ÿ’•โœจโœจshi xx
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Re: October 2017 Chemo Starters

Hi everyone,

Iโ€™m on my good week getting geared up for FEC 4 o. Friday. Trying to finish all of the Christmas shopping before then, being youngest of 5 has its disadvantages sometimes ๐Ÿ˜. Managing to work in between cycles is helping me stay sane.

Meesh, Iโ€™ve got a rash on the backs of my hands, had if first cycle too. It starts as needle like sensations and then turns to the rash. Mentioned it to onc on Monday and he said โ€˜yeah, use antihistaminesโ€™ and that was it.

I hope you ladies that have switched treatments are all ok and those not changing, eve got this and we know whatโ€™s coming โœจ๐Ÿ’–๐Ÿฆ„

Rach x
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Re: October 2017 Chemo Starters

The doctor was a bit flummoxed by my rash. It is more or less just on my boobs ๐Ÿ˜ฎ๐Ÿ˜ฎ๐Ÿ˜ฎshe had a prod and a poke of both boobs, pulled some ๐Ÿค”๐Ÿ˜ถ๐Ÿ˜•faces and then gave me a 5 day course of antibiotics, antibiotic cream and some antihistamines. I'm a bit reluctant to take the antibiotics as all bloods and obs were ok. So I've decided to use the cream today and take an antihistamine and see how it looks tomorrow. If it's still there tomorrow I'll start the tablets. I still think it's probably heat related and may go of its own accord. Good to get it checked though.

 

cassie, could you use some of that deep freeze stuff that athletes use on your feet before bed? Don't know if that would react with any other meds but is usually for muscles aches but being cool might cool your feet.

 

Shi, perhaps you can use your tai chi ๐Ÿฅ‹๐Ÿฅ‹to sort the ๐Ÿš‚ ๐Ÿ‘จ๐Ÿปโ€โœˆ๏ธ out! There's a cupboard full of ๐Ÿ”ซ๐Ÿ”ซ๐Ÿ”ซ๐Ÿ”ช๐Ÿ”ช๐Ÿ”ชโš”๏ธโš”๏ธโš”๏ธ๐Ÿน๐Ÿน๐Ÿนat the back if the ๐Ÿš‚ for emergencies. Only someone in gold hot pants doing a Wonder Woman twirl can access it ๐ŸŒŸ๐Ÿ’ซ๐ŸŒŸ๐Ÿ’ซ๐ŸŒŸโญ๏ธโœจโญ๏ธโœจโญ๏ธ๐ŸŒˆ๐Ÿฆ„๐ŸŒˆ๐Ÿฆ„

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Re: October 2017 Chemo Starters

Shi I think ๐Ÿš‚๐Ÿ‘ฎโ€โ™‚๏ธgot bored as he seems to have a break until Friday. I'll string my bow and get him sorted.
Just eating some pineapple as tastes fairly normal and is suppose to help furry mouth.
Good tip fairydust. Might try that or a cold wet towel or something. Knowing me I'd get up in the night and knock the water over.
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Re: October 2017 Chemo Starters

Oh dear, I do hope that the rash doesn't spread Meesh. Glad you're having it checked out and hope it will be as ok as can be.

Cassie, maybe a bowl of tepid water by your bed to put your feet into when they get too hot will help?

I get very very hot flushes where my clothes get soaked in sweat, and a cool water wash helps....most of the time!!

All the best.

 

Fairydust x

Shi Community Champion
Community Champion

Re: October 2017 Chemo Starters

Meesh hope rash soothes down and that everything comes back ok darling, cassie we need to nip off the roof and give the ๐Ÿš‚drivers nose a poke with your bow and arrow and meesh is one of the back up guns in meeshโ€™s special donโ€™t mess with me box that you put at the back of the train for moments like this? Iโ€™ll grab it and see you up there in a minute to ๐Ÿ”ซ๐Ÿ”ซ๐Ÿ”ซKarana you too you need to ๐Ÿคœ๐Ÿคœ๐Ÿคœsomething might as well be the driver rather than your oh. ๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜๐Ÿ’•๐Ÿ’•โœจโœจshi xx
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Re: October 2017 Chemo Starters

Hi all. Well I just could not sleep last night. A combination of some pain, hot feet and stuff going round in my head meant I was awake all night. Feeling less than perky today.
Pain is less today more of a dull ache so manageable. Mouth feels yucky and can't taste much. Have fluconazole, difflam and corsodyl so hoping to keep on top of it.
Shi I had tightness in my right arm which had 2 lots of FEC go through. Now tho it's completely gone.
Ali I'm finding nights worse it's not too bad in the day but at night my feet are fire. Kept going for a walk round the ensuite last night to cool down. It must be awful to have this in a hot summer.
Sorry to hear about your rash Meesh hope it settles down. Buddyfan glad to hear you're coping ok on FEC.
Have a good day everyone x
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Re: October 2017 Chemo Starters

Sorry to hear about the rash Meesh, hopefully it will sort itself out over the next few days x
Glad to hear that you are doing ok on FEC buddyfan x
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Re: October 2017 Chemo Starters

Hi All,
Meezh sorry to hear about your rash. Hope they get you sorted.

Sie and karen are you both on T now? Whrn did you have ypur last treatmrnt?

Cassie, i had the hot hands and feet. It is caused by the drugs goi g to the capilliaroes in the palms of your hands and souls of your feet. Any friction at all makes it worse. Wear soft slippers or focks in the house. Dont stand or walk for too long. Dont rub or massage hands and feet but do moisturose them by putting cream on with light touch. Dont chop vegetables or anything as the frction of the knife also causes the drugs to go to capilliaries. Dont wearcrubber gloves as it also blocks air to hands. The cool tiles will feel.lovely. i wrapped 2 cool blocks in tea towels and sat with them under my feet then hwld them in my hands. It did pass after a few days. Night were hard as feet got very hot in bed xxx
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Re: October 2017 Chemo Starters

Shi, FEC ok so far. Taste is slightly off but not as bad as T. Bit flushed but no sickness and ๐Ÿ’ฉ ok. I do get out of breathe easily, but I am also very unfit.
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Re: October 2017 Chemo Starters

Just seen the doctor, she's none the wiser to what the rash is! White blood count was ok, they are still waiting for some of the other blood results. Now waiting for prescription for antiobiotics and cream. ๐Ÿ˜•
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Re: October 2017 Chemo Starters

Thanks buddy. How are you getting on with the fec lovely ๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜we just have to take it a day at a time. Mrs rims hope you are still keeping track of thread and donโ€™t forget to jump back on from booking hall when you do the rads darling ๐Ÿ˜˜๐Ÿ˜˜sue yep good recipe that and hope it soothes the cough. Ali how are you doing and is your next t next week now? ๐Ÿ˜˜๐Ÿ˜˜๐Ÿ’•๐Ÿ’•โœจโœจshi xx
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Re: October 2017 Chemo Starters

T ladies don't forget your nails. T can hit nails hard. I'm keeping mine short and oiling twice a day with Boots Almond Oil, it's really cheap. Ask the pharmacy, they seem to keep it behind the desk. I landed up ordering online and picking up at local boots. ๐Ÿ’…๐Ÿ’…
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Re: October 2017 Chemo Starters

Karen hope you feel better soon

I just warmed some honey and lemonade and put in a couple of slices of lemon my mom swears by old fashioned remedies x
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Re: October 2017 Chemo Starters

Took a spoon of cough syrup certainly helped but will still tell them about it x

Shi thatโ€™s good news that your veins ache less

My hubby in spare bed but thatโ€™s because I am awake loads in the night and kept disturbing him he has to leave at 6.30 for work so goes to bed about 9 besides I love the room ha ha xxx
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Re: October 2017 Chemo Starters

Sue hope that cough clears up, best to mention it when you go, just to be safe, you too Karana with a cold you need to be super vigilant, sorry to fuss and cluck ladies, my concern is for everyone to get through safely and better to make a fuss than not. Sam, ๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜youโ€™ll be fine I keep hearing how they do these kidney and liver tests as routine and when I was in casa nhs That 1st round I didnโ€™t even know theyโ€™d been keeping eye on my liver and kidneys too. Cassie how you getting on with the t darling? My chemo arm isnโ€™t as tight so the t a lot kinder to veins for sure. Dizzy are you ok lovely? Ruth sorry you will miss ddโ€™s play, can someone video it for you so you can watch at home? Just a thought. Meesh, youโ€™ll love tai chi, I did a bit of that a very long time ago and itโ€™s great. Iโ€™m fact thatโ€™s something I can look at too once through this and the rads. Iโ€™m also thinking of taking up dancing classes again too. Iโ€™d love for us all to do that walk through the night in London next year, we could get some tshirt printed and help raise awareness for all our different types of bcโ€™s. ๐Ÿ˜˜๐Ÿ˜˜๐Ÿ’•๐Ÿ’•โœจโœจshi xx
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Re: October 2017 Chemo Starters

Sue, stupid chemo brain, I keep thinking it's Thursday today! Karen how annoying to get a cold, hope you enjoy your Xmas shopping. Take it easy and try not to do too much. OH definitely needs a poke in the eye!

 

Ive just had a shower and noticed a rash across my chest and just under my boobs ๐Ÿ˜ณ๐Ÿ˜ณ๐Ÿ˜ณ๐Ÿ˜ฑ๐Ÿ˜ฑ๐Ÿ˜ฑCalled the chemo team and they want to see me for bloods and to check it out. OH has just popped out with the car so will have to wait for him to get back ๐Ÿ™„I think it might be heat rash from all the hot flushes as temp was fine and I feel ok. They didn't seem too worried, better to be safe than sorry though eh?