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October 2017 Chemo Starters

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Re: October 2017 Chemo Starters

Jelly when did you take my pic 🤣🤣🤣🤣

No it’s not me when I had hair I was blond or pink and now I baldy bonce xx
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Re: October 2017 Chemo Starters

Highlighted
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Re: October 2017 Chemo Starters

Yes that’s very true Buddy...think OH was shocked how quickly I went downhill but he’s still burying his head in the sand! Xxxx
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Re: October 2017 Chemo Starters

Jellytot, great you found the stash of 👻👻👻. Good luck tomorrow. The boards are waxed🏄🏄🐱🏍🏄🏄, get those gold pants on.

Karana, I’m sort of glad you’re forced to rest! The antibiotics will sort you out, but it’s just a reminder to OH how fragile you are.



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Re: October 2017 Chemo Starters

Shi he’s so rubbish....all the beer needed to be ordered for Xmas period today and he got in a panic....he really is useless without me...tempted to ring his mum and tell her to have a word with him!! Anyway I’m def not doing anything today apart from vegging on sofa! Good luck for tomorrow ladies 😘😘💃✨💃✨💃✨💃🦄🦄🦄🦄🦄🦄
Shi Community Champion
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Re: October 2017 Chemo Starters

😘😘😘Karana, glad you went and got checked over lovely, fluids, rest and 🐟🐟🐟 for oh, was he planning on a round of golf tomorrow? He’ll have to do a round of helping Karana instead 😘sue and reeboot 🏄‍♀️🏄‍♀️🏄‍♀️see you on the roof tomorrow cassie and I are back up there after giving the 👨‍✈️🚂a 🤸‍♀️🤸‍♀️🤸‍♀️💣💣💣naughty driver, meesh back in your safe hands with the 🔫🔫🔫again lovely. Buddy and dizzy, the body boarding and surfing lessons got sue joining the t party tomorrow, so board waxing please 😁😁😁meesh hope the rash clearing up ok now. Lots of ❤️❤️❤️to everyone and filling 🚂with 💕💕✨✨✨🎄🎄🎄🎄🎄too love shi xx
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Re: October 2017 Chemo Starters

Afternoon ladies....temp was 39.9 this morning so I’ve been to hospitals, bloods taken and neutrophils were fine but trace of a uti and they don’t want my cough to get to chest so have been given antibiotics!  I’m now home but feel totally zapped...so gonna go in hibernation.....think OH may have a nervous breakdown before the day is out....he’s rubbish when things go wrong!!

 

glad everyone else is doing ok xxxxx

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Re: October 2017 Chemo Starters

Reboot my onco said up to 2 node involvement would not have needed lymph clearance or chemo with my type of tumour xx
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Re: October 2017 Chemo Starters

Thanks so much ladies, and thanks Mishy. I had a macro-thingy in just one node and it was because of that that I’ve been wondering.
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Re: October 2017 Chemo Starters

Jelly see you on board tomorrow i xx fab news xx
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Re: October 2017 Chemo Starters

Haha Shi liked the Rads dance this morning fog on the Tyne whey aye man!!!!! Hope you are managing ok on the T
Hooing you are all coping with SE and chillin out xx
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Re: October 2017 Chemo Starters

Everyone i had a macrometes in 1 node but never got extra scans onc reassured my it was not necessary as all cancer was removed with op Only ever had mammogram and ultrasound at beginning dont get scsns when treatment is over either hope that helps x
Hoping everyone is having a good day xx
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Re: October 2017 Chemo Starters

Woohoo neuts are up to 1.2 so save me a seat tomorrow Meesh!
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Re: October 2017 Chemo Starters

Thanks for all the hair loss info ladies.

Reboot, yes I has nose bleeds on every cycle of T. They usually stopped after plugging with tissue fora bit. Re scans….When I first had lumpectomy and nodes out, I was told I didn’t need any more scans as they didn’t think it had spread and chemo and rads would sort it out. I’m having loads of scans now for other issues. I have had lots of uti before chemo and during, hence the ultrasound kidney and bladder and impending endoscopy. I’m having bone ct, MRI, density scans because I have had a bad back issue and they are worried it might be myeloma, ffs as if I haven’t got enough to deal with. As I will be on Letrazole after chemo, I think they would have done a bone density anyway, to check about osteoporosis.

Sue, good luck with T tomorrow.

Meesh, how is your rash? I’ve had a redness just below my neck for a couple of days now. Not really a rash and it’s about 1.5” away from my line. I’ve put E45 on it and will get it checked tomorrow when I have my flush. Did the antihistamine help yours? My temps are normal. Why are you having chemo if there was no node involvement? Is it the type of BC? I was told I would only have rads if nodes had been ok.

Who was low on 👻? Hope you got on ok .




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Re: October 2017 Chemo Starters

Scans
I was told didn’t need any but after lumpectomy and cancer found in nodes Had axillary clearance cancer in 5 of 12 nodes so sent for ct and mri as precaution

Both came back clear phew xx
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Re: October 2017 Chemo Starters

I had an ultrasound after starting chemo but that was cos the mri picked up something suspicious in my other boob. Biopsies cleared this. I have a CT booked for 3rd jan so it can be passed to my surgeon for him to start the process for surgery after chemo. That's all so far.
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Re: October 2017 Chemo Starters

thanks to all you dear ladies for your words of wisdom, check up on Tuesday for my last FEC - I'll ask them about the alcoholic T at the same time!!

The Unit know I drive myself at the moment so I am sure they would give me the heads up!!

 

Shi - you should know me by now ... Little Miss Independent!!

 

love to you all and all the best for the Christmas holiday xx

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Re: October 2017 Chemo Starters

Ruth, I'm also a bit🤔 😳😳😳😳😳about not having any further scans, even though I had no node involvement and would've thought they would've done some sort of check after chemo and rads to make sure that it really is gone. 

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Re: October 2017 Chemo Starters

Morning everyone.
Lesley my chemo tram said not to drive on chemo day as if I had an accident it would invalidate my insurance because of the treatment. They didn't say it was specifically because if alcohol content but I've always got someone to drive me to my appointments.
Managed some sleep last night. Lower back seems to really start hurting just before bed. So checked temp and loaded up with paracetamol. Managed some interrupted sleep. Must have had a hot flush at some point as woke up wet through but temp was all normal.
Good luck anyone with appointments today. Girls up tomorrow get those fluids down and any steroids you need to take.
Cassie x
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Re: October 2017 Chemo Starters

🤣😂🤣😂🤣😂Karen, I know the feeling. I love my folks to bits but my mum drives me nuts if we spend too much time together. Her and my sister are coming to see me tomorrow and I cant wait to see them. It's the first time She's been here since I started chemo so I know she'll Insist on cleaning the house from top to bottom and fussing (even though I'm going to clean it today). 

 

Just read the instructions on my antibiotic cream and have realised I haven't been using enough cream 🙄

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Re: October 2017 Chemo Starters

Good morning ladies 😘😘😘to everyone with appointments today. Sue thanks for the photo of Santa 😁😁lovely, hope you get that cough under control 😘😘meesh hope you ok and that rash has gone, enjoy your reiki😘😘Karana, hope your electric blanket has given your cold a 🥊and you feel better soon😘😘cassie how you getting on with the t? I’ve been in bed early and sleeping with it, the loratadine is helping loads with the pains for me so making them manageable. I’ve heard about the nosebleeds too, the may girls would be able to give more advise on that. Lesley, I’ve not heard that about the t and quick question how the fec are you driving yourself? Honorary Wonder Woman pants for Lesley girls 😁😁😁buddy my hair started shedding day 14 but it was cycle 2 that it really went, I’d clipped to grade 2 on cycle 1 which I think helped keep a very, very fine covering as the weight wasn’t weighing it down and on cycle 2 and 3 I was on 80% dose. Wishing everyone day of 💕💕💕✨✨✨✨shi xx
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Re: October 2017 Chemo Starters

Morning ladies I hope everyone is feeling a little better today and holding those colds and rashes at bay. Sue hope you feel better today ready for tomorrow 💕

I had my reflexology yesterday - first time I have had it so soon after chemo but decided to keep appointment even though chemo delayed a week. Felt good in there but then absolutely awful last night because it had sent me into detox so horrible migraine and shivers, but then seem to have woken up a bit better today and have been peeing like an old drunk overnight 🤣🤣😂😂 so hopefully it has supercharged my detox from this cycle!!

Reboot the whole scans think is a minefueld isn't it. I had to have MRI as mammogram doesn't work on my breasts. But then because nodes clear on MRI no further scans were scheduled. And SNB confirmed clear nodes. In some ways it is good to not have the extra scans because obviously they believe there is a low risk so won't pay for them. But on the other hand my mind works over time thinking how can they give the all clear after chemo and rads if they haven't checked? I think problem is that scans don't give an absolute answer either. Ultimately it is a numbers game - odds are if they don't want to do a scan, you are very likely to not need them so you then have to trust (or have faith or whatever) that it will be fine! Well that's the way I am thinking if it anyway! I have already started the process with my onc of making sure I go under MRI screening and not mammogram screening going forward - I thought I had hit a brick wall in the last clinic but then was copied into a letter saying that she has asked the radiologist to look into it!

Hope everyone has a few nice plans for today? I might even venture out for coffee and cake today!! 🍰☕️
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Re: October 2017 Chemo Starters

Morning ladies was really tired yesterday and my neck and shoulders were hurting think it might be the position im lying in during treatment , off to rads soon day 5 so im chipping away at them!!! Wil def need a rest when I'm done! Karen keep an eye of that shivering can be a sign of infection starting you should ring the unit to be in safe side
I still have chemo brain that must not leave for a while Christmas shopping still done finished can't see that happening with these rads! Fec it 😂😂😂
Shi you literally are as daft as a brush very cheery loved the wedge ref for hot pants well i can tell you that the hot pants through chemo is officially over it nana knickers for me!!! have a good day everyone with minimal SE and hope that rash is improving 💖
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Re: October 2017 Chemo Starters

Thanks Meesh, Runnerbean and Ali xx I had traces in one node but no further scans or checks so I’m just not sure why.
I’ve always been susceptible to nose bleeds so I guess this is just par for the course 🙂
Lesley, nothing had been mentioned to me about an alcoholic T at all, that’s the first I’ve heard of it.
Sending warm get well wishes to everyone xx
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Re: October 2017 Chemo Starters

Morning ladies....Meesh I wld rather pick my own toenails off than go stay with my parents....they wld get in a right panic!!  I slept ok and my nose has stopped running but I’ve got a cough....gonna take my temp in a minute usually wait 15 mins after I get up as bury my head under duvet so don’t get true reading!! 

 

Hope everyone one has a good day xxxx

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Re: October 2017 Chemo Starters

Meesh I don’t feel ill temperature okay but now started sneezing 🤧 grrr
Just hope when I go tomorrow chemo can still go ahead xx
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Re: October 2017 Chemo Starters

Lesley

Just a thought but would think your onco team would say if it was infused with alcohol as what if someone had issues around alcohol and they must know some people dtivevto their appointments x
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Re: October 2017 Chemo Starters

Karen, Sue howre you both feeling this morning? Hope your not suffering too much with your colds and coughs. Karen, do keep an eye on that temp 🌡Try and take it easy today and keep yourself warm. Could you stay with your folks for a couple of days to get some tlc and to keep warm? A drafty flat when you have a cold is probably not a good combination! ⭐️🌈🦄🌟🌟🦄⭐️⭐️🌈🌟✨💫✨🦄🌈⭐️⭐️🦄🌟✨💫

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Re: October 2017 Chemo Starters

Morning all
I start t tomorrow so will ask when I go x when are you up Lesley hopefully it will be after tomorrow so you know I’m advance x
Meesh hope you have a good day at work

How is everyone? Xx
Sending positive vibes for a day without side effects xx
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Re: October 2017 Chemo Starters

Lesley, I'm not on t so can't answer your question sorry, fec for me all the way!

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Re: October 2017 Chemo Starters

Morning ladies! Hope everyone slept well, Runnerbean looks like you were up in early hours.

 

I had initial mammogram, biopsy and ultrasound, then op. Since then I had a heart echocardiogram and ultrasound type thing prior to chemo as fec can also affect the heart I think. Not had anything else, my nodes were clear s maybe that's why.

 

I also suffered with a dry nose last cycle and had a bit of blood but no real nose bleed. I stuck some coconut oil up there which seemed to do the trick.

 

Working again today, need to make up for the 2 hours I was at the hospital yesterday. Going to see the Druid later for my reiki😊 Rash is looking marginally better so going to carry on with the cream and antihistamine today and see what happens.

 

Hope you've all got good days planned. 😊

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Re: October 2017 Chemo Starters

Morning ladies, just popping in from Nov with a question for you ..... I’ve just read that Docetaxal is sometime infused using an alcohol based infusion and therefore you could be over the limit to drive ???!!! I normally drive myself to my treatments ..... have any of you been told this? Felt an effect?
This might be a load of hog wash!! Dr Goggle!

Thanks for your help! Xx
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Re: October 2017 Chemo Starters

Hi reeboot, I have had a couple of nosebleeds since starting T. Not bad and they stop after a few minutes but I have been told this is a normal side effect. Regards scans I also haven’t had anything other than the initial mammogram and ultrasound. I was told this was because my nodes were clear, had there been anything in my nodes they would have done further body scans to check if it had spread else where xx
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Re: October 2017 Chemo Starters

Hi Reboot, i had 1st T 2 weels ago and i havent had nosenleds but have had a very dry nose and there is blood whenever i blow it. Other people on the forum have had nose bleeds.

I have my original mammogram, then a deeper mammogram followed by biopsies. After diagnosis i had an ultrasound to check lymph nodes, a ct scan and bone scan to check for any spread - they were clear Thank God x

Since starting treatment i have had 2 heart scans - as i am having Herceptin which can affect the heart - and an ultrasound to check for response to chemo.

I dont know why some of us get more scans than others.

Xxx
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Re: October 2017 Chemo Starters

Buddy, my hair loss started in the third week after my first FEC. I went down to a grade 5 in the first week after my second cycle x
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Re: October 2017 Chemo Starters

Good evening ladies x

I hope everyone’s rashes and coughs are improving and SEs are treating you kindly.

I have two quick questions this evening.

1. Ladies on T/ finished T - did you suffer with nose bleeds at all? I’m getting one every other day pretty much.

2. Did anyone not have additional body scans/checks? I had my original diagnosis ultrasound, biopsy and mammogram, but I haven’t had any other scans or checks anywhere else and it seems as though everyone else has?

Thank you lovely ladies, sending lots of love xxx
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Re: October 2017 Chemo Starters

I was so excited to see Santa I heard him coming from the bottom of the road so by the time he got by mine i had my hat and coat on so I could stand on the drive and wave 

 

hair loss for me cycle 1 lost lady hair 

cycle 2 .. day 4 hair started to shed and was bald by day 6 so once it started to go it was rapid but my hair was shaved to number 2 so no long bits hanging on

 

Wishing evryone a restful night xxx

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Re: October 2017 Chemo Starters

Hope your cold gets better soon Karen, keep a close eye on your temperature, remember too low is also an issue x
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Re: October 2017 Chemo Starters

My hair started coming loose around day 17 didn’t go properly until a couple of weeks after cycle 2
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Re: October 2017 Chemo Starters

Evening ladies....sorry thought I posted earlier but didn’t work!!

 

managed to get some shopping done although kept having to blow my nose and take my hat off!!  Not feeling too bad so think it’s just a common cold but keeping an eye on my temp!  Feel a bit shivery now but I think it’s just because I’m cold....now in bed with heated blanket on!!

 

Meesh hope the rash eases and you don’t need antibiotics 😱

 

Sue...hope ur cough improves and you gave Santa a big wave from us all!!

 

I now can’t remember what’s happening with everyone else....bloody stupid chemo brain 😱😱🤣🤣

 

Love to you all anyway 😘😘😘

 

xxxxx

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Re: October 2017 Chemo Starters

Sue, lucky you I haven't seen a santa like hat since I was a kid!

 

Buddy, I think hair loss can be anywhere from day 14 to 21. I saw mine start on hairwash on day 21 of first cycle and then during first week of second cycle. Since then it's been hair wash on day 14 that I've seen the most hairloss.

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Re: October 2017 Chemo Starters

Sue, I used to love when Santa came round :-)
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Re: October 2017 Chemo Starters

Hi Buddy, if you’re just switching to FEC, hair doesn’t start to come out until really late in the cycle. I think I’d got to say 18 or 19.
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Re: October 2017 Chemo Starters

 
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Re: October 2017 Chemo Starters

i wanted to share this happy pic .... Santa just been down my road xxxxsanta.jpg

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Re: October 2017 Chemo Starters

Bit wacked out now! 💩 still ok though and only one more ondansetron to go. Right foot is already feeling the numbness. When does hair start falling out?
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Re: October 2017 Chemo Starters

Jelly, I stashed some of my 👻👻👻 in the secret box. Get back on that 🚂. Good Luck tomorrow. Do you get GCSF jabs to take? If not, ask if you can. My 👻👻 were 34 after the jabs, back down to 4.1 by bloods time. 🎇✨🦄🦄🐧🐧🦄🦄✨🎇 You've got a penguin in there, that'll do it.
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Re: October 2017 Chemo Starters

Right then 👨‍✈️🚂is taking the fec I get t now, meesh I’ve got to the secret secret stash that you and I know about so on the way with 🥊🥊🥊🥊🏑🏑🏑🏑🥌🥌🥌🥌🤸‍♀️🤸‍♀️🤸‍♀️🤸‍♀️🎳🎳🎳🎳🔫🔫🔫🔫💣💣💣💣💣grab what you can girls the driver needs reminding we get each other through safely 😘😘😘💕💕✨✨✨shi xx
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Re: October 2017 Chemo Starters

Dancing for you Jellytot to get that blood count up 🕺🏻💃🕺🏻💃🕺🏻🌈✨⭐️⭐️🌈🦄🦄✨⭐️💫💫🌟🕺🏻💃🕺🏻💃💃🕺🏻👯‍♂️👯💃🕺🏻💃👯‍♂️👯💃🕺🏻🚶🏼‍♀️👯

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Re: October 2017 Chemo Starters

Crikey Jelly, best dancing to get those bloods up in time for Friday 💃🏼🕺🏻💖