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October 2017 Chemo Starters

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Re: October 2017 Chemo Starters

Thanks for link buddy I know what to look for x
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Re: October 2017 Chemo Starters

Thanks meesh
Dizzy 🤣🤣🤣🤣🤣

Omg I don’t know if my patience vanished with this last round of chemo my hubby just raided the cupboards got 3 viscount biscuits and 2 cherry bake Wells sat there and munched them without even offering me anything. I didn’t want anything but just called him all the selfish b@st@rds under the sun for not even asking especially as I was standing getting his packed lunch ready for work tomorrow think he will be getting a dose of arsenic on his sandwiches x
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Re: October 2017 Chemo Starters

Yes I've bought it off the shelf before. Although when I went to onco unit yesterday they asked me if I had any at home I said no because knew they'd then give me some for free!

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Re: October 2017 Chemo Starters

🤣🤣🤣🤣 no it doesn't Each not really. OMG I can see where you get the nickname 😂
Buddyfan I love to watch the puissance but don't think I have the guts to jump a horse over 7ft myself. I do like jumping tho it's my favourite and very much missing riding as much as i use to.
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Re: October 2017 Chemo Starters

Loratadine is off the shelf I think. Just checked, Tesco's anti hayfever/allergy is Loratadine https://www.tesco.com/groceries/en-GB/products/282027376
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Re: October 2017 Chemo Starters

Cassie, 😂🤣😂🤣😂😂I lôve it that your Fitbit phones the police! 

 

Sue, I'll let you know about the Philly PB combo. Not expecting much but you never know!

 

Cassie, hope your bath helps ease your pains,

 

Rach, forgetting your antisickness 😳😳😳😳you're brave! Perhaps you are still dizzy after all!  My team gave me loads of meds after first chemo and just told me to tell them when I run out. 

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Re: October 2017 Chemo Starters

Oh my god WhyteFawn, does it really report you missing?
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Re: October 2017 Chemo Starters

Thanks rach I will try that
As in dizzy my head is spinning like a whirlpool it never ends 🎶 ?
What a pain havingvto wait for snyisiciness to kick in before your treatment x
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Re: October 2017 Chemo Starters

Way, way back in the day (1970's) I had a ex, v. long in the tooth Puissance jumper. He was 17.2 and had jumped 7foot something in his former life. He was miles too big for me as I was still jumping juniors.
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Re: October 2017 Chemo Starters

Sue, my mom used to add a bit of sugar to fizzy pop to get rid of the fizz. Works a treat then you don’t need to leave it open.

Meesh, Dizzy was my song at Uni, also where I picked up the nickname. I obviously grew out of being Dizzy though 😂

WhyteFawn, I’m FEC all the way, no Tbird for me.

They forgot to give me my Emend today to take before I go and I forgot to ask for it. I’ll have to be there that little bit longer.
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Re: October 2017 Chemo Starters

Buddy is Loratadine over the counter or prescription? X
Cassie I just got out the bath feel much more relaxed now

Will be using dream cream and sleepeaze tonight in the hope of combatting the steroids xx
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Re: October 2017 Chemo Starters

My Fitbit says I need to move more. In the week after chemo it phones the police and reports me missing. Even tho I wear it 24/7 It's amazing how little you can move sometimes.
Sue I actually prefer flat lemonade. Sounds daft but cheap flat lemonade is the best ever. I like flat coke for if I feeling a bit crappy. It seems to give your stomach something to do if you're not eating much.
Just having a nice looooonnnngggg soak in bath for my aches whilst trying not to get my feet too warm. It's not working too well.
Anyone who likes horse sports it's Olympia horse show this week. The puissance is on BBC red button tonight at about 9.15. Can't wait it's my favourite
🐎🦄🐎🦄🐎🦄🐎🦄🐎🦄🐎🦄
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Re: October 2017 Chemo Starters

Sue, I found taste went by next day, worse than my FEC1 so far. I hope you get some more sleep tonight. Remember the Loratadine for bone pain.

Love that photo, even OH did after I explained the whole 🚂, hot pants, 👻🏄🐱🏍🏹

Karana, raid the pubs dry roasted peanuts, they worked well for T and help loosen the 💩

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Re: October 2017 Chemo Starters

My tongue is not sore or anything but seems hyper sensitive to fizzy x no sparkling wine for me over Xmas though to be fair I haven’t really fancied alcohol. I had to leave the lid off the lemonade I had earlier with honey and lemon so it went flat but it has really helped my annoying cough

Cassie fingers crossed 🤞 the worst of the aches and pains have passed

I got heart rate monitor on my cheap watch thing from amazon (refused to pay Fitbit price lol)
It says my heartbeat ok but keeps telling me I need to move more ... cheeky thing it is some days it’s an effort to get out of bed ... though I do everyday even if it’s to relocate to sofa 🤣🤣🤣🤣🤣
It’s saying I need more sleep ... no 💩 Sherlock
I am averaging about 5 hours during the night with my awake times but most days have a couple of hours afternoon today I haven’t probably because of taking the 2 x 4 steroids in preparation for tomorrow xx
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Re: October 2017 Chemo Starters

Hi everyone. So far today (touch wood) the aches and pains have been less. Tho they do like to appear just as I'm getting ready for bed so we'll see what happens later. I seem to have been very aware of my heart beat today for some reason. My Fitbit seems to suggest it's ok even when I think it's a bit fast. Maybe I'm just paranoid.
Good luck you 3 for tomorrow are you all going to be T-birds?
My first T SE's started on Saturday night which was day 3 in the evening with the pains. Then mouth started feeling yucky. Got fluconazole and mouth washes so while it feels yucky it's not painful or stopping me eating or anything.
I've been less inclined to eat sweet stuff whilst on chemo. And in the first week I usually feel overfaced by a meal and prefer to graze throughout the day.
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Re: October 2017 Chemo Starters

Sur i think it will be someone really random like the Vicar!!! My theory is that is why she did the funeral... Guilt trip.. Who knows the chemo brain works in Mysterious ways as i still have it 😣
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Re: October 2017 Chemo Starters

I will let yoU try it first meesh lol
At least if you don’t like it you can have Philadelphia and marmite x
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Re: October 2017 Chemo Starters

Karen, glad you're feeling better and nice to see OH treating you to a choc orange 🍊 too, he must feel guilty!

 

Sue, Rach and Jellytot, I've been onto the 🚂 👨🏻‍✈️today and given him a good talking to so everything should be good for you tomorrow 🤞🏻He'll make sure the train is super 🌟⭐️✨⭐️🌟🌈✨⭐️🌟🌈⭐️and cosy warm too. I'll have a couple of 🔫🔫pointed at the 👨🏻‍✈️head, Cassie' going to help me with her 🏹 and Shi will go all tai chi on 👨🏻‍✈️If he misbehaves. Hope Sue and Jellytot that you have surfboards at the ready for 🏄‍♀️🏄‍♀️on the roof🏄‍♀️Rach you can twirl in your gold hot pants Dizzy by Vic reeves.

 

Ive been scoffing crisps, mince pies, crumpets and bread the last few days. Sue, bought some Philadelphia to try on crumpets with peanut butter to see if it's good or not, but haven't tried it yet.

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Re: October 2017 Chemo Starters

I still haven’t had revels lol and been fancying them since they were mentioned last

I have had lots of galaxy hot chocolate to drink though 👍x

Yes I prefer even numbers lol but then I know I am odd

My kids think I am mad I can eat spaghetti hoops but not tinned straight cut spaghetti
I also like corn on the cob but not loose sweet corn

🤣🤣🤣
Highlighted
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Re: October 2017 Chemo Starters

I prob won’t have a clue who’s who Sue...but reckon I will still watch it!!

My diet has been really strange...I’ve not ate much meat just the odd bit of chicken, this round I’m really struggling to fancy anything healthy, malteasers and revels are going down well!! My mum left me some homemade biscuits earlier so reckon I’ll be munching on them soon!! Xxx
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Re: October 2017 Chemo Starters

I feel like 4 is much more of a landmark than cycle 3 was. I’m looking forward to having it over and done with!
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Re: October 2017 Chemo Starters

Shi thanks
I should be ok for lunch then
I have struggled with meat the last cycle think it’s to do with the smell thing I have going on I cooked steak jacket potato and mushrooms last night but literally just ate the mushrooms
Tonight I did chicken roasties and veg but had the smallest amount of chicken and still left some

I have craved carbs never have I ate so many crumpets or so much bread, before treatment started was on slimming world and I didn’t tend to eat them. This cycle I have even just boiled rice or pasta and ate that on its own
When I was weighed on Wednesday I had lost 4.5 kg but still with in wright parameters for my current chemo mix . The weight loss wasn’t intentional

Roll on tomorrow get chemo 4 done and dusted and see what it brings x
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Re: October 2017 Chemo Starters

Sue, I thought it was just me that fitted my bath around 📺 😂🤣😂I keep thinking I would love a tv in the bathroom. Mnd you I'd never get OH out of the bath then! 

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Re: October 2017 Chemo Starters

Jelly ... York is on my to visit list my mom said it is a beautiful city but I have not made it there yet so hope to get there before I go back to work if I can get hubby to have a day off 👍

Lol karen will you know who anyone is ?
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Re: October 2017 Chemo Starters

Hi sue on the t currently because of steroids and antisickness meds botty got backed up, been better days 6&7, went onto fluconzole as mouth started going on day 5. I’ve been lucky on fec and touch wood on t, no loss of appetite, so nausea or sickness. Ive found sticking to what I fancy to eat (steak or lamb) at lunch and then whatever at night, pizza, pie chips beans, spaghetti Bol it’s been ok taste wise. The may girls did advise us to up the carbs on t, as t can give us 🌪botty. Buddyfan has got the t t-shirt so knows all about t on this thread. 😘😘😘💕💕✨✨shi xx
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Re: October 2017 Chemo Starters

Loved that pic....who needs to be a skinny Wonder Woman Anyway!!

 

I also had clear nodes but Oncotype came back recommending I had chemo.....coz it’s so great and we love it...NOT!  Rach who needs a brain anyway!!

 

im starting to feel more normal again now...have put pjs on and OH has gone out to another pub for a couple of hours, maybe he will come back a bit happier...he did buy me a choc orange from the shop so I think he knows I’m angry with him!!

 

sue....I never watch emerald but think I may even have to watch it tonite!!

 

✨✨✨✨

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Re: October 2017 Chemo Starters

I'm not in until 130pm, so we're going xmas shopping in York (with lunch) beforehand while I still can !
Hugs to all x
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Re: October 2017 Chemo Starters

I really want a bath but want to see who killed Emma in emmerdale think I will rush up in the half hour between episodes lol x
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Re: October 2017 Chemo Starters

Ha ha ha rach 🧠 x
I am 11.00 tomorrow then going straight from hospital to lunch with my mom x I found if I ate straight away in FEC I could enjoy it before side effect kick in so just hope I can enjoy it tomorrow how quickly did people get reactions after first T xx
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Re: October 2017 Chemo Starters

Rach, 😂🤣😂🤣😂🤣😂loved the brain comment! Just proves you really are as crazy as the rest of us! 😜

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Re: October 2017 Chemo Starters

Rest up Shi. Sleep well and keep snuggly warm.

 

Fairydust x

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Re: October 2017 Chemo Starters

Evening ladies! 

 

Karen, looks like our journey continues to be similar with antibiotics for us in cycle4! Good job you got yourself checked out, hope you start to feel better soon 😘😘🤗🤗🤗although I've still not taken mine yet. Rash is still the same, I never suffered with spots but this looks like acne 😳

 

Jellytot, that photo is 😳🤣😂🤣😂🤣😂

 

Buddy, I'm having chemo because the oncotype test came back at the top end of intermediate and so was advised to have it. I was also told that by having it I would have 90% chance of it not returning not sure what the % was if I didn't have it.

 

Shi, hope you're doing ok here's a dance for you to get you back on your feet 💃🕺🏻💃👯👯‍♂️👯⭐️🌟🌈🌈⭐️⭐️🦄🕺🏻🕺🏻👯💃🌟🦄🕺🏻👯👯🕺🏻🕺🏻💃🕺🏻👯🕺🏻🕺🏻💃🕺🏻👯👯‍♂️👯🕺🏻👯‍♂️👯‍♂️💃

 

 

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Re: October 2017 Chemo Starters

Good luck everyone with treatments and appointments tomorrow. 😘😘😘hope everyone gets se and colds and rashes sorted very soon too. I’m in bed so wanted to send ✨✨✨💕💕🕺🕺🕺💃🏻💃🏻🕺🕺💕💕✨✨✨✨ready for tomorrow if I fall asleep early as I have been. 😘😘😘love you all very much 💕💕✨✨shi xx
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Re: October 2017 Chemo Starters

I can’t unsee that!!

Can’t remember who asked about chemo if nodes aren’t involved. My nodes were clear but as I was grade 2b they checked my oncotype, it came back as smack bang mid risk so was given the option of chemo. It improves the odds of no return over 10 years from 85% to 90% onc said it wa really up to me and if it were his wife he’d not push for one way or the other. So I actually chose to have chemo, they’re going to check for a brain later 😁

Had my bloods done today but won’t know if I’m good to go until I go in. I’m up at 9.30 tomorrow, what time are the rest of you up?

💖☃️🦄✨
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Re: October 2017 Chemo Starters

Great photo, I want to tell her she’s an inspiration and she can be our momma hot pants who’s waiting for us at the station 😁😁😁😁💕💕✨✨shi xx
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Re: October 2017 Chemo Starters

Jelly when did you take my pic 🤣🤣🤣🤣

No it’s not me when I had hair I was blond or pink and now I baldy bonce xx
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Re: October 2017 Chemo Starters

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Re: October 2017 Chemo Starters

Yes that’s very true Buddy...think OH was shocked how quickly I went downhill but he’s still burying his head in the sand! Xxxx
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Re: October 2017 Chemo Starters

Jellytot, great you found the stash of 👻👻👻. Good luck tomorrow. The boards are waxed🏄🏄🐱🏍🏄🏄, get those gold pants on.

Karana, I’m sort of glad you’re forced to rest! The antibiotics will sort you out, but it’s just a reminder to OH how fragile you are.



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Re: October 2017 Chemo Starters

Shi he’s so rubbish....all the beer needed to be ordered for Xmas period today and he got in a panic....he really is useless without me...tempted to ring his mum and tell her to have a word with him!! Anyway I’m def not doing anything today apart from vegging on sofa! Good luck for tomorrow ladies 😘😘💃✨💃✨💃✨💃🦄🦄🦄🦄🦄🦄
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Re: October 2017 Chemo Starters

😘😘😘Karana, glad you went and got checked over lovely, fluids, rest and 🐟🐟🐟 for oh, was he planning on a round of golf tomorrow? He’ll have to do a round of helping Karana instead 😘sue and reeboot 🏄‍♀️🏄‍♀️🏄‍♀️see you on the roof tomorrow cassie and I are back up there after giving the 👨‍✈️🚂a 🤸‍♀️🤸‍♀️🤸‍♀️💣💣💣naughty driver, meesh back in your safe hands with the 🔫🔫🔫again lovely. Buddy and dizzy, the body boarding and surfing lessons got sue joining the t party tomorrow, so board waxing please 😁😁😁meesh hope the rash clearing up ok now. Lots of ❤️❤️❤️to everyone and filling 🚂with 💕💕✨✨✨🎄🎄🎄🎄🎄too love shi xx
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Re: October 2017 Chemo Starters

Afternoon ladies....temp was 39.9 this morning so I’ve been to hospitals, bloods taken and neutrophils were fine but trace of a uti and they don’t want my cough to get to chest so have been given antibiotics!  I’m now home but feel totally zapped...so gonna go in hibernation.....think OH may have a nervous breakdown before the day is out....he’s rubbish when things go wrong!!

 

glad everyone else is doing ok xxxxx

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Re: October 2017 Chemo Starters

Reboot my onco said up to 2 node involvement would not have needed lymph clearance or chemo with my type of tumour xx
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Re: October 2017 Chemo Starters

Thanks so much ladies, and thanks Mishy. I had a macro-thingy in just one node and it was because of that that I’ve been wondering.
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Re: October 2017 Chemo Starters

Jelly see you on board tomorrow i xx fab news xx
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Re: October 2017 Chemo Starters

Haha Shi liked the Rads dance this morning fog on the Tyne whey aye man!!!!! Hope you are managing ok on the T
Hooing you are all coping with SE and chillin out xx
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Re: October 2017 Chemo Starters

Everyone i had a macrometes in 1 node but never got extra scans onc reassured my it was not necessary as all cancer was removed with op Only ever had mammogram and ultrasound at beginning dont get scsns when treatment is over either hope that helps x
Hoping everyone is having a good day xx
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Re: October 2017 Chemo Starters

Woohoo neuts are up to 1.2 so save me a seat tomorrow Meesh!
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Re: October 2017 Chemo Starters

Thanks for all the hair loss info ladies.

Reboot, yes I has nose bleeds on every cycle of T. They usually stopped after plugging with tissue fora bit. Re scans….When I first had lumpectomy and nodes out, I was told I didn’t need any more scans as they didn’t think it had spread and chemo and rads would sort it out. I’m having loads of scans now for other issues. I have had lots of uti before chemo and during, hence the ultrasound kidney and bladder and impending endoscopy. I’m having bone ct, MRI, density scans because I have had a bad back issue and they are worried it might be myeloma, ffs as if I haven’t got enough to deal with. As I will be on Letrazole after chemo, I think they would have done a bone density anyway, to check about osteoporosis.

Sue, good luck with T tomorrow.

Meesh, how is your rash? I’ve had a redness just below my neck for a couple of days now. Not really a rash and it’s about 1.5” away from my line. I’ve put E45 on it and will get it checked tomorrow when I have my flush. Did the antihistamine help yours? My temps are normal. Why are you having chemo if there was no node involvement? Is it the type of BC? I was told I would only have rads if nodes had been ok.

Who was low on 👻? Hope you got on ok .




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Re: October 2017 Chemo Starters

Scans
I was told didn’t need any but after lumpectomy and cancer found in nodes Had axillary clearance cancer in 5 of 12 nodes so sent for ct and mri as precaution

Both came back clear phew xx