October 2017 Chemo Starters

[Meesh73]

Yay Jencat! That's another thing ✅ off for you!

[Jencat]

Had my PICC line removed this afternoon-thought I was having a line flush as usual, so that was a nice surprise! What I didn't expect was how emotional I was going to feel, had a little cry whilst the lovely nurse removed it! I think when I had my last chemo I knew I'd still got SE's to get through, but having the line removed, it really felt as if it was the end of chemo xx

[Jencat]

Hi Karebear, had my PICC line removed this afternoon! My last chemo on 23rd Feb, so it was left in for a while afterwards x

[Karebear]

Hi ladies
When do they remove the picc line ?? Is it after your chemo is finished it or do they wait for a couple of weeks just to make sure they don't need to use it

[Meesh73]

Jellytot, good to hear yesterday went well and Chaffinch sorry to hear about your dad. It's so difficult coping with treatment on its own without adding in bereavement and sick family members too. Sending you both ❤️ and 🤗

Karen, good to hear OH is behaving. Hope you enjoyed your shopping and treated yourself to something nice.

Shi, I've just had 😎😎😎 no18 so only 2 to go, yay! You and Karen finish next week and then Rach, Chaffinch and Sue. Sue's got more treatments though.

Having 🍕 tonight for dinner as kitchen is still a no cook zone and I fancied a treat 😋

Buddyfan, Karen I've put my leave request in for 22 march just waiting to see if it'll be approved. 😕

[Runnerbean]

Sorry to hear about your Dad Chaffinch 💖Jellytot glad it went well yesterday I was thinking of you 💖good to hear everyone’s results are in and all good news xx

[Jelly tot]

Hello all, thanks for all the love and support, yesterday went well and now we can move on.
Lovely to hear the good news about results and sorry to hear about your dad Chaffinch x
Love to all xxx

[Ali49]

Chaffinch, sending you my love and best wishes. Hope you have a good jpurmey 9n Saturday x

[Shi]

Chaffinch ❤️❤️❤️Love and hugs round you darling, so sorry to hear about your dad 😘😘shi xx

[Fairydust 14]

Hi Chaffinch, so sorry about your dad..that's very sad to hear, he will get all the support and medical aids he needs in palliative care, more than in standard care, so he will be in more comfortable surroundings than ever before..Hope your journey and visit goes well..x

I haven't got a creative bone in my body, so envy you making your own cards, it's meant to be relaxing doing creative activities, so hope you have a relaxed and serene  International Women's Day.

Fairydust x

[Jencat]

I think bc and chemo has made me more emotional than I already was-YD found her pet mouse dead this morning-she's not cried, but I have! xx

[Jencat]

Chaffinch, I'm so sorry to hear the news about your dad x It must be so difficult being so far away and not being able to visit easily xx

[Chaffinch17]

Glad to hear OH is back in line Karen x
Great news Ali and Sam, so pleased for you x
Jellytot, hope yesterday went smoothly, we’re all thinking of you x
Unfortunately my dad has been passed over to the palliative care team and moved to the local cottage hospital. He is deteriorating rapidly, hoping to see him on Saturday, so hard when treatment is ongoing and we are 150 miles away. Quite a few of us have had to deal with similar situations over the past few months 😞.
Having a quiet rest of the day now, got the card making stuff out on the table and I’m going to make a card for my mum for Mothering Sunday, should help take my mind off a few things.
Have a good day ladies we are all 💪😘

[karana23]

Great choice of tune Shi!!

https://g.co/kgs/dQNykT

OH seems on best behaviour today reckon his sister had a word!!  Got back from hospital and he’s done all cleaning!  I’m now off with a friend for a bit of shopping!!

Have a great day everyone!! 

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[Shi]

Hi Karana, hope you get your tummy sorted and hope oh isn’t mr grumpy pants at you today with spurs getting knocked out last night, they played well too. How’s everyone getting on with 😎😎😎 meesh is nearly done now, then I think Karana, and me finish next week too and then think it’s sue, dizzy and chaffinch, sorry getting confused with the snow cancellations and some of us having boosters and some not. Buddyfan, hope you house warmer now we’ve gone up a few degrees, who knew 3 degrees would feel so tropical 🏖😁😁😁bit of Madonna - holiday on the jukebox 💃🏻💃🏻🕺🕺💃🏻💃🏻💕💕✨✨shi xx

[buddyfan]

Ali, yay, yet more good news. What a relief that must have been. 🤗❤

[karana23]

Evening ladies....

Great news for you both sam & Ali 😘😘

Jellytot like everyone else my thoughts are with you 😘😘

Mishy I do think my stomach problems are after effects of chemo...like you I’ve been taking lanzaprosole but I still get the burning feeling in stomach and bloating so much so that I feel everything is digging in my stomach and my mouth feels slimy 😱 gonna make an appointment with dr I think! Red wine and crisps are the only thing that doesn’t seem to effect me so might have to live on that 🍷😱

Shi I also read the sad news about Emma...such a brave lady and a true inspiration!!

I’ve closed the pub and now tucked up in bed...OH won’t be home TIL about 130 😱

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[Meesh73]

Evening ladies!

Good news for both Sam and Ali, hoorah 🎉🎊🎉🎊💃🕺🏻💃🕺🏻I bet you're both so pleased.

Jellytot I hope today went ok for you, sending ❤️and 🤗🤗🤗

Had a nightmare rads session, I was in there for 50-60 mins and so long I reckon I worked through a whole album as I heard the same bob Dylan song twice. The imaging machine broke and I had to lie there while they fixed it, then they weren't happy with my positioning and had to re-do it and the images. I was so cold I was shaking and they had to give me a blanket 😰

On a more positive note came home and the kitchen is really really taking shape now and I'm getting quite excited 🤗

[Jay68]

Well done Ali on your pathology report - it feels so good to get that news doesn't it?  I too was fortunate enough to hear that news - it sure feels amazing - enjoy!   Have you got to have any rads?  xx

Well done Sam on your clear CT scan result x

[Shi]

Ali, that’s wonderful news 😘😘😘💃🏻💃🏻🕺🕺💃🏻💃🏻💃🏻 💕💕✨✨shi xx

[Claire-bell]

Ali I'm so pleased to hear your news that's fabulous! Cx

[Mishy18]

Fantastic news Ali i bet you and your family are over the moon 😊 Sam great to hear ct was all clear more good news x

[Ali49]

Got the best news ever today! I had a complete pathological response to chemo and there was no cancer left and none found in the lymph nodes. Thank you God xxx

Sam that is great news xx

Jellytot thinking of you and your family xxx

Ladies, thank you to each and evetyone one of you for your companionship, understanding, love and support 0n this journey. Lots of love xxx

[buddyfan]

Sam, that's brilliant to hear. I'm so pleased for you.

Jellytot, 🤗❤🤗❤ I hope all went as well as possible. Thinking of you.

[Shi]

Ladies, I’ve just seen that the beautiful, inspirational author Emma Hannigan has lost her 11 year battle. Love and thoughts are with her family and friends and Emma thank you for your beauty, inspiration, strength, courage, humour and smile 💕💕✨✨shi xx

[Shi]

Sam 👍👍👍brilliant news, ali hope you are ok too 😘😘💕💕✨✨shi xx

[Sam34]

CT results came back clear 💕
How did you get on today Ali? X

[Claire-bell]

Thinking of you Jellytot. Hugs for you and sending all the positive strength I can for you to get through today remembering the good times. Lots of love xx

[Mishy18]

Jellytot 💖 for today thoughts with you and your family 💖

[Jencat]

Yes, sending my love and thinking of you Jellytot xx

[Shi]

Jellytot ❤️❤️❤️Our love and thoughts are with you today 💕💕💕shi xx

[Mishy18]

Karana if its any consolation im still have trouble too 2ith my stomach thought itvwas get better stopped lanzaporol then its hit me again last 2 weeks its always bloated and burning i constantly have horrible taste in my miuth i too don't know what foods are trigger and i don't eat half of the 💩 i used to before this, im telling my onc on Monday at my first follow up as im convinced that chemo has damaged my stomach as it started after first fec good luck with yours hope you get sorted
Hoping everyone is well today x

[Shi]

Karana, glad your oh knows his got no cards left for rest of this year and hope his sister gives him a talking to too 👍hope your 😎😎go ok and hope dr sorts you something to settle tummy. I’ve still not had a curry yet and I’ve been craving one since starting chemo 😘😘💕💕✨✨shi xx

[Shi]

Mornings no ladies 😘😘Ali, 🤞🤞🤞for your results today lovely lady 😘😘😘clairebell yes I heard we should do post op exercises during rads too. Sam, How annoying but on the flip side I’d agree with what Buddyfan said, they would be having you in straight away if anything to be 😳😳about, keep 💪💪💪early 😎😎😎for me again today, hope everyone on 😎😎😎does ok again today 😘😘bit of the carpenters - top of the world on the jukebox this morning ❤️❤️❤️Spread the love and joy we have for each other 💕💕✨✨shi xx

[karana23]

Morning ladies...had a good sleep last night so feeling more myself today!  OH hasn’t really apologised but I know he knows he’s in the wrong....my friend gives her hubby 3 **bleep** up cards each year...I told him he’s lost all his in one hit!!  Did have a word with his sister yesterday and he will see her tonite when he’s at footy so hopefully she will tell him off!  He really doesn’t make any sense as he’s made sure there’s staff today in case I don’t feel well 😱 Think I will get an appoint with docs about tummy issues, trouble is I have to ring first thing to get an appointment but I’m at hospital 😱

Meesh that’s quite interesting about boosters....wasn’t sure what was different about them?  Mine don’t start until Friday, have an end of treatment review that day too!  Did notice yesterday that I cld feel a slight twang when they zapped 😱

Buddy/Meesh I’m good for 22nd too 😊

Right better go get ready and get off to Rads No 14!!

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[buddyfan]

Meesh, I'm still ok for 22nd

[Claire-bell]

Hi girlies,
Good to hear we are slowly returning to normal with hair growing back! My nose hair has returned this week but I'm not sure if I have an ingoing hair or just a swollen gland but I have a very sore left nostril! My eyelashes are a couple of mm long and some eyebrow hair coming through - not enough to leave the eyebrow pencil behind though! Useful bag of goodies at last weeks LGFB but nothing I didn't know and a bit patronising at times. My hair is coming back grey and thick but it's only 2mm long - chemo finished on Jan 18th so about 7 weeks ago now. Am using ph balanced conditioner, lush soap, and extraordinary oil by Garnier. Have a real sweet tooth at the moment which I can't shake off despite largening waistband....:(
My OH has gone a hot flu and wonders why I won't hug him...! He's had me up and down the stairs with cups of tea and meals .... grrrrr....... but I guess it's his turn now!
Had #8/15 radiotherapy sessions today- am also having the wax bolus to increase dose to skin. Already pink and prickly heat type soreness is irritating. Hope rest of you doing ok - keep doing exercises post op girls - I read we should be doing same exercises while having rads - has anyone else heard that? Hugs xx

[buddyfan]

Ali, good luck with results tomorrow. 🎇🎇✨✨👅🐧🦄👅🐧🦄✨✨🎇🎇

[Meesh73]

Evening ladies! 

Karen, I hope OH wassuitably remorseful about last night. I hope you get your tummy sorted too.

Sam, try not to worry no news is good news!

I had my first booster today, it went ok. They did some more images and then I got 3 zaps, they had to use what they call a bolus (small square but of rubber) as the location of my tumour bed is quite near the skin surface.

Buddyfan, I hope you're doing ok. I might be able to do 22 March now, although I haven't booked it yet! 😊

[Sam34]

I’m recovering well 👍 Back to full movement nearly now,I had my 2nd Herceptin injection yesterday 😬 8th altogether,sounds like we’re both at the same stage of treatment,good luck with your results tomorrow 🤞 xx

[Ali49]

Sam try npt to worry. Ypu would like to thinkn8f they havent reported onnit they cant have seen anyth8ng that needed to be reporyed on quickly!

I am feeling good after surgery. Doing my exercises and not driving yet. Get the results from surgery tomorrow and will find out if i need lymph node clearance 🤞🤞🤞.

I also have my 5th Herceptin (2nd injection) tomorrow too!

How are you recovering Sam?

Buddy, sending you a big hug xxc

[Sam34]

Feeling annoyed 😠 just rang my GP about the results for CT scan I had 2 weeks ago ( not cancer related ) she’s been in touch with the hospital and there is still no report been done 😢 surely they have a little look incase it’s serious?? It could end up cancer related for all we no and they say it can be up to 5weeks as there’s a backlog!! I just want to no it’s nothing serious!! After being told I got all clear last week I shouldn’t be feeling like this 😔

[Shi]

Hi Karana, I hope your tummy has settled and sorry your oh been a bit of a prat and hope he’s apologised to you today. 😘😘hope everyone’s 😎😎😎gone well today. Karebear, I had gene test and like Cassie had a 2-3 month wait and like Cassie was lucky to be negative for the gene. Ruth, I showed my friend the unicorn post, she was 😂🤣😂🤣😂🤣 😁😁😁what a find that was 👍👍👍meesh hope your first 🥓🥓🥓bap booster goes well lovely 😘😘Karana definitely the smiths big mouth strikes again on the jukebox for your oh and tell him we’ll be round with the 🐟🐟🐟🐟 any more gob from him 🤐🤐🤐💕💕✨✨✨shi xx

[buddyfan]

Oh Karana, your description sounds spot on, behaving like a spoilt child. What about the worst 6 months of your life that you’ve had? Made worse sometimes, by his behaviour. He needs that chat from a third party, in fact it almost sounds like he needs counselling. Trouble is, men don’t do that, do they? Hopefully he will realise how far he stepped out of line last night.
Sounds like Ali has given good advice. You need to sort out what triggers your dodgy stomach.

Sam, we all have your feelings and just try and think ‘no news is good news’. Goodness know how I’ll be come my April assessment. I received the scan date yesterday and even the thought of getting the results made me blub. There’s six weeks between my scan date and assessment.

[WhyteFawn]

Hi Karebear. Yes I went for the test. You'll have a chat with one of the genetics people to help you decide if you want the test. Then it's just a blood test and takes 2-3 months to come back. Mine was negative for any gene mutations.

[Karebear]

Hi ladies
Am going to see the genetics clinic today about being tested for the .BRCA1 & BRCA2 Gene
Has anyone been and got tested

[Sam34]

Hi Ali how you feeling now? After surgery? X

[Ali49]

Karen what a night!! Forget the hubby and concentrate on you! Have you seen your gp about the tummy issues? Maybe you have developed IBS in which case you need anti spasmodic meds!

I was diagnosed with IBS years ago and after a while i paid for a food intolerance test. It was bran that triggered my symptoms. Whereas i hadbeen blaming vegetables!! I had some probiotic tablets and candida tablets for a m9nth and cut out bran. I have never looked back but if i do get symptoms now i take spasmanol which my doctor prescribed.i hope you feel better today xxx

After rads go and look for a little one bedroomed penthouse and ask can you move in today 🤣🤣🤣 xxx

[DizzyBrummie]

Karen, that’s bloomin awful! No wonder you’re still angry. Hopefully when he wakes up he’s full of sorries and remorse. Not that it would change last night’s behaviour.

[karana23]

Morning ladies....oh what an evening I had!  Meal out with OH was lovely at lunchtime but as usual I ended up with chronic stomach ache...I really can’t wirk out what triggers it but it’s doing my head in!  Subsequently I cldnt bare it by about 8pm so came upstairs...OH started acting like a spoilt child and reckoned it was worst birthday he’s ever had, we had staff in but he stayed down drinking and getting anyone he cld persuade drunk, music was blasting out people were singing, dart tram were trying to play darts and I lay in bed wishing stomach would go do one!  It got worse as the night went on...so much so that at 1130i had yo get dressed and go sort out a problem with the pizza man who said he hadn’t been paid and called the police 👮‍♀️ how I haven’t killed anyone I don’t know!  Anyeway im gonna get up (obv Im in spare bed 😡) go to rads and by the time I return hopefully he may have vanished in a puff of smoke 💨🤪 

sorry to have to be so ranty but im still in angry mode...if I wasn’t in the middle of rads I’d be doing a flit and go stay with my sister!!

Hope you all have a good day today, sorry I can’t even remember what to reply to anyone else 😱😱

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