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October 2017 Chemo Starters

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Re: October 2017 Chemo Starters

Glad you haven't got mets Jill, but sorry you've got a rare bone disorder, it sounds painful.

I think my rads onc, with the agreement of my chemo onc, wanted to wait for the scan because if it was done too soon it could give a false reading with scar tissue. I'm hoping they wouldn't leave me that long if they weren't pretty confident that everything was ok! xx

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Re: October 2017 Chemo Starters

Hi jencat ❤️❤️For Monday darling. I think Stress played a part jencat but none of will ever know what it was that caused it. I don’t do stress now at all and focus on living, 💃🏻💃🏻🕺🕺💃🏻💃🏻💃🏻💃🏻, having 😂🤣😂🤣😂😁😁😁😁😁and 🤪🤪🤪🤪🤪🤪times with all our amazing 💪💪💪💪💪beautiful women on here and in day to day life. I’m glad to read your sessions are helping you 👭👭this journey is so personal to each of us we all have our strengths and weaknesses and together we are eternally 💪💪💪💪💪💕💕💕✨✨✨✨Shi xx
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Re: October 2017 Chemo Starters

Can't believe that you have had to wait this long for the scan.I have lots of issues with my bones - initially they thought it was mets but looks like it is rare bone disorder causing me to break bones for fun - lesser of 2 evils ? Waiting on results of tests .
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Re: October 2017 Chemo Starters

Thank you Jill x It's been hanging over me a bit since I finished rads in June and makes it harder to move forward not knowing if I'm actually cancer free.

Hope you're ok x

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Re: October 2017 Chemo Starters

🤞for your results Jencat - hard not to be anxious - I hope you get good news .
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Re: October 2017 Chemo Starters

Hi Shi, I was interested to read on another thread that you felt stress had contributed to your bc as I've always felt that it was a factor for me getting it and I'm TN too xx

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Re: October 2017 Chemo Starters

Hi Chaffinch, thanks for your good wishes. I'm waiting for the results of a CT scan and will get them on Monday when I see my onc. I had it to check the few mm's of cancer that was behind my lump had gone. My onc said she'd be surprised if there was still anything there and I keep thinking surely they wouldn't have left me 6mths after rads finished before the scan if they were worried?! Even so,I'm anxious about the results xx

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Re: October 2017 Chemo Starters

Hi Jencat, fingers crossed for results of MRI and bone scan. Hate the waiting x
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Re: October 2017 Chemo Starters

Hi Angelblue. Sorry that you have to be here but it’s a very supportive place. Not sure how I would have coped without the ladies here.
I had 6 FEC and echo all of the advice above. I used a moisturising mouthwash specifically designed for dry mouth caused by chemo that began with a B but I never could remember the same they sell it in super drug for about £8 not cheap but worth it and I took Manuka 25+ honey made by Tiptree sold in most supermarkets.
Hope your treatment goes well and you avoid most of the side effects done people do. Pin a picture of New Zealand on the fridge to spur you on. My eldest daughter went there 3 years ago and loved it, so beautiful xx
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Re: October 2017 Chemo Starters

Hello ladies! Haven't posted for a while been very busy with work and also makes no the most if Xmas celebrations as I missed out last year.

Buddyfan, really good to hear that your CT results showed no further changes that's good news. I keep losing a few pounds then putting them back on again 🙄

Angelblue, sorry to hear you're having to go through this. My situation was very similar to yours I thought it'd just be op and rads but my oncotype test was at the top of borderline and was told to have chemo. I had fecx6 and cold capped all the way through. I had my hair cut into a short inverted bob type hairstyle beforehand and it's more or less back to what it was before treatment. I lost quite a bit from the top of my head and the back and sides thinned but I did keep quite a lot (enough for me to brazen it out without a wig). I found sickness & dizziness to be the worst SEs with fec. I didn't fast but I did drink 3litres of water day before chemo, day of chemo and day after and then 2litres every day between cycles. I took m&s Manuka honey and didn't have any problems with my mouth but I also used my electric toothbrush on a sensitive setting and my airflosser too. If you want to pm me with any cold capping or fec questions then please feel free to do so. Wishing you 🍀🍀stay 💪💪💪 and remember we're all here for you! If you feel or are sick after your first treatment call your 24hr line as they can change your meds and do something about that!
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Re: October 2017 Chemo Starters

Buddy, so pleased to hear your good scan results xx

Thank you all for your good wishes x  I get my results when I see my onc on the 17th. She said she would be surprised if there was anything still there, but I was told my lump wasn't cancer, so I can't really relax until I get the results xx

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Re: October 2017 Chemo Starters

Hi angelblue, sorry you've got to join us and it must be especially hard when you were thinking you were only having rads.

I didn't fast during chemo and my appetite wasn't affected! (Only when my taste buds were altered and I couldn't taste much) I didn't have any sickness, but I did wear sea sickness bands during chemo and for about three days afterwards, so I don't if that's what helped.

I was on FEC (I had 3 FEC and 3 T) and cold capped, but unfortunately after using it for three sessions, I had lost too much hair on top for me to continue. I don't regret having a try though as I found it easier to lose my hair then than I would have done at the start of chemo.

I had a PICC line and glad I did. It didn't hurt having it fitted and it made having chemo a lot easier. (A bit of a pain in the shower, but you can buy waterproof covers so your line doesn't get wet) It was a bit of a nuisance sometimes having to go back to the hospital weekly to have it flushed, but on the other hand I found it quite reassuring to see the nurses on a regular basis and that I was being monitored.

I hope you manage to celebrate your birthday  as well as having your wig fitting! xx

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Re: October 2017 Chemo Starters

Hi Angelblue
Welcome to the October 2017 thread.
I didn't try fasting. Though I did find I didn't want to eat much in the days following chemo. It's important to make sure you're eating and keeping your strength up.
I didn't cold cap and had 3xFEC and 3xT. My hair started to grow back on T as it's the FEC that causes hair loss. It will grow back it just might not start until you have finished all 6 chemos.
X
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Re: October 2017 Chemo Starters

Hi angel blue, black nail varnish saved my nails, think buddyfan used an oil in her cuticles and she kept hers too. I had life Mel honey and I know some of the other girls used Manuka. Ask for difflam mouthwash in your goody bag at hospital but if you get thrush mouth ring the unit and get them to prescribe fluconzole don’t get fobbed off with drops. Get anosol and something like senility or movicol too the steroids will block your bum. At all times keep eye on temperature and if you don’t feel right even with no temp or pee burns phone rapid response, you can do this just keep safe darling and 😁😁😁😁and 💃🏻💃🏻💃🏻🕺🕺🕺💃🏻💃🏻💃🏻And go as 🤪🤪🤪🤪as you like 😘😘💕💕✨✨Shi xx
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Re: October 2017 Chemo Starters

sorry..I meant Shi not Shri!! xx

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Re: October 2017 Chemo Starters

Hi all

 

Thanks for posting in the December 2018 starters shri and whytefawn, and thanks for inviting us to ask any questions in the Oct 17 thread. 

 

My chemo starts on Tuesday 11th Dec. Only found out last friday after 8 weeks of thinking only rads - so still getting my head around things. I'm having 6 lots of FEC. (Makes me think of Father Ted...I want to tell them all to FEC off!!)  I have a few questions ...any insights/advice really appreciated...

 

Did anyone try fasting before and after chemo day and what was the result on side effects..were they better?

Did anyone have FEC and cold cap and how did it go? 

Also I've read that some women  on FEC-T have found that they lost their hair on the FEC and it started growing again on the T...does this mean FEC is worse for hair loss?? (as i already have thin, fine hair I'm panicking)

Did anyone try Manuka honey for mouth sores?

I'm very phobic of canulas. I'm having one for 1st chemo due to lack of time and I'm considering PICC for 2nd. Did anyone have a PICC fitted and have positive expereinces to share?

 

Aaargh...so scared!! Trying to be positive though. Its my birthday on 10th (now have a wig trying session booked ...whoopee!!). I have decided that on my next birthday I will be in New Zealand and I will raise a glass to the me in December 2018. I'm also going to do as Shri, Wytefawn and others have done and post in a new starters thread to offer support and advice. I can't wait to be that post chemo me!! xx

 

 

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Re: October 2017 Chemo Starters

Buddy so pleased about your ct results ive lost 2 stone since Chemo just by reducing portion size and eating healthy it was horrendous before i was diagnosed and was a porker getting whst with the new hair which by the way Buddy has flopped alot now just a wave i was a bit disappointed the last cut took my curls 😨 there one day gone the next girl explained its the weight pulling it down will be keeping everything crossed for your bone scan and good to hear you are well apart from blood tests causing you greif xxx
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Re: October 2017 Chemo Starters

Hi buddyfan great news on your ct scan 👍👍 are you able to have some Christmas cake and more bulky stuff to eat? I’ve found weight has gone back on all to easily after having a few puddings. Hang on in there with the clown hair, we’ve only got a few more months of it before it’ll be long enough now 💪💪💪we just have to power through, found a good curl cream in Sainsbury’s, not sticky and tamed the frizz on the curls, might be worth a try 👍👍jencat hope you are ok 💕💕✨✨✨Shi xx
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Re: October 2017 Chemo Starters

Hi all, Jencat here's hoping all is well. I had my CT scan results this week and no further nasty developments, which is the best I can hope for. I also had the nuclear bone scan today and they're going to send results apparently. Now I don't have a line, they really struggle to find a vein in my paralysed arm, can't use the other one due to the lymph removal. The onc assured me that my weight loss is not sinister. I have been eating off small plates but I really haven't changed my diet that much, I was doing the small plate thing before cancer. I've lost a stone since Jan, grateful but a little worrying.

My hair still hasn't flopped yet. I'm toughing it out, waiting for the curly bob.

Love to all
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Re: October 2017 Chemo Starters

Jencat hope your scan results were 👍 sending you big 👭
Shi Community Champion
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Re: October 2017 Chemo Starters

Sorry jencat I missed your post 😘😘🙏🙏🙏your scan has gone well darling 😘😘💕💕✨✨✨Shi xx
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Re: October 2017 Chemo Starters

Hey all.
How did you get on Jencat? Do you have yiur results yet or still waiting?
Hope everyone is ok and getting set for Christmas 🎄🎁🎄🎁🎄🎁🎄🎁👅🐧🎁🎄🎁🎄🎁🎄
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Re: October 2017 Chemo Starters

Hi mishy 😘😘thanks for that about tn. Glad you’ve found out so you can get on meds to help prevent osteoporosis. Have you taken Ella to see Santa yet 😘😘it’ll be a magical Christmas this year mishy, she’s old enough now to really know what it’s all about ✨✨✨✨💕💕✨✨✨Shi xx
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Re: October 2017 Chemo Starters

Hi Jencat, hope the scan was ok and that the results are good xx
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Re: October 2017 Chemo Starters

Hello lovely oct ladies how you all doing i don't know if any of you fellow TN ladies have had your periods back i haven't officially menopause thanks chemo but a little tip i requested off gp to refer me for a dexa bone test we TN ladies don't tend to be offered them as we don't take the hormone blocking drugs anyway long story short so pleased i did i have osteopenia (early osteoporosis) which requires me to be on meds for it to help strengthen bones i thought you ladies might be interested to know this can happen if you have a chemotherapy induced change!!!!
On a much lighter note have a lovely time preparing for a wonderful Christmas 2018 Shi have you finished buying trees yet!!!!
Fave film tonight on Sky putting me in the mood https://media.giphy.com/media/E7EDhholuQjiU/giphy-downsized-large.gif
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Re: October 2017 Chemo Starters

Hugs Jencat!
Hello everyone , can't believe it's nearly xmas already... my hair is either Ronald McDonald or Rick Astley now... I think I like it !!
Love to all xxx
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Re: October 2017 Chemo Starters

Hi lovely Oct '17 ladies,

I could do with a bit of hand holding and Helena's big knickers please! I've got a CT scan at 5.20 to check that the last bit of cancer has gone. I'm hoping so as I finished rads in June, so that's a long time to be left! My onc said she'd very surprised if there was any, but I'm still feeling anxious. (and hungry and desperate for a cuppa now as I've had to fast Smiley Sad )

Hope you're all doing well xx

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Re: October 2017 Chemo Starters

Buddyfan just checking in with you beautiful hope you’ve been out getting Christmas tree 🎄 and buts and bobs😘😘jencat hope you are doing ok too 😘😘💕💕✨✨✨Shi xx
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Re: October 2017 Chemo Starters

Hi chaffinch 😘😘glad you’ve both had a lovely few days away ❤️❤️Thanks, pm me jencat and buddyfan dates please when any idea of dates 👍👍💕💕✨✨✨Shi xx
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Re: October 2017 Chemo Starters

How goes it ladies? Just had a nice few days away with OH followed by a visit to see in-laws and my mum and our nephews 9 & 7 and our cute 3 year old niece 😊.
Hope all is well with you all. There have been a few meet up ideas bouncing around . We will keep in touch with those of you not on WhatsApp xx
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Re: October 2017 Chemo Starters

Jencat, I don’t do what’s app either so not just you ❤️Thanks for tip mishy 😘😘hope you have amazing time at the Christmas markets, it’s lovely having all the free nibbles and samples 😋😋everyone enjoy ✨✨✨🎄🎄🎄sue keep eye out for Santa going down your road again and post another photo 👍👍that was brilliant last year, made me 😁😁😁💕💕✨✨✨Shi xx
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Re: October 2017 Chemo Starters

My typos still are terrible sorry!
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Re: October 2017 Chemo Starters

Ooh Shi do you think it smells of moth balks it does smell.. well different my curls are niw wavy curly as tge weight has dropped them bumble and bumble do a lovely curly cream expensive matybe one for the Xmas stocking 🎅
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Re: October 2017 Chemo Starters

Me too Jencat!! My phone is not bad but the storage is full cant install it have twitter but had that because of work and have lits kf useful organisations on there!
Well enjoying whats left of he mild weather as apparently we are getting artic weather up north next week 😨 getting the Christmas shopping done now visiting a few Christmas markets etc this next week and our local Maggies Xmas fete 🎅
Love to you all xx
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Re: October 2017 Chemo Starters

Lovely Oct ladies, hope you're all doing well and sending lots of love to you all. Think I need to buy a Christmas present to myself and get a decent phone and then I'll be able to join you all on our Whatsapps group Smiley Happy xx

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Re: October 2017 Chemo Starters

Hi Ali ❤️❤️❤️Hope you are ok and please send ❤️❤️❤️To cherry b, hope she’s still doing well 😘😘Got some honey queen or something like that balm stuff from lush to tame the frizz, but it smells like moth balls 😲😲😲meesh need your curl cream recipe please 🤗🤗 I here everyone is ✨✨✨✨up for next meet up, sorry can’t get, dizzy and jellytot hopefully we’ll meet next time at another get together mum of the thread sue arranged 👍👍 weekend by the sea near the 🤪🤪🤪 trio out in the arse end of nowhere if buddyfan is having another summer festival? Big ❤️❤️❤️And 👭👭👭to everyone 💕💕💕✨✨✨✨Shi xx
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Re: October 2017 Chemo Starters

Hi Ladies. Hope you are all doing well and managing your hair problems. Mine is growing and looking more frizzy- i think!
I have just stopped letrozole for a month (eeek) as i now have arthritis in both shoulders - stopped the let to see if it makes a difference!
Got 3 herceptin injections to go - last ono on Dec 26th!
Getting there, at last zz8
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Re: October 2017 Chemo Starters

I loved my clown hair Buddy, I even waxed it and ruffled it up. It’s flopped now and I have a straight old lady look now which I hate. I’m hoping that the top is now long enough for my hairdresser to style it like she did with my pre chemo cut which was a nice compromise otherwise I’m going pixie again.
It was me who asked about amitryptaline, haven’t taken it yet, I’ve been managing by reducing things that set it off like citrus and caffeine and have stopped drinking cranberry. I like a few glasses of red at a weekend and I will only stop that if the pain outweighs the pleasure. Hope you are doing ok after all your exciting adventures x
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Re: October 2017 Chemo Starters

Buddy i used the curly wurly shampoo from lush then honey bee styling wax its a bit heavy so only used a little to define the curls and waves and an alice band was my vest friend at times when it was getting longer it does drop down just takes time, i hope i haven't lost mine since the cut i heard tgat can happen??? I felt strange when the girl dried it straight kind of used to it now oh and all the funny white ends are gone too my hair is very dark now alot darker than before unfortunately i still have the pure white mallan streak at front!!!!! Good luck with the hair Buddy and hope you are well atm with any treatment you are having xx
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Re: October 2017 Chemo Starters

Oh well, Doris it is then. Any tips for encouraging it to drop rather than grow straight out?

Helena, sorry I missed that you'd had an op. Hope you're on the mend now.

Someone was asking about amitryptiline. I was on it many years (10 or 20mg) for neuropathic pain from my paralysed arm. I eventually had to move on to Pregabalin as the pain increased. Talk about rattling, I need a suitcase just for all the pills I take.
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Re: October 2017 Chemo Starters

Yeah Shi thats right my doris do was really getting me 😝 and even though i was so grateful to have hair i longed to look more like me if that made sense so keep it up ladies keep growing the fro and soon you can also have a proper haircut not ling now!!!!! Its very liberating i promise 👍👍👍
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Re: October 2017 Chemo Starters

Buddy i persisted im almost worried that i may have lost mine in the cut as it grew down they became more of a curl/wave my advice to you all is once the mullet at the back gets too much get it tapered in the continue growing it buddy my hair stsrted coming back in January in August i lost the mullet then Yesterday was able to have a proper style so its a slow process and it tends to grow out and in thickness i even had to have mine slightly thinned in places!!!
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Re: October 2017 Chemo Starters

😘😘😘hi sue, so glad you are having a recharge during half term 👍👍it’s full on when you are back full time and you’ve done really well ❤️❤️hi buddyfan, we have to do the clown, Doris from bingo, mullet look if we are aiming for a nice bob, I just would like it long enough to get the straighteners through it, having my 94 year old gran admiring my (shampoo and set look) telling me how nice it is, isn’t doing it for me. But hey we’ve got hair 😁😁😁and this time last year we would have been delirious with this much hair. Not hard enough like meesh or dizzy were doing the cold cap. Hang on in there, mai7 didn’t cut hers and she’s rocking a right coco Chanel now ❤️❤️love to everyone, jencat are you ok darling? Ali, hope you are ok too sweety 💕💕💕✨✨✨Shi xx
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Re: October 2017 Chemo Starters

Ladies, reminding you that you were two months ahead of me losing hair, do I persist with the clown hair in the hope that eventually it will become heavy enough to drop down. I want the curls but not the clown hair look!
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Re: October 2017 Chemo Starters

Hi all
After working full time for an 8 week half term I am now off for a week and making the most of it .. I even stayed in bed until 10 yesterday which is unheard of for me x
Hope each and everyone of you lovely ladies are well
Love and hugs xx
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Re: October 2017 Chemo Starters

I promise its worth it in tbe end Shi i nearly caved and got it chopped off back short short as it was getting me down but my girl who cuts it was no wait it will def be worth the wait!!! No mire Doris from the bingo!!!!!
Halloween party was great Ella looked so cute was baby dancing at the disco it was fun I'll not be scaring the kids with my uncle fester look this year when the come for the trick or treats i still laugh about that sometimes or when i scared the neighbour coming in from night-shift looking oht the window at 2 in mirn 😂😂😂😂😨👻
I need to get some decs bought im having a new tree the whole shibang this year Christmas jumper and everything haha xx 🎄🎁🌟
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Re: October 2017 Chemo Starters

Mishy 🍾🍾🍾🥂🥂🥂🍾🍾🍾🍹🍹🍸🍸🍸celebrating your hair cut beautiful that’s another jump you’ve now hurtled over giving us all a kick up the bum to keep 🏃‍♀️🏃‍♀️🏃‍♀️🏃‍♀️Through our mullet, mops, footballers 1980’s dos 🤣😂🤣😂🤣😂🤣good to know this phase will be worth it. Hope you and Ella Bella have great Halloween too. Meesh, bought some Christmas decorations yesterday 🤪🤪🤪🤪and sparkly cardi (well mum bought me that) so ✨✨✨✨✨✨✨✨✨is it too early to get a bit of boney m and Mary’s boy child on 💃🏻💃🏻🕺🕺💃🏻💃🏻💃🏻💃🏻💃🏻Love to everyone and hope everyone’s hair doing ok 👍👍💕💕💕✨✨✨Shi xx
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Re: October 2017 Chemo Starters

Hey ladies had my first Proper haircut i mean an actual style not just bits trimmed away to make a kind of style irs a pixie_Bob can be worn straight or my curly wurly she had to dry it straight but i think it will look more funky and on trend curly wavy im so chuffed no evidence that my barnett was tge result of chemo something to look forward to ladies for thise of yiu still experimenting with different things to do with the hair its definitely worth braving it oht as long as you can i did have the mullet bit removed in August but braved it out rather than keep getting it chopped offand pleased now i waited 👍 i will add i don't think im going back to my long hair im quite liking the shorter look ii have been told i look younger!!!!
Meesh good to hear from you Sue buddy Shi chaffinch jencat and all you other Oct girls have a great Halloween
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Re: October 2017 Chemo Starters

Hello ladies!

 

Buddyfan, Jencat, Mishy how're you all doing? Work at the moment is manic for me, but I'm managing. We're thinking about doing some renovations to our lounge as well recarpeting upstairs but it won't be done before Xmas now. Is everyone planning lovely things for the festive period? I know I am after missing out last year 😊

 

Hope youre all doing ok 🤗🤗❤️❤️😘😘

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Re: October 2017 Chemo Starters

Meesh 💃🏻💃🏻🕺🕺💃🏻💃🏻💃🏻Was there any on the tables I know what a 🤪🤪🤪🤪influence Karana has in us all and you and whytefawn love a 💃🏻💃🏻🕺🕺💃🏻💃🏻💃🏻So pleased you all had lovely afternoon 😁😁😁 ❤️❤️❤️To everyone, I’ve been dishing out a few pairs of our gold hot pants girls 🤪🤪🤪sometimes it just calls for gold hot pants doesn’t it💃🏻💃🏻🕺🕺💃🏻💃🏻😁😁😁😁💕💕💕✨✨✨✨Shi xx