Thats really good news and hopefully the back pain will now ease for you as well, its amazing when we are stressed how it manifests in our body. Sendimg you hugs
Buddy fan ❤️❤️❤️So pleased to hear no further spread 👍and good you’ve plan too. On rads it’s piece of cake, just keep fluid intake up and if you pace yourself and have regular naps you’ll be fine. Get air to skin while at home so loose tops and a vest top under if you are going out. Drapy scarfs round front is good too. Think the creams we used were moo goo, dr organics aloe Vera and tea tree gel, e45 and aveno. It’s just like being on a Sunbed and doesn’t last longer at all, the doing it everyday will be what gets on your neoprene pants 🤣😂🤣😂🤣by the way Cassie found penguin dressed as unicorn things in paper chase 😂🤣🤣🤣🤣so there you started trend with your licky penguin 👅 🐧 😁💕💕✨✨shi xx
Buddyfan, have your team got plan for you ❤️Just checking in to see where things are this week 😘💕💕✨✨shi xx
😘 buddyfan and we know your pants are neoprene too 😘 unless you go diving in silk ones and not told us 😳💕💕✨✨shi xx
Hi buddyfan, it’s good to see your nhs team being so proactive ❤️ Don’t make any decisions about Maldives just yet. You could still go and then just tweak your plans around what’s comfortable for you to do when you are there ❤️❤️💕💕✨✨shi xx
Well, I've come to terms with the fact that I'm probably going to have to cancel our Maldives holiday in January. I couldn't sleep worrying about it so at 5am I called the oncology nurse answerphone and asked if I could pay to get a quick scan. I was called at about 9:45 to let me know she had spoken to the breastcare team and they were going to chase up when the ct scan will be. Called again at 10:30 by bct. So again,hurrah the NHS. My scan is Sunday week, multi discipline meeting the following Wednesday, so they've booked me an apt that wed pm. Again, hurrah. I asked how long the healing process takes after masectomy or lumpectomy. She said about the same and thought I might still be able to go on holiday. Trouble is, I know there will be alot of climbing vertical step ladders after snorkelling, which is tricky with my one good arm anyway. As that one Good arm is also on the side of my cancer I think that is asking for trouble so soon after the op. Those of you that had mastecomy, how long did it take you to heal, so you could pull on that side's arm?
Buddyfan, sorry you're having a rough time of it. We are always here for you, just let us know what you need. Sending hugs 😘
There is /fulvestrant-faslodex which I think is quite new ? and Exemestane - which you can try I think Buddyfan.
Hi buddyfan, that’s a good oncologist you’ve got there 👍 keep us posted on treatment plan 😘have a look through forum or start new thread to ask about alternatives to letrasole😘I am sure others will have some ideas and also use the ask the nurse facility on here too, they might have a link with info for you 😘😘💕💕✨✨shi xx
Well said buddyfan 🥊🥊🥊I’ve just read what you have put. Jill thanks for sending link for buddyfan. I’ve asked Hannah to also post same info on the unsurvivors thread that has been started too. 💕💕✨✨shi xx
Here is the response from BCN to the concerns about the "Unsurvivors " campaign . https://forum.breastcancernow.org/t5/Living-with-secondary-breast/Is-it-just-me/td-p/1305715
Buddyfan, please voice your opinion on the in survivors thread, I’ve asked the mods to have a look at the thread because people’s feeling, thoughts and opinions matter ❤️💕💕✨✨shi xx
Here you are my darling the big pants, in two versions, because it is Strictly time we have the spangly ones as well. I do hope that they make you smile
Just wanted to send you lots of love and hugs. Can't do it from my phone but will be winging a pair of our virtual big pants to you later as i am on my mobile and rubbish at doing it on here.
We are all with you and climbing into the deep pockets in them to hold your hands
I still come on to the forum as I'm not on F B and I know Shi comes on here regularly.
I'm so sorry to read about the recurrence and understand why you're feeling so upset-that's the beauty of the forum that everybody here understands what you're going through. As supportive as our love ones are, they can't totally understand in the same way as others on the forum do and also we don't want them to worry, I know I tended to bottle up my fears to them.
Thinking of you and sending a big hug,
Hi buddyfan ❤️ Jellytot just tipped us off you’ve posted but she is unable to log on just now. 👭👭we are always here for you 👭👭 so talk away on here ❤️ Have you thought about any of the secondary threads, there are lots on there who have had secondaries for a while who would be a fountain of knowledge and support for you too ❤️❤️The other option is to use the ask the nurse facility too ❤️❤️ You are an amazing lady buddyfan, now as you said in our train, chain those thought to the back of the carriage and drag them behind 🥊🥊💪💪🥊🥊🥊 😘💕💕✨✨shi xx
Great news Jencat! Glad it was all ok for you. Yes our manky boobs will never be the same but at least we’re still here 😊
Thank you all very much for your support x Good news, mammogram was clear and everything felt fine when the consultant examined me 🙂 My uncomfy hard breast is 'normal', it's scar tissue and apparently it will never feel like my other one again 😞 xx
Thank you so much for all your good wishes and so glad that those of you that have had mammograms were fine I will let you know how I get on!
I don't know why I feel so anxious because I don't think anything has changed since my oncologist checked me and said the hard area is scar tissue and normal. I'm just worried with everything that has been going on that I've not been so vigilant and might have missed something. Also, my consultant is very good, but I find her a bit scary! xx
Sending you hugs for this afternoon. I had my mammogram about a month ago and had appt with consultant last Friday. All was ok. I also have a hard bit round my nipple where the scar is which is sometimes sore. I think we all have strange lumps & bumps now and we all get that fear when we have these appts. Hopefully it will all be ok for you too! Let us know how you get on 😘😘
Jencat I did get your lovely letter thank you it arrived yesterday
will be with you in spirit holing your hand lovely lady x
jellytot also sends her love but is struggling to log on
love and hugs to you x I am still on same number if you need me xxxxxx
Need your good thoughts this pm lovely Oct ladies, seeing my consultant for the results of my mammogram. Feeling really anxious about it xx
Thank you Shi for my card, that's really kind of you! I've not opened them yet, but there's a couple with writing that I don't recognise, so hopefully one of them's yours! 60! How did that happen?! I suppose I won't be asked if I could be pregnant anymore at the hospital!
That's a nice idea to still buy yourself something from your Dad-I often used to buy mine from Dad when he was alive, so I could do that too.
Hope your mammogram was ok if you've had it yet and all the lovely Oct'17 ladies. I've got mine tomorrow morning and feeling anxious about it! xx
👭👭❤️❤️for tomorrow Jencat 😘😘hope your card has arrived ok that I’ve sent for your birthday. You could release a balloon to your dad on the day so you feel you’ve included him ❤️❤️ I still buy myself a birthday and Christmas pressie each year from my dad, it’s just my Way of ensuring I still celebrate with him even though no longer here. 😘😘💕💕✨✨Shi xx
Hello lovely Oct '17 ladies!
Just came on here to say hello to you all and realised I hadn't replied to your kind messages, I'm so sorry. I hope you're all doing well.
I've got a bit of a mixed week coming up-my mammogram is on Thursday morning, which I'm beginning to feel anxious about. My breast has still got a hard bit, which my onc has said is scar tissue, but I've started worrying it's not! (Results on the 20th when I see my consultant) Then on Friday it's my 60th birthday, which will be difficult without my dad, I always celebrated my birthday with him. I know I've been lucky to have been able to spend so many birthdays with him xx
its good to hear from you but im sorry you're not doing so well at the moment, sending ❤️ and hugs. As the others have said when you get your new phone perhaps you can join us on what's app. The walk was good if a little wet but we battled through and it was good to meet up and have a chat 😊
Mishy, Jay lovely to hear from you both too. Hope you're both doing ok!
Hi Jencat, sending love to you and your family. Hope the counselling helps you and as always we are all here for you if you need us. Once you have your new phone maybe you can join us on WhatsApp? xx
Jencat, good to hear from you ❤️ Its grieving Jencat 😘😘I am glad you are going to get some support for yourself and daughters 👭👭 💕💕✨✨Shi xx
Go go go all you ladies taking part in today's walk/run at Chatsworth - hope it goes well. Love Jay68 - May 2017 chemo starter! x
Thank you Shi for your message and for putting my name on your pink ribbon, that's really lovely x Love to you and all the Oct'17 girls x
Good luck to you all on the walk today-sorry I'm not mentioning you by name, but I don't know who's going. I'll be thinking of you all and look forward to hearing all about it! (A picture on our thread maybe?)
Shi mentioned you'd been asking about me, that's really kind of you, thank you. I'm up and down, more down really. Myself and my girls are struggling without Dad, there hasn't been a day yet where I haven't had a cry.Our local hospice has offered me some grief counselling, which I'm going to start in a couple of weeks time and which hopefully will help. I'm also 'mourning' leaving work suddenly-my daughter and I were going to nurse Dad at home and I couldn't cope with work as well. I think in time I'll probably realise that was the best decision even although Dad died soon after I'd decided to leave.
Sue W I think you said you'd text me-thank you, my phone's not receiving them! YD and I plan to go phone shopping next week! My laptop's not working either-I fell asleep the other day with a cup of tea in my hand.....! I'm using YD's laptop at the moment. I noticed she'd left a tab open which said 'what sort of phone is suitable for a middle aged woman who's not good with technology?' ! xx