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October 2017 Chemo Starters

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Re: October 2017 Chemo Starters

Glad to hear the news about your markers buddyfan 😊 xx

Jencat how are things with you? Sending hugs xx

Mai7 lovely to hear from you. The October 17 gang are very much still in touch and the chat is still just as crazy and supportive, can’t believe it’s 3 years since diagnosis! X

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Community Champion

Re: October 2017 Chemo Starters

Hiya mai7 😂😂is club Tropicana thread still on here where we all went after chemo finished 😂😂 I’ve not checked it for ages 😂😂 ❤️To the May17 thread who got us through, I still remember one of you saying they though Greg Wallace was peeping in their kitchen window then they realised it was their reflection and laughed as they shared it 😂😂 we keep in touch with buddyfan and Jencat on this thread ❤️❤️You know us unbreakable oct17 👭 gang 👭 😘💕💕Shi xx

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Re: October 2017 Chemo Starters

👋 Hiya,  Wow, you guys are still partying on here. 💃  What happened to club Tropicana? 🏖  Shi, did you mess up the salsa dancing or was it the introduction of mocktails? 
Some of us May ladies are still in contact via a FB group.

buddyfan, glad to hear you’re doing well and swimming in the river you wild woman! 💖 xx

 

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Re: October 2017 Chemo Starters

hi Buddyfan,

sounds like a lovely swim! Good to hear markers are reducing too 😘😘

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Community Champion

Re: October 2017 Chemo Starters

hi buddyfan ❤️ Sounds like you had a beautiful swim with lovely wildlife with you again ❤️ Still think you should enter that amazing photo you took ❤️👍 fabulous news to hear your markers are still reducing 👍👍👍 sending ❤️And sending ❤️To you too Jencat 💕💕Shi xx

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Re: October 2017 Chemo Starters

Swam in our river in the last high heat. Lovely and peaceful amongst damselflies, dragonflies, swallows, trout etc. No snorkelling though, tol cold to put head in! Had another blood test, markers still reducing, hurray 💗🧜‍♀️🏄‍♀️🐧💗🤞

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Community Champion

Re: October 2017 Chemo Starters

Hi buddyfan ❤️ Great news your bone markers are going in right direction 👍 have you managed and snorkelling yet in this glorious weather? Jencat sending ❤️And 🤞🤞 treatments going well 😘💕💕Shi xx

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Re: October 2017 Chemo Starters

Hi Jencat,

Have you looked at LDN? Worth a try. I've got some but haven't started yet as I've got to get off the opiate based drug, dihydrocodeine. Also wanted to get stable with my chemo drugs.

🤗🤗🤿🐧🏄‍♀️🧜‍♀️🤗🤗🤞🤞🤞🤞

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Re: October 2017 Chemo Starters

My Ct review was ok. Bone activity markers are decreasing so they're going the right way. Next review in three months. Battling with uti's though, had two, back to back. They're going to put me on a prophalactic antibiotic, hopefully that will work, had to delay start of next chemo tabs for a few days.

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Re: October 2017 Chemo Starters

Hi jencat,

I'm so sorry that you've had another blip to battle. I know what it's like to have been on a treatment only to find out that it hasn't been working. I know they have lots of drugs in their arsenal, let's hope this one works. 🤗🤗🤗💗💗

 

 

 

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Re: October 2017 Chemo Starters

How are things going Jencat, I think of you often sending love x

Buddyfan, how are things with you too, sending love to you too x

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Community Champion

Re: October 2017 Chemo Starters

Hi Jencat keep looking yourself about trials as well as asking your team, it is always worth keep looking and asking ❤️💕💕Shi xx

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Re: October 2017 Chemo Starters

Hi Jencat,

sorry to hear your news. Hopefully the new chemo will work for you. Sounds like your oncologist is on top of things and will let you know if any trials when they start up again. Thinking of you and sending hugs 😘😘

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Re: October 2017 Chemo Starters

Thank you Chaffinch x hope you are keeping well x

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Re: October 2017 Chemo Starters

Thank you for your kind message Jill xx

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Re: October 2017 Chemo Starters

Thank you Shi x we did mention trials yesterday to the oncologist, but she said they've been stopped at the moment-she had mentioned previously about putting me on one xx

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Re: October 2017 Chemo Starters

So sorry to hear your news Jencat, good that the oncologist is looking after you personally. Fingers crossed that the new chemo does it’s job. Thinking of you ❤️

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Re: October 2017 Chemo Starters

Not surprised you are feeling deflated even if you suspected it but from reading the secondary threads for the last few years I know that it's a matter of trial and error what works for each person - I hope you strike lucky 🤞🤞🤞🤞.There seems to be options coming through for triple negative ladies at the moment I hope one is suitable for you .❤️

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Community Champion

Re: October 2017 Chemo Starters

Hi Jencat ❤️Only just seen your post. It is good they are trying you on another chemo, I’m sorry the first one they have tried hasn’t worked but they will have programme that they will try you on till they get one that 🔫🔫it ❤️ Get your daughter to check the trials again, there might have been another one passed, worth a look ❤️👭💕💕Shi xx

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Re: October 2017 Chemo Starters

Thanks for your reply Jill x Unfortunately my gut instinct about why I was offered a face to face appointment rather than the phone was right. The chemo hasn't worked (which I had a feeling about) and I've got a few specks of cancer that have gone into my lungs. I'm starting a new chemo next week, Plaxitol (not sure how you spell it!) which will be every week for 3 weeks and then 1 off. My oncologist seems quite optimistic about this one working, but I'm feeling upset and quite deflated at the moment xx

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Re: October 2017 Chemo Starters

Good luck Jencat - maybe because your Consultant has had covid she feels more able to offer face to face appointments to her patients without them having the additional anxiety of contracting it from their doctor ? 

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Re: October 2017 Chemo Starters

Morning Oct'17 girls, hope you're all keeping well and coping ok during lock down. x

Feeling a bit anxious this morning as I've got a meeting with my oncologist and will get the results of my first CT scan since my diagnosis in February. My lump grew quite a bit before I started chemo and I can't see any shrinkage, even although I had a higher dose last time and I'm still in some pain with it. Also, overthinking that I've been offered a face to face meeting with my onc if I preferred rather than the planned telephone-she's had Covid-19 and is at my local hospital this morning and as ED said, she's probably offered me the choice as she knows that I'm worried about my lump as she briefly had a look at it for me when I was there for chemo a couple of weeks ago. I'm also worrying that the small spread in my sternum might have gone elsewhere xx

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Re: October 2017 Chemo Starters

Buddyfan, hope CT scan has been sorted and review took place ok and you're keeping well x

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Community Champion

Re: October 2017 Chemo Starters

Hi buddyfan, that’s worked out well then so you are not going to have such a long day, will it delay you getting results? 💕💕Shi xx

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Re: October 2017 Chemo Starters

CT scan delayed because broken down.  They're going to re schedule within next few days of fixing. At least I don't have to make sandwiches and I've moved the canula/blood test later so we don't have such a long day.

 

 

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Re: October 2017 Chemo Starters

Sending ❤️👭❤️Buddyfan 😘 keep safe and hand sanitizer, scarf gloves 😘💕💕Shi xx

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Re: October 2017 Chemo Starters

Thanks. I won't stay in the hospital, I'll go back to the car in between the apts. I must remember to sort out sarnies for us. Results will be on 11th.

 

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Re: October 2017 Chemo Starters

Hi buddyfan, take your own food and bottled water buddyfan, you don’t have to tough anything then, take a loo roll in your handbag too and own hand sanitizer and if you need to touch any Handel’s or knobs, hand sanitizers after 👍 wrap a scarf round your face too if you’ve not got a mask, it’ll at least give a bit of a barrier and wash clothes as soon as you get home and have a shower too 👍 has your team advised how long till you will get all the results? 💕💕Shi xx

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Re: October 2017 Chemo Starters

Blood test, Ct scan, capecitabine review and zometa infusion are all on 28th. Going to be a long day. Ct scan review is on 11th May.

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Community Champion

Re: October 2017 Chemo Starters

Hi buddyfan ❤️ When is your ct scan? And how long till you get results? Good to hear your onc unit are doing cannula, much safer ❤️ Sending we all have your gold hot pants held 👭tightly and Meesh has the 👨‍✈️🔫 👍💕💕Shi xx

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Re: October 2017 Chemo Starters

Hope all had a Happy Easter and thanks for all tge goodwill.  I'm now in my third cycle of Capecitabine, but first without any radiotherapy at same time. Jencat I hope C19 hasn't messed up your treatment. My next Cape review is on same day as next CT scan and zometa infusion. So I'm going into the oncology unit rather than normal blood test place for a canula to be put in for the pre-req blood test so they aren't messing about with my useless veins for the CT scan and zometa. I feel safer there than in main hospital. The review will be by phone. Terrified of Ct results.

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Re: October 2017 Chemo Starters

happy Easter jencat & buddyfan! Buddyfan, glad you didn’t have c-19 and that the antibiotics are working on the uti. Stay safe everyone 😘😘

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Re: October 2017 Chemo Starters

Happy Easter to you too dear lady and buddyfan too 😘 

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Community Champion

Re: October 2017 Chemo Starters

Happy Easter from everyone 🐣😁too ❤️💕💕Shi xx

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Community Champion

Re: October 2017 Chemo Starters

Hi Jencat and buddyfan ❤️ Happy Easter 🐣 to you and families ❤️💕💕Shi xx

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Re: October 2017 Chemo Starters

Happy Easter to you all xx 🐑🐥

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Re: October 2017 Chemo Starters

Glad you’ve not got Covid buddyfan what a roller coaster. I know what you mean about immunity but still best stay clear xx

 

Jencat how are things with you? Xx

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Community Champion

Re: October 2017 Chemo Starters

hi buddyfan ❤️ Glad the antibiotics have sorted the uti ❤️ And I’m glad you didn’t have covid-19. Get your strength back now before resting the chemo tablets and keep safe 😘💕💕Shi xx

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Re: October 2017 Chemo Starters

I'm clear which is a shame. Had I been positive I might now be immune. However, all the tests showed a urine infection, so I'm on antibiotics which I can already tell have worked. Means I can't restart chemo tabs yet, so actually feeling like a real human being again instead of old hag. My temp is back to normal. So business as usual.

 

Stay safe

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Re: October 2017 Chemo Starters

Buddyfan ❤️Are you ok and Covid-19 clear 🤞🤞please let us know how you get on, are you back home ok now? When will you get X-ray results 🤞❤️ Hows your hand been? 💕💕Shi xx

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Re: October 2017 Chemo Starters

I've been tested for covid as my temp keeps spiking. No cough though. They did a portable xray in the room this time and I had to use the door from the room to the garden. No contact with the main hospital. Xray result no different to last week. Our oncology unit has a great set up.

 

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Re: October 2017 Chemo Starters

My lung thing is permanent, from my accident in 1979. I have decreased function on left hand side, a high diaphragm. I usually refuse a chest x ray because I know that's why they detect reduced function. But in present situation thought best have one.

 

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Re: October 2017 Chemo Starters

Buddyfan ❤️What a Tattar you had yesterday 😳 glad your hands seemed better today 👍 and hope your temperature returns to normal soon and lung improves so you can continue with treatment ❤️ You are fabulous and keep safe ❤️ 💕💕Shi xx

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Re: October 2017 Chemo Starters

Feel like I could do with a fur baby.

Bit of a to do yesterday. Had to have routine blood test to check ok to have next cycle but had to tell oncology I had temp 38.6. Because my lung function slightly depressed they wanted an x ray. Even though I know that my left lung has decreased function. Anyway they put a mask on me and wheeled me to X-ray. At which point xray went ape **bleep**. Not the protocol in case I had covid. They completely emptied the dept. Reception staff everyone. Actually there were no patients there anyway, I guess they'd already cleared them. The hazmat suited X-ray person got the poor unprotected nurse to put the plate behind me. Basically they wouldn't touch me even in a hazmat suit. Anyway lungs fine. Prob a virus but not covid. Although they didn't test. Hand has been awful last three days but ok today so I think I'm on my way out of it. But can't start next cycle until they know my immune system can take it.

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Re: October 2017 Chemo Starters

Glad you still have a fur baby Jencat 😘 

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Community Champion

Re: October 2017 Chemo Starters

Hi Jencat, nice to know you still have a fur baby with you, I know they are all different but all lovely and special little indivuals ❤️ Hope you and the girls all keeping safe ❤️ You and your family too buddyfan ❤️ Big 💕💕💕Shi xx

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Re: October 2017 Chemo Starters

It was meant to say spending more time with me! 🙂

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Re: October 2017 Chemo Starters

Morning Shi, part two of my message back to you 🙂 I've still got a cat, Poppy, Oscar's sister. We got them both as kittens from a rescue centre. She's a lovely affectionate cat too, but it was always a bit more on her terms. She's seems to

want more cuddles since Oscar died and spending Wed time with me, I think she's missing Oscar too xx

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Re: October 2017 Chemo Starters

Thank you Sue for your kind wishes. Hope you're ok, are you having to go into work still? Love and hugs back 🙂 xx

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Re: October 2017 Chemo Starters

Thank you Chaffinch for your kind wishes and sending love back to you too and hope you're ok xx