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October 2017 Chemo Starters

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Re: October 2017 Chemo Starters

Thanks Meesh. Will ask her next time I see her x
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Re: October 2017 Chemo Starters

Dizzy brummie assuming you are birmingham
I will pm you as I am too xx
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Re: October 2017 Chemo Starters

Chaffinch, I was having that exact same thought. I'm due to go into the office next week, worried about it suddenly all leaving my head whilst I'm sat in a meeting!

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Re: October 2017 Chemo Starters

Dizzybrummie, you could ask your bcn if they can recommend where to get your wig.  Some of us have been referred by the hospital to wig consultants. That's what happened to me and then they arranged for my free wig. otherwise would not have had a clue!

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Re: October 2017 Chemo Starters

I was told to wash mine with fabric conditioner! Apparently m&s do a fragrance free one, she said in case the chemo makes me sensitive to smells but it's probably so I don't go around smelling like a pile of freshly laundered washing! Lucky you getting shampoo and a stand! Yes it's synthetic they're the only ones they do for free.

 

The cat was eyeing it up earlier and I did think that it's good it's synthetic otherwise it might end up with fleas! Definitely need to get a wig stand.

 

dizzybrummie, mine was long and curly too before I had it chopped off.

Member

Re: October 2017 Chemo Starters

It so lovely to be able to speak with you ladies.

I had long curly messy hair up until yesterday but decided to have it chopped off in readiness. I hate hats and I’m not keen on a wig so it may well be a case of ‘Stuff it!’ If people don’t like it. Might change my mind when I see it for myself. I guess I need to find a place locally where I can try wigs on. I do have a few hats at the ready.

I came out on Facebook on Wednesday and people have been lovely and supportive.

Hope everyone’s doing ok. Hugs to you all x
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Re: October 2017 Chemo Starters

Hmm day 16 looks like I will be leaving a trail of hair behind me when I’m at work next week then!
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Re: October 2017 Chemo Starters

Thanks for the reminder to find something to keep my wig on, hadn’t even thought about it. Although they are just in boxes when you choose them.
My cat pulls her fur out so she had better not go near my wig!!
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Re: October 2017 Chemo Starters

I will have to find a wig stand somewhere, I’m worried the cat will think my wig is a new friend and I will spend most of my free time trying to wrestle it from his grasp. I think I will clear a shelf off in the cupboard so I don’t have to look at it all the time xx
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Re: October 2017 Chemo Starters

Hi SueW agree - my bff is always there for me but an old school friend stepped up as soon as he found out and we have rekindled the fantastic friendship we had when we were 16 which has been amazing. And then a mum in the school yard who was just acquaintances just suddenly knew the right thing to do and say when I burst into tears at my daughter's harvest festival last week when she was at the front performing with her class.
Here's to good friends old and new 🥂
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Re: October 2017 Chemo Starters

Karana try snd go snd have s fab time and if you are unwell just make your excuses snd leave xx

Yes I got shampoo conditioner and water based hair spray too 👍 my wigs are synthetic
Have other people gone for synthetic or real hair? X
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Re: October 2017 Chemo Starters

Glad you ladies seem to have got on ok today without too many problems!!

 

im still burping now and I'm on day 10!

 

When I picked my wig up I also got shampoo, conditioner, anti static spray and a plastic stand thing for the wig to sit on...haven't put it on that yet as think my dog will be scared by it lol!!!

 

Off out to a Tropics party tonite...just had a bit of a wobble about going in case I don't feel well while I'm there, my confidence seems to have disappeared somewhere!!!!

 

xx

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Re: October 2017 Chemo Starters

The friend I have had the longest and still in touch with is from playgroup and we been friends 46 of our 50 years
My bestest friend is 21 years but in all this some acquaintances have turned into very special friends too and more than stepped in to help xx
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Re: October 2017 Chemo Starters

Meesh love the vision of the cat taking over your wig 😂
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Re: October 2017 Chemo Starters

Thanks SueW - yes that would be really sharing if I was being all French about any extramarital behaviour Smiley Wink My daughter (age 7) seems to have a new bff every day and so it makes me giggle to use the term for my friend (we have been bffs for 25 years so we are doing pretty well - compared to my daughter at least!)
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Re: October 2017 Chemo Starters

I bought polyester storage heads £6 each x
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Re: October 2017 Chemo Starters

Runnerbean, glad you liked your wig! I also can collected mine today.

 

I've got a question for all those with wigs, what do you do with it when you're not wearing it? Mine is on the table next to the sofa and I'm finding it a bit disconcerting, it looks like a new curly pet! Just don't know what to do with it!  Keep expecting to find the cat sitting on it!

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Re: October 2017 Chemo Starters

Also Ruth feel free to copy my fb post and adjust it to suit you if it helps x
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Re: October 2017 Chemo Starters

Thank you runnerbean ... I am constantly saying pardon or excuse me but as I am in the room on my own no idea who I am apologising too 🤣🤣🤣🤣
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Re: October 2017 Chemo Starters

Ruth I read bf as boyfriend in my head then saw hubby further down and thought you saucy minx but now realise you meant best friend 🤣🤣🤣🤣🤣
I can honestly say for me once it was out there so to speak it became easier and some people did message me and I chose not to reply and thought if they don’t like it f@ck em x
Glad people are feeling better with their wigs I have wore mine since brave the shave when I have gone out in public but have also gone out with my number 2 shave too and today a woolly hat cause my head felt cold
I have decided if people don’t like my fuzzy head, my bald head (when it happens) or my wigs f@ck them too.
Sorry for the language but our fight is enough without having to worry about other people’s reactions xx
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Re: October 2017 Chemo Starters

Also forgot to say I was burping all the time in the first few days after chemo but it’s settled down now a week in so I no longer have to apologise for being a pig all the time 🐷xx
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Re: October 2017 Chemo Starters

Hi ladies, well done to everyone having their first chemo today. That’s one down and a little further along the treatment path we go. I picked up my wig today as well and am really pleased with it. It’s just like my own hair but longer, was going to have it cut to the same length I have now but might stick with the longer look for a while and see how it goes. Also had another couple of inches cut off my own hair in preparation. We’re going to go for the big chop next week xx
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Re: October 2017 Chemo Starters

Ha ha Ruth, I love the idea of just waxing the front so you don't have to see them!

Member

Re: October 2017 Chemo Starters

Hi everyone - congrats to everyone who had their first chemo today - also thanks to everyone who is cold capping for all the advice - I hope to join you all next Thursday and will be happily popping the pills before hand based on your experiences!!
Just received some lovely presents and flowers from the Mums at the school gate. Having cancer is a bit like a birthday with all the presents and flowers! Just a shame it has some pretty rubbish downsides!!
I did chuckle catching up on everyone's posts today - I was out in London yesterday enjoying a last frivolous shop and dinner with my bff - it was so nice to just forget everything and act like it was any other trip to town.
Hubbie, daughter and I are going to our fav steakhouse on Saturday as well - I intend to order the most expensive bottle of red on the menu as a last hurrah (and then leave hubbie with the bill Smiley Wink

I have also been letting body hair go wild figuring what was the point in paying to go to a salon but then decided to home wax the front of both legs so I don't have to see it when I look down 😁 Guess that makes me a patchwork gorilla 🦍 😉

SueW I have also been trying to figure out how to 'come out' on Facebook and am inspired by your message (I have created a private instagram where I share my more private thoughts and feelings with close friends and family). What I find most difficult is having to go back to the shocked moment when people first find out - being dragged back in time to that moment and those feelings is totally exhausting.

This forum is such a great place to be with people who are exactly in the moment with you - thank you again to everyone.

Wishing everyone a lovely weekend in the sunshine and a big fingers crossed for no bad events or surprises 🤞🤞🤞🤞🤞🤞

Ruth xx


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Re: October 2017 Chemo Starters

Sorry you got burping meesh but reassuring to know it’s not anything weird 👍x thank you
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Re: October 2017 Chemo Starters

Hi SueW, sounds like you're doing well. I didn't fancy anything else to drink but water either and I also had the burping. I figured it was better to be burping than get heartburn!

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Re: October 2017 Chemo Starters

Meant to say got to have a picc line apparently my veins not brilliant and they donet want to delay treatment if they thicken x
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Re: October 2017 Chemo Starters

Hi ladies I have slept this afternoon woke up a little fuzzy headed and took some paracetamol
Opened a bottle of orange flavoured water earlier but taste weird so now drinking plain water which tastes fine
I was given anti sickness in the drip and a tablet that is slow release over 5!days with the champagne don perignon one as back up if I feel sick but ok so far
wee not red anymore it did go quickly x I got steroids for next 5 days then white cell booster injections from Tuesday for 5 days but said I will do them myself
Put antibacterial gel in my porch and a sign to say gel your hands lol not taking any risks
Going to put sea band on just as a precaution
One thing I have noticed is I keep burping that happened to anyone else?
Sorry feel like I rambled there
How is everyone else? Xxx
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Re: October 2017 Chemo Starters

Cassie i am day 17 and yesterday i noticed my hair falling. Today ot is just coming out in my fingers, in the hairbrush, whenni move my head. It is just coming out!! Hope you are ok Cassie xx
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Re: October 2017 Chemo Starters

Cold cap was good. I quite liked it. The biscuits were good too 😳
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Re: October 2017 Chemo Starters

Ha ha Cassie, I better definitely not go anywhere near a zoo at the moment! 

 

Well done Dizzybrummie and Jellytot, nice to see some fellow cold capers, not as bad you expect is it? Jellytot I also felt a bit woozyheaded after, not sure if that's the chemo or the frozen head! Rest up now and take your meds as instructed!

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Re: October 2017 Chemo Starters

Day 16 chaffinch of chemo 1 FEC. Hair isn't really falling out yet but just feels weird. Only hair gone so far is the lady garden (probably tmi) had to shave legs tho as I was scared to go to the zoo in case they wanted me in their gorilla exhibit. Eyebrows and eyelashes so far seem ok
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Re: October 2017 Chemo Starters

What day are you on Cassie?
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Re: October 2017 Chemo Starters

Thanks for popping over Mai congrats on your last treatment. It's great to hear from those who have ridden the chemocoaster before us.

Dizzybrummie and jellytot well done and your first chemo. 1 down and 1 step along the road.

The top of my head has started to feel a bit strange today. If anyone has had really long hair and tied it up for long periods of time. That feeling when you let your hair down at the end of the day and your follicles feel weird. Feels like that. If that makes any sense.

Cassie x
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Re: October 2017 Chemo Starters

Well done all, one down ✅
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Re: October 2017 Chemo Starters

Hi everyone. First day of chemo today and it’s almost time to take off the fabulous icecap.
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Re: October 2017 Chemo Starters

Well done SueW and Jellytot. Take it easy now and take your meds xxx
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Re: October 2017 Chemo Starters

Hi all. Just got home, all went well no Argos trainees thankfully! Cold cap was barely noticeable after the first 10 mins but I had taken both ibuprofen and cocodomol prior to treatment. So far just a bit woosy, wouldn't have wanted to drive home. Planning on a quiet weekend drinking plenty and taking my meds as advised. Fingers crossed . Hope everyone else is ok too xx
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Re: October 2017 Chemo Starters

Thanks Mai7 it’s so useful to have an insight into it all going forward. I read the whole September thread before I started and because I started early in October I dip into both. It helps a lot
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Re: October 2017 Chemo Starters

Just got back from picking my wig up. It doesn't look too bad, my friend was really impressed. It just looks a bit bouffy on top so hoping it might calm down a bit. One of the curly ones did make me look like a little old lady with a dodgy perm! The one I've chosen whilst not completely perfect looks as near to my real hair as I'm going to get (still looks like a wig to me though). I wore it to come home as my hair and underneath looked atrocious and I didn't have a hat. So at least that's something else I've got out of the way! Sent a picture to my mum and she didn't realise it was my wig, just said I needed a haircut! OH just thought I'd done something different with my hair. Smiley Frustrated

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Re: October 2017 Chemo Starters

Thanks Mai!

 

Well done SueW, yes I was surprised at how quickly I had the red wee, but it does go fairly quickly too, especially if you drink loads.  I hope you are at the cherry end of the scales too for the SEs. Take it easy now the worst is over hopefully!

Community Champion

Re: October 2017 Chemo Starters

Just wanted to wish you all the best ladies on your chemo journey. I'm from the May 2017 starters and had my last of 8 FEC-Ts a week ago.  It feels very daunting at the start but just keep looking after yourselves and it will all be behind you in no time at all. I did it and so can you. Feel free to pop over to our thread if you want to ask any questions.  We're a lovely, friendly bunch and we all have a lot of chemo experience now. Best wishes and enjoy the weekend. Xxx

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Re: October 2017 Chemo Starters

The red wee was so strange. At any other time it would send us straight to A&E.

Hoping to get out and about this weekend. Make the most of the nice weather.
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Re: October 2017 Chemo Starters

The red wee comes and goes very quickly.
Hopefully you will be at the 🍒Bakewell end of the side effects scale. Just take it easy for the rest of the day and drink loads x
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Re: October 2017 Chemo Starters

Just got out feel ok at the moment already got red wee lol x
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Re: October 2017 Chemo Starters

Hi Cassie, I've not had any afternoon naps at all either, although I have expect that'll change as I get further into the treatment. I'm also working from home this week and planning to go into the office next week. I was on steroids for the first 3 days after chemo but was told to take them all first thing in the morning (probably why no naps during the day)!

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Re: October 2017 Chemo Starters

My sleep pattern has been ok. Been getting around 8 hours per night. Only had afternoon naps the first couple of days after chemo. Though I didn't have any steroids to take after chemo so I think that helped. Last 2 mornings I've woken up with a headache which wears off. I tend to feel better later in the day. I've been working from home this week which has been good to keep my mind ticking over.
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Re: October 2017 Chemo Starters

Hi chaffinch, you're probably right with the doing more on the good days. I've been lucky as I seem to have good days all this week and am more or less back to normal apart from my sleep. I don't normally have a problem with that but I either can't get to sleep or I wake up at 3-4 and then can't back to sleep again. Last night I probably nodded off at about 12 but I did manage to sleep until 6.

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Re: October 2017 Chemo Starters

Best wishes SueW, Jelly Tot and mrsrims and any other chemo starters today.
I think the good day followed by bad day thing is true because we tend to seize the good days and do a lot so we pay the following day. I actually felt close to normal until just before bed last night then I crashed and felt queasy had some banana and yoghurt and went straight to bed slept well and just feel a bit tingly and tired this morning. My sleep pattern has returned to normal which is good but I’m having to be strict with myself to keep it that way. Bed at 11-12 up at 8-9 no naps. I find if I try to go to bed earlier I can’t sleep and once I’m awake that’s it.
Off out to see Hollie McNish a spoken word poet at our local literature festival tomorrow evening, I’m looking forward to it. It’s the only event which we booked this year normally we do quite a few. I’ll be the one in the corner in the surgical mask 😷 lol
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Re: October 2017 Chemo Starters

Runnerbean, I know the DVT must've been a big blow especially with thought of the daily injections but at least you're not too apart from that so that's something good to focus on!

 

Karana, I know what you mean about not wanting to look like a cancer patient. I have a crocheted slouchy hat I made last winter and plan to make some more I think, as I'm not really happy with the ones I've bought. I've been wearing it already as with the cold capping I'm only washing my hair once a week and by the end of the week it looks pretty rough!

 

let us know how you go today ladies!