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October 2017 Chemo Starters

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Re: October 2017 Chemo Starters

Morning Sue, I know it probably wasn’t funny in the middle of the night but you made me laugh. Reminded me of the time a big spider ran across my foot when I was on the loo and I jumped up! xx
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Re: October 2017 Chemo Starters

I'm feeling quite jittery today too...and also not ill enough to not be doing anything but don't know what I shld be doing!  Took dog for another walk and waved off my sister now I'm feeling a bit lost..!!  Eating melon as I seem to be liking that!! Xx

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Re: October 2017 Chemo Starters

Feeling jittery does seem to be a thing. I blamed it on the steroids at first but I’m not convinced. I’ve not had any since lunchtime yesterday but still feel a bit that way and my skin feels stretched and a bit spikey too.
Glad that you seem to be doing ok Runnerbean 🙂
We are all so different which must make treating us quite a challenge!
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Re: October 2017 Chemo Starters

Yes reiki at 2 healer coming to my house
Hope I lie down whilst it’s done cause if I am on a chair and fall asleep could end up falling off lol x
Just do what you can when you can be guided by your body x
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Re: October 2017 Chemo Starters

Runnerbean, good to hear you're doing well and I hope it continues for you. 

 

SueW sorry to hear you didn't sleep well but you have your reiki today? You'll probably fall asleep during that lol.

 

Woke up feeling really anxious for some reason this morning and a bit jittery (hadn't taken any meds since yesterday am, so don't think it can be that). Just been to Tesco to do weekly shop felt a bit sick and giddy whilst walking round then started to get into a panic but was ok once I got home. Now back on sofa, not really sure what to do with myself as I don't really feel tired or ill but every time I try and do something I don't feel quite right either! 

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Re: October 2017 Chemo Starters

Morning runnerbean I had a dreadful nights sleep but probably because at the moment I have to save all my wee for testing (medical reasons) and at 4am whilst trying to wee in a jug whilst still half asleep I managed to wee on my feet so jumped in the shower to wash them. Bit of a mistake as it woke me up completely should have just got out baby wipes 🤣🤣x
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Re: October 2017 Chemo Starters

 
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Re: October 2017 Chemo Starters

Morning ladies, hope you had a restful night. I still have no side effects other than fatigue and feeling like I need to eat anything that isn’t nailed down after my steroids in the morning! Maybe the side effects will hit me a bit later in the cycle but reading all your up dates is does show how different it can be for everyone. xx
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Re: October 2017 Chemo Starters

They did with me cherry so my gp gave me cyclizine, which works on the brain. I only took 1 then didnt need any more. I think nothing is a given. You just have to see xc
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Re: October 2017 Chemo Starters

 

Hey, Ali, just read your post with interest. I know we're on slightly different chemo regimes which might be why I'm having an easier time of it than you are but one thing I wanted to flag up was that I never used the domperidone at all. I took the ondansetron as they were prescribed but the domperidone were optional/as and when and as I didn't really have any nausea I didn't really see the need for them. I'm wondering if they maybe add to the side effects given what you say about them working on the heart... 

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Re: October 2017 Chemo Starters

Evening Ladies

Just wanted to reassure you all.......it is normal to still feel tired at this stage. The first cycle is almost the hardest because it's such a steep learning curve. Its trying to work out whether what you're feeling is just a side effect or is there something wrong?

Its a good idea to keep a diary, because there is a pattern to each cycle. 

I know all hospitals vary, but I was given a red book with all the relevant phone numbers in. If you feel that there is a problem, please phone the nurses on the chemo ward or the out of hours drs. There really won't mind and will be happy to help.

In terms of fluid intake......try to drink 2 litres a day, especially straight after the chemo, to flush it all through. Squash is fine, but some say that tea and coffee doesn't count. 

Hope this helps

Sue xx

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Re: October 2017 Chemo Starters

Donperidone made me feel funny. It works on the heart so made me dizzy, a bit sick and a bit of a fast heartbeat. I had felt great but the next day felt fluey and then had awful back pain. I didnt have a temp but just felt awful. The nurses never mind you checking in with them. Hope you all have a good night and feel better xxx
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Re: October 2017 Chemo Starters

Claire bell yay another marmite lover xxx lol
Nice to hear some of you doing so well and the rest of you who are feeling a little fragile hope you feel better soon
Hugs to each and everyone of you xxx
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Re: October 2017 Chemo Starters

karana, good to hear you're doing well. Yes today hasn't been too bad took one donperidone earlier today but nothing since. Friends came round but didn't stay long which was nice. I do keep having the old 30 mins of not quite feeling right and a bit of anxiety (no idea why), mainly mid morning and early evening.

 

Chaffinch, Claire-bell I also had an acidey feeling yesterday evening I think it's because I overdid it a bit with fatty, acid food (my friend bought me a little bake well tart, then I had cheese on toast with some tomatoes). Today I've stuck to plainer stuff and feel much better. I think I've also worked out that early evening is when I seem to feel the worst but am ok once I've eaten.

 

now also watching strictly!

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Re: October 2017 Chemo Starters

Well done Karana! Hope you had a nice time with your sis? I've had exhaustion hit me hard today - it's day 9 and I had thought things were getting better. Quite a lot of acid feeling in my tummy and just feel listless. Lovely to have my mum here and she's making me some soup and marmite on toast so that might perk me up in time for Strictly! Have a good evening all hugs xx
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Re: October 2017 Chemo Starters

Sorry to hear you've gone downhill Chaffinch hope u start feeling better sonon! Meesha sounds like your having a good day...well done!

I've done quite well today managed to eat a small bowl,of mash potatoe and some pasta this eve..took dog for 30 min walk with my sis and now watching strictly! Feeling a bit acidy tho! Hope the rest of you are managing!! Xx
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Re: October 2017 Chemo Starters

How are you Ali49?
I nearly rang my helpline when I woke up after an hour’s sleep feeling awful with a ball of acid in my stomach and feeling like my skin had been stretched on stalks. I was shivering after being sick but I drank some water took a lansoprazole and managed to get some sleep so it passed. It is so scary not knowing what is normal and what isn’t.
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Re: October 2017 Chemo Starters

I just feel really tired really. And not very energetic but then again I've had little to eat in last 24 hours so that's not going to help. Random readings on thermometers but not over the limit. I don't know if it's just my mind running away with me. How did you feel when you phoned the nurses Ali?
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Re: October 2017 Chemo Starters

Casdie you just take care and dont take chances. If your temp is up ring nurses. My temp was fine but i felt awful. Xxc
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Re: October 2017 Chemo Starters

Hope everyone's ok. I'm still really tired. Spent the day on the sofa. I don't have the flushes that I had yesterday. Been keeping an eye on my temp and even tho I have 2 thermometers neither seems to give me the same reading twice. I thinking just get a bit paranoid as my husband has gone out and I'm home alone. Ive Been feeling a bit weak but then again I haven't eaten much in over 24 hours. It's amazing how your mind can run away with you.
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Re: October 2017 Chemo Starters

Thanks Cassie x
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Re: October 2017 Chemo Starters

Drink whatever you want I think Sue. I wasn't advised by doctor to drink before going it's only what people have said on here. I was advised to drink plenty after to flush the drugs out.
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Re: October 2017 Chemo Starters

Hi ladies lovely to read your updates x hope you are all well x
Can I ask a question drinking the water before chemo does it need to be plain water or is squash okay? Xx
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Re: October 2017 Chemo Starters

Ali49 thinking of you and wishing you well x
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Re: October 2017 Chemo Starters

Just managed to eat a small plate of bacon, egg, tomato and mushrooms. I’m amazed because an hour before I struggled to eat half a crumpet. Like last night I feel better for real food, long may it continue. Quite fancy a walk now too!
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Re: October 2017 Chemo Starters

Runnerbean, sounds like you had a really good first night and fingers crossed for you that it stays that way.

 

Karana enjoy your time with your sister, mine came to see me last weekend as I think she also wanted to see my new short do in case the cold cap doesn't work and I lose it all! I also think they find it hard when they're a long way away and can't just pop in for quick visits. I also find I get a bit emotional when I know I've got people coming as I don't want them to worry about me.

 

chaffinch, sorry to hear you had a rough night, hope you feel better today.

 

claire-bell, it's good to keep looking for the positive things even when you experience little set backs I really admire your spirit for being able to do that as it's easy for it to get you down.

 

cassie, hope you managed a good night sleep and are feeling recovered from your exertion yesterday!

 

I am on day 4 after chemo now and no meds today. Feel ok at the moment, done 30 mins of gentle yoga this morning as heard that can be good and haven't really done any since before surgery. Have some more friends popping in briefly this morning, am going to have to ask them to excuse my hair as it looks a right state. After cold capping Was told to try to only wash it once a week and be gentle with it. Have been just putting fingers through it a bit to fluff it up but doesn't look good!

 

Hope everyone else is doing ok. 

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Re: October 2017 Chemo Starters

Karana
Enjoy your time with your sister. Epsom salts in the bath are brill for aches and pains.xx

Chaffinch and Clare bell
Hope you both pick up today! One day at a time is a good thing to follow and when you do feel good, its a great feeling. Lots of ginger drops and pineapple cubes for the nausea helps.xx

Runnerbean
Glad you are feeling good and I know whst you nean by waiting to see what SE you might get...but you might not. Lets hope so. Fatigue and funny taste buds can be dealt with, I made sure plenty of fluid to wash out and lemon in water or herbal teas.xx
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Re: October 2017 Chemo Starters

I'm doing ok....felt a bit panicky last nite...in bed by 9 but with a busy pub downstairs it wasn't easy to sleep...maybe need to get some ear plugs!  Feeling bit strange this morning, bit emotional!  Gonna have some breakfast and hot bath and put smile on my face as my sister is arriving for a flying visit this morning and she lives 230 miles away!! Think she just needs to see me before my hair falls out 😂 

 

sorry to to hear your not feeling great Chaffinch 

 

keep going girlies your your all doing great xxx

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Re: October 2017 Chemo Starters

I had a good evening but then a rough start to the night. I didn’t think that I would sleep then did for 2 hours and woke up feeling like someone had stretched my skin over poles and I was cold and had a acidic ball in my stomach. I was sick and then very shivery my temp was normal so I drank some water had a Lansoprazole which I am already on for stomach acid and thought about ringing the helpline but decided that I would try to get some more sleep which I managed in snatches. Very dehydrated this morning but not feeling too bad. Only had one steroid tablet with one weetabix and I’m hoping that will stay down.
Hope other ladies ok
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Re: October 2017 Chemo Starters

Hey everyone,
Hope you are ok Ali? Thought day 7 was a turning point but felt so tired and nauseous again yesterday and still have a headache this morning. I guess what I'm reading is we can only take a day at a time, and even within that day you can feel vastly different from morning to evening. I'm trying to listen to my body eat small meals regularly and drink as much water as I can. The mouth ulcers and spots have come today but I have a moulin rouge dinner party to go to Friday so I'm enjoying planning my outfit and having something to get dressed up for! Silver linings and all that! Hugs to you all xxC
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Re: October 2017 Chemo Starters

Morning everyone, hope you all had restful nights. Update following on from first fec yesterday is that nothing has happened. Feel a bit lethargic but no sickness or headaches and managed a full 8 hours sleep only getting up once for the loo in the night. I have had my sea bands on so that may have helped and my mouth is dry so drinking plenty of water. Fingers crossed when the side effects do catch up with me they are manageable xx
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Re: October 2017 Chemo Starters

Hi Ali
Sorry to see you are in hospital but its the best place to be right now and you can rest assured they will get you well enough again to go home. Lots of love.xxx
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Re: October 2017 Chemo Starters

 
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Re: October 2017 Chemo Starters

I'm thinking that Sue I've done more today than I have recently put together. I'm on day 9 chemo was last Thursday. Temp is ok I'm probably just tired.
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Re: October 2017 Chemo Starters

Hi Cassie

You might have just overdone it abit. Remind me....what day are you on?

Keep an eye on your temperature and keep up your fluid intake.

Phone your helpline if you're worried.

Sue xx

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Re: October 2017 Chemo Starters

Feeling a bit rubbish this evening. Don't know if I'm over tired. Feeling really flush in my face. Very tired. Temperature is a little higher than it has been but not over 37.5.
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Re: October 2017 Chemo Starters

Glad that I’m not the only one who loves sprouts 🙂
I managed a couple of thin slices of homemade sausage roll with a few sprouts a tiny sliced courgette and some spinach for tea. I wouldn’t have believed that earlier in the day. My hubby was making the sausage rolls for him and at first the smell was nauseating but as it carried on I thought I would try it. He brought me a thin slice which I could hardly eat but once that had gone down I asked for a couple of more with about 4 sprouts but the plate cane back with 3 slices and the other veg. I have to say that I have felt so much better for eating real food, he’s a star 🙂
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Re: October 2017 Chemo Starters

 
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Re: October 2017 Chemo Starters

Ha ha it rejected @ss at first so changed to butt then ended up with posting twice
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Re: October 2017 Chemo Starters

Hi jelly tot 4 of us I know if now on Friday 13th x we can be the power rangers and kick cancers butt x lol
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Re: October 2017 Chemo Starters

Hi jelly tot 4 of us I know if now on Friday 13th x we can be the power rangers and kick cancers @ss x lol
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Re: October 2017 Chemo Starters

Hi all.
I'm starting treatment (ec) on Friday 13th too, so am hoping to spend next few days spring cleaning and stocking up. Reading everyone's posts over the last few weeks has helped me to be as prepared as possible and I just want to get on with it now! All of you who have already started are a wonderful inspiration and I am so grateful for your advice. Hugs to all xx
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Re: October 2017 Chemo Starters

I will be housebound (ish) over the weekend as I have to collect all my wee Saturday Sunday and Monday for adrenal gland testing. Can’t risk needing a wee iutvand anout lol x but have got my reiki on Sunday to look forward too x
Sprouts are my favourite veg x
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Re: October 2017 Chemo Starters

Hi SueW and everyone. I'm at the stage now where I feel ok in myself. And my brain thinks I can go do stuff as normal. However my body has other ideas. I needed to go to the fruit and veg shop to get some stuff. It's 5 minutes drive away but took me half an hour as I went for a drive just to get out of the house for a bit. Then visited my allotment where I am currently growing more sprouts then I think i know what to do with. Now feeling really tired. It's pretty much the most I've done so far and it's tired me out.
On the plus side I had a massive lovely fresh salad that I bought from the fruit and veg shop and it was delish! After living on biscuits sweets toast and jacket potatoes I had a craving for a lovely fresh salad.

What a everyone got planned for the weekend?

Cassie x
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Re: October 2017 Chemo Starters

Well done Runnerbean! Take it easy for a few days! Hope you manage to get a good nights sleep.

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Re: October 2017 Chemo Starters

Hi Sam have a restful weekend x
Runnerbean we will get to the end of our treatments soon enough
Ali how you feeling now
Chaffinch hope you are rested and a bit more mobile now
Cassie hope your day been good
Karana hope your okay too
Marg and Mrs sims 1 week to our turn
Hope I not missed anyone xx if I have apologies xx
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Re: October 2017 Chemo Starters

Hi chaffinch17 I'm resting now all weekend xxx
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Re: October 2017 Chemo Starters

Hope you feel better soon Ali49. I’m back at home now after my first session and don’t feel too bad. Just kind of sat here waiting for something to happen now but I have plenty of pills for all eventualities! Got a bit upset as a woman was ringing the bell for her last treatment and i just really wanted that to be me but it will be in January which isn’t too far away. Xx
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Re: October 2017 Chemo Starters

Yes chaffinch hubby and daughter had cold. I am day 10 today. Felt great day 8 but went a bit awol yesterday. Hope you are ok x
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Re: October 2017 Chemo Starters

Well done you! I can barely leave the sofa today, I did feel ok for a few hours yesterday afternoon though and I think you are a day behind me. Don’t overdo it.
Make sure that you drink enough, it does help and flushes away the nasties too.